{"id":40025,"date":"2023-06-05T12:04:08","date_gmt":"2023-06-05T10:04:08","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=40025"},"modified":"2023-06-05T12:10:59","modified_gmt":"2023-06-05T10:10:59","slug":"onkologicti-pacienti-vcera-oslavili-zivot","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=40025","title":{"rendered":"Onkologi\u010dt\u00ed pacienti v\u010dera oslavili \u017eivot"},"content":{"rendered":"\n

Onkologi\u010dt\u00ed pacienti po cel\u00e9m sv\u011bt\u011b oslavuj\u00ed sv\u016fj \u017eivot v\u017edy prvn\u00ed \u010dervnovou ned\u011bli. Letos poprv\u00e9 i v Praze, a to 4. \u010dervna<\/strong>. Na v\u010derej\u0161\u00ed akci Den onkopacient\u016f \u2013 Survivorship Day dorazili krom\u011b b\u00fdval\u00fdch \u010di sou\u010dasn\u00fdch pacient\u016f i l\u00e9ka\u0159i. Nechyb\u011bla hudba, m\u00f3dn\u00ed p\u0159ehl\u00eddka a workshopy zam\u011b\u0159en\u00e9 na kvalitn\u00ed \u017eivot po prod\u011blan\u00e9 onkologick\u00e9 l\u00e9\u010db\u011b.<\/strong><\/p>\n\n\n\n

Pacienti se na akci mohli setkat s mnoha odborn\u00edky. Na Survivorship Day dorazili v\u00fd\u017eivov\u00fd poradce Petr Havl\u00ed\u010dek nebo docentka klinick\u00e9 psychologie Laura Jan\u00e1\u010dkov\u00e1, kte\u0159\u00ed zde p\u0159edn\u00e1\u0161eli a spole\u010dn\u011b se zapojili tak\u00e9 do moderovan\u00e9 diskuze.<\/p>\n\n\n\n

Pro n\u00e1v\u0161t\u011bvn\u00edky Survivorship Day byl p\u0159ipraven i doprovodn\u00fd program zahrnuj\u00edc\u00ed workshopy zam\u011b\u0159en\u00e9 na zkvalitn\u011bn\u00ed \u017eivota a hudebn\u00ed vystoupen\u00ed. <\/p>\n\n\n\n

\u201eJsme r\u00e1di, \u017ee na Den onkopacient\u016f p\u0159i\u0161ly cel\u00e9 rodiny. Na m\u00edst\u011b byly v\u00fdtvarn\u00e9 d\u00edlny pro d\u011bti, mo\u017enost focen\u00ed nebo malov\u00e1n\u00ed na obli\u010dej. N\u00e1v\u0161t\u011bvn\u00edci si mohli vyzkou\u0161et onkoj\u00f3gu a tchaj-\u0165i a pro \u017eeny bylo p\u0159ipraveno make-up poradenstv\u00ed. V\u0161e vyvrcholilo charitativn\u00ed m\u00f3dn\u00ed p\u0159ehl\u00eddkou onkologick\u00fdch pacient\u016f,\u201c<\/em> up\u0159es\u0148uje organiz\u00e1torka Nikol Pazderov\u00e1, \u010dlenka V\u00fdboru HOP. Sv\u016fj \u017eivot oslavovala p\u0159i akci i ona sama, proto\u017ee ve 23 letech onemocn\u011bla rakovinou prsu. \u201ePodstoupila jsem agresivn\u00ed chemoterapii a pak i oboustrannou mastektomii. D\u00edky v\u00fdborn\u00e9 p\u00e9\u010di l\u00e9ka\u0159\u016f jsem ale v\u0161e zvl\u00e1dla a sv\u016fj \u017eivot jsem si, podobn\u011b jako mnoho ostatn\u00edch, dok\u00e1zala vybojovat. O to v\u011bt\u0161\u00ed smysl v akci Survivorship Day vid\u00edm,\u201c<\/em> \u0159\u00edk\u00e1 dnes 35let\u00e1 Nikol.<\/p>\n\n\n\n

