Projevuje se hlavn\u011b nadm\u011brn\u00fdm denn\u00edm sp\u00e1nkem a nekontrolovan\u00fdm us\u00edn\u00e1n\u00edm b\u011bhem dne. Narkolepsii m\u00e1 v \u010cesku asi jen p\u011btistovka pacient\u016f. Jedn\u00edm z t\u011bch, kte\u0159\u00ed touto autoimunitn\u00ed neurologickou chorobou trp\u00ed, je osmat\u0159icetilet\u00fd Martin Prymus. \u201e\u017dijeme ve stavu chronick\u00e9 \u00fanavy. Jako kdyby zdrav\u00fd \u010dlov\u011bk p\u0159i pln\u00e9 z\u00e1t\u011b\u017ei t\u0159i dny nespal. Jak s t\u00edm chcete pracovat?\u201c pt\u00e1 se.<\/p>\n\n\n\n
Vst\u00e1v\u00e1 v osm hodin r\u00e1no, v deset dopoledne mus\u00ed j\u00edt sp\u00e1t. P\u0159ed polednem vstane, naob\u011bdv\u00e1 se a po jedn\u00e9 odpoledne znovu us\u00edn\u00e1. Probere se okolo p\u00e1t\u00e9 a mezi \u0161estou a des\u00e1tou hodinou ve\u010dern\u00ed je schopn\u00fd fungovat. \u201eJen\u017ee kdo m\u011b zam\u011bstn\u00e1 v tuto dobu? I kdybych se cht\u011bl rekvalifikovat nebo studovat, v\u0161e se kon\u00e1 p\u0159es den,\u201c sd\u011blil.<\/p>\n\n\n\n
Prvn\u00ed p\u0159\u00edznaky se u n\u011bj objevily ji\u017e v patn\u00e1cti letech, ale diagn\u00f3za mu byla stanovena a\u017e v roce 2006 po prod\u011blan\u00e9 autonehod\u011b. Bylo mu jednadvacet let, v pr\u00e1ci t\u00edmto po t\u0159ech m\u011bs\u00edc\u00edch skon\u010dil. Po nemocensk\u00e9 si na\u0161el m\u00edsto telefonn\u00edho oper\u00e1tora. Skon\u010dil za t\u00fdden, us\u00ednal ji\u017e p\u0159i \u00favodn\u00edm \u0161kolen\u00ed. Kv\u016fli \u00fanav\u011b neusp\u011bl ani ve t\u0159et\u00edm zam\u011bstn\u00e1n\u00ed, kde m\u011bs\u00edc prod\u00e1val po\u010d\u00edta\u010dov\u00e9 komponenty.<\/p>\n\n\n\n
Jeliko\u017e byl jako elektromechanik odk\u00e1z\u00e1n zejm\u00e9na na pr\u00e1ci ve sm\u011bnn\u00e9m provozu, rozhodl se zm\u011bnit obor a za\u010dal studovat ekonomiku na vysok\u00e9 \u0161kole. Bakal\u00e1\u0159e je\u0161t\u011b vystudoval, magistersk\u00e9ho programu musel v p\u00e1t\u00e9m ro\u010dn\u00edku zanechat. \u201eM\u00edval jsem halucinace i uprost\u0159ed p\u0159edn\u00e1\u0161ek, padal \u00fanavou a nakonec se zcela zhroutil,\u201c popisuje.<\/p>\n\n\n\n
Psal se rok 2014 a nev\u011bd\u011bl, co d\u011blat. Sna\u017eil se vyvinout pokro\u010dilou relaxa\u010dn\u00ed aplikaci, ale neusp\u011bl. \u201e\u017diji na Karvinsku. S mou nemoc\u00ed a ve zdej\u0161\u00edm socioekonomick\u00e9m prost\u0159ed\u00edm je t\u011b\u017ek\u00e9 prosadit se s modern\u00edmi technologiemi,\u201c vysv\u011btloval. Skon\u010dil proto v evidenci \u00fa\u0159adu pr\u00e1ce, kde je doposud.<\/p>\n\n\n\n
Probl\u00e9m, kter\u00fd nen\u00ed vid\u011bt<\/p>\n\n\n\n
Roku 2018 se rozhodl po\u017e\u00e1dat o invalidn\u00ed d\u016fchod. \u201eM\u00edsto, aby m\u011b zkoumal neurolog, prov\u011b\u0159oval m\u011b coby posudkov\u00fd l\u00e9ka\u0159 ortoped. Neuznal mn\u011b v\u016fbec nic. Ptal se, co tam chci, kdy\u017e m\u00e1m zdrav\u00e9 ruce i nohy. Marn\u011b jsem mu vysv\u011btloval, \u017ee jde o neurologick\u00fd probl\u00e9m, jen\u017e nen\u00ed vid\u011bt,\u201c popsal.<\/p>\n\n\n\n
