{"id":42580,"date":"2023-10-02T12:44:34","date_gmt":"2023-10-02T10:44:34","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=42580"},"modified":"2023-10-02T12:45:49","modified_gmt":"2023-10-02T10:45:49","slug":"sahla-jsem-si-na-dno-rika-irena","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=42580","title":{"rendered":"\u201eS\u00e1hla jsem si na dno,\u201c \u0159\u00edk\u00e1 Irena"},"content":{"rendered":"\n

Kv\u016fli revmatu se j\u00ed rozpadly \u010delistn\u00ed klouby<\/em><\/p>\n\n\n\n

Irena (43) z\u00a0Prahy poc\u00edtila prvn\u00ed p\u0159\u00edznaky revmatoidn\u00ed artritidy u\u017e ve 20 letech. Cesta k\u00a0diagn\u00f3ze v\u0161ak byla dlouh\u00e1 \u2013 \u010dekala na ni cel\u00fdch 17 let. \u201eT\u00e9m\u011b\u0159 polovinu \u017eivota m\u011b tr\u00e1pily bolesti sval\u016f a kloub\u016f, \u010dast\u00e9 teploty a svalov\u00e9 hore\u010dky, opakovan\u00e9 \u00farazy kloub\u016f a s\u00edl\u00edc\u00ed, nakonec ka\u017edodenn\u00ed fyzick\u00e9 i psychick\u00e9 vy\u010derp\u00e1n\u00ed,\u201c<\/em> popisuje. \u201eNav\u0161t\u00edvila jsem n\u011bkolik l\u00e9ka\u0159\u016f, nikdo ale nev\u011bd\u011bl, co si se mnou po\u010d\u00edt. V\u0161ichni \u0159e\u0161ili jen m\u00e9 akutn\u00ed probl\u00e9my. Revmatoidn\u00ed artritida nikoho nenapadla,\u201c<\/em> dod\u00e1v\u00e1. <\/p>\n\n\n\n

Z\u00e1n\u011bt, kter\u00fd je pro autoimunitn\u00ed revmatoidn\u00ed artritidu typick\u00fd, j\u00ed mezit\u00edm devastoval cel\u00e9 t\u011blo. Do sv\u00fdch 43 let prod\u011blala 12 operac\u00ed \u2013 musela na opakovan\u00e9 o\u0161et\u0159en\u00ed kolenn\u00edch chrupavek, plastiku kolenn\u00edch vaz\u016f a v\u00fdm\u011bnu obou \u010delistn\u00edch kloub\u016f, kter\u00e9 se j\u00ed vlivem z\u00e1n\u011btu rozpadly. Tr\u00e1p\u00ed j\u00ed bolesti v\u00a0oblasti \u017eeber, hrudn\u00ed kosti a kotn\u00edk\u016f, z\u00e1n\u011bt j\u00ed postihl i nervy v\u00a0okol\u00ed \u010delisti a obli\u010deje. Kv\u016fli tomu musela za\u010d\u00edt u\u017e\u00edvat siln\u00e9 l\u00e9ky na bolest \u2013 bez nich toti\u017e nen\u00ed schopn\u00e1 ani mluvit nebo j\u00edst. P\u0159ipojily se i pot\u00ed\u017ee s\u00a0tr\u00e1ven\u00edm \u2013 gastritida a vracej\u00edc\u00ed se nespecifick\u00e1 kolitida. Zhubla 20 kg, vypadaly j\u00ed vlasy, za\u010dala u\u017e\u00edvat antidepresiva. <\/p>\n\n\n\n

