{"id":44107,"date":"2023-12-05T09:02:51","date_gmt":"2023-12-05T08:02:51","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=44107"},"modified":"2023-12-05T09:03:12","modified_gmt":"2023-12-05T08:03:12","slug":"bez-invalidniho-voziku-ujde-sotva-par-kroku-na-prispevek-na-auto-ale-narok-nema","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=44107","title":{"rendered":"Bez invalidn\u00edho voz\u00edku ujde sotva p\u00e1r krok\u016f. Na p\u0159\u00edsp\u011bvek na auto ale n\u00e1rok nem\u00e1\u00a0\u00a0"},"content":{"rendered":"\n

Bez\u00a0invalidn\u00edho<\/strong>\u00a0voz\u00edku ujde sotva p\u00e1r krok\u016f a je tak zcela odk\u00e1z\u00e1n na svou matku. Podali si \u017e\u00e1dost o p\u0159\u00edsp\u011bvek na auto, a p\u0159esto neusp\u011bli. Jak je to mo\u017en\u00e9?

NOVA\u00a0– St\u0159epiny
——————–
Je to p\u00e9\u010de 24 hodin denn\u011b, v podstat\u011b nonstop v pohotovosti, v noci mu m\u011b\u0159\u00edm kysl\u00edk, abych mohla v klidu sp\u00e1t. Zkus tady. Zkus\u00ed\u0161. Zkus\u00ed\u0161 st\u00e1t. Uk\u00e1\u017ee\u0161 jim to?

, redaktor
——————–
Desetilet\u00fd M\u00ed\u0161a, od narozen\u00ed trp\u00ed nejt\u011b\u017e\u0161\u00ed formou spin\u00e1ln\u00ed muskul\u00e1rn\u00ed dystrofi\u00ed a autismem. Je zcela odk\u00e1z\u00e1n na svou matku, kter\u00e1 se chlapce sna\u017e\u00ed dr\u017eet v co nejlep\u0161\u00ed form\u011b. M\u00ed\u0161\u016fv zdravotn\u00ed stav se ale s p\u0159ib\u00fdvaj\u00edc\u00edmi lety za\u010dal nemilosrdn\u011b zhor\u0161ovat. Nemoc postupn\u011b vy\u0159azuje z provozu jeho svaly a chlapec je dnes p\u0159ev\u00e1\u017en\u011b odk\u00e1z\u00e1n na\u00a0invalidn\u00ed<\/strong>\u00a0voz\u00edk, p\u0159esto podle \u00fa\u0159ad\u016f nem\u00e1 n\u00e1rok na p\u0159\u00edsp\u011bvek na auto, kter\u00fdm by ho jeho matka vozila k l\u00e9ka\u0159i, na rehabilitace nebo do \u0161koly.

Dominika \u0160I\u0160OL\u00c1KOV\u00c1,
——————–
Pod\u00e1val jsem druhou \u017e\u00e1dost v b\u0159eznu tohoto roku, kde v\u00fdsledek byl zase z\u00e1porn\u00fd. Loni na narozeniny nastal velk\u00fd regres, kdy vlastn\u011b nepro\u0161el ani prostor po dom\u011b. I do \u0161koly to m\u00e1me 10 km s p\u0159estupem. Na hipoterapii, ergoterapii to m\u00e1me t\u011bch 40 asi a k l\u00e9ka\u0159\u016fm jezd\u00edme do Brna, co\u017e je asi hodina cesty.

Martin HLAV\u00c1\u010cEK, redaktor
——————–
M\u00ed\u0161a, a to v lep\u0161\u00edch dnech, ujde maxim\u00e1ln\u011b 50 metr\u016f, p\u0159esto podle posudkov\u00e9ho l\u00e9ka\u0159e se nejedn\u00e1 o dostate\u010dnou vadu pohybov\u00e9ho apar\u00e1tu. Je v\u016fbec re\u00e1ln\u00e9 vlastn\u011b b\u00fdt bez auta?

Dominika \u0160I\u0160OL\u00c1KOV\u00c1,
——————–
Ne. Za\u010d\u00e1tkem roku to vypad\u00e1, \u017ee p\u016fjde M\u00ed\u0161a na ortopedickou operaci, n\u00e1sledn\u00e9 rehabilitace, to budou intenzivn\u00ed rehabilitace, kdy budeme doj\u00ed\u017ed\u011bt denn\u011b. Nemysliteln\u00e9. Mi\u0161kovi se zkracuj\u00ed svaly na l\u00fdtk\u00e1ch, co\u017e zp\u016fsobuje, \u017ee jeho achilovky, jeho chodidla se krout\u00ed, krout\u00ed se n\u011bkdy tak moc, \u017ee mu nem\u016f\u017eu nasadit ort\u00e9zy na noc.

Jana HABERLOV\u00c1, prim\u00e1\u0159ka d\u011btsk\u00e9 neurologie FN Motol
——————–
Je to vz\u00e1cn\u00e9 onemocn\u011bn\u00ed, geneticky podm\u00edn\u011bn\u00e9, je zat\u00edm nel\u00e9\u010diteln\u00e9, to znamen\u00e1, \u017ee se pomalu zhor\u0161uje a tito chlapci postupn\u011b ztr\u00e1cej\u00ed schopnost samostatn\u00e9 ch\u016fze, postupn\u011b se zhor\u0161uje, a\u017e je chlapec zcela imobiln\u00ed, tak\u017ee z toho opravdu vypl\u00fdv\u00e1, \u017ee nen\u00ed schopen samostatn\u00e9ho p\u0159esunu na del\u0161\u00ed vzd\u00e1lenosti. Je pot\u0159eba ho n\u011bjak\u00fdm zp\u016fsobem p\u0159ev\u00e1\u017eet. Tak\u017ee samoz\u0159ejm\u011b z t\u00e9to logiky v\u011bci je zde jasn\u00fd d\u016fvod k tomu, \u017ee pot\u0159ebuje n\u011bjak\u00fd transport.

