{"id":39920,"date":"2023-05-31T13:05:39","date_gmt":"2023-05-31T11:05:39","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=39920"},"modified":"2023-05-31T13:05:40","modified_gmt":"2023-05-31T11:05:40","slug":"web-radi-psoriatikum-jak-dostat-lupenku-pod-kontrolu","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=39920","title":{"rendered":"Web rad\u00ed psoriatik\u016fm, jak dostat lup\u00e9nku pod kontrolu"},"content":{"rendered":"\n

P\u0159ehledn\u00e9 a l\u00e9ka\u0159sky ov\u011b\u0159en\u00e9 informace o lup\u00e9nce a jej\u00ed l\u00e9\u010db\u011b najdou lid\u00e9 na ji\u017e p\u016fl roku spu\u0161t\u011bn\u00fdch webov\u00fdch str\u00e1nk\u00e1ch <\/strong>www.lupenkapodkontrolou.cz<\/strong><\/a>. C\u00edlem stejnojmenn\u00e9ho projektu je usnadnit pacient\u016fm cestu k \u00fa\u010dinn\u00e9 l\u00e9\u010db\u011b, kter\u00e1 efektivn\u011b potla\u010d\u00ed ko\u017en\u00ed projevy onemocn\u011bn\u00ed a s\u00a0n\u00edm spojen\u00e9 t\u011blesn\u00e9 i psychick\u00e9 obt\u00ed\u017ee. D\u016fraz je kladen tak\u00e9 na komunikaci mezi pacientem a l\u00e9ka\u0159em, kter\u00e1 je pro nalezen\u00ed adekv\u00e1tn\u00ed l\u00e9\u010dby kl\u00ed\u010dov\u00e1.<\/strong><\/p>\n\n\n\n

Lup\u00e9nkou trp\u00ed v \u010cesk\u00e9 republice p\u0159es 200 000 osob. Velk\u00e1 \u010d\u00e1st psoriatik\u016f, zejm\u00e9na t\u011bch, kte\u0159\u00ed maj\u00ed st\u0159edn\u011b t\u011b\u017ekou nebo t\u011b\u017ekou formu onemocn\u011bn\u00ed, je p\u0159itom nedostate\u010dn\u011b nebo nevhodn\u011b l\u00e9\u010dena. Do p\u00e9\u010de specializovan\u00fdch pracovi\u0161\u0165, kter\u00e1 maj\u00ed k dispozici \u0161k\u00e1lu modern\u00edch a vysoce \u00fa\u010dinn\u00fdch l\u00e9k\u016f, se nav\u00edc dost\u00e1vaj\u00ed s velk\u00fdm zpo\u017ed\u011bn\u00edm.<\/p>\n\n\n\n

\u201eLup\u00e9nka je onemocn\u011bn\u00ed se z\u00e1va\u017en\u00fdmi dopady na kvalitu \u017eivota. V\u010dasn\u011b zah\u00e1jen\u00e1 a spr\u00e1vn\u011b zvolen\u00e1 l\u00e9\u010dba um\u00ed zabr\u00e1nit nejen zbyte\u010dn\u00e9mu t\u011blesn\u00e9mu a psychick\u00e9mu str\u00e1d\u00e1n\u00ed, ale chr\u00e1n\u00ed tak\u00e9 p\u0159ed rozvojem p\u0159idru\u017een\u00fdch onemocn\u011bn\u00ed, jako je psoriatick\u00e1 artritida a dal\u0161\u00ed autoimunitn\u00ed onemocn\u011bn\u00ed nebo nemoci srdce. V\u011b\u0159\u00edm, \u017ee projekt Lup\u00e9nka pod kontrolou pom\u016f\u017ee zv\u00fd\u0161it pov\u011bdom\u00ed o sou\u010dasn\u00fdch terapeutick\u00fdch mo\u017enostech a nasm\u011bruje pacienty do ordinac\u00ed dermatolog\u016f specializuj\u00edc\u00edch se na l\u00e9\u010dbu psori\u00e1zy,\u201c<\/em> popisuje motivy zrodu projektu dermatolog a prim\u00e1\u0159 ko\u017en\u00edho odd\u011blen\u00ed v\u00a0Nemocnici \u010cesk\u00e9 Bud\u011bjovice MUDr. Ji\u0159\u00ed Hora\u017e\u010fovsk\u00fd.<\/strong><\/p>\n\n\n\n

