{"id":47337,"date":"2024-03-25T09:35:37","date_gmt":"2024-03-25T08:35:37","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=47337"},"modified":"2024-03-25T09:35:38","modified_gmt":"2024-03-25T08:35:38","slug":"koordinator-paliativni-pece","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=47337","title":{"rendered":"Koordin\u00e1tor paliativn\u00ed p\u00e9\u010de\u00a0\u00a0"},"content":{"rendered":"\n

\u010cT 1\u00a0– Ud\u00e1losti

Rodiny s v\u00e1\u017en\u011b nemocn\u00fdmi d\u011btmi z\u00edskaly oporu, kter\u00e1 jim dosud chyb\u011bla, koordin\u00e1tor p\u00e9\u010de jim pom\u00e1h\u00e1 komunikovat s odborn\u00edky a zaji\u0161\u0165uje v\u0161echny pot\u0159ebn\u00e9 \u00fakony. Pilotn\u00ed projekt usiluje o to, aby se t\u0159eba v Brit\u00e1nii zcela b\u011b\u017en\u00e1 slu\u017eba napevno dostala i do \u010desk\u00e9ho syst\u00e9mu.
——————–
Jakub s otcem p\u0159ich\u00e1z\u00ed do nemocnice, v Motole se setk\u00e1vaj\u00ed s koordin\u00e1torkou a spole\u010dn\u011b \u010dekaj\u00ed na pravidelnou d\u00e1vku l\u00e9ku.

Mark\u00e9ta Taberyov\u00e1, koordin\u00e1torka p\u00e9\u010de
——————–
Sest\u0159i\u010dky \u0159\u00edkaly, \u017ee v\u0161echno prob\u00edhalo \u00fapln\u011b v pohod\u011b, \u017ee ty \/nesrozumiteln\u00e9\/ zase jako, \u017ee to funguje, no.

Jakub Kadera, chlapec s Duchennovou svalovou dystrofi\u00ed
——————–
Toho v\u00edc vydr\u017e\u00edm, jako\u017ee chod\u00edm v\u00edc dlouho, \u017ee t\u0159eba ujdu u\u017e kilometry. \u017de nejsem tak unavenej.

redaktorka \u010cT
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Ochabuj\u00ed mu svaly. D\u011bdi\u010dnou a zat\u00edm nevyl\u00e9\u010ditelnou Duchennovu dystrofii Jakubovi zjistili, kdy\u017e mu byl rok.

Lubo\u0161 Kadera, Jakub\u016fv otec
——————–
Chyb\u011bla ta mo\u017enost v t\u00fd dob\u011b asi t\u00fd psychologick\u00fd pomoci n\u011bjak se s t\u00edm vypo\u0159\u00e1dat jakoby s tou informac\u00ed, kter\u00e1 n\u00e1s docela jako zas\u00e1hla.

redaktorka \u010cT
——————–
Nav\u00edc Jakub se z\u00fa\u010dastnil testov\u00e1n\u00ed nov\u00e9ho l\u00e9ku. Pr\u00e1v\u011b koordin\u00e1torka vyjedn\u00e1vala, aby ho mohl dostat i po ukon\u010den\u00ed studie.

Lubo\u0161 Kadera, Jakub\u016fv otec
——————–
Pom\u00e1h\u00e1 vlastn\u011b celkov\u011b, a\u0165 u\u017e s pomoci s \u00fa\u0159ady, se \u0161kolou, s jin\u00fdmi l\u00e9ka\u0159i. Kdy\u017e v\u00edte, jako \u017ee se o v\u00e1s n\u011bkdo zaj\u00edm\u00e1, zaj\u00edm\u00e1 se n\u011bkdo o va\u0161eho syna, tak je to prost\u011b k nezaplacen\u00ed.

redaktorka \u010cT
——————–
V kontaktu jsou dle pot\u0159eby. Koordin\u00e1torce doporu\u010duj\u00ed vhodn\u00e9 rodiny, hlavn\u011b l\u00e9ka\u0159i.

Mark\u00e9ta Taberyov\u00e1, koordin\u00e1torka p\u00e9\u010de
——————–
P\u00e9\u010de by m\u011bla za\u010d\u00ednat u\u017e v tu chv\u00edli, kdy se ta rodina dozv\u00ed tu diagn\u00f3zu. N\u011bkdo pot\u0159ebuje kontakty na odborn\u00edky, kter\u00fd mu pom\u016f\u017eou v r\u00e1mci soci\u00e1ln\u00ed p\u00e9\u010de. N\u011bkdo pot\u0159ebuje za\u0159\u00eddit\u00a0invalidn\u00ed<\/strong>\u00a0voz\u00ed\u010dek.

redaktorka \u010cT
——————–
Do pilotn\u00edho projektu se zapojilo 13 koordin\u00e1tor\u016f, krom\u011b Fakultn\u00ed nemocnice Motol jsou v dal\u0161\u00edch p\u011bti za\u0159\u00edzen\u00edch v \u010cesk\u00e9 republice. Spole\u010dn\u011b se sna\u017e\u00ed jejich funkci nastavit ve zdravotnictv\u00ed, soci\u00e1ln\u00edch i komunitn\u00edch slu\u017eb\u00e1ch. Z\u00e1rove\u0148 jde o dal\u0161\u00ed krok v rozvoji d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de.

Monika Kofro\u0148ov\u00e1 (spoluorganiz\u00e1torka projektu, Institut Pallium),
——————–
Po\u0159\u00e1d je tady n\u011bjak\u00fd prostor pro to zvy\u0161ovat kvalitu \u017eivota t\u011bch d\u011bt\u00ed t\u00edm, \u017ee vlastn\u011b ty slu\u017eby prov\u00e1\u017eeme, \u017ee je tady n\u011bjak\u00e1 jedna konkr\u00e9tn\u00ed osoba, kter\u00e1 se t\u011bm rodin\u00e1m m\u016f\u017ee v\u011bnovat.<\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

\u010cT 1\u00a0– Ud\u00e1losti Rodiny s v\u00e1\u017en\u011b nemocn\u00fdmi d\u011btmi z\u00edskaly oporu, kter\u00e1 jim dosud chyb\u011bla, koordin\u00e1tor p\u00e9\u010de jim pom\u00e1h\u00e1 komunikovat s odborn\u00edky a zaji\u0161\u0165uje v\u0161echny pot\u0159ebn\u00e9 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":47385,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-47337","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/47337","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=47337"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/47337\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/47385"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=47337"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=47337"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=47337"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}