{"id":43883,"date":"2023-11-23T15:10:11","date_gmt":"2023-11-23T14:10:11","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=43883"},"modified":"2023-11-23T15:10:12","modified_gmt":"2023-11-23T14:10:12","slug":"migrena-lidem-krade-praci-a-rozbiji-vztahy","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=43883","title":{"rendered":"Migr\u00e9na lidem krade pr\u00e1ci a rozb\u00edj\u00ed vztahy"},"content":{"rendered":"\n

Pacienti na festivalu otev\u0159en\u011b promluvili nejenom o zdravotn\u00edch probl\u00e9mech<\/em><\/p>\n\n\n\n

\u201eMigr\u00e9na mi vzala kus d\u011btstv\u00ed, radost ze \u017eivota, p\u0159\u00e1tele, milovan\u00e9 cestov\u00e1n\u00ed a\u00a0klid. Ukradla mi pr\u00e1ci a rozbila vztah s\u00a0man\u017eelem. L\u00e9ky mi ni\u010d\u00ed j\u00e1tra a ledviny.\u201c To v\u0161e a mnoh\u00e9 dal\u0161\u00ed uvedli lid\u00e9 <\/strong>pot\u00fdkaj\u00edc\u00ed se s<\/strong>\u00a0touto nemoc\u00ed v\u00a0anket\u011b, kter\u00e1 doprov\u00e1zela festival Migr\u00e9na n\u00e1s spojuje. Pacientsk\u00e1 organizace Migr\u00e9na-help akci uspo\u0159\u00e1dala u\u017e po\u010dtvrt\u00e9 \u2013 nap\u0159\u00edklad kv\u016fli tomu, aby se lid\u00e9 s migr\u00e9nou navz\u00e1jem setkali a dozv\u011bd\u011bli se od odborn\u00edk\u016f, jak na svou nemoc co <\/strong>nejl<\/strong>\u00e9pe vyzr\u00e1t. Pacient\u016fm nav\u00edc dala p\u0159\u00edle\u017eitost promluvit o migr\u00e9n\u011b otev\u0159en\u011b a nahlas, bez obav z\u00a0posm\u011bchu sv\u00e9ho okol\u00ed. Akce se uskute\u010dnila 15. listopadu v\u00a0pra\u017esk\u00fdch Vr\u0161ovic\u00edch.<\/strong><\/p>\n\n\n\n

\u201eLid\u00e9 s migr\u00e9nou se za svoje zdravotn\u00ed pot\u00ed\u017ee \u010dasto styd\u00ed a obvi\u0148uj\u00ed se ze slabosti nebo m\u00e9n\u011bcennosti. Ve sv\u00e9m okol\u00ed se toti\u017e setk\u00e1vaj\u00ed s nepochopen\u00edm a sl\u00fdchaj\u00ed, \u017ee migr\u00e9na p\u0159ece nen\u00ed \u017e\u00e1dn\u00e1 skute\u010dn\u00e1 nemoc,\u201c <\/em>vysv\u011btluje p\u0159edsedkyn\u011b pacientsk\u00e9 organizace Migr\u00e9na-help R\u00fdza Bla\u017eejovsk\u00e1. \u201eMigr\u00e9na je tak velk\u00fdm n\u00e1porem nejenom na jejich zdrav\u00ed, ale i psychiku. <\/em>Proto je d\u016fle\u017eit\u00e9, aby <\/em>se neb\u00e1li a \u0159ekli si o pomoc,\u201c<\/em> dod\u00e1v\u00e1.<\/p>\n\n\n\n

