Sen rodi\u010d\u016f o zdrav\u00e9m d\u00edt\u011bti se rozplynul ve chv\u00edli, kdy p\u0159i\u0161el o dva m\u011bs\u00edce d\u0159\u00edve na sv\u011bt jejich syn Vincek. Krv\u00e1cen\u00ed do mozku, po kter\u00e9m z\u016fstala velk\u00e1 jizva, je\u017e m\u00e1 na sv\u011bdom\u00ed epileptick\u00e9 z\u00e1chvaty, ment\u00e1ln\u00ed retardaci i sn\u00ed\u017eenou schopnost porozum\u011bt druh\u00fdm, jim v\u0161em zm\u011bnila \u017eivot. Ze dne na den se rodin\u011b zhroutil sv\u011bt.<\/p>\n\n\n\n
N\u011bkdy se stane, \u017ee se sen va\u0161eho \u017eivota prom\u011bn\u00ed v no\u010dn\u00ed m\u016fru, ze kter\u00e9 se nem\u016f\u017eete probudit. Pro\u010d pr\u00e1v\u011b my? Pro\u010d se to stalo, kdy\u017e bylo celou dobu v\u0161e v po\u0159\u00e1dku? Takov\u00e9 ot\u00e1zky si jist\u011b pokl\u00e1d\u00e1 mnoho rodi\u010d\u016f, jejich\u017e d\u00edt\u011b, nebo dokonce d\u011bti, se pot\u00fdkaj\u00ed se zdravotn\u00edmi probl\u00e9my, kter\u00e9 je omezuj\u00ed nebo ohro\u017euj\u00ed na \u017eivot\u011b.<\/p>\n\n\n\n
\u010casto pak m\u016f\u017eete od rodi\u010d\u016f t\u011bchto d\u011bt\u00ed sly\u0161et tvrzen\u00ed typu: \u201eVa\u017ete si toho, \u017ee va\u0161e d\u011bti zlob\u00ed. Nemocn\u00e9 d\u011bti na to \u010dasto nemaj\u00ed ani s\u00edlu.\u201c<\/p>\n\n\n\n
\u201eKdy\u017e se narodil Vincek, zhroutil se n\u00e1m cel\u00fd sv\u011bt a byli jsme nuceni zm\u011bnit n\u00e1\u0161 \u017eivot od z\u00e1klad\u016f,\u201c \u0159\u00edk\u00e1 otec chlapce, kter\u00fd se p\u0159ed\u010dasn\u011b narodil ve 30. t\u00fddnu a od t\u00e9 doby \u0161lo v\u0161e z kopce.<\/p>\n\n\n\n
M\u011bl pr\u00fd v\u0161e dohnat<\/p>\n\n\n\n
Kdy\u017e se Vincek narodil, nikdo nev\u011bd\u011bl, jak\u00fdm zp\u016fsobem se bude vyv\u00edjet jeho zdravotn\u00ed stav d\u00e1l. L\u00e9ka\u0159i rodi\u010d\u016fm tvrdili, \u017ee kdy\u017e budou cvi\u010dit dle doporu\u010den\u00ed, existuje ur\u010dit\u00e1 pravd\u011bpodobnost, \u017ee v\u0161e do\u017eene. Ov\u0161em jistotu jim d\u00e1t nemohli, jak tomu u podobn\u00fdch p\u0159\u00edpad\u016f b\u00fdv\u00e1.<\/p>\n\n\n\n
N\u011bkolik prvn\u00edch t\u00fddn\u016f str\u00e1vil mal\u00fd Vincek v inkub\u00e1toru a jeho \u017eivotn\u00ed funkce i dech kontrolovaly p\u0159\u00edstroje. Po \u010dase za\u010dal d\u011blat ur\u010dit\u00e9 pokroky a proch\u00e1zel postupn\u011b st\u00e1dii v\u00fdvoje podobn\u011b jako ostatn\u00ed zdrav\u00e9 d\u011bti. Jen mnohem pomaleji a s ur\u010dit\u00fdmi abnormalitami.<\/p>\n\n\n\n
\u201eVinck\u016fv v\u00fdvoj prob\u00edhal pomaleji, a dokonce to vypadalo, \u017ee je hluch\u00fd, neukazoval, nem\u011bl o\u010dn\u00ed kontakt, nezaj\u00edmal se o hra\u010dky, hodn\u011b padal, byl neust\u00e1le unaven\u00fd a \u010dasto v\u016fbec nevn\u00edmal okol\u00ed a hr\u00e1l si s\u00e1m,\u201c popisuje prvn\u00ed roky se synem maminka Mark\u00e9ta, kter\u00e1 u\u017e tenkr\u00e1t tu\u0161ila, \u017ee je n\u011bco \u0161patn\u011b.<\/p>\n\n\n\n
Hled\u00e1n\u00ed na vlastn\u00ed p\u011bst<\/p>\n\n\n\n
