{"id":39470,"date":"2023-05-10T14:16:58","date_gmt":"2023-05-10T12:16:58","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=39470"},"modified":"2023-05-10T14:16:58","modified_gmt":"2023-05-10T12:16:58","slug":"pacienti-s-celiakii-zadaji-o-prispevek-na-lecbu-tou-je-jidlo-bez-lepku","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=39470","title":{"rendered":"Pacienti s\u00a0celiaki\u00ed \u017e\u00e1daj\u00ed o p\u0159\u00edsp\u011bvek na l\u00e9\u010dbu \u2013 tou je j\u00eddlo bez lepku"},"content":{"rendered":"\n

Stovky pacient\u016f se u\u017e podepsaly pod petici za p\u0159\u00edsp\u011bvek na l\u00e9\u010dbu celiakie \u2013 autoimunitn\u00edho onemocn\u011bn\u00ed, p\u0159i kter\u00e9m doch\u00e1z\u00ed k\u00a0chronick\u00e9mu z\u00e1n\u011btu tenk\u00e9ho st\u0159eva. Petice upozor\u0148uje na fakt, \u017ee a\u010dkoliv jedinou mo\u017enou l\u00e9\u010dbou je p\u0159\u00edsn\u00e1 celo\u017eivotn\u00ed bezlepkov\u00e1 dieta, poji\u0161\u0165ovny ji nepropl\u00e1c\u00ed. P\u0159itom lid\u00e9, kte\u0159\u00ed mus\u00ed dietu dodr\u017eovat, zaplat\u00ed ka\u017ed\u00fd m\u011bs\u00edc v\u00a0obchodech s\u00a0potravinami p\u0159ibli\u017en\u011b o 3 000 K\u010d v\u00edce ne\u017e ti, jim\u017e lepek v\u00a0j\u00eddle nevad\u00ed. Pacienti o tom informuj\u00ed u p\u0159\u00edle\u017eitosti Mezin\u00e1rodn\u00edho dne celiakie, kter\u00fd p\u0159ipad\u00e1 na 16. kv\u011btna. Podpisy budou sb\u00edrat i na F\u00f3ru celiak\u016f, kter\u00e9 se kon\u00e1 o \u010dty\u0159i dny pozd\u011bji v\u00a0Praze.<\/strong><\/p>\n\n\n\n

\u201eC\u00edlem petice je nashrom\u00e1\u017edit v\u00edce ne\u017e 10 000 podpis\u016f a p\u0159edlo\u017eit ji peti\u010dn\u00edmu v\u00fdboru poslaneck\u00e9 sn\u011bmovny. Z\u00e1rove\u0148 je to tak\u00e9 zp\u016fsob, jak na probl\u00e9m chyb\u011bj\u00edc\u00edch \u00fahrad l\u00e9\u010dby upozornit ve\u0159ejnost,\u201c<\/em> vysv\u011btluje pacient s\u00a0celiaki\u00ed Ji\u0159\u00ed-Jakub Z\u00e9vl, inici\u00e1tor petice, kterou organizuje Spole\u010dnost pro bezlepkovou dietu. Finan\u010dn\u00ed n\u00e1ro\u010dnost bezlepkov\u00e9 diety m\u016f\u017ee podle n\u011bj \u010dasto v\u00e9st k\u00a0jej\u00edmu poru\u0161ov\u00e1n\u00ed. To se \u010dasem projev\u00ed na zdravotn\u00edm stavu pacienta a\u00a0v\u00a0kone\u010dn\u00e9m d\u016fsledku tak\u00e9 na v\u011bt\u0161\u00edm finan\u010dn\u00edm zat\u00ed\u017een\u00ed zdravotn\u00edho syst\u00e9mu. <\/p>\n\n\n\n

\u201ePacient\u016fm, kte\u0159\u00ed celiakii nel\u00e9\u010d\u00ed, hroz\u00ed cel\u00e1 \u0159ada komplikac\u00ed. Pat\u0159\u00ed mezi n\u011b nap\u0159\u00edklad osteopor\u00f3za, an\u00e9mie, zhor\u0161en\u00ed reproduk\u010dn\u00ed schopnosti, n\u00e1dorov\u00e1 onemocn\u011bn\u00ed nebo vznik dal\u0161\u00edch autoimunitn\u00edch chorob,\u201c<\/em> vyjmenov\u00e1v\u00e1 doc. MUDr. Pavel Kohout, Ph.D., p\u0159ednosta Intern\u00ed kliniky 3. LF UK a\u00a0Fakultn\u00ed Thomayerovy nemocnice v\u00a0Praze a sou\u010dasn\u011b p\u0159edseda Pracovn\u00ed skupiny pro celiakii \u010cesk\u00e9 gastroenterologick\u00e9 spole\u010dnosti \u010cLS JEP. Pr\u00e1v\u011b tato odborn\u00e1 spole\u010dnost nyn\u00ed jedn\u00e1 o \u00fahrad\u011b l\u00e9\u010dby s ministerstvem zdravotnictv\u00ed. <\/p>\n\n\n\n

\u201eJednou z\u00a0variant \u0159e\u0161en\u00ed je zm\u011bna z\u00e1konn\u00e9 normy, kter\u00e1 podl\u00e9h\u00e1 schvalov\u00e1n\u00ed v\u00a0obou komor\u00e1ch parlamentu, a to je b\u011bh na dlouhou tra\u0165. Usilujeme proto o to, aby poji\u0161\u0165ovny pacient\u016fm p\u0159isp\u00edvaly odpov\u00eddaj\u00edc\u00ed \u010d\u00e1stkou z\u00a0fondu prevence,\u201c <\/em>shrnuje doc. Kohout.<\/p>\n\n\n\n

