{"id":44321,"date":"2023-12-13T05:17:16","date_gmt":"2023-12-13T04:17:16","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=44321"},"modified":"2023-12-13T05:17:17","modified_gmt":"2023-12-13T04:17:17","slug":"dotaznik-ukaze-zda-se-pacienti-s-rakovinou-dostanou-k-lecbe-vcas","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=44321","title":{"rendered":"Dotazn\u00edk uk\u00e1\u017ee, zda se pacienti s\u00a0rakovinou dostanou k\u00a0l\u00e9\u010db\u011b v\u010das"},"content":{"rendered":"\n

\u010c\u00edm d\u0159\u00edv se nemocn\u00ed za\u010dnou l\u00e9\u010dit, t\u00edm maj\u00ed v\u011bt\u0161\u00ed \u0161anci na \u017eivot<\/em><\/p>\n\n\n\n

Co tr\u00e1p\u00ed pacienty s\u00a0onkologick\u00fdm onemocn\u011bn\u00edm? Jak rychle se v\u00a0jednotliv\u00fdch regionech dostanou ke spr\u00e1vn\u00e9 diagn\u00f3ze a l\u00e9\u010db\u011b? Orientuj\u00ed se v\u00a0tom, co je \u010dek\u00e1? To v\u0161e se nyn\u00ed sna\u017e\u00ed zjistit spolek Hlas onkologick\u00fdch pacient\u016f. Vyz\u00fdv\u00e1 proto v\u0161echny, kdo se pot\u00fdkali s\u00a0rakovinou nebo j\u00ed v\u00a0sou\u010dasn\u00e9 dob\u011b \u010del\u00ed, aby vyplnili speci\u00e1ln\u00ed <\/strong>dotazn\u00edk<\/strong><\/a>. <\/strong><\/p>\n\n\n\n

Ten pom\u016f\u017ee zmapovat slab\u00e1 m\u00edsta zdravotn\u00edho syst\u00e9mu a odli\u0161nosti v\u00a0kraj\u00edch a uk\u00e1\u017ee, jak\u00e9 probl\u00e9my by se m\u011bly akutn\u011b \u0159e\u0161it. C\u00edlem je zabr\u00e1nit zbyte\u010dn\u00fdm prodlev\u00e1m a nedorozum\u011bn\u00edm \u2013 ty toti\u017e mohou st\u00e1t onkologick\u00e9ho pacienta \u017eivot.<\/strong><\/p>\n\n\n\n

\u201eZ\u00e1sadn\u00ed roli v nad\u011bji na uzdraven\u00ed hraje u v\u011bt\u0161iny zhoubn\u00fdch n\u00e1dor\u016f \u010das. Nemocn\u00e9 obvykle neohro\u017euje jen samotn\u00fd n\u00e1dor, ale p\u0159edev\u0161\u00edm n\u00e1dorov\u00e9 bu\u0148ky, kter\u00e9 se vyd\u00e1vaj\u00ed krevn\u00ed nebo lymfatickou cestou do cel\u00e9ho t\u011bla. L\u00e9\u010dba je mus\u00ed nejenom dob\u011bhnout, ale i p\u0159edehnat. Jinak se pacienti neuzdrav\u00ed,\u201c <\/em>vysv\u011btluje prof. MUDr. Petra Tesa\u0159ov\u00e1, CSc., MD., Ph.D., p\u0159ednostka \u00dastavu radia\u010dn\u00ed onkologie Fakultn\u00ed nemocnice Bulovka a 1. LF UK. Pacienti s rakovinou a jejich bl\u00edzc\u00ed se ale mnohdy neum\u00ed ve zdravotn\u00edm syst\u00e9mu rychle zorientovat, l\u00e9ka\u0159i je dostate\u010dn\u011b \u201enenavedou\u201c nebo v\u0161e nevysv\u011btl\u00ed, a pacienti tak s l\u00e9\u010dbou za\u010d\u00ednaj\u00ed pozd\u011b. Zm\u011bnit by se to mohlo d\u00edky speci\u00e1ln\u00edmu dotazn\u00edku, kter\u00fd vytvo\u0159il ve spolupr\u00e1ci s l\u00e9ka\u0159i spolek Hlas onkologick\u00fdch pacient\u016f (HOP). Dotazn\u00edk vypln\u011bn\u00fd p\u0159\u00edmo onkologick\u00fdmi pacienty odhal\u00ed, co je nejv\u00edc tr\u00e1p\u00ed. \u201eV jednotliv\u00fdch regionech se p\u00e9\u010de hodn\u011b li\u0161\u00ed. Sna\u017e\u00edme se proto zmapovat, kde jsou nejv\u011bt\u0161\u00ed slabiny syst\u00e9mu, a p\u0159isp\u011bt tak k jejich \u0159e\u0161en\u00ed,\u201c <\/em>\u0159\u00edk\u00e1 Petra Ad\u00e1mkov\u00e1, p\u0159edsedkyn\u011b V\u00fdboru HOP.<\/p>\n\n\n\n