\u201eL\u00e9ka\u0159i m\u011b v\u0161ak neust\u00e1le uji\u0161\u0165ovali, \u017ee m\u00e1m b\u00fdt trp\u011bliv\u00e1, \u017ee v\u0161e do\u017eene,\u201c pokra\u010duje Vinckova maminka. Ch\u00e1pala v\u0161ak, \u017ee ti, kdo znaj\u00ed sv\u00e9ho syna nejl\u00e9pe, jsou ona a jej\u00ed mu\u017e, a proto se rozhodla za\u010d\u00edt hledat odborn\u00edky na vlastn\u00ed p\u011bst a na\u0161la synovi logopedii, ergoterapii, a nakonec i neurologa v jin\u00e9m m\u011bst\u011b, ne\u017e kde bydleli. Pak u\u017e to podle n\u00ed \u0161lo r\u00e1z na r\u00e1z.<\/p>\n\n\n\n
\u201eKdy\u017e \u0161el Vincek poprv\u00e9 na EEG mozku a na magnetickou rezonanci, bylo mu hned diagnostikov\u00e1no n\u011bkolik nemoc\u00ed. Mimo jin\u00e9 epilepsie, DMO, v\u00fdvojov\u00e1 dysf\u00e1zie, lehk\u00e1 ment\u00e1ln\u00ed retardace, ADHD a autistick\u00e9 projevy chov\u00e1n\u00ed,\u201c jmenuje n\u011bkter\u00e9 diagn\u00f3zy maminka.<\/p>\n\n\n\n
Jizva, kter\u00e1 m\u016f\u017ee za v\u0161e<\/p>\n\n\n\n
V\u011bt\u0161inu probl\u00e9m\u016f v\u0161ak zp\u016fsobuje jizva, kter\u00e1 po krv\u00e1cen\u00ed do mozku p\u0159i narozen\u00ed roste spole\u010dn\u011b s Vinckem. \u201eKolem jizvy jsou velk\u00e9 gliosy, kter\u00e9 zasahuj\u00ed p\u0159es t\u0159i \u010dtvrtiny mozku. M\u016f\u017eete si je p\u0159edstavit jako hustou mlhu,\u201c vysv\u011btluje p\u0159\u00ed\u010dinu v\u0161ech probl\u00e9m\u016f pan\u00ed Mark\u00e9ta.<\/p>\n\n\n\n
Boj o synovo zdrav\u00ed ale nikdy nevzd\u00e1 a neust\u00e1le ho doprov\u00e1z\u00ed na r\u016fzn\u00e9 terapie, jako nap\u0159\u00edklad fyzioterapii, ergoterapii, hipoterapii nebo logopedii. Pravideln\u011b s n\u00edm doch\u00e1z\u00ed i na kontroly na neurologii, ORL, ortopedii, EEG, psychologii, psychiatrii a dal\u0161\u00ed pracovi\u0161t\u011b.<\/p>\n\n\n\n
Ka\u017edodenn\u00ed cesty k uzdraven\u00ed<\/p>\n\n\n\n
Kv\u016fli onemocn\u011bn\u00ed syna nav\u00edc nem\u016f\u017ee pan\u00ed Mark\u00e9ta vykon\u00e1vat sv\u00e9 povol\u00e1n\u00ed, jeliko\u017e je pe\u010duj\u00edc\u00ed osobou, kter\u00e1 se o Vincka star\u00e1 cel\u00e9 dny. S man\u017eelem voz\u00ed syna i jeho mlad\u0161\u00ed sestru do \u0161koly a \u0161kolky vzd\u00e1len\u00e9 n\u011bkolik kilometr\u016f, neust\u00e1le doj\u00ed\u017ed\u00ed na terapie, do vzd\u00e1len\u00fdch l\u00e1zn\u00ed, k l\u00e9ka\u0159\u016fm, a jejich v\u016fz jim na to p\u0159est\u00e1v\u00e1 sta\u010dit.<\/p>\n\n\n\n
\u201ePot\u0159ebujeme nutn\u011b velk\u00fd, bezpe\u010dn\u00fd a spolehliv\u00fd automobil, do kter\u00e9ho nalo\u017e\u00edme v\u0161echny pot\u0159ebn\u00e9 v\u011bci, pom\u016fcky, voz\u00edk a v\u0161e ostatn\u00ed, co je sou\u010d\u00e1st\u00ed Vinckova t\u011b\u017ek\u00e9ho \u017eivota,\u201c vysv\u011btluje pot\u0159ebu, kter\u00e1 je v\u0161ak aktu\u00e1ln\u011b mimo finan\u010dn\u00ed mo\u017enosti rodiny. I proto zalo\u017eili sb\u00edrku, ve kter\u00e9 \u017e\u00e1daj\u00ed lidi o pomoc. Odkaz na sb\u00edrku naleznete na konci \u010dl\u00e1nku.<\/p>\n\n\n\n
Nikdo nev\u00ed, co bude d\u00e1l<\/p>\n\n\n\n
A\u0165 u\u017e bude Vincek cvi\u010dit sebev\u00edc, nikdy to v \u017eivot\u011b nebude m\u00edt snadn\u00e9. Nemoci ho podle rodi\u010d\u016f i l\u00e9ka\u0159\u016f budou prov\u00e1zet po cel\u00fd \u017eivot a v\u017edy bude pot\u0159ebovat m\u00edt u sebe n\u011bkoho, kdo se o n\u011bj bude starat. V tuto chv\u00edli tu jsou v\u0161ak pro n\u011bj jeho rodi\u010de, kte\u0159\u00ed mu pom\u00e1haj\u00ed v dal\u0161\u00edm rozvoji.<\/p>\n\n\n\n
