{"id":40414,"date":"2023-06-22T06:20:04","date_gmt":"2023-06-22T04:20:04","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=40414"},"modified":"2023-06-22T06:20:05","modified_gmt":"2023-06-22T04:20:05","slug":"gastrothon-dorazil-do-plzne","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=40414","title":{"rendered":"Gastrothon dorazil do Plzn\u011b\u00a0\u00a0"},"content":{"rendered":"\n

U\u017e druh\u00fd ro\u010dn\u00edk B\u011bhu pro Fridu m\u011bl c\u00edl v plze\u0148sk\u00e9 kozlovn\u011b na Doubravce. V\u00fdt\u011b\u017eek z tzv. Gastrotonu je ur\u010den na pomoc lidem s Friedreichovou ataxi\u00ed. Tedy lidem, kter\u00fdm se zhor\u0161uje motorika a stabilita a jsou odk\u00e1z\u00e1ni na\u00a0invalidn\u00ed<\/strong>\u00a0voz\u00edk.
<\/p>\n\n\n\n

report\u00e1\u017e Zpr\u00e1vy ZAK TV<\/p>\n\n\n\n

redaktor
Tady u\u017e vid\u00edte odv\u00e1\u017en\u00e9 d\u00e1my, kter\u00e9 se vydaly p\u011b\u0161ky 50 km, aby podpo\u0159ily lidi s Friedreichovou ataxi\u00ed, lidov\u011b \u0159e\u010deno s Fridou.

Pavla DOLENSK\u00c1, Gastrothon t\u00fdm
Jsme za\u010dali v \u017debr\u00e1ku s t\u00edm, \u017ee si d\u00e1me 50 km p\u011b\u0161ky a\u017e sem. A pro\u0161li jsme \u017debr\u00e1kem p\u0159es Rokycany, kolem Ejpovic. Pak zase p\u0159es Doubravku a\u017e sem. Chytnul n\u00e1s d\u00e9\u0161\u0165. Tak\u017ee jsme po cest\u011b potkali takov\u00fdho p\u00e1na, kter\u00fd n\u00e1m dal pivo, abysme se tro\u0161i\u010dku, abysme p\u0159e\u010dkali ten d\u00e9\u0161\u0165. Bylo to n\u00e1ro\u010dn\u00fd, ale hezk\u00fd jako ka\u017ed\u00fd ro\u010dn\u00edk.

Michal BRABEC, mana\u017eer restaurace
Maraton prob\u00edh\u00e1. Je to Gastrothon. Je to b\u011bh z Prahy do Plzn\u011b. Bu\u010f se m\u016f\u017ee b\u011b\u017eet, nebo je co na kole, nebo je to j\u00edt p\u011b\u0161ky. Je to hlavn\u011b jakoby kv\u016fli nadaci, \u017ee se vyb\u00edr\u00e1 pro jednoho klu\u010dinu na vozejku a po\u0159\u00e1d\u00e1 to samoz\u0159ejm\u011b na\u0161i majitel\u00e9 z H5.

Vladim\u00edr HOU\u0160KA, zakladatel spole\u010dnosti Frieda
N\u00e1s to t\u011b\u0161\u00ed, \u017ee vlastn\u011b v\u016fbec takhle akce vznikla a \u017ee to t\u011bm pacient\u016fm, kter\u00fd opravdu si vyt\u00e1hli n\u011bjak \u010dernou kartu, m\u016f\u017ee n\u011bjak\u00fdm zp\u016fsobem pomoct.

Michaela HOU\u0160KOV\u00c1, zakladatelka spole\u010dnosti Frieda
Tahle akce dneska byl vlastn\u011b b\u011bh pro Friedu, pro na\u0161i pacientskou organizaci, kter\u00e1 vlastn\u011b se star\u00e1 o pacienty s takovou ne\u0161\u0165astnou nemoc\u00ed, kter\u00e1 se jmenuje Freichova ataxie.

Miroslav SEDL\u00c1\u010cEK, redaktor
Akce se z\u00fa\u010dastnil tak\u00e9 mlad\u00fd mu\u017e se zm\u00edn\u011bnou nemoc\u00ed. A\u010dkoliv je upoutan\u00fd na voz\u00edk, stal se dobrovoln\u00edkem ve spole\u010dnosti Frieda.