Vypln\u011bn\u00ed dotazn\u00edku, kter\u00fd pacienti najdou na webov\u00fdch str\u00e1nk\u00e1ch spolku, zabere asi 30 minut. Ot\u00e1zky jsou rozd\u011bleny do n\u011bkolika okruh\u016f a t\u00fdkaj\u00ed se nap\u0159\u00edklad toho, jak\u00e9 pot\u00ed\u017ee nemocn\u00e9 prvotn\u011b p\u0159ivedly k l\u00e9ka\u0159i, za jak dlouho se dozv\u011bd\u011bli, \u017ee maj\u00ed podez\u0159el\u00fd n\u00e1lez, a jestli byly informace, kter\u00e9 dost\u00e1vali, srozumiteln\u00e9. \u201eDotazn\u00edk je obs\u00e1hl\u00fd a komplexn\u00ed. Pacienti v n\u011bm odpov\u00eddaj\u00ed i na to, jak rychle po stanoven\u00ed diagn\u00f3zy na\u0161li onkologa a jak daleko k n\u011bmu mus\u00ed doj\u00ed\u017ed\u011bt. Sna\u017e\u00edme se tak\u00e9 zjistit, jestli jsou pro n\u011b n\u00e1v\u0161t\u011bvy u specialisty stresuj\u00edc\u00ed,\u201c<\/em> popisuje Petra Ad\u00e1mkov\u00e1. Dotazn\u00edk podle n\u00ed uk\u00e1\u017ee, jak\u00e9 probl\u00e9my by se m\u011bly akutn\u011b \u0159e\u0161it, a pom\u016f\u017ee tak\u00e9 s lep\u0161\u00edm nastaven\u00edm zdravotn\u00ed p\u00e9\u010de po cel\u00e9 \u010cesk\u00e9 republice.<\/p>\n\n\n\n

Hlas onkologick\u00fdch pacient\u016f usnad\u0148uje nemocn\u00fdm boj s\u00a0rakovinou i jin\u00fdmi zp\u016fsoby. Letos pro n\u011b za\u010dal p\u0159ipravovat jednoduch\u00e9 n\u00e1vody \u2013 mapy, kter\u00fdm \u0159\u00edk\u00e1 Cesta pacienta. Lid\u00e9 s rakovinou se z\u00a0nich dozv\u00ed o symptomech \u010di rizikov\u00fdch faktorech sv\u00e9 nemoci a mo\u017enostech diagnostiky a l\u00e9\u010dby. Najdou v\u00a0nich obecn\u00e1 doporu\u010den\u00ed pro prevenci nebo odkazy na pacientsk\u00e9 organizace, kam se mohou obr\u00e1tit pro informace. \u201eN\u00e1vody jsme zat\u00edm zpracovali pro pacienty s\u00a0rakovinou d\u011blo\u017en\u00edho hrdla, prostaty, prsu, d\u011blo\u017en\u00ed sliznice, s uve\u00e1ln\u00edm melanomem a karcinomem st\u0159ev a kone\u010dn\u00edku. V\u00a0sou\u010dasn\u00e9 dob\u011b p\u0159ipravujeme mapy i pro dal\u0161\u00ed diagn\u00f3zy, jako je nap\u0159\u00edklad rakovina plic nebo ledvin,\u201c<\/em> up\u0159es\u0148uje Petra Ad\u00e1mkov\u00e1.<\/p>\n\n\n\n

