Mal\u00fd Vojt\u00ed\u0161ek se ji\u017e dva roky pot\u00fdk\u00e1 s nejt\u011b\u017e\u0161\u00ed formou epilepsie. Z\u00e1chvaty r\u016fzn\u00fdch typ\u016f a intenzity m\u00edv\u00e1 nep\u0159etr\u017eit\u011b, ve dne i v noci. P\u0159esto\u017ee se narodil jako zdrav\u00fd chlapec, dnes kv\u016fli n\u00e1kaze herpetickou encefalitidou bojuje s v\u00e1\u017en\u00fdm po\u0161kozen\u00edm mozku. To se podepsalo na jeho fyzick\u00e9m i ment\u00e1ln\u00edm stavu. Jeho maminka Lucie Kunovsk\u00e1 tak nem\u016f\u017ee doch\u00e1zet do zam\u011bstn\u00e1n\u00ed. Z p\u0159\u00edsp\u011bvku od st\u00e1tu v\u0161ak nelze Vojt\u00ed\u0161kovi zaplatit pot\u0159ebn\u00e9 rehabilitace.<\/p>\n\n\n\n
Porod mal\u00e9ho Vojt\u00ed\u0161ka doprov\u00e1zely pocity \u0161t\u011bst\u00ed z narozen\u00ed zdrav\u00e9ho d\u00edt\u011bte. A\u017e do sedm\u00e9ho m\u011bs\u00edce chlapec prosp\u00edval. Rodi\u010d\u016fm rostl p\u0159ed o\u010dima, ka\u017ed\u00fd den se nau\u010dil n\u011bco nov\u00e9ho, od narozen\u00ed se um\u00edval. Pak ale rodin\u011b vstoupila do \u017eivota nemoc.<\/p>\n\n\n\n
Vojt\u00ed\u0161ek se nakazil herpetickou encefalitidou, ochrnul na p\u016flku t\u011bla a na jednotce intenzivn\u00ed p\u00e9\u010de bojoval o \u017eivot.<\/p>\n\n\n\n
D\u00edky obrovsk\u00e9mu nasazen\u00ed sv\u00e9 maminky a ka\u017edodenn\u00edm rehabilitac\u00edm se za\u010dal zotavovat a mohl b\u00fdt propu\u0161t\u011bn dom\u016f. Zanedlouho se v\u0161ak jeho stav zhor\u0161il natolik, \u017ee m\u00edv\u00e1 i sto epileptick\u00fdch z\u00e1chvat\u016f denn\u011b. Zpomalil se tak\u00e9 jeho v\u00fdvoj a byla mu diagnostikov\u00e1na t\u011b\u017ek\u00e1 ment\u00e1ln\u00ed retardace.<\/p>\n\n\n\n
Dnes jsou Vojt\u00ed\u0161kovi 2 roky a 6 m\u011bs\u00edc\u016f. Jeho stav se bohu\u017eel nezlep\u0161uje.<\/p>\n\n\n\n
Velmi v\u00e1\u017en\u00fd klinick\u00fd stav<\/p>\n\n\n\n
S herpetickou encefalitidou bojuje chlapec u\u017e druh\u00fdm rokem. Poprv\u00e9 se nemoc projevila v sedm\u00e9m m\u011bs\u00edci jeho \u017eivota.<\/p>\n\n\n\n
\u201eVojt\u00ed\u0161k\u016fv stav byl velice v\u00e1\u017en\u00fd. Vir mu po\u0161kodil t\u00e9m\u011b\u0159 celou pravou hemisf\u00e9ru a \u010d\u00e1sti lev\u00e9 hemisf\u00e9ry mozku. Ochrnul na levou stranu t\u011bla. Najednou byl z vysm\u00e1t\u00e9ho chlape\u010dka d\u00edt\u011btem, kter\u00e9 je utlumen\u00e9 siln\u00fdmi l\u00e9ky. Byl jako t\u011blo bez du\u0161e,\u201c hovo\u0159\u00ed o prvotn\u00ed zku\u0161enosti s nemoc\u00ed Stanislava Gury\u010dov\u00e1, rodinn\u00e1 p\u0159\u00edtelkyn\u011b a zakladatelka sb\u00edrky na platform\u011b Donio.<\/p>\n\n\n\n
S maminkou Luci\u00ed Kunovskou str\u00e1vil chlapec po propuknut\u00ed nemoci m\u011bs\u00edc na jednotce intenzivn\u00ed p\u00e9\u010de, kde state\u010dn\u011b bojoval o \u017eivot. Z p\u0159\u00edm\u00e9ho ohro\u017een\u00ed se nakonec dostal. Proto\u017ee se za\u010dal zotavovat, byl propu\u0161t\u011bn do dom\u00e1c\u00ed p\u00e9\u010de. L\u00e9ka\u0159i dali jeho mamince Lucii Kunovsk\u00e9 pot\u0159ebn\u00e9 \u0161kolen\u00ed. Informovali ji z\u00e1rove\u0148 o tom, k jak v\u00e1\u017en\u00e9mu po\u0161kozen\u00ed mozku do\u0161lo i jak\u00e9 n\u00e1sledky a dal\u0161\u00ed v\u00fdvoj m\u016f\u017ee o\u010dek\u00e1vat.<\/p>\n\n\n\n
