{"id":40562,"date":"2023-06-28T12:10:24","date_gmt":"2023-06-28T10:10:24","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=40562"},"modified":"2023-06-28T12:18:03","modified_gmt":"2023-06-28T10:18:03","slug":"jak-vypada-zivot-s-tezkym-atopickym-ekzemem","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=40562","title":{"rendered":"JAK VYPAD\u00c1 \u017dIVOT S\u00a0T\u011a\u017dK\u00ddM ATOPICK\u00ddM EKZ\u00c9MEM"},"content":{"rendered":"\n

\u010cerven\u00e9, zan\u00edcen\u00e9 skvrny, kter\u00e9 bol\u00ed a p\u00e1l\u00ed, such\u00e1 a sv\u011bd\u00edc\u00ed k\u016f\u017ee roz\u0161kr\u00e1ban\u00e1 do krve a dal\u0161\u00ed pot\u00ed\u017ee spojen\u00e9 s\u00a0t\u011b\u017ekou atopickou dermatitidou tr\u00e1p\u00ed p\u011btat\u0159icetiletou Ren\u00e1tu odmala. Ka\u017edodenn\u00ed rutina, kter\u00e1 je pro ochranu p\u0159ed zhor\u0161en\u00edm ko\u017en\u00edch projev\u016f nezbytn\u00e1, stoj\u00ed nav\u00edc spoustu \u010dasu i nemal\u00e9 finance. A nejen to. Matka mal\u00e9 hol\u010di\u010dky mus\u00ed p\u0159\u00edsn\u011b dodr\u017eovat \u0159adu omezuj\u00edc\u00edch opat\u0159en\u00ed, kter\u00e1 ji p\u0159ipravuj\u00ed o z\u00e1\u017eitky s\u00a0rodinou a p\u0159\u00e1teli.<\/strong><\/p>\n\n\n\n

Onemocn\u011bn\u00ed se j\u00ed sv\u00fdmi p\u0159\u00edznaky p\u0159ipom\u00edn\u00e1 v podstat\u011b nep\u0159etr\u017eit\u011b: \u201eNep\u0159\u00edjemn\u00e9 pocity mi p\u016fsob\u00ed vlastn\u011b jak\u00e9koli vjemy na k\u016f\u017ei. Zat\u00edmco v\u011bt\u0161ina lid\u00ed si vla\u017en\u00e9 kapky vody dopadaj\u00edc\u00ed na poko\u017eku p\u0159i sprchov\u00e1n\u00ed nebo letn\u00ed v\u00e1nek u\u017e\u00edv\u00e1, mn\u011b p\u0159in\u00e1\u0161\u00ed jen p\u00e1len\u00ed a bolest,\u201c sv\u011b\u0159uje se Ren\u00e1ta.<\/p>\n\n\n\n

Klid nem\u00edv\u00e1 ani v\u00a0noci. \u201eNeust\u00e1l\u00e9 sv\u011bd\u011bn\u00ed po cel\u00e9m t\u011ble, kter\u00e9 je jedn\u00edm z\u00a0hlavn\u00edch p\u0159\u00edznak\u016f nemoci, b\u00fdv\u00e1 natolik siln\u00e9, \u017ee se kv\u016fli n\u011bmu opakovan\u011b probouz\u00edm. Nez\u0159\u00eddka se tak\u00e9 st\u00e1v\u00e1, \u017ee si k\u016f\u017ei ve sp\u00e1nku bezd\u011bky roz\u0161kr\u00e1bu a\u017e do krve,\u201c p\u0159ibli\u017euje mlad\u00e1 matka sv\u016fj ka\u017edodenn\u00ed boj s\u00a0nemoc\u00ed.<\/p>\n\n\n\n