Na p\u0159\u00edprav\u011b n\u00e1vod\u016f se krom\u011b HOP pod\u00edl\u00ed tak\u00e9 l\u00e9ka\u0159i a\u00a0spolupracovat na nich bude tak\u00e9 \u010cesk\u00e1 onkologick\u00e1 spole\u010dnost. Jedn\u00edm z\u00a0odborn\u00fdch garant\u016f Cesty pacienta s\u00a0karcinomem prsu je prof. Petra Tesa\u0159ov\u00e1. \u201eNa informaci, \u017ee m\u00e1 v t\u011ble zhoubn\u00fd n\u00e1dor, nen\u00ed p\u0159ipraven\u00fd nikdo z n\u00e1s. Pokud se ale k t\u00e9to nep\u0159\u00edzniv\u00e9 zpr\u00e1v\u011b p\u0159id\u00e1 podrobn\u00e9 vysv\u011btlen\u00ed, jak se mohou pacienti uzdravit, co je \u010dek\u00e1 a co mohou pro vyl\u00e9\u010den\u00ed ud\u011blat sami, rozpt\u00fdl\u00ed se jejich \u00fazkost a bezradnost, urychl\u00ed zah\u00e1jen\u00ed l\u00e9\u010dby a zlep\u0161\u00ed jej\u00ed p\u0159ijet\u00ed,\u201c <\/em>vysv\u011btluje prof.\u00a0Petra Tesa\u0159ov\u00e1. N\u00e1vody jsou podle n\u00ed velk\u00fdm p\u0159\u00ednosem nejenom pro pacienty, ale i pro o\u0161et\u0159uj\u00edc\u00ed onkology.<\/p>\n\n\n\n

\u201eCesty pacienta pomohou nemocn\u00fdm ut\u0159\u00eddit si my\u0161lenky a l\u00e9pe pochopit cel\u00fd l\u00e9\u010debn\u00fd postup. V kvantu informac\u00ed, kter\u00e9 dost\u00e1vaj\u00ed v emotivn\u011b velmi obt\u00ed\u017en\u00e9 situaci, se toti\u017e jinak lehce ztrat\u00ed,\u201c<\/em> dopl\u0148uje MUDr. Olga Dubov\u00e1 z Fakultn\u00ed nemocnice Bulovka, odborn\u00e1 garantka Cesty pacienta s karcinomem d\u011blo\u017en\u00ed sliznice.<\/p>\n\n\n\n

\u201eVzhledem k tomu, \u017ee cesty obsahuj\u00ed i symptomy jednotliv\u00fdch onemocn\u011bn\u00ed a obecn\u00e1 doporu\u010den\u00ed pro prevenci, m\u011bly by b\u00fdt u\u017eite\u010dn\u00fdm zdrojem informac\u00ed nejen pro onkologick\u00e9 pacienty, ale tak\u00e9 pro ve\u0159ejnost. Ur\u010dit\u011b je ocen\u00ed i rodiny nemocn\u00fdch \u2013 d\u00edky nim toti\u017e l\u00e9pe pochop\u00ed, \u010d\u00edm v\u0161\u00edm jejich p\u0159\u00edbuzn\u00ed proch\u00e1z\u00ed,\u201c<\/em> uzav\u00edr\u00e1 Petra Ad\u00e1mkov\u00e1.<\/p>\n\n\n\n

Doposud zpracovan\u00e9 Cesty pacienta: https:\/\/hlaspacientu.cz\/cesta-pacienta\/<\/a><\/p>\n\n\n\n

Dotazn\u00edk \u2013 Cesta pacienta k onkologick\u00e9 diagn\u00f3ze: https:\/\/hlaspacientu.cz\/zpravy-o-cinnosti\/pomozte-nam-zmapovat-cestu-pacientu-k-onkologicke-diagnoze-dotaznik\/<\/a><\/p>\n\n\n\n

O Hlasu onkologick\u00fdch pacient\u016f<\/strong><\/p>\n\n\n\n

Hlas onkologick\u00fdch pacient\u016f<\/a> je spolek sdru\u017euj\u00edc\u00ed neziskov\u00e9 organizace (pacientsk\u00e9 a podp\u016frn\u00e9 organizace), kter\u00e9 se v\u011bnuj\u00ed napl\u0148ov\u00e1n\u00ed zdravotn\u00edch, soci\u00e1ln\u00edch a psychologick\u00fdch pot\u0159eb onkologick\u00fdch pacient\u016f a jejich bl\u00edzk\u00fdch. Poskytuje konzultace a poradenstv\u00ed k jak\u00e9mukoli typu onkologick\u00e9 diagn\u00f3zy.<\/p>\n","protected":false},"excerpt":{"rendered":"

\u010c\u00edm d\u0159\u00edv se nemocn\u00ed za\u010dnou l\u00e9\u010dit, t\u00edm maj\u00ed v\u011bt\u0161\u00ed \u0161anci na \u017eivot Co tr\u00e1p\u00ed pacienty s\u00a0onkologick\u00fdm onemocn\u011bn\u00edm? Jak rychle se v\u00a0jednotliv\u00fdch regionech dostanou ke spr\u00e1vn\u00e9 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14065,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-44321","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/44321","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=44321"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/44321\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14065"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=44321"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=44321"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=44321"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}