\u201eJsme tu pro syna a sna\u017e\u00edme se plnit jeho pot\u0159eby tak, jak nejl\u00e9pe um\u00edme. Sna\u017e\u00edme se mu pom\u00e1hat p\u0159ekon\u00e1vat bari\u00e9ry, p\u0159ibl\u00ed\u017eit jeho \u017eivot \u017eivotu vrstevn\u00edk\u016f. D\u011bl\u00e1me ale tak\u00e9 co m\u016f\u017eeme, abychom rozd\u011blili n\u00e1\u0161 \u010das mezi nemocn\u00e9ho syna a jeho mlad\u0161\u00ed sest\u0159i\u010dku, kter\u00e1 tak\u00e9 nem\u00e1 lehk\u00fd \u017eivot. Vyr\u016fstat vedle nemocn\u00e9ho br\u00e1\u0161ky pro ni nen\u00ed snadn\u00e9,\u201c mysl\u00ed si Vinck\u016fv tat\u00ednek Michal Abrh\u00e1m.<\/p>\n\n\n\n
Finan\u010dn\u00ed nedostupnost procedur<\/p>\n\n\n\n
Jako velk\u00fd probl\u00e9m rodi\u010de vid\u00ed i skute\u010dnost, \u017ee existuje cel\u00e1 \u0159ada terapi\u00ed, kter\u00e9 by byly pro jejich syna vhodn\u00e9, ov\u0161em b\u011b\u017en\u00fdm lidem nejsou dostupn\u00e9.<\/p>\n\n\n\n
\u201eV tuto chv\u00edli je pro n\u00e1s na prvn\u00edm m\u00edst\u011b n\u00e1kup automobilu, kter\u00fdm bychom mohli syna dov\u00e1\u017eet na pot\u0159ebn\u00e1 cvi\u010den\u00ed a do l\u00e1zn\u00ed. Obrovskou polo\u017ekou v na\u0161em rozpo\u010dtu jsou ov\u0161em tak\u00e9 n\u00e1klady na samotnou dopravu a platby terapi\u00ed. Nap\u0159\u00edklad hipoterapie stoj\u00ed i 700 korun za t\u0159i \u010dtvrt\u011b hodiny,\u201c vysv\u011btluje otec chlapce.<\/p>\n\n\n\n
S man\u017eelkou by r\u00e1di p\u0159ihl\u00e1sili Vincka i na robotickou neurorehabilitaci, ale toto cvi\u010den\u00ed je naprosto mimo jejich finan\u010dn\u00ed mo\u017enosti.<\/p>\n\n\n\n
Chcete-li rodin\u011b pomoci pokr\u00fdt n\u00e1klady na uzdraven\u00ed jejich chlapce Vincka, m\u016f\u017eete p\u0159isp\u011bt jakoukoliv \u010d\u00e1stkou ve sb\u00edrce, kterou naleznete ZDE: https:\/\/www.donio.cz\/velky-sen-o-velkem-aute-aneb-pomoc-pro-nemocneho-vincika?fbclid=IwAR1Ke-2-O_vZjazLXF06vy8dqN0Lo5vNvKgWOk5k8qRi_nxXxNBFNKKS08E<\/a>. Za ka\u017edou poslanou korunu rodi\u010de z cel\u00e9ho srdce p\u0159edem d\u011bkuj\u00ed.<\/p>\n\n\n\n Kate\u0159ina N\u011bmcov\u00e1<\/p>\n\n\n\n Den\u00edk.cz<\/p>\n\n\n\n https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Sen rodi\u010d\u016f o zdrav\u00e9m d\u00edt\u011bti se rozplynul ve chv\u00edli, kdy p\u0159i\u0161el o dva m\u011bs\u00edce d\u0159\u00edve na sv\u011bt jejich syn Vincek. Krv\u00e1cen\u00ed do mozku, po kter\u00e9m […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":600,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-39496","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39496","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=39496"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39496\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/600"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=39496"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=39496"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=39496"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}