\u201eV p\u011btadvaceti mi l\u00e9ka\u0159i \u0159ekli, \u017ee m\u00e1m pr\u00fd \u00fanavov\u00fd syndrom. Sna\u017eila jsem se ho proto \u201ep\u0159epracovat\u201c, to m\u00e9mu t\u011blu ale sp\u00ed\u0161 je\u0161t\u011b u\u0161kodilo. Ze \u0161koly a z\u00a0pr\u00e1ce jsem chodila \u00fapln\u011b vy\u0159\u00edzen\u00e1 a s hore\u010dkami, bolelo m\u011b cel\u00e9 t\u011blo,\u201c <\/em>vzpom\u00edn\u00e1 Irena, kter\u00e1 pracovala jako terapeutka a soci\u00e1ln\u00ed pracovnice s\u00a0ohro\u017een\u00fdmi d\u011btmi a s\u00a0dosp\u011bl\u00fdmi. \u201eSvou pr\u00e1ci jsem milovala, necht\u011bla jsem si ji nechat kv\u016fli sv\u00fdm zdravotn\u00edm probl\u00e9m\u016fm vz\u00edt, ale dopadalo to tak, \u017ee jsem v\u017edycky t\u0159i \u010dtvrt\u011b roku pracovala a pak jsem na \u010dtvrt roku \u00fapln\u011b odpadla a musela na neschopenku,\u201c<\/em> \u0159\u00edk\u00e1. <\/p>\n\n\n\n

Zhor\u0161il se i jej\u00ed psychick\u00fd stav a doch\u00e1zela proto za psychoterapeutkou. Ta p\u0159i jednom ze sezen\u00ed vyslovila podez\u0159en\u00ed na autoimunitn\u00ed onemocn\u011bn\u00ed. \u201e\u0158ekla jsem to sv\u00e9 nov\u00e9 praktick\u00e9 l\u00e9ka\u0159ce, kter\u00e1 m\u011b poslala na revmatologii,\u201c <\/em>popisuje Irena a dopl\u0148uje: \u201eKdy\u017e m\u011b revmatolo\u017eka uvid\u011bla, \u00fapln\u011b se zhrozila. Hned mi ud\u011blala podrobn\u00e1 vy\u0161et\u0159en\u00ed a jako prvn\u00ed u m\u011b stanovila diagn\u00f3zu revmatoidn\u00ed artritida.\u201c<\/em> Nasadila j\u00ed ihned imunosupresiva, kter\u00e9 sn\u00ed\u017eily laboratorn\u00ed aktivitu nemoci, klinick\u00e9 projevy, jako bolesti kloub\u016f nebo vy\u010derp\u00e1n\u00ed. bohu\u017eel u Ireny v\u00a0ur\u010dit\u00e9 m\u00ed\u0159e z\u016fst\u00e1vaj\u00ed. Pot\u00fdk\u00e1 se i s ne\u017e\u00e1douc\u00edmi \u00fa\u010dinky \u2013 nevolnost\u00ed a \u00fanavou. Nezbavila se ani bolest\u00ed v\u00a0oblasti \u010delisti, ani probl\u00e9m\u016f s\u00a0tr\u00e1vic\u00edm traktem. <\/p>\n\n\n\n

\u201eCht\u011bla jsem ale d\u00e1l chodit do pr\u00e1ce, byl to m\u016fj sv\u011bt a doufala jsem, \u017ee to zvl\u00e1dnu,\u201c<\/em> vysv\u011btluje. Jej\u00ed t\u011blo v\u0161ak bylo nemoc\u00ed nevratn\u011b po\u0161kozen\u00e9 do takov\u00e9 m\u00edry, \u017ee to zvl\u00e1dlo jen rok, pak se jednoho dne nezvedla z\u00a0postele. Str\u00e1vila rok na neschopence, a\u017e nakonec musela do invalidn\u00edho d\u016fchodu. \u201eBylo to pro m\u011b t\u011b\u017ek\u00e9 obdob\u00ed. V\u017edycky jsem byla spole\u010densk\u00e1, r\u00e1da jsem pracovala a cestovala. V\u00a0t\u00e9 chv\u00edli jsem v\u011bd\u011bla, \u017ee je to pry\u010d,\u201c<\/em> vysv\u011btluje. T\u00edm ale jej\u00ed probl\u00e9my neskon\u010dily. <\/p>\n\n\n\n

