D\u011btsk\u00e1 mozkov\u00e1 obrna je z\u00e1va\u017en\u00e9 posti\u017een\u00ed mozku, kter\u00e9 za\u010d\u00edn\u00e1 pom\u011brn\u011b nen\u00e1padn\u011b a objevuje se zpravidla u d\u011bt\u00ed v kojeneck\u00e9m v\u011bku. Projevy posti\u017een\u00ed tak rodi\u010de nemus\u00ed sami odhalit. Ur\u010den\u00ed diagn\u00f3zy vy\u017eaduje odborn\u00e9 vy\u0161et\u0159en\u00ed a sledov\u00e1n\u00ed d\u00edt\u011bte d\u011btsk\u00fdm neurologem. P\u00e9\u010de o d\u011bti s t\u00edmto onemocn\u011bn\u00edm je pro rodi\u010de n\u00e1ro\u010dn\u00e1 nejen fyzicky a psychicky, ale tak\u00e9 finan\u010dn\u011b. Zam\u011bstnanci spole\u010dnosti GasNet se proto rozhodli, \u017ee prost\u0159ednictv\u00edm dobro\u010dinn\u00e9 sb\u00edrky usnadn\u00ed \u017eivot dv\u011bma rodin\u00e1m.<\/p>\n\n\n\n
D\u011btsk\u00e1 mozkov\u00e1 obrna (DMO) p\u0159edstavuje trval\u00e9 naru\u0161en\u00ed pohybov\u00fdch schopnost\u00ed, kter\u00e9 je spojeno s poruchou svalov\u00e9ho nap\u011bt\u00ed na trupu a kon\u010detin\u00e1ch. K poru\u0161e hybnosti se v\u0161ak \u010dasto p\u0159id\u00e1vaj\u00ed i dal\u0161\u00ed projevy, jako je nap\u0159\u00edklad epilepsie \u010di poruchy smysl\u016f a citlivosti. Onemocn\u011bn\u00ed nen\u00ed p\u0159enosn\u00e9 ani d\u011bdi\u010dn\u00e9, ale vznik\u00e1 v d\u016fsledku jednor\u00e1zov\u00e9ho po\u0161kozen\u00ed mozkov\u00e9 tk\u00e1n\u011b v ran\u00e9 f\u00e1zi v\u00fdvoje.<\/p>\n\n\n\n
P\u0159\u00ed\u010dina DMO mnohdy z\u016fst\u00e1v\u00e1 nezn\u00e1m\u00e1. Nicm\u00e9n\u011b nej\u010dast\u011bji je posti\u017een\u00ed zp\u016fsobeno nedostatkem kysl\u00edku b\u011bhem nitrod\u011blo\u017en\u00edho obdob\u00ed, zejm\u00e9na kr\u00e1tce p\u0159ed porodem nebo t\u011bsn\u011b po narozen\u00ed.<\/p>\n\n\n\n
Diagn\u00f3za v po\u010d\u00e1te\u010dn\u00edm stadiu je nav\u00edc komplikovan\u00e1, a to kv\u016fli n\u00edzk\u00e9 pohybov\u00e9 aktivit\u011b v nejran\u011bj\u0161\u00edm obdob\u00ed v\u00fdvoje. Prvn\u00ed projevy onemocn\u011bn\u00ed jsou proto ze za\u010d\u00e1tku velmi nen\u00e1padn\u00e9. To, \u017ee je s d\u00edt\u011btem n\u011bco v nepo\u0159\u00e1dku, pozn\u00e1 v\u011bt\u0161inou a\u017e pediatr, kter\u00fd dob\u0159e zn\u00e1 v\u00fdvojov\u00e9 etapy pohybov\u00e9ho syst\u00e9mu. Pro spr\u00e1vn\u00e9 ur\u010den\u00ed diagn\u00f3zy jsou nutn\u00e1 odborn\u00e1 vy\u0161et\u0159en\u00ed a sledov\u00e1n\u00ed d\u00edt\u011bte d\u011btsk\u00fdm neurologem.<\/p>\n\n\n\n
L\u00e9\u010dbou k samostatnosti<\/p>\n\n\n\n
Rodiny s d\u011btmi trp\u00edc\u00edmi DMO se \u010dasto pot\u00fdkaj\u00ed s \u0159adou v\u00fdzev. Jedn\u00e1 se o posti\u017een\u00ed, kter\u00e9 je n\u00e1ro\u010dn\u00e9 fyzicky, psychicky, \u010dasov\u011b i finan\u010dn\u011b. Pokud d\u00edt\u011b nelze za\u0159adit do kolektivn\u00edho za\u0159\u00edzen\u00ed, st\u00e1v\u00e1 se t\u00e9m\u011b\u0159 v\u017edy p\u00e9\u010de o nemocn\u00e9ho celodenn\u00ed z\u00e1le\u017eitost\u00ed. Rostou rovn\u011b\u017e i rodinn\u00e9 v\u00fddaje. Poji\u0161\u0165ovny toti\u017e pokr\u00fdvaj\u00ed v\u011bt\u0161inu l\u00e9k\u016f, l\u00e9\u010debn\u00fdch pom\u016fcek \u010di rehabilitac\u00ed jen \u010d\u00e1ste\u010dn\u011b.<\/p>\n\n\n\n
