Narozen\u00ed potomka je pro ka\u017edou rodinu velkou ud\u00e1lost\u00ed. Po bezprobl\u00e9mov\u00e9m porodu, ze kter\u00e9ho vzejde zdrav\u00e9 miminko, obvykle n\u00e1sleduj\u00ed okam\u017eiky nep\u0159ebern\u00e9ho \u0161t\u011bst\u00ed a \u00falevy, \u017ee v\u0161e dob\u0159e dopadlo. V p\u0159\u00edpad\u011b mal\u00e9ho Ji\u0159\u00edka v\u0161ak okam\u017eiky \u0161t\u011bst\u00ed vyst\u0159\u00eddal strach rodi\u010d\u016f o \u017eivot d\u00edt\u011bte a chlapec musel podstoupit n\u011bkolik operac\u00ed. Ty mu m\u011bly zachr\u00e1nit \u017eivot. Ji\u0159\u00edk, kter\u00e9mu byla stanovena st\u0159edn\u00ed ment\u00e1ln\u00ed retardace, nyn\u00ed pot\u0159ebuje pomoc.<\/p>\n\n\n\n
Ji\u0159\u00edk se narodil p\u0159ed osmi lety jako na prvn\u00ed pohled zdrav\u00e9 miminko. I podle maminky chlapce prob\u00edhalo cel\u00e9 t\u011bhotenstv\u00ed bez komplikac\u00ed stejn\u011b jako n\u00e1sledn\u00fd porod. O to v\u011bt\u0161\u00ed \u0161ok rodinu \u010dekal ve chv\u00edli, kdy n\u00e1sleduj\u00edc\u00ed den po porodu p\u0159i\u0161li l\u00e9ka\u0159i za novope\u010den\u00fdmi rodi\u010di a ozn\u00e1mili jim, \u017ee m\u00e1 jejich syn z\u00e1va\u017enou v\u00fdvojovou vadu, kter\u00e1 vy\u017eaduje neodkladn\u00e9 chirurgick\u00e9 \u0159e\u0161en\u00ed.<\/p>\n\n\n\n
\u201eByl to pro n\u00e1s nejhor\u0161\u00ed okam\u017eik v \u017eivot\u011b. Ji\u0159\u00edkovi byla diagnostikov\u00e1na t\u011b\u017ek\u00e1 forma atr\u00e9zie j\u00edcnu (vrozen\u00e1 vada, kdy j\u00edcen nedosahuje a\u017e do \u017ealudku, ale kon\u010d\u00ed slep\u011b v hrudn\u00edku, pozn. red.) s doln\u00ed p\u00ed\u0161t\u011bl\u00ed a k tomu roz\u0161t\u011bp pr\u016fdu\u0161nice. Jedinou mo\u017enost\u00ed l\u00e9\u010dby byly a st\u00e1le jsou rekonstruk\u010dn\u00ed operace, z nich\u017e ka\u017ed\u00e1 s sebou nese sv\u00e1 rizika,\u201c vzpom\u00edn\u00e1 na dny, kdy se cel\u00e9 rodin\u011b zhroutil sv\u011bt, Ji\u0159\u00edkova maminka Martina Chybov\u00e1.<\/p>\n\n\n\n
Prvn\u00ed operace hned po narozen\u00ed<\/p>\n\n\n\n
Radost rodi\u010d\u016f z narozen\u00e9ho potomka vyst\u0159\u00eddal strach o Ji\u0159\u00edk\u016fv \u017eivot. Prvn\u00ed operaci m\u011bl Ji\u0159\u00edk za sebou u\u017e druh\u00fd den po porodu a v n\u00e1sleduj\u00edc\u00edch t\u00fddnech byl udr\u017eov\u00e1n na p\u0159\u00edstroj\u00edch, dokud mu nebyla vy\u0161ita tracheostomie.<\/p>\n\n\n\n
\u201eVe \u010dty\u0159ech m\u011bs\u00edc\u00edch ho \u010dekala dal\u0161\u00ed n\u00e1ro\u010dn\u00e1 operace s velmi \u0161patnou progn\u00f3zou. Na\u0161t\u011bst\u00ed d\u00edky Ji\u0159\u00edkov\u011b chuti bojovat a obrovsk\u00e9 \u0161ikovnosti l\u00e9ka\u0159\u016f ve FN Motol dopadla operace \u00fasp\u011b\u0161n\u011b. O p\u00e1r m\u011bs\u00edc\u016f pozd\u011bji, je\u0161t\u011b ne\u017e byl Ji\u0159\u00edkovi rok, ho ov\u0161em \u010dekala dal\u0161\u00ed \u017eivot ohro\u017euj\u00edc\u00ed operace,\u201c pokra\u010duje maminka.<\/p>\n\n\n\n
Celkem 40 operac\u00ed za 8 let<\/p>\n\n\n\n
V nemocnici pak str\u00e1vili s Ji\u0159\u00edkem prakticky cel\u00e9 prvn\u00ed t\u0159i roky \u017eivota. Pro celou rodinu to bylo bezesporu velice t\u011b\u017ek\u00e9 a n\u00e1ro\u010dn\u00e9 obdob\u00ed.<\/p>\n\n\n\n