\u201eLetos na za\u010d\u00e1tku roku jsem onemocn\u011bla covidem-19, kter\u00fd se vyvinul v\u00a0z\u00e1pal plic. Nakonec k\u00a0tomu p\u0159ibyla kolitida a plicn\u00ed embolie, a p\u0159estaly se mi tvo\u0159it krvinky. Musela jsem dost\u00e1vat transf\u00faze a speci\u00e1ln\u00ed stravu. Byla jsem na pokraji smrti<\/em>,\u201c popisuje Irena, kter\u00e1 tr\u00e1vila v\u00a0t\u00e9 dob\u011b \u010das st\u0159\u00eddav\u011b v\u00a0dom\u00e1c\u00edm l\u00e9\u010den\u00ed, po pohotovostech nebo v\u00a0nemocnici. \u201eD\u00edky l\u00e9ka\u0159\u016fm jsem se z\u00a0toho dostala, ale s\u00e1hla jsem si na dno. M\u011bla jsem pocit, jako bych se znovu narodila,\u201c<\/em> l\u00ed\u010d\u00ed. <\/p>\n\n\n\n

V\u00a0nejhor\u0161\u00edch chv\u00edl\u00edch ji podr\u017eela partnerka, rodi\u010de, sestra a p\u0159\u00e1tel\u00e9. \u201eBez nich si sv\u016fj \u017eivot nedok\u00e1\u017eu v\u016fbec p\u0159edstavit,\u201c<\/em> \u0159\u00edk\u00e1. Nyn\u00ed se zase dost\u00e1v\u00e1 zp\u00e1tky do \u017eivota. Pravideln\u011b u\u017e\u00edv\u00e1 imunosupresiva, dost\u00e1v\u00e1 kortikoidov\u00e9 injekce do kole, chod\u00ed na krevn\u00ed testy, kontroln\u00ed rentgeny a magnetick\u00e9 rezonance kloub\u016f a p\u00e1te\u0159e a denzitometrii \u2013 vy\u0161et\u0159en\u00ed rizika zlomenin z\u00a0d\u016fvodu osteopor\u00f3zy. Ta se toti\u017e u lid\u00ed s\u00a0revmatoidn\u00ed artritidou vyskytuje ve zv\u00fd\u0161en\u00e9 m\u00ed\u0159e. Je proto t\u0159eba ji hl\u00eddat a p\u0159i rizikov\u00fdch hodnot\u00e1ch nasadit vhodnou l\u00e9\u010dbu. <\/em><\/p>\n\n\n\n

\u201eRevmatoidn\u00ed artritida nen\u00ed jenom nemoc kloub\u016f, jsem proto r\u00e1da, \u017ee pan\u00ed doktorka u m\u011b preventivn\u011b sleduje i dal\u0161\u00ed mo\u017en\u00e1 rizika,\u201c <\/em>\u0159\u00edk\u00e1 Irena a dod\u00e1v\u00e1: \u201eI kdy\u017e jsem kv\u016fli nemoci o spoustu v\u011bc\u00ed p\u0159i\u0161la, z\u016fstaly mi ruce, mozek a zku\u0161enosti, ty se te\u010f sna\u017e\u00edm vyu\u017e\u00edt p\u0159i pomoci dal\u0161\u00edm pacient\u016fm.\u201c<\/em> O sv\u00e9 nemoci p\u00ed\u0161e blog<\/a>, anga\u017euje se v\u00a0pacientsk\u00e9 organizaci Revma Liga \u010cR<\/a>, pro kterou p\u00ed\u0161e newslettery, \u010dl\u00e1nky na web nebo texty do bro\u017eur pro pacienty. Z\u00fa\u010dastn\u00ed se tak\u00e9 akce pro ve\u0159ejnost u p\u0159\u00edle\u017eitosti Sv\u011btov\u00e9ho dne artritidy, kterou Revma Liga \u010cR po\u0159\u00e1d\u00e1 8. \u0159\u00edjna v\u00a0Praze: https:\/\/www.denartritidy.cz<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

Kv\u016fli revmatu se j\u00ed rozpadly \u010delistn\u00ed klouby Irena (43) z\u00a0Prahy poc\u00edtila prvn\u00ed p\u0159\u00edznaky revmatoidn\u00ed artritidy u\u017e ve 20 letech. Cesta k\u00a0diagn\u00f3ze v\u0161ak byla dlouh\u00e1 \u2013 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":42582,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-42580","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/42580","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=42580"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/42580\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/42582"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=42580"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=42580"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=42580"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}