{"id":47151,"date":"2024-03-18T11:37:05","date_gmt":"2024-03-18T10:37:05","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=47151"},"modified":"2024-03-18T11:40:01","modified_gmt":"2024-03-18T10:40:01","slug":"lide-podpori-pacienty-s-roztrousenou-sklerozou-na-24hodinovem-maratonu","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=47151","title":{"rendered":"Lid\u00e9 podpo\u0159\u00ed pacienty s\u00a0roztrou\u0161enou skler\u00f3zou na 24hodinov\u00e9m maratonu"},"content":{"rendered":"\n

Lid\u00e9 s roztrou\u0161enou skler\u00f3zou (RS) si letos op\u011bt zasportuj\u00ed se sv\u00fdmi bl\u00edzk\u00fdmi, a z\u00edskaj\u00ed tak d\u00e1vku motivace pro boj s nemoc\u00ed v r\u00e1mci akce Maraton s roztrou\u0161enou skler\u00f3zou (MaRS). Ten se kon\u00e1 u\u017e t\u0159in\u00e1ct\u00fdm rokem po cel\u00e9 republice. V Praze odstartuje v p\u00e1tek 22. b\u0159ezna. \u00da\u010dastn\u00edci si vyzkou\u0161\u00ed kruhov\u00fd tr\u00e9nink, tanec na \u017eidl\u00edch nebo box. V\u00fdt\u011b\u017eek z dobrovoln\u00e9ho vstupn\u00e9ho poputuje na n\u00e1kup rehabilita\u010dn\u00edch pom\u016fcek a \u00fahradu pohybov\u00e9 terapie pro pacienty s RS.<\/strong><\/p>\n\n\n\n

Lid\u00e9 s RS i jejich bl\u00edzc\u00ed vyraz\u00ed na maraton MaRS, kter\u00fd startuje 22. b\u0159ezna ve 14 hodin ve FitnessAction na Praze 4. Dal\u0161\u00ed sportovn\u00ed aktivity se budou konat i v Divok\u00e9 \u0160\u00e1rce nebo v Radot\u00edn\u011b. \u201e<\/em>C\u00edlem je spole\u010dn\u011b si zacvi\u010dit a u\u017e\u00edt si to. Proto se akce \u00fa\u010dastn\u00ed i rodiny nebo p\u0159\u00e1tel\u00e9 lid\u00ed s roztrou\u0161enou skler\u00f3zou. Vz\u00e1jemn\u011b se motivuj\u00ed k pohybu, kter\u00fd je nejenom pro pacienty velmi prosp\u011b\u0161n\u00fd,\u201c <\/em>vysv\u011btluje Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fondu IMPULS, kter\u00fd akci po\u0159\u00e1d\u00e1. Jej\u00ed slova potvrzuje i motto sportovn\u00edho maratonu: \u201e<\/em>V\u00edt\u011bzem MaRSu je ka\u017ed\u00fd, kdo vezme \u017eivot do vlastn\u00edch rukou.\u201c Pro \u00fasp\u011b\u0161nou l\u00e9\u010dbu RS je toti\u017e pohyb nezbytn\u00fd. <\/em>\u201eD\u00edky n\u011bmu se pacienti udr\u017euj\u00ed v dobr\u00e9 kondici. Nav\u00edc se uk\u00e1zalo, \u017ee \u00fasp\u011bch biologick\u00e9 l\u00e9\u010dby, kterou pacienti s RS \u010dasto podstupuj\u00ed, je v\u00fdrazn\u011b vy\u0161\u0161\u00ed u t\u011bch, kte\u0159\u00ed se pravideln\u011b h\u00fdbou,\u201c <\/em>\u0159\u00edk\u00e1 B\u00e9mov\u00e1.
<\/em><\/p>\n\n\n\n

Letos nav\u00edc MaRSu p\u0159edch\u00e1z\u00ed projekt Pentatlon \u2013 p\u011btiboj trvaj\u00edc\u00ed po dobu p\u011bti t\u00fddn\u016f, p\u0159i\u010dem\u017e ka\u017ed\u00fd t\u00fdden \u010dek\u00e1 na z\u00e1jemce v\u00fdzva v podobn\u011b rozli\u010dn\u00fdch druh\u016f pohybu. I samotn\u00fd MaRS pak nab\u00edz\u00ed pestrou \u0161k\u00e1lu cvi\u010den\u00ed a lekce povedou krom\u011b fyzioterapeut\u016f a cvi\u010ditel\u016f i studenti z Fakulty t\u011blesn\u00e9 v\u00fdchovy a sportu Univerzity Karlovy. <\/em><\/p>\n\n\n\n