St\u00e1le d\u016fle\u017eit\u011bj\u0161\u00ed roli v l\u00e9\u010db\u011b lup\u00e9nky m\u00e1 biologick\u00e1 l\u00e9\u010dba. \u201eBiologick\u00e9 prepar\u00e1ty c\u00edlen\u011b p\u016fsob\u00ed na proces psoriatick\u00e9ho z\u00e1n\u011btu na k\u016f\u017ei a kloubech. Jedn\u00e1 se tak o velmi \u00fa\u010dinnou a z\u00e1rove\u0148 bezpe\u010dnou formu terapie, kter\u00e1 je ale ekonomicky velmi n\u00e1kladn\u00e1. K jej\u00edmu zah\u00e1jen\u00ed proto mus\u00ed b\u00fdt spln\u011bno n\u011bkolik indika\u010dn\u00edch krit\u00e9ri\u00ed. Jednou ze z\u00e1kladn\u00edch podm\u00ednek pro p\u0159edeps\u00e1n\u00ed biologick\u00e9 l\u00e9\u010dby je nap\u0159\u00edklad p\u0159edchoz\u00ed l\u00e9\u010dba klasickou syst\u00e9movou l\u00e9\u010dbou,\u201c<\/em> dod\u00e1v\u00e1 MUDr. Hora\u017e\u010fovsk\u00fd.<\/strong><\/p>\n\n\n\n

Seznam v\u0161ech dermatologick\u00fdch center, kter\u00e1 mohou pacient\u016fm spl\u0148uj\u00edc\u00edm pot\u0159ebn\u00e1 krit\u00e9ria p\u0159edepsat biologickou l\u00e9\u010dbu, si lid\u00e9 s lup\u00e9nkou mohou vyhledat p\u0159\u00edmo na str\u00e1nk\u00e1ch www.lupenkapodkontrolou.cz<\/a>.<\/p>\n\n\n\n

Sou\u010d\u00e1st\u00ed webu je tak\u00e9 p\u0159ehled v\u0161ech sou\u010dasn\u00fdch metod l\u00e9\u010dby lup\u00e9nky v\u010detn\u011b dopl\u0148kov\u00fdch, sekce v\u011bnovan\u00e1 aktualit\u00e1m, v n\u00ed\u017e pacienti najdou novinky o lup\u00e9nce a jej\u00ed terapii, ale tak\u00e9 informace o aktivit\u00e1ch pacientsk\u00fdch organizac\u00ed a o mo\u017enostech, jak se do nich zapojit. V r\u00e1mci webov\u00e9 poradny mohou lid\u00e9 s psori\u00e1zou a jejich bl\u00edzc\u00ed naj\u00edt rovn\u011b\u017e odpov\u011bdi na nej\u010dast\u011bj\u0161\u00ed ot\u00e1zky t\u00fdkaj\u00edc\u00ed se onemocn\u011bn\u00ed.<\/p>\n\n\n\n

Speci\u00e1ln\u00ed sekce je v\u011bnov\u00e1na tip\u016fm na efektivn\u00ed komunikaci pacient\u016f s l\u00e9ka\u0159i. \u201eAktivn\u00ed p\u0159\u00edstup pacient\u016f k l\u00e9\u010db\u011b zahrnuje vedle dodr\u017eov\u00e1n\u00ed terapeutick\u00e9ho re\u017eimu a pokyn\u016f l\u00e9ka\u0159e tak\u00e9 konstruktivn\u00ed debatu o dal\u0161\u00edm l\u00e9\u010debn\u00e9m postupu. R\u00e1di bychom proto pacient\u016fm s lup\u00e9nkou pomohli p\u0159ekonat ostych nebo obavy, kter\u00e9 jim \u010dasto br\u00e1n\u00ed otev\u0159en\u011b mluvit o sv\u00fdch pocitech a p\u0159\u00e1n\u00edch spojen\u00fdch s l\u00e9\u010dbou,\u201c<\/em> vysv\u011btluje MUDr. Hora\u017e\u010fovsk\u00fd.<\/strong><\/p>\n\n\n\n

Inici\u00e1torem projektu a provozovatelem webov\u00fdch str\u00e1nek www.lupenkapodkontrolou.cz<\/a> je spole\u010dnost UCB, partnerem projektu je pacientsk\u00e1 organizace SPAE.<\/p>\n","protected":false},"excerpt":{"rendered":"

P\u0159ehledn\u00e9 a l\u00e9ka\u0159sky ov\u011b\u0159en\u00e9 informace o lup\u00e9nce a jej\u00ed l\u00e9\u010db\u011b najdou lid\u00e9 na ji\u017e p\u016fl roku spu\u0161t\u011bn\u00fdch webov\u00fdch str\u00e1nk\u00e1ch www.lupenkapodkontrolou.cz. C\u00edlem stejnojmenn\u00e9ho projektu je usnadnit […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":17871,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-39920","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39920","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=39920"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39920\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/17871"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=39920"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=39920"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=39920"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}