Martin HLAV\u00c1\u010cEK, redaktor
——————–
V p\u0159\u00edpad\u011b pod\u00e1n\u00ed \u017e\u00e1dosti o p\u0159\u00edsp\u011bvek na auto je syst\u00e9m pom\u011brn\u011b slo\u017eit\u00fd. Po vypln\u011bn\u00ed pot\u0159ebn\u00e9 dokumentace putuj\u00ed nejprve na \u00da\u0159ad pr\u00e1ce, ten je postoup\u00ed \u010cesk\u00e9 spr\u00e1v\u011b soci\u00e1ln\u00edho zabezpe\u010den\u00ed, rozhodnut\u00ed pak u\u010din\u00ed posudkov\u00fd l\u00e9ka\u0159.

Iva MERHAUTOV\u00c1, \u0159editelka pro \u0159\u00edzen\u00ed sekce d\u00e1vek,\u00a0MPSV<\/strong>
——————–
Jsme si v\u011bdomi toho, \u017ee i ta \u0159\u00edzen\u00ed jsou zdlouhav\u00e1 pr\u00e1v\u011b proto, \u017ee \u017eadatel nejd\u0159\u00edve \u017e\u00e1d\u00e1 na \u00da\u0159adu pr\u00e1ce, pak ten posudek zpracov\u00e1v\u00e1 Okresn\u00ed spr\u00e1va soci\u00e1ln\u00edho zabezpe\u010den\u00ed, tak my bychom cht\u011bli slou\u010dit to \u0159\u00edzen\u00ed i to pod\u00e1v\u00e1n\u00ed \u017e\u00e1dosti na jedno m\u00edsto. Pokud se t\u00fdk\u00e1 p\u0159\u00edmo t\u00e9 \u017eadatelky, \u0161koda, \u017ee nevyu\u017eila v\u0161ech sv\u00fdch jaksi mo\u017enost\u00ed, ona mohla se k tomu l\u00e9ka\u0159sk\u00e9mu posudku, nikoliv odvolat, ale mohla se k n\u011bmu vyj\u00e1d\u0159it do 5 dn\u016f, kdy dostala vyrozum\u011bn\u00ed, a pak se mohla odvolat. V p\u0159\u00edpad\u011b, \u017ee se ti lid\u00e9 odvolaj\u00ed, tak u\u017e se dost\u00e1v\u00e1 to odvol\u00e1n\u00ed na ministerstvo pr\u00e1ce, kde jsou posudkov\u00e9 komise. Je v\u017edy p\u0159izv\u00e1n odborn\u00edk v tom oboru, to znamen\u00e1 v tomto p\u0159\u00edpad\u011b by to byl neurolog, a m\u016f\u017ee si i ten \u017eadatel vy\u017e\u00e1dat, \u017ee chce b\u00fdt p\u0159\u00edtomen, \u017ee chce b\u00fdt vy\u0161et\u0159en.

Jana HABERLOV\u00c1, prim\u00e1\u0159ka d\u011btsk\u00e9 neurologie FN Motol
——————–
Podm\u00ednky k tomu, aby \u010dlov\u011bk nebo pacient splnil a mohl by mu b\u00fdt p\u0159i\u0159\u010den tady ten jako p\u0159\u00edsp\u011bvek, jsou n\u011bkdy nastaveny vlastn\u011b z pohledu t\u00e9 nemoci nelogicky.

Jitka REINELTOV\u00c1, \u0159editelka Parent projekt
——————–
A co my vn\u00edm\u00e1me jako velk\u00fd probl\u00e9m, je rozd\u00edln\u00e9 posuzov\u00e1n\u00ed nap\u0159\u00ed\u010d kraji, \u017ee opravdu jako d\u00edt\u011b, kter\u00e9 je ve stejn\u00e9m stavu v jednom kraji jako d\u00edt\u011b ve stejn\u00e9m stavu v druh\u00e9m kraji a jedno d\u00edt\u011b dostane automaticky a druh\u00e9mu d\u00edt\u011bti je zam\u00edtnuto. M\u016f\u017ee se obr\u00e1tit na n\u00e1s a soci\u00e1ln\u00ed pracovnice, kter\u00e1 m\u00e1 opravdu zku\u0161enosti a v\u00ed, co je vhodn\u00e9 napsat a pohybuje se v t\u00e9 oblasti, tak pom\u016f\u017ee klientovi sepsat odvol\u00e1n\u00ed.

Martin HLAV\u00c1\u010cEK, redaktor
——————–
Pan\u00ed Dominika sice odvol\u00e1n\u00ed na zam\u00edtnutou \u017e\u00e1dost nepodala, po na\u0161em nat\u00e1\u010den\u00ed se ale rozhodla podat pr\u00e1v\u011b se soci\u00e1ln\u00edmi pracovn\u00edky \u017e\u00e1dost novou a v\u011b\u0159\u00ed, \u017ee tentokr\u00e1t bude \u00fasp\u011b\u0161n\u00e1.
<\/p>\n","protected":false},"excerpt":{"rendered":"

Bez\u00a0invalidn\u00edho\u00a0voz\u00edku ujde sotva p\u00e1r krok\u016f a je tak zcela odk\u00e1z\u00e1n na svou matku. Podali si \u017e\u00e1dost o p\u0159\u00edsp\u011bvek na auto, a p\u0159esto neusp\u011bli. Jak je […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14188,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-44107","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/44107","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=44107"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/44107\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14188"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=44107"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=44107"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=44107"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}