Na konci roku 2020 \u017eilo podle dat Ministerstva zdravotnictv\u00ed v \u010cesk\u00e9 republice s onkologickou diagn\u00f3zou v\u00edce ne\u017e 457 000 osob. Takov\u00e9 mno\u017estv\u00ed pacient\u016f s rakovinou m\u016f\u017ee \u017e\u00edt d\u00edky tomu, \u017ee do\u0161lo k velk\u00e9mu posunu v l\u00e9\u010db\u011b onkologick\u00fdch onemocn\u011bn\u00ed. \u201eNab\u00edz\u00ed se daleko lep\u0161\u00ed mo\u017enosti, ne\u017e tomu bylo d\u0159\u00edve, nap\u0159\u00edklad imunoterapie, biologick\u00e1 \u010di p\u0159esn\u011b c\u00edlen\u00e1 l\u00e9\u010dba. Aby byly \u0161ance pacient\u016f na vyl\u00e9\u010den\u00ed co nejvy\u0161\u0161\u00ed, je velmi d\u016fle\u017eit\u00e9 diagnostikovat nemoc v\u010das a za\u010d\u00edt s l\u00e9\u010dbou ihned,\u201c <\/em>vysv\u011btluje Petra Ad\u00e1mkov\u00e1, p\u0159edsedkyn\u011b V\u00fdboru Hlasu onkologick\u00fdch pacient\u016f. Se sv\u00fdmi kolegy z Hlasu onkologick\u00fdch pacient\u016f se sna\u017e\u00ed nemocn\u00fdm proces jejich l\u00e9\u010dby co nejv\u00edce usnad\u0148ovat. \u201eIde\u00e1ln\u00ed je, pokud se pacienti dostanou do komplexn\u00edho onkologick\u00e9ho centra, kde jim multidisciplin\u00e1rn\u00ed t\u00fdmy porad\u00ed, co je pro n\u011b nejlep\u0161\u00ed. Mnohdy je ale t\u011b\u017ek\u00e9 rychle se zorientovat v cel\u00e9m syst\u00e9mu. Proto jsme v na\u0161\u00ed organizaci pro pacienty za\u010dali p\u0159ipravovat jednoduch\u00e9 n\u00e1vody, mapy, kter\u00fdm \u0159\u00edk\u00e1me Cesta pacienta. M\u011bly by pro n\u011b b\u00fdt z\u00e1kladn\u00edm vod\u00edtkem v jednotliv\u00fdch kroc\u00edch l\u00e9\u010dby,\u201c<\/em> dod\u00e1v\u00e1 Ad\u00e1mkov\u00e1. Zpracovanou u\u017e m\u00e1 HOP Cestu pacienta s karcinomem prsu a Cestu pacienta s karcinomem d\u011blo\u017en\u00edho hrdla. V sou\u010dasn\u00e9 dob\u011b p\u0159ipravuje mapy i pro dal\u0161\u00ed diagn\u00f3zy, jako jsou rakovina prostaty a plic.<\/p>\n\n\n\n

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Den onkopacient\u016f m\u00f3dn\u00ed p\u0159ehl\u00eddka<\/figcaption><\/figure>\n\n\n\n
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Den onkopacient\u016f workshop<\/figcaption><\/figure>\n\n\n\n
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Den onkopacient\u016f cvi\u010den\u00ed<\/figcaption><\/figure>\n\n\n\n
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Den onkopacient\u016f p\u0159eklad pro nesly\u0161\u00edc\u00ed<\/figcaption><\/figure>\n\n\n\n

Autorkami\u00a0fotografi\u00ed\u00a0jsou\u00a0Helena\u00a0Szmigielov\u00e1\u00a0a\u00a0Michaela\u00a0Va\u0148kov\u00e1<\/p>\n\n\n\n

O Hlasu onkologick\u00fdch pacient\u016f<\/strong><\/p>\n\n\n\n

Hlas onkologick\u00fdch pacient\u016f je spolek, kter\u00fd sdru\u017euje nest\u00e1tn\u00ed neziskov\u00e9 organizace (pacientsk\u00e9 a podp\u016frn\u00e9 organizace), kter\u00e9 se v\u011bnuj\u00ed napl\u0148ov\u00e1n\u00ed zdravotn\u00edch, soci\u00e1ln\u00edch a psychologick\u00fdch pot\u0159eb onkologick\u00fdch pacient\u016f a jejich bl\u00edzk\u00fdch. Poskytuje konzultace a poradenstv\u00ed k jak\u00e9mukoli typu onkologick\u00e9 diagn\u00f3zy. V\u00edce informac\u00ed a program Survivorship Day na www.hlaspacientu.cz<\/em><\/a>.<\/em><\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

Onkologi\u010dt\u00ed pacienti po cel\u00e9m sv\u011bt\u011b oslavuj\u00ed sv\u016fj \u017eivot v\u017edy prvn\u00ed \u010dervnovou ned\u011bli. Letos poprv\u00e9 i v Praze, a to 4. \u010dervna. Na v\u010derej\u0161\u00ed akci Den onkopacient\u016f […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":40027,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-40025","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/40025","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=40025"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/40025\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/40027"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=40025"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=40025"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=40025"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}