\u201ePo n\u011bkolika dal\u0161\u00edch chirurgick\u00fdch z\u00e1kroc\u00edch vznikl u Ji\u0159\u00edka jako d\u016fsledek opakovan\u00fdch nark\u00f3z komunikuj\u00edc\u00ed hydrocefalus, kv\u016fli kter\u00e9mu musel b\u00fdt voperov\u00e1n takzvan\u00fd shunt, je\u017e odv\u00e1d\u00ed p\u0159ebyte\u010dn\u00fd mozkom\u00ed\u0161n\u00ed mok do b\u0159icha, aby nedo\u0161lo k po\u0161kozen\u00ed mozku,\u201c \u0159\u00edk\u00e1 o dal\u0161\u00edch komplikac\u00edch chlapcova maminka Martina Chybov\u00e1.<\/p>\n\n\n\n
V t\u00e9to chv\u00edli m\u00e1 za sebou Ji\u0159\u00edk ji\u017e v\u00edce jak 40 operac\u00ed, chirurgick\u00fdch rekonstrukc\u00ed a v\u00fdkon\u016f. Aby mohl d\u00fdchat, byla mu zavedena tracheostomick\u00e1 kanyla a kv\u016fli t\u011b\u017ek\u00e9 atr\u00e9zii je vy\u017eivov\u00e1n prost\u0159ednictv\u00edm jejunostomie, kter\u00e1 zaji\u0161\u0165uje p\u0159\u00edvod potravy p\u0159\u00edmo do tenk\u00e9ho st\u0159eva sondou. Za\u010d\u00e1tkem roku se k diagn\u00f3z\u00e1m p\u0159idala bohu\u017eel je\u0161t\u011b epilepsie.<\/p>\n\n\n\n
Ka\u017edodenn\u00ed p\u00e9\u010de o stomie<\/p>\n\n\n\n
Ji\u0159\u00edk kv\u016fli sv\u00fdm diagn\u00f3z\u00e1m vy\u017eaduje ka\u017edodenn\u00ed celodenn\u00ed p\u00e9\u010di, kter\u00e1 je pro rodi\u010de n\u00e1ro\u010dn\u00e1 po v\u0161ech str\u00e1nk\u00e1ch. V\u017edy mus\u00ed b\u00fdt pod dohledem osoby, kter\u00e1 je zau\u010den\u00e1, aby mohla vykon\u00e1vat v\u0161echny specifick\u00e9 \u00fakony.<\/p>\n\n\n\n
\u201eNejd\u016fle\u017eit\u011bj\u0161\u00ed je v\u0161ak ka\u017edodenn\u00ed p\u00e9\u010de o stomie. Je pot\u0159eba ods\u00e1vat z tracheostomie, pravideln\u011b ji vym\u011b\u0148ovat, d\u00e1le inhalace, lav\u00e1\u017eov\u00e1n\u00ed (zvlh\u010dov\u00e1n\u00ed) tracheostomie fyziologick\u00fdm roztokem, p\u0159evazov\u00e1n\u00ed jejunostomie, jej\u00ed v\u00fdm\u011bna a napojov\u00e1n\u00ed na enter\u00e1ln\u00ed pumpu, prost\u0159ednictv\u00edm kter\u00e9 se Ji\u0159\u00edkovi pod\u00e1v\u00e1 v\u00fd\u017eiva,\u201c jmenuje jen \u010d\u00e1st ka\u017edodenn\u00edch \u00fakon\u016f maminka.<\/p>\n\n\n\n
Zejm\u00e9na v obdob\u00ed, kdy trp\u00ed Ji\u0159\u00edk r\u00fdmou, jsou pro rodinu n\u00e1ro\u010dn\u00e1. Ji\u0159\u00edka mus\u00ed inhalovat ve dne v noci a neust\u00e1le ods\u00e1vat, aby mohl d\u00fdchat a neudusil se. Ka\u017ed\u00e9 nachlazen\u00ed proto znamen\u00e1 pro rodinu n\u011bkolik probd\u011bl\u00fdch noc\u00ed.<\/p>\n\n\n\n
Dalek\u00e9 cesty za rehabilitacemi<\/p>\n\n\n\n
Velk\u00fd po\u010det nark\u00f3z, operac\u00ed a celkov\u011b nep\u0159\u00edzniv\u00e9ho zdravotn\u00edho stavu zp\u016fsobil Ji\u0159\u00edkovi zna\u010dn\u00e9 opo\u017ed\u011bn\u00ed psychomotorick\u00e9ho v\u00fdvoje. Chlapec proto moment\u00e1ln\u011b spad\u00e1 do kategorie st\u0159edn\u011b t\u011b\u017ek\u00e9 ment\u00e1ln\u00ed retardace. V sedmi letech m\u011bl nastoupit do \u0161koly, ale rodin\u011b se nepoda\u0159ilo naj\u00edt takovou, kter\u00e1 by zajistila chlapcovy pot\u0159eby.<\/p>\n\n\n\n
\u201eCharakter Ji\u0159\u00edkovo posti\u017een\u00ed a paradoxn\u011b i motorick\u00fd pokrok, kter\u00fd je v\u00fdsledkem mnohalet\u00e9ho cvi\u010den\u00ed a terapi\u00ed, z n\u011bj ud\u011blaly d\u00edt\u011b obt\u00ed\u017en\u011b za\u0159aditeln\u00e9 i do speci\u00e1ln\u00edch instituc\u00ed. Na doporu\u010den\u00ed n\u011bkolika rodi\u010d\u016f jsme se nakonec obr\u00e1tili na speci\u00e1ln\u00ed \u0161kolu v Merkl\u00edn\u011b, kde n\u00e1s ochotou a vst\u0159\u00edcnost\u00ed nadchli. Ji\u0159\u00edk tam chod\u00ed moc r\u00e1d, d\u011bl\u00e1 pokroky a m\u00e1 mo\u017enost za\u010dlenit se mezi d\u011bti stejn\u00e9ho v\u011bku,\u201c m\u00e1 radost Ji\u0159\u00edkova maminka.<\/p>\n\n\n\n
