Sebasti\u00e1n z obce Zru\u010d-Senec na Plze\u0148sku, kter\u00fd ve \u010dtvrtek 11. kv\u011btna oslavil sedm\u00e9 narozeniny, nem\u011bl u kol\u00e9bky pr\u00e1v\u011b ty nejhodn\u011bj\u0161\u00ed sudi\u010dky. Na sv\u011bt p\u0159i\u0161el s \u0159adou zdravotn\u00edch komplikac\u00ed.<\/p>\n\n\n\n
Dosud nemluv\u00ed ani nechod\u00ed, s\u00e1m se ani nepostav\u00ed. Je zcela odk\u00e1z\u00e1n na pomoc sv\u00e9 rodiny, kter\u00e1 se mu sna\u017e\u00ed zajistit maxim\u00e1ln\u00ed p\u00e9\u010di. Pot\u0159ebn\u00e9 rehabilitace, terapie a speci\u00e1ln\u00ed neurorehabilitace p\u0159ijdou rodinu na n\u011bkolik stovek tis\u00edc korun ro\u010dn\u011b.<\/p>\n\n\n\n
Seb\u00edk\u016fv v\u00fdvoj po narozen\u00ed nepostupoval tak, jak by m\u011bl. N\u00e1sledn\u011b mu byla diagnostikov\u00e1na d\u011btsk\u00e1 mozkov\u00e1 obrna spojen\u00e1 s ochablost\u00ed svalstva trupu a naopak zv\u00fd\u0161en\u00edm svalov\u00e9ho nap\u011bt\u00ed v doln\u00edch kon\u010detin\u00e1ch, co\u017e jej po motorick\u00e9 str\u00e1nce velmi limituje. K tomu mu l\u00e9ka\u0159i zjistili tak\u00e9 o\u010dn\u00ed vadu a ment\u00e1ln\u00ed posti\u017een\u00ed. Aby se posouval ve v\u00fdvoji vp\u0159ed, stoj\u00ed to jeho, ale i celou jeho rodinu, nemal\u00e9 \u00fasil\u00ed.<\/p>\n\n\n\n
\u201ePro pos\u00edlen\u00ed a zlep\u0161en\u00ed Seb\u00ed\u010dkova stavu doj\u00ed\u017ed\u00edme dvakr\u00e1t t\u00fddn\u011b na ergoterapii do Plzn\u011b, kde procvi\u010duje jemnou a hrubou motoriku, a u\u010d\u00ed se v\u011bt\u0161\u00ed samostatnosti ve vykon\u00e1v\u00e1n\u00ed denn\u00edch pot\u0159eb. Ka\u017ed\u00e9 \u00fater\u00fd a p\u00e1tek pak doch\u00e1z\u00ed do denn\u00edho stacion\u00e1\u0159e v Nezv\u011bstic\u00edch, kde m\u00e1 cel\u00fd den nabit\u00fd fyzioterapi\u00ed, ergoterapi\u00ed, speci\u00e1ln\u00ed pedagogikou a vodol\u00e9\u010dbou. Jednou t\u00fddn\u011b doj\u00ed\u017ed\u00edme je\u0161t\u011b na Feldenkraisovu metodu k zafixov\u00e1n\u00ed spr\u00e1vn\u00fdch pohybov\u00fdch vzorc\u016f a pokud \u010das a fyzick\u00fd stav dovol\u00ed, sna\u017e\u00edme se jezdit je\u0161t\u011b na hipoterapii, proto\u017ee kon\u011b miluje,\u201c popisuje Seb\u00edkova maminka, pan\u00ed Lucie, kter\u00e1 se sv\u00fdm man\u017eelem Petrem vychov\u00e1v\u00e1 je\u0161t\u011b dvan\u00e1ctilet\u00e9ho Olivera.<\/p>\n\n\n\n
Rodi\u010de se nav\u00edc sna\u017e\u00ed pro Sebasti\u00e1na aktivn\u011b vyhled\u00e1vat nov\u00e9 mo\u017enosti a terapie, je\u017e by jej mohly posouvat vp\u0159ed. N\u011bkolikr\u00e1t do roka jezd\u00ed na speci\u00e1ln\u00ed neurorehabilitace, kter\u00e9 mu velmi pom\u00e1haj\u00ed posilovat svaly, od jejich\u017e pos\u00edlen\u00ed se odv\u00edj\u00ed jeho schopnost b\u00fdt samostatn\u011bj\u0161\u00ed. \u201ePo ka\u017ed\u00e9m takov\u00e9m pobytu n\u00e1s Seb\u00edk p\u0159ekvap\u00ed n\u011bjakou novou dovednost\u00ed, ze kter\u00e9 m\u00e1me nejen my, ale p\u0159edev\u0161\u00edm on s\u00e1m, obrovskou radost,\u201c uv\u00e1d\u00ed pan\u00ed Lucie.<\/p>\n\n\n\n