\u00daleva nemus\u00ed p\u0159ij\u00edt ani s l\u00e9\u010dbou. Pokud nemocn\u00fd u\u017e\u00edv\u00e1 kortikoidy, doch\u00e1z\u00ed ke zten\u010den\u00ed k\u016f\u017ee a n\u00e1chylnost k poran\u011bn\u00ed se je\u0161t\u011b zvy\u0161uje. Terapie celkov\u00fdmi imunosupresivy, kterou Ren\u00e1ta podstupovala v dosp\u00edv\u00e1n\u00ed, zase zvy\u0161uje riziko \u010detn\u00fdch ko\u017en\u00edch z\u00e1n\u011bt\u016f vy\u017eaduj\u00edc\u00edch opakovanou l\u00e9\u010dbu.<\/p>\n\n\n\n

D\u00edky ko\u017en\u00edm p\u0159\u00edpravk\u016fm, kter\u00e9 potla\u010duj\u00ed z\u00e1n\u011bt, Ren\u00e1tu nyn\u00ed ekz\u00e9m tr\u00e1p\u00ed \u201ejen\u201c na obli\u010deji, krku a pa\u017e\u00edch, v ka\u017edodenn\u00ed p\u00e9\u010di o atopickou poko\u017eku ale nesm\u00ed polevit. A nejen to. Aby zabr\u00e1nila rychl\u00e9mu zhor\u0161en\u00ed p\u0159\u00edznak\u016f nemoci, mus\u00ed se vyh\u00fdbat \u0159ad\u011b \u010dinnost\u00ed, kter\u00e9 si jej\u00ed okol\u00ed m\u016f\u017ee u\u017e\u00edvat bez starost\u00ed. \u201ePozv\u00e1n\u00ed ke spole\u010dn\u00fdm aktivit\u00e1m mus\u00edm \u010dasto odm\u00edtat,\u201c poznamen\u00e1v\u00e1 posmutn\u011ble Ren\u00e1ta.<\/p>\n\n\n\n

Pr\u00e1v\u011b nutnost omezit spole\u010densk\u00fd \u017eivot a nemo\u017enost sd\u00edlet kon\u00ed\u010dky s p\u0159\u00e1teli a rodinou vedou u mnoha pacient\u016f s t\u011b\u017ekou atopickou dermatitidou k pocit\u016fm osam\u011blosti.<\/p>\n\n\n\n

\u201ePocity izolace, kter\u00e9 s sebou nemoc p\u0159in\u00e1\u0161\u00ed, p\u0159edstavuj\u00ed pro pacienty s t\u011b\u017ek\u00fdm atopick\u00fdm ekz\u00e9mem dal\u0161\u00ed komplikaci a psychickou z\u00e1t\u011b\u017e,\u201c potvrzuje Josef Poh\u016fnek, prezident pacientsk\u00e9 organizace SPAE<\/strong>, kter\u00e1 sdru\u017euje pacienty s atopickou dermatitidou a psori\u00e1zou. \u201eZe zku\u0161enosti v\u00edme, \u017ee dopad t\u011b\u017ek\u00e9ho atopick\u00e9ho ekz\u00e9mu na \u017eivot pacient\u016f je v\u00edc ne\u017e v\u00e1\u017en\u00fd. Abychom um\u011bli je\u0161t\u011b detailn\u011bji popsat, co onemocn\u011bn\u00ed obn\u00e1\u0161\u00ed a jak\u00e9 m\u00e1 konkr\u00e9tn\u00ed dopady na \u017eivot pacient\u016f, rozhodli jsme se uspo\u0159\u00e1dat mezi \u010desk\u00fdmi atopiky podrobn\u00fd pr\u016fzkum. Ten st\u00e1le prob\u00edh\u00e1 a budeme moc r\u00e1di, kdy\u017e se do n\u011bj pacienti zapoj\u00ed.\u201c<\/p>\n\n\n\n

\u201eO noci pod stanem a koup\u00e1n\u00ed v p\u0159\u00edrod\u011b si m\u016f\u017eu nechat jen zd\u00e1t\u201c<\/strong><\/p>\n\n\n\n