Nejv\u011bt\u0161\u00ed p\u0159ek\u00e1\u017ekou je pro n\u011b v\u0161ak doj\u00ed\u017ed\u011bn\u00ed, jeliko\u017e se \u0161kola nenach\u00e1z\u00ed v jejich bl\u00edzkosti a doj\u00ed\u017ed\u011bt musej\u00ed i na pot\u0159ebn\u00e9 rehabilitace. \u201eKa\u017ed\u00fd den r\u00e1no Ji\u0159\u00edka voz\u00edm do \u0161koly a znovu ho vyzved\u00e1v\u00e1m o \u010dty\u0159i hodiny pozd\u011bji. Pro ka\u017edou dal\u0161\u00ed rehabilitaci, cvi\u010den\u00ed \u010di n\u00e1v\u0161t\u011bvu l\u00e9ka\u0159e je op\u011bt nezbytn\u00e1 p\u0159eprava vozidlem. Denn\u011b tak najezd\u00edm v\u00edce ne\u017e 120 kilometr\u016f. Spolehliv\u00fd automobil je pro n\u00e1s kl\u00ed\u010dov\u00fd, ale rodinn\u00fd rozpo\u010det n\u00e1m moment\u00e1ln\u011b neumo\u017e\u0148uje jej po\u0159\u00eddit,\u201c vysv\u011btluje maminka d\u016fvod, pro\u010d se rozhodla zalo\u017eit pro syna sb\u00edrku prost\u0159ednictv\u00edm platformy Donio. Pro po\u0159\u00edzen\u00ed lep\u0161\u00edho automobilu zb\u00fdv\u00e1 rodin\u011b vybrat necel\u00fdch 40 tis\u00edc korun.<\/p>\n\n\n\n
Co je to hydrocefalus?<\/p>\n\n\n\n
\u201eTerm\u00edn hydrocefalus poch\u00e1z\u00ed z \u0159e\u010dtiny: hydro = voda, kephale = hlava a znamen\u00e1 zv\u00fd\u0161enou akumulaci tekutin (mozkom\u00ed\u0161n\u00edho moku) v dutin\u00e1ch mozku – mozkov\u00fdch komor\u00e1ch. Vz\u00e1cn\u011b m\u016f\u017ee b\u00fdt hydrocefalus vrozen\u00fd nebo spojen\u00fd s v\u00fdvojov\u00fdmi poruchami. \u010cast\u011bji je hydrocefalus z\u00edskan\u00fd n\u00e1sledkem krv\u00e1cen\u00ed, \u00faraz\u016f hlavy, infekc\u00ed nebo po operac\u00edch mozku. Nej\u010dast\u011bj\u0161\u00edm v\u00fdkonem je zaveden\u00ed tzv. shuntu, kter\u00fd odv\u00e1d\u00ed mok z mozkov\u00fdch komor p\u0159es jednocestn\u00fd ventil do dutiny b\u0159i\u0161n\u00ed pod k\u016f\u017e\u00ed,\u201c vysv\u011btluje Neurochirurgick\u00e1 a neuroonkologick\u00e1 klinika 1. LF UK.<\/p>\n\n\n\n
Kate\u0159ina N\u011bmcov\u00e1<\/p>\n\n\n\n
Pra\u017esk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/prazsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Narozen\u00ed potomka je pro ka\u017edou rodinu velkou ud\u00e1lost\u00ed. Po bezprobl\u00e9mov\u00e9m porodu, ze kter\u00e9ho vzejde zdrav\u00e9 miminko, obvykle n\u00e1sleduj\u00ed okam\u017eiky nep\u0159ebern\u00e9ho \u0161t\u011bst\u00ed a \u00falevy, \u017ee v\u0161e […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":38777,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-45482","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/45482","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=45482"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/45482\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/38777"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=45482"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=45482"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=45482"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}