To v\u0161e v\u0161ak stoj\u00ed nemal\u00e9 pen\u00edze a tak\u00e9 mnoho \u010dasu. Z d\u016fvodu celodenn\u00ed p\u00e9\u010de o syna se chlapcova maminka nemohla po ukon\u010den\u00ed rodi\u010dovsk\u00e9 vr\u00e1tit do zam\u011bstn\u00e1n\u00ed, a tak finan\u010dn\u00ed zaji\u0161t\u011bn\u00ed rodiny z\u016fstalo na bedrech jej\u00edho mu\u017ee. Zat\u00edmco se p\u0159\u00edjem rodiny sn\u00ed\u017eil, kv\u016fli Seb\u00edkovu onemocn\u011bn\u00ed n\u00e1klady zna\u010dn\u011b vzrostly.<\/p>\n\n\n\n
\u201eSna\u017e\u00edme se synovi zajistit ve\u0161ker\u00e9 mo\u017en\u00e9 terapie, kter\u00e9 by mu mohly b\u00fdt ku prosp\u011bchu. Mnoho z nich ale nehrad\u00ed poji\u0161\u0165ovna a jsou velmi drah\u00e9. Ergoterapie, Feldenkraisova metoda a platba za stacion\u00e1\u0159 n\u00e1s ka\u017ed\u00e1 vyjdou m\u011bs\u00ed\u010dn\u011b na n\u011bkolik tis\u00edc. Nejd\u016fle\u017eit\u011bj\u0161\u00ed jsou v\u0161ak pro Seb\u00edka zmi\u0148ovan\u00e9 neurorehabilitace – t\u00fdden, kter\u00fd na nich str\u00e1v\u00edme, vyjde na 36 tis\u00edc. P\u0159ed t\u0159emi lety jsme se proto rozhodli poprosit o pomoc Dobr\u00e9 and\u011bly. Jejich m\u011bs\u00ed\u010dn\u00ed p\u0159\u00edsp\u011bvky \u0161et\u0159\u00edme pr\u00e1v\u011b na tyto aktivity,\u201c dopl\u0148uje pan Petr s t\u00edm, \u017ee jsou si s man\u017eelkou pln\u011b v\u011bdomi i toho, \u017ee nesm\u00ed zapom\u00ednat ani na star\u0161\u00edho syna Olivera, kter\u00fd je mal\u00e9mu Sebasti\u00e1novi skv\u011bl\u00fdm par\u0165\u00e1kem.<\/p>\n\n\n\n
Dob\u0159\u00ed and\u011bl\u00e9<\/p>\n\n\n\n
Dob\u0159\u00ed and\u011bl\u00e9 pom\u00e1haj\u00ed prost\u0159ednictv\u00edm nadace Dobr\u00fd and\u011bl pravideln\u00fdmi m\u011bs\u00ed\u010dn\u00edmi p\u0159\u00edsp\u011bvky rodin\u00e1m, v nich\u017e se d\u00edt\u011b, maminka nebo t\u00e1ta pot\u00fdkaj\u00ed se z\u00e1va\u017en\u00fdm onemocn\u011bn\u00edm. Z t\u00e9to finan\u010dn\u00ed pomoci mohou rodiny hradit b\u011b\u017en\u00e9 pot\u0159eby spojen\u00e9 s l\u00e9\u010dbou, ale nap\u0159\u00edklad i n\u00e1klady na chod dom\u00e1cnosti. To jim d\u00e1v\u00e1 jistotu a klid, kter\u00fd bezesporu k l\u00e9\u010db\u011b pot\u0159ebuj\u00ed. Pokud se chcete st\u00e1t Dobr\u00fdm and\u011blem i vy, je to jednoduch\u00e9. Sta\u010d\u00ed se zaregistrovat na www.dobryandel.cz, zvolit libovolnou \u010d\u00e1stku pomoci a zadat trval\u00fd p\u0159\u00edkaz. Nadace va\u0161e p\u0159\u00edsp\u011bvky odevzd\u00e1 rodin\u00e1m do posledn\u00edho hal\u00e9\u0159e.<\/p>\n\n\n\n
Milan Kili\u00e1n<\/p>\n\n\n\n
Den\u00edk.cz<\/p>\n\n\n\n
https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Sebasti\u00e1n z obce Zru\u010d-Senec na Plze\u0148sku, kter\u00fd ve \u010dtvrtek 11. kv\u011btna oslavil sedm\u00e9 narozeniny, nem\u011bl u kol\u00e9bky pr\u00e1v\u011b ty nejhodn\u011bj\u0161\u00ed sudi\u010dky. Na sv\u011bt p\u0159i\u0161el s […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":24717,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-39683","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39683","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=39683"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39683\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/24717"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=39683"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=39683"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=39683"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}