Rehabilitace a rychl\u00fd propad<\/p>\n\n\n\n
P\u0159es ve\u0161ker\u00e9 hrozby l\u00e9ka\u0159\u016f se Vojt\u00ed\u0161ek nejprve za\u010dal v dom\u00e1c\u00edm prost\u0159ed\u00ed zlep\u0161ovat. V\u0161echno sice bylo jinak ne\u017e d\u0159\u00edv, ale postupn\u011b si s maminkou za\u010dali zvykat na nov\u00fd re\u017eim. Musel za\u010d\u00edt br\u00e1t siln\u00e1 antiepileptika a ka\u017ed\u00fd den rehabilitovat.<\/p>\n\n\n\n
Lucie Kunovsk\u00e1 se synovi v\u011bnovala na maximum a v\u00fdsledky byly brzy patrn\u00e9. Vojt\u00ed\u0161k\u016fv stav se za\u010dal znateln\u011b zlep\u0161ovat. Dokonce se postavil na nohy a za\u010dal pod dohledem opatrn\u011b chodit. \u017dena byla p\u0159esv\u011bd\u010den\u00e1, \u017ee jej\u00ed chlapec p\u0159ep\u00ed\u0161e l\u00e9ka\u0159\u016fm tabulky; \u017ee n\u00e1sledky po\u0161kozen\u00ed mozku nebudou tak v\u00e1\u017en\u00e9.<\/p>\n\n\n\n
Kdy\u017e v\u0161ak bylo chlapci kolem jednoho roku, v\u0161e se n\u00e1hle zhroutilo jako dome\u010dek z karet. Vojt\u00ed\u0161k\u016fv stav se za\u010dal v\u00fdrazn\u011b a rychle zhor\u0161ovat.<\/p>\n\n\n\n
P\u0159es 100 epileptick\u00fdch z\u00e1chvat\u016f<\/p>\n\n\n\n
\u201eZa\u010dal m\u00edt \u010detn\u00e9 epileptick\u00e9 z\u00e1chvaty. B\u011bhem p\u00e1r m\u011bs\u00edc\u016f prod\u011bl\u00e1val n\u011bkolik typ\u016f z\u00e1chvat\u016f denn\u011b, a to i b\u011bhem noci. P\u0159ich\u00e1zely bez varov\u00e1n\u00ed, a to bu\u010f samostatn\u011b, nebo v kumulac\u00edch. U\u017e se nedaly ani po\u010d\u00edtat, nebo\u0165 p\u0159ich\u00e1zely v kumulac\u00edch po des\u00edtk\u00e1ch. Bylo to i sto z\u00e1chvat\u016f denn\u011b, co\u017e z\u016fstalo dodnes,\u201c popisuje maminka chlapce.<\/p>\n\n\n\n
Kv\u016fli \u010detn\u00fdm epileptick\u00fdm z\u00e1chvat\u016fm m\u00e1 sp\u00e1nkov\u00fd re\u017eim naru\u0161en\u00fd jak chlapec, tak jeho maminka. Vojt\u00ed\u0161ek b\u00fdv\u00e1 p\u0159es den hodn\u011b unaven\u00fd, je proto nutn\u00e9 dodr\u017eovat p\u0159\u00edsn\u00e1 re\u017eimov\u00e1 opat\u0159en\u00ed. Vedle toho se chlapec zhor\u0161il i po psychomotorick\u00e9 str\u00e1nce, do\u0161lo ke zpomalen\u00ed v\u00fdvoje a postupn\u011b p\u0159estal chodit.<\/p>\n\n\n\n
\u201eVojt\u00ed\u0161kovi b\u011b\u017e\u00ed epileptick\u00e1 aktivita permanentn\u011b. D\u00e1l a d\u00e1l tak doch\u00e1z\u00ed k po\u0161kozov\u00e1n\u00ed mozku. Progn\u00f3zy l\u00e9ka\u0159\u016f jsou takov\u00e9, \u017ee se jedn\u00e1 o nevyl\u00e9\u010diteln\u00e9 onemocn\u011bn\u00ed. Bohu\u017eel je jen ot\u00e1zkou \u010dasu, kdy dojde k vy\u010derp\u00e1n\u00ed kapacity mozku,\u201c smutn\u011b konstatuje Stanislava Gury\u010dov\u00e1. Sb\u00edrku zalo\u017eila proto, aby Vojt\u00ed\u0161kovi a jeho mamince uleh\u010dila \u010das, kter\u00fd jim spole\u010dn\u011b zb\u00fdv\u00e1, a zm\u00edrnila chlapcovo utrpen\u00ed.<\/p>\n\n\n\n