C\u00edlem l\u00e9\u010dby DMO p\u0159itom nen\u00ed \u00fapln\u00e9 vyl\u00e9\u010den\u00ed jedince. Zam\u011b\u0159uje se naopak na pos\u00edlen\u00ed schopnost\u00ed a podporu udr\u017eov\u00e1n\u00ed zdrav\u00ed, a to v oblasti pohybov\u00fdch schopnost\u00ed nebo t\u0159eba soci\u00e1ln\u00ed integrace a nez\u00e1vislosti.<\/p>\n\n\n\n
State\u010dn\u00ed d\u011bt\u0161t\u00ed bojovn\u00edci<\/p>\n\n\n\n
T\u00e9m\u011b\u0159 patn\u00e1ctilet\u00fd Mirek m\u00e1 vlivem d\u011btsk\u00e9 mozkov\u00e9 obrny tzv. spastickou dipar\u00e9zu, kter\u00e1 postihla jeho nohy. Narodil se p\u0159ed\u010dasn\u011b a prvn\u00ed t\u00fddny na sv\u011bt\u011b bojoval o \u017eivot. Jeho progn\u00f3zy nebyly dobr\u00e9, a i p\u0159es obrovskou p\u00e9\u010di se mu DMO s posti\u017een\u00edm nohou nevyhnula. Aby mohl Mirek l\u00e9pe fungovat v b\u011b\u017en\u00e9m \u017eivot\u011b, pot\u0159ebuje \u0159adu rehabilitac\u00ed. D\u00edky nim bude sob\u011bsta\u010dn\u011bj\u0161\u00ed a nebude tolik z\u00e1visl\u00fd na pomoci okol\u00ed.<\/p>\n\n\n\n
Podobn\u011b je na tom i dvan\u00e1ctilet\u00e1 Valinka, kter\u00e1 tak\u00e9 trp\u00ed DMO. Pot\u0159ebuje intenzivn\u00ed dlouhodobou podporu, zejm\u00e9na formou rehabilitac\u00ed a r\u016fzn\u00fdch terapi\u00ed.<\/p>\n\n\n\n
Pom\u016f\u017eete i vy?<\/p>\n\n\n\n
Podpo\u0159it ob\u011b d\u011bti se rozhodli Martina Ve\u010de\u0159ov\u00e1 a Martin Dlouh\u00fd, kte\u0159\u00ed v r\u00e1mci zam\u011bstnaneck\u00e9ho programu#GasNetSrdcem vypsali dobro\u010dinnou sb\u00edrku na Donio.cz: https:\/\/www.donio.cz\/gasnet<\/a>. Mirkovi m\u016f\u017eete p\u0159isp\u011bt na neurorehabilitace, d\u00edky kter\u00fdm je v\u00edce sob\u011bsta\u010dn\u00fd a m\u00e9n\u011b z\u00e1visl\u00fd na sv\u00e9m okol\u00ed. Valince sb\u00edrka uhrad\u00ed dva hipoterapeutick\u00e9 pobyty a doplatkov\u00fd l\u00e9\u010debn\u00fd program v sanatoriu Klimkovice, kter\u00fd poji\u0161\u0165ovna hrad\u00ed jen \u010d\u00e1ste\u010dn\u011b a je velmi n\u00e1kladn\u00fd.<\/p>\n\n\n\n Petra Ku\u010derov\u00e1<\/p>\n\n\n\n Den\u00edk.cz<\/p>\n\n\n\n https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" D\u011btsk\u00e1 mozkov\u00e1 obrna je z\u00e1va\u017en\u00e9 posti\u017een\u00ed mozku, kter\u00e9 za\u010d\u00edn\u00e1 pom\u011brn\u011b nen\u00e1padn\u011b a objevuje se zpravidla u d\u011bt\u00ed v kojeneck\u00e9m v\u011bku. Projevy posti\u017een\u00ed tak rodi\u010de nemus\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":19889,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-44483","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/44483","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=44483"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/44483\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/19889"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=44483"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=44483"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=44483"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}