\u201eNab\u00eddka sportovn\u00edch aktivit v r\u00e1mci maratonu je \u0161irok\u00e1, aby si ka\u017ed\u00fd pacient na\u0161el to, co mu vyhovuje,\u201c <\/em>\u0159\u00edk\u00e1 <\/em>neurolo\u017eka a vedouc\u00ed Centra pro demyeliniza\u010dn\u00ed onemocn\u011bn\u00ed Neurologick\u00e9 kliniky 1. LF UK a VFN v Praze p<\/em>rof. MUDr. Eva Kubala Havrdov\u00e1, kter\u00e1 bude v sobotu p\u0159edcvi\u010dovat kundalini j\u00f3gu. \u201eTento druh j\u00f3gy je harmonizuj\u00edc\u00ed pro <\/em>t\u011blo i ducha, co\u017e pom\u016f\u017ee pacient\u016fm vyrovnat se s nemoc\u00ed nejenom po fyzick\u00e9, ale i po ment\u00e1ln\u00ed str\u00e1nce. I to je toti\u017e c\u00edlem MaRSu \u2013 pomoci pacient\u016fm psychicky,\u201c <\/em>dod\u00e1v\u00e1 prof. Havrdov\u00e1.
<\/p>\n\n\n\n

Cvi\u010debn\u00edho maratonu pod veden\u00edm zku\u0161en\u00fdch fyzioterapeut\u016f a cvi\u010ditel\u016f se m\u016f\u017ee z\u00fa\u010dastnit ka\u017ed\u00fd, kdo chce podpo\u0159it pacienty s RS. V\u00edce o programu akce se z\u00e1jemci dozv\u00ed na www.maratonmars.cz<\/a>. \u201eLeto\u0161n\u00ed MaRS v\u011bnujeme na\u0161emu kolegovi Davidu Ju\u0159inovi, kter\u00fd n\u00e1s na konci \u00fanora opustil. Od prvn\u00edho ro\u010dn\u00edku MaRSu byl jeho ned\u00edlnou sou\u010d\u00e1st\u00ed. Jsme mu vd\u011b\u010dni za energii, kterou MaRSu v\u011bnoval, a za pozitivitu, kterou \u0161\u00ed\u0159il,“<\/em> uzav\u00edr\u00e1 Kate\u0159ina B\u00e9mov\u00e1.<\/p>\n\n\n\n

\"\"\n\t\t\t\n\t\t\t\t\n\t\t\t<\/svg>\n\t\t<\/button><\/figure>\n\n\n\n
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MaRS_2024_plaka\u0301t<\/figcaption><\/figure>\n\n\n\n

O roztrou\u0161en\u00e9 skler\u00f3ze<\/strong><\/p>\n\n\n\n

<\/a> Roztrou\u0161en\u00e1 skler\u00f3za (RS) je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1ma. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed akutn\u00edch zhor\u0161en\u00ed (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence jsou t\u011b\u017ek\u00e9. Na cel\u00e9m sv\u011bt\u011b trp\u00ed RS 2,5 milionu nemocn\u00fdch, v \u010cesku se odhaduje po\u010det pacient\u016f na 20 tis\u00edc. Nemoc se vyskytuje p\u0159edev\u0161\u00edm ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus (Epsteina-Barrov\u00e9 virus), kou\u0159en\u00ed a nedostatek vitaminu D. Informace o roztrou\u0161en\u00e9 skler\u00f3ze lze nal\u00e9zt i na port\u00e1le www.rskompas.cz<\/em><\/a> nebo aktivnizivot.cz<\/em><\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

Lid\u00e9 s roztrou\u0161enou skler\u00f3zou (RS) si letos op\u011bt zasportuj\u00ed se sv\u00fdmi bl\u00edzk\u00fdmi, a z\u00edskaj\u00ed tak d\u00e1vku motivace pro boj s nemoc\u00ed v r\u00e1mci akce Maraton s roztrou\u0161enou skler\u00f3zou (MaRS). […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":47154,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-47151","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/47151","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=47151"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/47151\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/47154"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=47151"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=47151"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=47151"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}