Pacienti si u\u017e nyn\u00ed mohou u n\u011bkter\u00fdch poji\u0161\u0165oven o p\u0159\u00edsp\u011bvek na bezlepkovou stravu za\u017e\u00e1dat individu\u00e1ln\u011b. Jeho v\u00fd\u0161e se pohybuje v rozmez\u00ed od 1 000 do 10 000 K\u010d na rok. N\u011bkter\u00e9 poji\u0161\u0165ovny v\u0161ak p\u0159\u00edsp\u011bvek poskytuj\u00ed pouze d\u011btem, jin\u00e9 maj\u00ed zp\u016fsob \u010derp\u00e1n\u00ed natolik slo\u017eit\u00fd, \u017ee jej pacienti nevyu\u017e\u00edvaj\u00ed. Nap\u0159\u00edklad poji\u0161t\u011bnci Oborov\u00e9 zdravotn\u00ed poji\u0161\u0165ovny mohou z\u00edskat a\u017e 10 000 K\u010d prost\u0159ednictv\u00edm kreditn\u00edho syst\u00e9mu. Pr\u016fm\u011brn\u011b v\u0161ak v roce 2021 \u010derpali pouze 379 korun na osobu.<\/p>\n\n\n\n

\u201eVysok\u00e1 cena bezlepkov\u00fdch potravin p\u0159itom nen\u00ed jedin\u00fd probl\u00e9m, se kter\u00fdm se lid\u00e9 s celiaki\u00ed pot\u00fdkaj\u00ed. \u0160koln\u00ed j\u00eddelny nemaj\u00ed povinnost va\u0159it nemocn\u00fdm d\u011btem speci\u00e1ln\u00ed stravu. Rodi\u010de tak mus\u00ed bu\u010f zajistit vlastn\u00ed ob\u011bdy, nebo se obr\u00e1tit na takovou \u0161kolu \u010di \u0161kolku, kter\u00e1 jim vyjde vst\u0159\u00edc, co\u017e ale v\u011bt\u0161inou znamen\u00e1 del\u0161\u00ed doj\u00ed\u017ed\u011bn\u00ed. Bezlepkov\u00e1 dieta tak vy\u017eaduje nejen dostatek pen\u011bz, ale klade i vy\u0161\u0161\u00ed n\u00e1roky na \u010das,\u201c<\/em> dopl\u0148uje Ing. Ivana L\u00e1\u0161kov\u00e1, p\u0159edsedkyn\u011b pacientsk\u00e9 organizace Spole\u010dnost pro bezlepkovou dietu z.s.<\/p>\n\n\n\n

Sv\u016fj podpis pod petici mohou lid\u00e9 p\u0159ipojit nap\u0159\u00edklad na webu Port\u00e1l ob\u010dana. Pro z\u00e1jemce, kte\u0159\u00ed se cht\u011bj\u00ed zapojit p\u0159\u00edmo do sb\u011bru podpis\u016f, jsou na str\u00e1nk\u00e1ch Spole\u010dnosti pro bezlepkovou dietu p\u0159ipraveny peti\u010dn\u00ed archy ke sta\u017een\u00ed. Osobn\u011b bude mo\u017en\u00e9 petici podepsat na 18. ro\u010dn\u00edku F\u00f3ra celiak\u016f, kter\u00e9 se kon\u00e1 20. kv\u011btna v pra\u017esk\u00e9m PVA EXPO v Let\u0148anech. Cel\u00fd den zde budou p\u0159edn\u00e1\u0161et p\u0159edn\u00ed odborn\u00edci na problematiku celiakie a bezlepkov\u00e9 diety. Mluvit budou nap\u0159\u00edklad o tom, jak zvl\u00e1dnout bezlepkov\u00e9 stravov\u00e1n\u00ed mimo domov, jak\u00fd je vztah mezi celiaki\u00ed a nesn\u00e1\u0161enlivost\u00ed lakt\u00f3zy, jak dopadlo testov\u00e1n\u00ed bezlepkov\u00fdch potravin nebo jak\u00e9 soci\u00e1ln\u00ed ot\u00e1zky jsou spojen\u00e9 se \u017eivotem na bezlepkov\u00e9 diet\u011b. Podrobnosti o akci jsou na webu celiak.cz.<\/p>\n\n\n\n

Odborn\u00edci odhaduj\u00ed, \u017ee celiaki\u00ed trp\u00ed p\u0159ibli\u017en\u011b 1 % populace. Ne v\u0161ichni v\u0161ak o sv\u00e9 nemoc\u00ed v\u00ed. Jej\u00ed projevy jsou velmi rozmanit\u00e9, a mnohdy je proto obt\u00ed\u017en\u00e9 ji odhalit. V \u010cesk\u00e9 republice se s celiaki\u00ed l\u00e9\u010d\u00ed 25 000 pacient\u016f. \u201eP\u0159ibli\u017en\u011b 75 % pacient\u016f s celiaki\u00ed o sv\u00e9m onemocn\u011bn\u00ed v\u016fbec nev\u00ed,\u201c<\/em> dod\u00e1v\u00e1 doc. Kohout.<\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

Stovky pacient\u016f se u\u017e podepsaly pod petici za p\u0159\u00edsp\u011bvek na l\u00e9\u010dbu celiakie \u2013 autoimunitn\u00edho onemocn\u011bn\u00ed, p\u0159i kter\u00e9m doch\u00e1z\u00ed k\u00a0chronick\u00e9mu z\u00e1n\u011btu tenk\u00e9ho st\u0159eva. Petice upozor\u0148uje na […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":22174,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-39470","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nezarazene"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39470","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=39470"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39470\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/22174"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=39470"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=39470"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=39470"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}