Lid\u00e9 napojen\u00ed na dom\u00e1c\u00ed plicn\u00ed ventilaci maj\u00ed probl\u00e9m z\u00edskat soci\u00e1ln\u00ed, ale i zdravotn\u00ed p\u00e9\u010di. O v\u00e1\u017en\u011b nemocn\u00e9 se v\u011bt\u0161inou staraj\u00ed jejich bl\u00edzc\u00ed, jen\u017ee t\u011bm chyb\u00ed podpora. Organizace a pe\u010duj\u00edc\u00ed se proto obr\u00e1tili na resort pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed.
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\u010cT 1\u00a0– Ud\u00e1losti redaktorka \u010cT \u010cesk\u00e1 televize.<\/p>\n\n\n\n <\/p>\n","protected":false},"excerpt":{"rendered":" Lid\u00e9 napojen\u00ed na dom\u00e1c\u00ed plicn\u00ed ventilaci maj\u00ed probl\u00e9m z\u00edskat soci\u00e1ln\u00ed, ale i zdravotn\u00ed p\u00e9\u010di. O v\u00e1\u017en\u011b nemocn\u00e9 se v\u011bt\u0161inou staraj\u00ed jejich bl\u00edzc\u00ed, jen\u017ee t\u011bm chyb\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":41200,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-41188","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/41188","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=41188"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/41188\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/41200"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=41188"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=41188"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=41188"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
Lucie Ovsen\u00e1kov\u00e1 se star\u00e1 o man\u017eela s ALS, kter\u00fd je p\u011bt let napojen\u00fd na dom\u00e1c\u00ed plicn\u00ed ventilaci, l\u00e9k neexistuje a p\u00e9\u010de je st\u00e1le slo\u017eit\u011bj\u0161\u00ed. Ob\u010das j\u00ed pom\u00e1h\u00e1 zdravotn\u00ed sestra.
Lucie Ovsen\u00e1kov\u00e1, star\u00e1 se o man\u017eela s ALS
Pe\u010dovatelky a osobn\u00ed asistenti se nesm\u00ed o tyto lidi starat, proto\u017ee je to kompetence zdravotn\u00ed sestry, m\u00e1me soukromou pan\u00ed pe\u010dovatelku, kter\u00e1 si na ten ventil\u00e1tor troufne, ale je to prost\u011b jeden \u010dlov\u011bk, a kdy\u017e je nemocn\u00e1 nebo je n\u011bkde jinde, tak j\u00e1 nejsem schopn\u00e1 u\u017e rok sehnat kohokoliv dal\u0161\u00edho.
redaktorka \u010cT
O t\u0159ia\u010dty\u0159icetilet\u00e9ho mu\u017ee se v\u011bt\u0161inou nep\u0159etr\u017eit\u011b star\u00e1 sama, k tomu maj\u00ed t\u0159i d\u011bti.
Lucie Ovsen\u00e1kov\u00e1,
J\u00e1 kolikr\u00e1t si nesednu. Man\u017eel pot\u0159ebuje ods\u00e1t j\u00eddlo, narovnat nohy, zakr\u00fdt, p\u0159ikr\u00fdt, pak m\u00e1 n\u011bjak\u00fd probl\u00e9m s d\u00fdch\u00e1n\u00edm.
redaktorka \u010cT
P\u0159\u00edsp\u011bvek na p\u00e9\u010di sta\u010d\u00ed jen na pokryt\u00ed pe\u010dovatel\u016f, rodina tak \u017eije pouze z man\u017eelova dvacetitis\u00edcov\u00e9ho\u00a0invalidn\u00edho<\/strong>\u00a0d\u016fchodu, kter\u00fd navzdory z\u00e1va\u017en\u00e9 diagn\u00f3ze st\u00e1le pracuje jako program\u00e1tor, po\u010d\u00edta\u010d ovl\u00e1d\u00e1 o\u010dima.
Martin Ovsen\u00e1k, pacient s ALS
\u0158e\u0161en\u00ed software i hardware probl\u00e9m\u016f a \/nesrozumiteln\u00e9\/ syst\u00e9m\u016f.
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Kolik hodin denn\u011b to d\u011bl\u00e1te?
Martin Ovsen\u00e1k, pacient s ALS
Tak okolo p\u011bti.
redaktorka \u010cT
Lucie Ovsen\u00e1kov\u00e1 je vy\u010derpan\u00e1, i proto usiluje o zlep\u0161en\u00ed podm\u00ednek pro rodiny v podobn\u00e9 situaci. Te\u010f se se\u0161la s ministrem Marianem Jure\u010dkou.
Marian Jure\u010dka,\u00a0ministr<\/strong>\u00a0pr\u00e1ce<\/strong>\u00a0a soci\u00e1ln\u00edch v\u011bc\u00ed \/KDU-\u010cSL\/
Jedn\u00e1me o tom, abychom je\u0161t\u011b u t\u011bchto osob zv\u00fd\u0161ili c\u00edlen\u011b podporu jejich kvality \u017eivota, proto\u017ee opravdu to je n\u00e1ro\u010dn\u00e9, t\u011b\u017ek\u00e9 a \u010dasto tyto rodiny velmi odleh\u010duj\u00ed n\u00e1kladnost zdravotn\u00edho syst\u00e9mu.
Lucie Ovsen\u00e1kov\u00e1,
Stra\u0161n\u011b bychom ocenili n\u011bjakou p\u0159\u00edmo odm\u011bnu pro ty pe\u010duj\u00edc\u00ed. M\u011b by t\u0159eba stra\u0161n\u011b pomohlo, kdyby n\u011bkdo fakt p\u0159i\u0161el na 10 hodin denn\u011b a m\u011bla jsem to jakoby zaru\u010den\u00fd, \u017ee se m\u00e1m na koho obr\u00e1tit a j\u00e1 budu moct opravdu tu dceru vz\u00edt do t\u00e9 \u0161kolky.
redaktorka \u010cT
Zm\u011bny by mohla p\u0159in\u00e9st novela o soci\u00e1ln\u00edch slu\u017eb\u00e1ch. Mezi prvn\u00ed kroky pat\u0159\u00ed nov\u00fd dota\u010dn\u00ed titul, ten m\u00e1 pomoci lidem s nejt\u011b\u017e\u0161\u00edm handicapem zaplatit pot\u0159ebnou asistenci. <\/p>\n\n\n\n