Uznali mu 20 procent sn\u00ed\u017een\u00e9 pracovn\u00ed schopnosti. Na nejni\u017e\u0161\u00ed, 1. stupe\u0148 invalidity, je pot\u0159eba alespo\u0148 35 procent. \u201ePodal jsem odvol\u00e1n\u00ed, ale posuzovala to l\u00e9ka\u0159ova kolegyn\u011b a dopadlo to stejn\u011b. \u0158\u00edkal jsem si, \u017ee nem\u00e1m co ztratit, tak jsem se za\u010dal soudit,\u201c pokra\u010doval.<\/p>\n\n\n\n
Soud dal p\u0159\u00edpad p\u0159ezkoumat L\u00e9ka\u0159sk\u00e9 posudkov\u00e9 slu\u017eb\u011b ministerstva pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed. \u201eJedn\u00e1 se ale o stejnou posudkovou organizaci a v\u00fdsledek tomu tak\u00e9 odpov\u00eddal, i kdy\u017e mi p\u0159iznali 1. stupe\u0148 invalidity,\u201c povzdechl si Prymus. Na popud soudu v\u011bc posuzoval i soudn\u00ed znalec, posudku od n\u011bj se ale nedo\u010dkal.<\/p>\n\n\n\n
Mluv\u010d\u00ed \u010cesk\u00e9 spr\u00e1vy soci\u00e1ln\u00edho zabezpe\u010den\u00ed (\u010cSSZ) Tereza Koukolov\u00e1 u\u017e d\u0159\u00edve Den\u00edku sd\u011blila, \u017ee p\u0159i odvol\u00e1n\u00ed proti jejich prvoinstan\u010dn\u00edmu rozhodnut\u00ed p\u0159\u00edpad dostane n\u00e1mitkov\u00e9 odd\u011blen\u00ed spr\u00e1vy. To si vy\u017e\u00e1d\u00e1 nov\u00e9 posouzen\u00ed zdravotn\u00edho stavu a pracovn\u00ed schopnosti od posudkov\u00e9 slu\u017eby. \u201eDodr\u017eujeme z\u00e1sadu, \u017ee stejnou v\u011bc nikdy neposuzuje stejn\u00fd l\u00e9ka\u0159,\u201c zd\u016fraznila.<\/p>\n\n\n\n
Znovu u soudu<\/p>\n\n\n\n
Prymus se do\u010dkal 1. stupn\u011b invalidity, ale invalidn\u00ed d\u016fchod mu neza\u010dali vypl\u00e1cet, proto\u017ee mu chyb\u011blo doplatit p\u011bt m\u011bs\u00edc\u016f soci\u00e1ln\u00edho poji\u0161t\u011bn\u00ed. Doplatek by \u010dinil 15 tis\u00edc korun a zd\u016fraz\u0148uje, \u017ee ho cht\u011bl hned uhradit. Okresn\u00ed spr\u00e1va soci\u00e1ln\u00edho zabezpe\u010den\u00ed po n\u011bm v\u0161ak chce 47 tis\u00edc korun, tedy doplatek neuzn\u00e1vaj\u00edc\u00ed dobu prob\u011bhl\u00e9ho soudn\u00edho \u0159\u00edzen\u00ed. V\u011bc tedy \u0159e\u0161\u00ed op\u011bt soudn\u011b.<\/p>\n\n\n\n
Tak\u00e9 se obr\u00e1til s \u017ealobou na Nejvy\u0161\u0161\u00ed spr\u00e1vn\u00ed soud. \u201ePrvn\u00ed stupe\u0148 invalidity nic ne\u0159e\u0161\u00ed, s moj\u00ed chorobou se ned\u00e1 prakticky nikde pracovat. Nav\u00edc mi invaliditu p\u0159iznali od roku 2019, p\u0159itom chorobu m\u00e1m prokazateln\u011b ji\u017e od roku 2007. K \u017ealob\u011b jsem p\u0159ipojil i dva posudky stejn\u00e9 diagn\u00f3zy, kdy doty\u010dn\u00ed dostali 3. stupe\u0148 invalidity. Nikdo se ale k tomuto nevyj\u00e1d\u0159il,\u201c vysv\u011btlil.<\/p>\n\n\n\n
Nejvy\u0161\u0161\u00ed spr\u00e1vn\u00ed soud v\u0161ak \u017ealobu v\u016fbec neprojedn\u00e1val z d\u016fvodu \u201epr\u00e1vn\u00edho \u00fasp\u011bchu p\u0159i prob\u011bhl\u00e9m soudn\u00edm \u0159\u00edzen\u00ed\u201c. A tak se op\u011bt soud\u00ed.<\/p>\n\n\n\n
V roce 2022 zalo\u017eil soukromou facebookovou skupinu Posti\u017een\u00ed proti \u010cSSZ, kde se sdru\u017euj\u00ed zdravotn\u011b handicapovan\u00ed, kte\u0159\u00ed se c\u00edt\u00ed b\u00fdt po\u0161kozeni st\u00e1tem podobn\u011b jako on a st\u011b\u017euj\u00ed si, \u017ee st\u00e1t jim nepr\u00e1vem sni\u017euje \u010di ru\u0161\u00ed invaliditu. Skupina \u010d\u00edt\u00e1 p\u0159es 4000 \u010dlen\u016f a ka\u017ed\u00fd den p\u0159ib\u00fdvaj\u00ed dal\u0161\u00ed. Prymus se tu sna\u017e\u00ed pom\u00e1hat lidem, kter\u00e9 dohady s \u00fa\u0159ady a soudn\u00ed p\u0159e teprve \u010dekaj\u00ed. \u201eSt\u00e1t se na n\u00e1s sna\u017e\u00ed \u0161et\u0159it a nezaj\u00edm\u00e1 ho, jak n\u00e1s po\u0161kozuje,\u201c prohl\u00e1sil.<\/p>\n\n\n\n