Velkou komplikac\u00ed atopick\u00e9 dermatitidy jsou alergie, kter\u00fdmi trp\u00ed a\u017e 60 % atopik\u016f \u2013 a Ren\u00e1ta nen\u00ed v\u00fdjimkou. \u201eV\u016fbec nejhor\u0161\u00ed je pro m\u011b l\u00e9to, proto\u017ee jsem mimo jin\u00e9 siln\u011b alergick\u00e1 na pyly i slun\u00ed\u010dko. Na proch\u00e1zky s dcerkou nebo d\u011btsk\u00e9 h\u0159i\u0161t\u011b proto chod\u00edm i v t\u011bch nejteplej\u0161\u00edch dnech v triku s dlouh\u00fdm ruk\u00e1vem, pe\u010dliv\u011b nat\u0159en\u00e1 kr\u00e9mem s vysok\u00fdm ochrann\u00fdm faktorem. Moc r\u00e1da bych s na\u0161\u00ed hol\u010di\u010dkou vyrazila k mo\u0159i, proto\u017ee ji o ten z\u00e1\u017eitek nechci ochudit. Pro m\u011b samotnou ale bude takov\u00e1 dovolen\u00e1 p\u0159edstavovat \u0159adu komplikac\u00ed,\u201c zam\u00fd\u0161l\u00ed se Ren\u00e1ta.<\/p>\n\n\n\n

Na spoustu obl\u00edben\u00fdch letn\u00edch radov\u00e1nek m\u016f\u017ee ale zapomenout i mimo exotick\u00e9 destinace. Zcela si mus\u00ed odpustit koup\u00e1n\u00ed v \u0159ece, jak\u00fdkoli intenzivn\u00ed sport, stanov\u00e1n\u00ed a v\u016fbec pobyt kdekoli, kde se v p\u0159\u00edpad\u011b pot\u0159eby nem\u016f\u017ee rychle osprchovat. Ulp\u011bn\u00ed potu, pylu nebo ne\u010distot na poko\u017ece se toti\u017e ihned projev\u00ed intenzivn\u00edm sv\u011bd\u011bn\u00edm a n\u00e1stupem z\u00e1n\u011btu. Nem\u00e9n\u011b nep\u0159\u00edjemn\u00e9 jsou pohledy ostatn\u00edch na viditeln\u00e9 projevy nemoci.<\/p>\n\n\n\n

\u201eMusela jsem se tak\u00e9 sm\u00ed\u0159it s t\u00edm, \u017ee nem\u016f\u017eu vypadat tak upraven\u011b, jak se od \u017een \u010dek\u00e1,\u201c pokra\u010duje Ren\u00e1ta. \u201ePo \u0161patn\u00fdch zku\u0161enostech jsem se musela vzd\u00e1t ve\u0161ker\u00e9 dekorativn\u00ed kosmetiky v\u010detn\u011b lak\u016f na nehty. Kv\u016fli hrozb\u011b no\u010dn\u00edho \u0161kr\u00e1b\u00e1n\u00ed je m\u00e1m v\u017edy nakr\u00e1tko ost\u0159\u00edhan\u00e9 a zapilovan\u00e9 a\u017e na k\u016f\u017ei. P\u0159i koupi oble\u010den\u00ed se rozhoduji p\u0159edev\u0161\u00edm podle materi\u00e1lu a st\u0159ihu, kter\u00fd ide\u00e1ln\u011b zahal\u00ed k\u016f\u017ei na pa\u017e\u00edch. P\u0159ednost d\u00e1v\u00e1m pestr\u00fdm vzor\u016fm, kter\u00e9 skryj\u00ed p\u0159\u00edpadn\u00e9 krv\u00e1cen\u00ed. Ze stejn\u00e9ho d\u016fvodu vol\u00edm i hodn\u011b barevn\u00e9 povle\u010den\u00ed,\u201c vyjmenov\u00e1v\u00e1 Ren\u00e1ta dal\u0161\u00ed z nep\u0159ebern\u00fdch drobnost\u00ed, na kter\u00e9 mus\u00ed pamatovat. \u201eM\u00e9ho partnera i kamar\u00e1dy zpo\u010d\u00e1tku udivilo, do jak velk\u00e9 m\u00edry ekz\u00e9m ovliv\u0148uje m\u016fj \u017eivot a jak moc \u00fasil\u00ed mus\u00edm v\u011bnovat p\u00e9\u010di o poko\u017eku. P\u0159i\u0161lo jim to a\u017e neuv\u011b\u0159iteln\u00e9.\u201c<\/p>\n\n\n\n