Jakub PROCH\u00c1ZKA, dobrovoln\u00edk spole\u010dnosti Frieda a pacient s FA
Tak ta je ur\u010dit\u011b jako super. Myslel jsem se, \u017ee by tam m\u011bla b\u00fdt jedna ze z\u00e1kladn\u00ed vlastnost\u00ed ka\u017ed\u00fdho u m\u011b se vc\u00edtit do nikoho, kdo t\u0159eba nem\u00e1 takov\u00fd mo\u017enosti. J\u00e1 u\u017e o tom m\u016f\u017eu jakoby vypr\u00e1v\u011bt, proto\u017ee \u010d\u00e1st \u017eivota jsem si pro\u017eil jako zdravej a postupn\u011b se mi hor\u0161\u00ed ten stav. P\u0159ehodnocuju tak jakoby, jak\u00fdm zp\u016fsobem kouk\u00e1m na to, jak se m\u016f\u017ee pomoct komu pomoct a m\u00e1 to ur\u010dit\u011b jakoby smysl.

redaktor
B\u011bh pro Friedu se konal u\u017e podruh\u00e9 a jeho v\u00fdt\u011b\u017eek je ur\u010den na pomoc pacient\u016fm sdru\u017een\u00fdch ve Fried\u011b.

Michaela HOU\u0160KOV\u00c1, zakladatelka spole\u010dnosti Frieda
Fyzioterapie, rehabilitace, hipoterapie. Prost\u011b jak\u00fdkoliv pohyb, kter\u00fd m\u016f\u017ee tro\u0161ku ty pacienty jim ulevit a pomoct. Tak\u017ee budeme p\u0159isp\u00edvat na\u0161im 40 pacient\u016fm na toto.

televize ZAK<\/p>\n\n\n\n

Friedreichova ataxie\u00a0je nej\u010dast\u011bj\u0161\u00ed d\u011bdi\u010dn\u00e9 onemocn\u011bn\u00ed zadn\u00edch\u00a0m\u00ed\u0161n\u00edch<\/a>\u00a0provazc\u016f a\u00a0moze\u010dku<\/a>, jeho\u017epatologick\u00fdm projevem je degenerace\u00a0nervov\u00e9 tk\u00e1n\u011b<\/a>\u00a0hlavn\u011b v oblasti\u00a0moze\u010dku<\/a>, kter\u00fd \u0159\u00edd\u00ed motoriku a rovnov\u00e1hu.[1]<\/a>[2]<\/a><\/sup><\/p>\n\n\n\n

Poprv\u00e9 byla pojmenov\u00e1na n\u011bmeck\u00fdm neurologem<\/a> Nikolausem Friedreichem<\/a> v roce 1863<\/a>. V\u00fdskyt nemoci je v b\u011b\u017en\u00e9 populaci 1 : 50 000.[3]<\/a><\/sup><\/p>\n\n\n\n

Patologie
Friedreichova ataxie zp\u016fsobuje hor\u0161\u00ed koordinaci pohyb\u016f (ataxie<\/a>), poruchy citlivosti, zhor\u0161en\u00ed rovnov\u00e1hy a srozumitelnosti \u0159e\u010di. <\/p>\n\n\n\n

Prvn\u00ed p\u0159\u00edznaky se b\u011b\u017en\u011b objevuj\u00ed do des\u00e1t\u00e9ho roku \u017eivota. Mohou se v\u0161ak objevit i v p\u0159ed\u0161koln\u00edm v\u011bku nebo v dosp\u011blosti. U posti\u017een\u00e9ho se objevuje nejprve porucha ch\u016fze a d\u00e1le projevy ztr\u00e1ty koordinace, zhor\u0161en\u00ed sluchu a zraku, nez\u0159eteln\u00e1 \u0159e\u010d, cukrovka,\u00a0skoli\u00f3za<\/a>, svalov\u00e1 slabost v horn\u00edch i doln\u00edch kon\u010detin\u00e1ch a n\u011bkdy tak\u00e9 zbytn\u011bn\u00ed\u00a0srde\u010dn\u00edho svalu<\/a>. <\/p>\n\n\n\n

Lid\u00e9 trp\u00edc\u00ed t\u00edmto onemocn\u011bn\u00edm jsou \u010dasto upout\u00e1v\u00e1ni na\u00a0invalidn\u00ed voz\u00edk<\/a>. Nemoc nem\u00e1 vliv na inteligenci jedince.<\/p>\n\n\n\n

Jeliko\u017e jde o po\u0161kozen\u00ed\u00a0nervov\u00e9 soustavy<\/a>, kter\u00e1 se jako jedin\u00e1 v\u00a0lidsk\u00e9m t\u011ble<\/a>\u00a0neregeneruje, je Friedreichova ataxie nel\u00e9\u010diteln\u00e1, ale rehabilitac\u00ed lze projevy zpomalit.<\/p>\n","protected":false},"excerpt":{"rendered":"

U\u017e druh\u00fd ro\u010dn\u00edk B\u011bhu pro Fridu m\u011bl c\u00edl v plze\u0148sk\u00e9 kozlovn\u011b na Doubravce. V\u00fdt\u011b\u017eek z tzv. Gastrotonu je ur\u010den na pomoc lidem s Friedreichovou ataxi\u00ed. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":21657,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-40414","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/40414","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=40414"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/40414\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/21657"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=40414"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=40414"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=40414"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}