S migr\u00e9nou se v\u00a0\u010cesk\u00e9 republice pot\u00fdk\u00e1 p\u0159es milion osob \u2013 krom\u011b velmi intenzivn\u00edch bolest\u00ed hlavy a\u00a0zvracen\u00ed je tr\u00e1p\u00ed tak\u00e9 aury, p\u0159i kter\u00fdch prakticky nevid\u00ed, nebo z\u00e1vrat\u011b. N\u011bkte\u0159\u00ed lid\u00e9 m\u00edvaj\u00ed p\u00e1r z\u00e1chvat\u016f do roka, jin\u00ed n\u011bkolikr\u00e1t t\u00fddn\u011b. \u0158adu jedinc\u016f velk\u00e9 bolesti paralyzuj\u00ed i v\u00edce ne\u017e 25 dn\u016f v\u00a0m\u011bs\u00edci. \u201e\u010cast\u00e9 ataky lidem s migr\u00e9nou v\u00fdznamn\u011b komplikuj\u00ed \u017eivot. Staraj\u00ed se nav\u00edc nejenom o sebe, ale i o d\u011bti a dom\u00e1cnost a mus\u00ed tak\u00e9 pracovat. Aby mohli fungovat, \u0159e\u0161\u00ed sv\u00e9 bolesti nadu\u017e\u00edv\u00e1n\u00edm l\u00e9k\u016f na bolest, co\u017e m\u00e1 ale ve sv\u00e9m d\u016fsledku ne\u017e\u00e1douc\u00ed \u00fa\u010dinky a vyvol\u00e1v\u00e1\u00a0dal\u0161\u00ed komplikace. Je to za\u010darovan\u00fd kruh,\u201c<\/em> popisuje R\u00fdza Bla\u017eejovsk\u00e1. Lid\u00e9 s migr\u00e9nou podle n\u00ed \u010dasto trp\u00ed depres\u00ed a \u00fazkost\u00ed, za svou nemoc se styd\u00ed a boj\u00ed se posm\u011bchu sv\u00e9ho okol\u00ed. I z\u00a0toho d\u016fvodu organizace Migr\u00e9na-help uspo\u0159\u00e1dala u\u017e po\u010dtvrt\u00e9 spole\u010dn\u00e9 setk\u00e1n\u00ed pacient\u016f, na kter\u00e9m mohli o sv\u00fdch pot\u00ed\u017e\u00edch promluvit otev\u0159en\u011b a bez obav. Na festival Migr\u00e9na n\u00e1s spojuje krom\u011b nich dorazili i l\u00e9ka\u0159i, s nimi\u017e \u00fa\u010dastn\u00edci konzultovali sv\u00e9 probl\u00e9my a probrali t\u00e9mata, na kter\u00e1 nezb\u00fdv\u00e1 \u010das v ordinac\u00edch. \u201ePan\u00ed doktorka Eva Medov\u00e1, specialistka na migr\u00e9nu, n\u00e1v\u0161t\u011bvn\u00edky sezn\u00e1mila s\u00a0nov\u00fdmi mo\u017enostmi terapie. Pat\u0159\u00ed mezi n\u011b inovativn\u00ed prepar\u00e1ty, kter\u00e9 slou\u017e\u00ed pro prevenci a l\u00e9\u010dbu z\u00e1chvat\u016f migr\u00e9ny. Asi 50 % lid\u00ed s\u00a0migr\u00e9nou podle n\u00ed reaguje dob\u0159e tak\u00e9 na akupunkturu,\u201c <\/em>\u0159\u00edk\u00e1 R\u00fdza Bla\u017eejovsk\u00e1. <\/p>\n\n\n\n

Na akci nechyb\u011bli ani dal\u0161\u00ed odborn\u00edci, nap\u0159\u00edklad psychoterapeut, kter\u00fd p\u0159\u00edchoz\u00edm prakticky p\u0159edvedl, jak se d\u00e1 uvolnit stres a\u00a0bolest. \u201e\u00da\u010dastn\u00edci si na m\u00edst\u011b vyzkou\u0161eli fyzioterapeutickou pr\u00e1ci s\u00a0kr\u010dn\u00ed p\u00e1te\u0159\u00ed. Nav\u0161t\u00edvit mohli i\u00a0pracovn\u00ed a neurologickou poradnu,\u201c<\/em> dopl\u0148uje p\u0159edsedkyn\u011b Migr\u00e9na-help.<\/p>\n\n\n\n

Leto\u0161n\u00ed ro\u010dn\u00edk festivalu Migr\u00e9na n\u00e1s spojuje doprov\u00e1zela speci\u00e1ln\u00ed anketa na t\u00e9ma Co mi migr\u00e9na vzala.Zapojily se do n\u00ed des\u00edtky lid\u00ed. V anket\u011b popsali sv\u00e1 tr\u00e1pen\u00ed, strach a to, jak bojuj\u00ed nejenom s bolestmi, ale i s pohrd\u00e1n\u00edm okol\u00ed.Objevilo se v n\u00ed ale i n\u011bkolik pozitivn\u00edch koment\u00e1\u0159\u016f \u2013 a\u017e d\u00edky migr\u00e9n\u011b si toti\u017e mnohdy lid\u00e9 uv\u011bdomili, \u010deho si maj\u00ed v \u017eivot\u011b v\u00e1\u017eit. \u201eJedna z pacientek uvedla, \u017ee je migr\u00e9na jej\u00ed velkou u\u010ditelkou. Mnohem v\u00edc si d\u00edky n\u00ed pova\u017euje oby\u010dejn\u00fdch v\u011bc\u00ed a neboj\u00ed se \u0159\u00edkat \u201ane\u2018, kdy\u017e j\u00ed t\u011blo vy\u0161le sign\u00e1l, \u017ee je pot\u0159eba zvolnit,\u201c<\/em> dopl\u0148uje R\u00fdza Bla\u017eejovsk\u00e1. Anketu vypl\u0148ovali tak\u00e9 rodi\u010de d\u011bt\u00ed s migr\u00e9nou, kter\u00fdm podle nich \u010dasto vzala cel\u00e9 d\u011btstv\u00ed. Popisovali nap\u0159\u00edklad, \u017ee zat\u00edmco ostatn\u00ed d\u011bti si hr\u00e1ly venku, ty jejich le\u017eely doma a zvracely.<\/p>\n\n\n\n