\u00da\u010det za des\u00edtky let s nemoc\u00ed: stovky hodin v koupeln\u011b, dermokosmetika za des\u00edtky tis\u00edc<\/strong><\/p>\n\n\n\n

Snaha zamezit zhor\u0161en\u00ed nemoci vy\u017eaduje dodr\u017eov\u00e1n\u00ed n\u00e1ro\u010dn\u00e9 denn\u00ed rutiny: po rann\u00ed spr\u0161e dlouh\u00e9 promaz\u00e1v\u00e1n\u00ed poko\u017eky kr\u00e9mem a o\u0161et\u0159en\u00ed zan\u00edcen\u00fdch ploch l\u00e9\u010div\u00fdmi mastmi, ve\u010der je nezbytn\u00e9 om\u00fdt obli\u010dej micel\u00e1rn\u00ed vodou a posti\u017een\u00e1 m\u00edsta op\u011bt nat\u0159\u00edt kr\u00e9mem. S prvn\u00edmi jarn\u00edmi paprsky pak p\u0159ich\u00e1z\u00ed nutnost pou\u017e\u00edvat kr\u00e9m s vysok\u00fdm ochrann\u00fdm faktorem, kter\u00fd je t\u0159eba pe\u010dliv\u011b vybrat. \u201eKosmetick\u00e9 p\u0159\u00edpravky mohou obsahovat l\u00e1tky, kter\u00e9 mi ned\u011blaj\u00ed dob\u0159e. Podrobn\u011b proto pro\u010d\u00edt\u00e1m slo\u017een\u00ed ka\u017ed\u00e9ho p\u0159\u00edpravku, kter\u00fd kupuji,\u201c vysv\u011btluje Ren\u00e1ta a dod\u00e1v\u00e1, \u017ee za t\u011blov\u00e1 ml\u00e9ka, kr\u00e9my a dal\u0161\u00ed l\u00e9\u010debnou kosmetiku utrat\u00ed i p\u0159es tis\u00edc korun m\u011bs\u00ed\u010dn\u011b.<\/p>\n\n\n\n

\u201eV t\u011bch nejt\u011b\u017e\u0161\u00edch obdob\u00edch mi p\u00e9\u010de zabrala okolo dvou hodin denn\u011b. D\u011blala jsem si koupele, z\u00e1baly a obklady. M\u00edsta, kde byla poko\u017eka v opravdu \u0161patn\u00e9m stavu nebo infikovan\u00e1, jsem musela p\u0159evazovat,\u201c vzpom\u00edn\u00e1 Ren\u00e1ta, kter\u00e1 m\u00e1 z n\u00e1vratu rozs\u00e1hl\u00e9ho z\u00e1n\u011btu velk\u00e9 obavy. \u201eNeum\u00edm si p\u0159edstavit, jak bych v takov\u00e9m p\u0159\u00edpad\u011b zvl\u00e1dala starost o sebe i dcerku z\u00e1rove\u0148.\u201c Velkou nad\u011bji proto vkl\u00e1d\u00e1 do mo\u017enost\u00ed modern\u00ed l\u00e9\u010dby, kter\u00e1 by dovolila v\u00e9st norm\u00e1ln\u00ed \u017eivot. \u201eA tak\u00e9 plnit sny sv\u00e9 hol\u010di\u010dce,\u201c dod\u00e1v\u00e1 mlad\u00e1 \u017eena.<\/p>\n\n\n\n

