Den vz\u00e1cn\u00fdch onemocn\u011bn\u00ed. M\u011bsto Opava si ho ve \u010dtvrtek 29. \u00fanora od 17 hodin u\u017e po t\u0159et\u00ed p\u0159ipomene p\u0159ed kostelem sv. Jan\u016f. Inici\u00e1torkou akce je \u010dlenka \u010cesk\u00e9 asociace pro vz\u00e1cn\u00e1 onemocn\u011bn\u00ed Lenka Mart\u00ednkov\u00e1, kter\u00e1 sama trp\u00ed velmi vz\u00e1cnou nemoc\u00ed a letos ji podpo\u0159ili vlivn\u00ed patroni.<\/p>\n\n\n\n
Videopozv\u00e1nku na opavskou akci nato\u010dil herec a zp\u011bv\u00e1k David Kraus, a proslov za Lenku Mart\u00ednkovou, kter\u00e9 nemoc neumo\u017e\u0148uje hovo\u0159it, za ni p\u0159e\u010dte spisovatelka Karin Lednick\u00e1. Kostel sv. Jan\u016f bude po rozsv\u00edcen\u00ed z\u00e1\u0159it modrou, zelenou a fialovou barvou. P\u0159ipoj\u00ed se t\u00edm k tis\u00edc\u016fm m\u00edst na v\u0161ech kontinentech, kde si id\u00e9 budou projekc\u00ed t\u011bchto barev p\u0159ipom\u00ednat, \u017ee dosud bylo objeveno v\u00edce ne\u017e sedm tis\u00edc vz\u00e1cn\u00fdch onemocn\u011bn\u00ed. N\u011bkter\u00e1 se vyskytuj\u00ed jen u n\u011bkolika m\u00e1lo pacient\u016f na sv\u011bt\u011b a jedna z nich \u017eije v Opav\u011b.<\/p>\n\n\n\n
B\u00fdval\u00e1 pracovnice Mas\u00e1\u017en\u00edho centra Charity Opava Lenka Mart\u00ednkov\u00e1 se pot\u00fdk\u00e1 s onemocn\u011bn\u00edm, jim\u017e trp\u00ed v \u010cesk\u00e9 republice pouze deset lid\u00ed. Upoutalo ji na voz\u00edk a komunikovat m\u016f\u017ee jen p\u00edsemn\u011b, p\u0159esto z\u016fst\u00e1v\u00e1 velmi aktivn\u00ed. Star\u00e1 se nap\u0159\u00edklad o facebook i webov\u00e9 str\u00e1nky SONSu a doj\u00ed\u017ed\u00ed do Prahy na sch\u016fzky spolku Alsa, kter\u00fd se v\u011bnuje p\u00e9\u010di o pacienty s amyotrofickou later\u00e1ln\u00ed skler\u00f3zou (ALS). Loni se z\u00fa\u010dastnila fotografov\u00e1n\u00ed pro benefi\u010dn\u00ed kalend\u00e1\u0159, zachycuj\u00edc\u00ed setk\u00e1n\u00ed pacient\u016f s v\u00fdznamn\u00fdmi osobnostmi. Patronem Lenky Mart\u00ednkov\u00e9 byl herec a hudebn\u00edk David Kraus se svou maminkou, here\u010dkou Janou Krausovou. Letos ji 29. \u00fanora p\u0159ijede do Opavy podpo\u0159it Karin Lednick\u00e1.<\/p>\n\n\n\n
P\u0159ed kostelem sv. Jan\u016f budou od 17 hodin p\u0159\u00edtomni pracovn\u00edci Charity Opava, kte\u0159\u00ed p\u0159\u00edtomn\u00fdm z\u00e1jemc\u016fm p\u0159edaj\u00ed eduka\u010dn\u00ed let\u00e1ky, nab\u00eddnout hork\u00fd \u010daj a k tomu zahraje bluesman Lubo\u0161 Bu\u017ema Kh\u00fdr. Se vz\u00e1cn\u00fdm onemocn\u011bn\u00edm m\u00e1 rovn\u011b\u017e osobn\u00ed zku\u0161enost. Ve st\u0159edn\u00edm v\u011bku se u n\u011bj projevila skryt\u00e1 vrozen\u00e1 o\u010dn\u00ed vada a po mnoha chirurgick\u00fdch z\u00e1kroc\u00edch se ocitl ve stavu praktick\u00e9 slepoty. Jedn\u00edm z c\u00edl\u016f Dne vz\u00e1cn\u00fdch onemocn\u011bn\u00ed je pacienty vz\u00e1jemn\u011b spojovat. \u201eJe mnohem jednodu\u0161\u0161\u00ed, kdy\u017e se m\u00e1me na koho obr\u00e1tit a sd\u00edlet s n\u00edm sv\u00e9 pot\u0159eby a zku\u0161enosti. Pokud n\u011bkter\u00fdm vz\u00e1cn\u00fdm onemocn\u011bn\u00edm trp\u00edte nebo v\u00edte o n\u011bkom, kdo by pomoc uv\u00edtal, nev\u00e1hejte m\u011b pros\u00edm kontaktovat na e-mailov\u00e9 adrese lenkamartinkovahsp@gmail.com,\u201c vzkazuje Opavan\u016fm spisovatelka Lenka Mart\u00ednkov\u00e1.<\/p>\n\n\n\n
Posti\u017een\u00fdm m\u016f\u017ee asociace pomoci v hled\u00e1n\u00ed spr\u00e1vn\u00e9 diagn\u00f3zy i v odpov\u00eddaj\u00edc\u00ed a dostupn\u00e9 l\u00e9ka\u0159sk\u00e9 nebo rehabilita\u010dn\u00ed p\u00e9\u010di, s l\u00e9ky nebo s pot\u0159ebn\u00fdmi informacemi. Po\u0159\u00e1daj\u00edc\u00ed organizac\u00ed Dne vz\u00e1cn\u00fdch onemocn\u011bn\u00ed je Charita Opava s opavskou pobo\u010dkou Sjednocen\u00e9 organizace nevidom\u00fdch a slabozrak\u00fdch (SONS), festivalem Slunovrat a spolkem kostela sv. Jan\u016f.<\/p>\n\n\n\n
Jitka Hru\u0161kov\u00e1<\/p>\n\n\n\n
Opavsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/opavsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Den vz\u00e1cn\u00fdch onemocn\u011bn\u00ed. M\u011bsto Opava si ho ve \u010dtvrtek 29. \u00fanora od 17 hodin u\u017e po t\u0159et\u00ed p\u0159ipomene p\u0159ed kostelem sv. Jan\u016f. Inici\u00e1torkou akce je […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":1804,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-46360","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/46360","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=46360"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/46360\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/1804"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=46360"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=46360"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=46360"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}