Na festivalu se k\u0159tila i kniha s n\u00e1zvem M\u016fj Bolehl\u00e1vek ur\u010den\u00e1 pr\u00e1v\u011b d\u011btem s migr\u00e9nou. K jej\u00edmu seps\u00e1n\u00ed inspirovala spisovatelku Helenu Ber\u00e1nkovou osobn\u00ed zku\u0161enost s t\u00edmto onemocn\u011bn\u00edm \u2013 sama se s n\u00edm od d\u011btstv\u00ed pot\u00fdk\u00e1. O to v\u00edc si proto uv\u011bdomuje, jak d\u016fle\u017eit\u00e1 je osv\u011bta u\u017e v ran\u00e9m v\u011bku. Festivalu se z\u00fa\u010dastnily tak\u00e9 zn\u00e1m\u00e9 osobnosti. \u201eLid\u00e9 migr\u00e9nu zvl\u00e1daj\u00ed l\u00e9pe, kdy\u017e v\u00ed, \u017ee na ni nejsou sami. O sv\u016fj p\u0159\u00edb\u011bh se s p\u0159\u00edchoz\u00edmi tentokr\u00e1t pod\u011blila Kate\u0159ina Bro\u017eov\u00e1, kterou migr\u00e9na za\u010dala tr\u00e1pit po t\u011b\u017ek\u00e9 autonehod\u011b. Jej\u00ed z\u00e1chvaty n\u011bkdy trvaly i p\u011bt dn\u00ed v kuse,\u201c<\/em> uzav\u00edr\u00e1 R\u00fdza Bla\u017eejovsk\u00e1.<\/p>\n\n\n\n

O Migr\u00e9na-help<\/strong><\/p>\n\n\n\n

Migr\u00e9na-help je prvn\u00ed pacientsk\u00e1 organizace v \u010cesk\u00e9 republice podporuj\u00edc\u00ed osoby s migr\u00e9nou a jejich bl\u00edzk\u00e9. \u0160\u00ed\u0159\u00ed osv\u011btu, poskytuje informa\u010dn\u00ed servis a poradenstv\u00ed, koordinuje kruhy sd\u00edlen\u00ed, v nich\u017e si lid\u00e9 s migr\u00e9nou pom\u00e1haj\u00ed navz\u00e1jem, zprost\u0159edkov\u00e1v\u00e1 psychoterapii, realizuje medi\u00e1ln\u00ed a outdoorov\u00e9 kampan\u011b, h\u00e1j\u00ed z\u00e1jmy lid\u00ed s migr\u00e9nou na d\u016fle\u017eit\u00fdch m\u00edstech apod. Jde o neziskovou organizaci, kter\u00e1 sv\u00e9 slu\u017eby nab\u00edz\u00ed za symbolick\u00fd poplatek nebo zdarma.<\/p>\n\n\n\n

O l\u00e9\u010db\u011b migr\u00e9ny<\/strong><\/p>\n\n\n\n

V sou\u010dasn\u00e9 dob\u011b je na migr\u00e9nu k dispozici \u00fa\u010dinn\u00e1 l\u00e9\u010dba, kter\u00e1 se d\u011bl\u00ed na akutn\u00ed a preventivn\u00ed. V p\u0159\u00edpad\u011b, \u017ee m\u00e1 pacient jen \u010dty\u0159i dny s migr\u00e9nou (MMD) do m\u011bs\u00edce a pom\u016f\u017ee mu od bolesti tableta l\u00e9ku ze skupiny triptan\u016f, sta\u010d\u00ed akutn\u00ed l\u00e9\u010dba a nen\u00ed t\u0159eba nasazovat l\u00e9\u010dbu preventivn\u00ed. Ov\u0161em p\u0159i vy\u0161\u0161\u00edm po\u010dtu dn\u016f s migr\u00e9nou \u2013 \u010dty\u0159i a v\u00edce do m\u011bs\u00edce \u2013 doch\u00e1z\u00ed k v\u00fdrazn\u00e9mu sn\u00ed\u017een\u00ed kvality \u017eivota pacienta. Zde je vhodn\u00e9 nasadit preventivn\u00ed (tzv. profylaktickou) l\u00e9\u010dbu, jej\u00edm\u017e c\u00edlem je sn\u00ed\u017eit po\u010det a intenzitu z\u00e1chvat\u016f a omezit d\u00e9lku jejich trv\u00e1n\u00ed. Pacienti mohou sv\u00e9 pot\u00ed\u017ee konzultovat s odborn\u00edky v bezplatn\u00e9 online l\u00e9ka\u0159sk\u00e9 poradn\u011b: https:\/\/www.migrena-help.cz\/lekarska-poradna\/<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

Pacienti na festivalu otev\u0159en\u011b promluvili nejenom o zdravotn\u00edch probl\u00e9mech \u201eMigr\u00e9na mi vzala kus d\u011btstv\u00ed, radost ze \u017eivota, p\u0159\u00e1tele, milovan\u00e9 cestov\u00e1n\u00ed a\u00a0klid. Ukradla mi pr\u00e1ci a […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":10615,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-43883","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/43883","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=43883"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/43883\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/10615"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=43883"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=43883"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=43883"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}