O atopick\u00e9m ekz\u00e9mu<\/strong><\/p>\n\n\n\n

Atopick\u00fd ekz\u00e9m nebo tak\u00e9 atopick\u00e1 dermatitida je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed k\u016f\u017ee. Jeho hlavn\u00edm projevem je such\u00e1, sv\u011bd\u00edc\u00ed k\u016f\u017ee se sklonem k\u00a0z\u00e1n\u011bt\u016fm, kter\u00e9 se projevuj\u00ed za\u010derven\u00e1n\u00edm a tvorbou pup\u00ednk\u016f a puch\u00fd\u0159k\u016f, je\u017e mohou mokvat a krv\u00e1cet. Atopick\u00fd ekz\u00e9m vznik\u00e1 souhrou genetick\u00fdch predispozic a vn\u011bj\u0161\u00edch faktor\u016f, k\u00a0nim\u017e pat\u0159\u00ed p\u0159edev\u0161\u00edm alergie, kontakt se zv\u00ed\u0159ec\u00ed srst\u00ed \u010di dr\u00e1\u017ediv\u00fdmi l\u00e1tkami nebo stres. V\u00a0dosp\u011blosti postihuje p\u0159ibli\u017en\u011b 3\u20135 % populace, v\u00a0\u010cesku tedy okolo 32\u201353 tis\u00edc lid\u00ed, p\u0159i\u010dem\u017e 45 % dosp\u011bl\u00fdch pacient\u016f trp\u00ed st\u0159edn\u011b z\u00e1va\u017enou nebo t\u011b\u017ekou formou nemoci, kter\u00e1 v\u00fdznamn\u011b zhor\u0161uje kvalitu jejich \u017eivota. Onemocn\u011bn\u00ed m\u00e1 negativn\u00ed dopady na t\u011blesnou i psychickou pohodu, p\u0159edstavuje finan\u010dn\u00ed, \u010dasovou, ale i socioekonomickou z\u00e1t\u011b\u017e: z\u00a0celoevropsk\u00e9ho pr\u016fzkumu, kter\u00e9ho se v\u00a0letech 2017 a 2018 z\u00fa\u010dastnilo celkem 1189 dosp\u011bl\u00fdch pacient\u016f, nap\u0159\u00edklad vyplynulo, \u017ee pln\u00fdch 31 % z\u00a0nich kv\u016fli onemocn\u011bn\u00ed zame\u0161kalo v\u00a0zam\u011bstn\u00e1n\u00ed jeden a\u017e p\u011bt dn\u016f, cel\u00e1 \u010dtvrtina pak v\u00edce ne\u017e \u0161est dn\u016f.<\/p>\n\n\n\n

Jak\u00e9 jsou dopady atopick\u00e9 dermatitidy na \u017eivot pacient\u016f v\u00a0\u010cesk\u00e9 republice, v\u00a0sou\u010dasn\u00e9 dob\u011b mapuje <\/em>tento pr\u016fzkum<\/em><\/a> ur\u010den\u00fd pro\u00a0osoby star\u0161\u00ed 16\u00a0let.<\/strong><\/em><\/p>\n\n\n\n

\"\"<\/figure>\n","protected":false},"excerpt":{"rendered":"

\u010cerven\u00e9, zan\u00edcen\u00e9 skvrny, kter\u00e9 bol\u00ed a p\u00e1l\u00ed, such\u00e1 a sv\u011bd\u00edc\u00ed k\u016f\u017ee roz\u0161kr\u00e1ban\u00e1 do krve a dal\u0161\u00ed pot\u00ed\u017ee spojen\u00e9 s\u00a0t\u011b\u017ekou atopickou dermatitidou tr\u00e1p\u00ed p\u011btat\u0159icetiletou Ren\u00e1tu odmala. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":40564,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-40562","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/40562","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=40562"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/40562\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/40564"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=40562"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=40562"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=40562"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}