Podle mluv\u010d\u00ed \u010cSSZ Koukolov\u00e9 je pokles po\u010dtu invalidn\u00edch d\u016fchodc\u016f pouze optick\u00fd. Od roku 2010 se zavedl syst\u00e9m, kdy dovr\u0161en\u00edm 65. roku v\u011bku se ka\u017ed\u00fd invalidn\u00ed d\u016fchod p\u0159ejmenuje na starobn\u00ed. \u201ePo\u010det uznan\u00fdch invalidit ve skute\u010dnosti m\u00edrn\u011b stoup\u00e1,\u201c doplnila. M\u00edrn\u011b podle n\u00ed stoup\u00e1 i po\u010det osob s uznanou invaliditou, ov\u0161em bez pot\u0159ebn\u00e9 doby d\u016fchodov\u00e9ho poji\u0161t\u011bn\u00ed pro dan\u00fd v\u011bk, jim\u017e proto invalidn\u00ed d\u016fchod nen\u00ed p\u0159izn\u00e1n.<\/p>\n\n\n\n
Prymus netu\u0161\u00ed, jak se ze sv\u00e9 sv\u00edzeln\u00e9 situace dostat. \u201eOd st\u00e1tu jsem doposud nedostal ani korunu, \u017eiji u rodi\u010d\u016f, kte\u0159\u00ed jsou ve starobn\u00edm d\u016fchodu a kompletn\u011b m\u011b \u017eiv\u00ed. Jsem veden\u00fd na \u00fa\u0159adu pr\u00e1ce, ale tam nev\u011bd\u00ed, co se mnou d\u011blat. Nav\u00edc jsem i bez perspektivy starobn\u00edho d\u016fchodu,\u201c popsal.<\/p>\n\n\n\n
Invalid\u00e9 proti st\u00e1tu<\/p>\n\n\n\n
Na Facebooku vznikla skupina Posti\u017een\u00ed proti \u010cSSZ (\u010cesk\u00e9 spr\u00e1v\u011b soci\u00e1ln\u00edho zabezpe\u010den\u00ed). Hl\u00e1s\u00ed se do n\u00ed lid\u00e9, kter\u00fdm st\u00e1t zam\u00edtl \u017e\u00e1dost o invaliditu \u010di o zv\u00fd\u0161en\u00ed jej\u00edho stupn\u011b, pop\u0159\u00edpad\u011b \u017e\u00e1dost o p\u0159\u00edsp\u011bvek na p\u00e9\u010di \u010di jeho zv\u00fd\u0161en\u00ed. V sou\u010dasn\u00e9 chv\u00edli m\u00e1 ji\u017e p\u0159es 4000 \u010dlen\u016f a dal\u0161\u00ed st\u00e1le p\u0159ib\u00fdvaj\u00ed.<\/p>\n\n\n\n
Na v\u00fdzvu Den\u00edku.cz se redakci oz\u00fdvaj\u00ed des\u00edtky posti\u017een\u00fdch, kte\u0159\u00ed se c\u00edt\u00ed rozhodnut\u00edm \u010cSSZ po\u0161kozeni.<\/p>\n\n\n\n
Zuzana Hronov\u00e1<\/p>\n\n\n\n
Den\u00edk.cz<\/p>\n\n\n\n
https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Projevuje se hlavn\u011b nadm\u011brn\u00fdm denn\u00edm sp\u00e1nkem a nekontrolovan\u00fdm us\u00edn\u00e1n\u00edm b\u011bhem dne. Narkolepsii m\u00e1 v \u010cesku asi jen p\u011btistovka pacient\u016f. Jedn\u00edm z t\u011bch, kte\u0159\u00ed touto autoimunitn\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":27904,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-45970","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/45970","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=45970"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/45970\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/27904"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=45970"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=45970"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=45970"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}