Do \u0161kolky ho bez zdravotn\u00edka nevezmou<\/p>\n\n\n\n
P\u00e9\u010de o hendikepovan\u00e9 d\u00edt\u011b je psychicky i fyzicky velice n\u00e1ro\u010dn\u00e1. Vojt\u00ed\u0161ek je nav\u00edc pln\u011b nesamostatn\u00fd. Nem\u016f\u017ee z\u016fstat ani na chv\u00edli bez dozoru kv\u016fli \u010detn\u00fdm z\u00e1chvat\u016fm. Ty mohou zp\u016fsobit t\u011b\u017ek\u00e9 p\u00e1dy a v\u00e9st i k v\u00e1\u017en\u00fdm poran\u011bn\u00edm. Chlapec je siln\u011b nestabiln\u00ed a m\u00e1 \u0161patnou koordinaci pohyb\u016f.<\/p>\n\n\n\n
Lucie Kunovsk\u00e1 nem\u016f\u017ee chlapce ani um\u00edstit do \u0161kolky. Mate\u0159sk\u00e1 \u0161kolka toti\u017e nen\u00ed oprav\u00e1n\u011bna zajistit pot\u0159ebnou zdravotn\u00ed p\u00e9\u010di ani bezpe\u010dnost. Vojt\u00ed\u0161kova maminka se tak nem\u016f\u017ee vr\u00e1tit do pr\u00e1ce.<\/p>\n\n\n\n
\u201eCel\u00fd probl\u00e9m je v tom, \u017ee jsme propadli syst\u00e9mov\u00fdm s\u00edtem. Z\u00e1kon neumo\u017e\u0148uje speci\u00e1ln\u00edm \u0161kolk\u00e1m zam\u011bstnat zdravotn\u00edka, kv\u016fli \u010demu\u017e nem\u016f\u017ee b\u00fdt Vojt\u00ed\u0161ek do takov\u00e9 \u0161kolky um\u00edst\u011bn. Zdravotn\u00ed dohled ale vy\u017eaduje. B\u011b\u017en\u00fd pedagog nen\u00ed opr\u00e1vn\u011bn vyhodnocovat prob\u00edhaj\u00edc\u00ed z\u00e1chvaty, ani pod\u00e1vat l\u00e9ky \u010di prov\u00e1d\u011bt jak\u00e9koliv l\u00e9ka\u0159sk\u00e9 \u00fakony,\u201c vysv\u011btluje d\u00e1l maminka.<\/p>\n\n\n\n
Lucii Kunovsk\u00e9 bylo doporu\u010deno, aby si na\u0161la zdravotn\u00edka na vlastn\u00ed p\u011bst. Bohu\u017eel i s n\u00e1klady. Se zdravotn\u00edkem by jej\u00edho syna do \u0161kolky p\u0159ijali. \u017dena se tak dostala do za\u010darovan\u00e9ho kruhu. Syna j\u00ed v tuto chv\u00edli do \u0161kolky nevezmou, kv\u016fli \u010demu\u017e nem\u016f\u017ee nastoupit do zam\u011bstn\u00e1n\u00ed a vyd\u011bl\u00e1vat. Zdravotn\u00edka, ale i \u0159adu dal\u0161\u00edch zdravotnick\u00fdch pom\u016fcek \u010di nutn\u00e9 rehabilitace, tak nem\u00e1 z \u010deho uhradit.<\/p>\n\n\n\n
Nyn\u00ed je maminka hendikepovan\u00e9ho chlapce na mate\u0159sk\u00e9 dovolen\u00e9. \u00da\u0159ady j\u00ed dle zakladatelky sb\u00edrky p\u0159iznaly pouze II. stupe\u0148 p\u0159\u00edsp\u011bvku na p\u00e9\u010di. Jej\u00ed m\u011bs\u00ed\u010dn\u00ed p\u0159\u00edjem tak bude \u010dinit jen 6 600 korun plus alimenty od otce chlapce ve v\u00fd\u0161i sedmi tis\u00edc korun. Z toho, jak sama \u0159\u00edk\u00e1, sotva zajist\u00ed b\u011b\u017en\u00fd chod dom\u00e1cnosti. Na rehabilitace, zdravotn\u00edka \u010di pot\u0159ebn\u00e9 pom\u016fcky pro chlapce u\u017e nezbyde.<\/p>\n\n\n\n
\u201ePodle m\u011b \u010d\u00e1stka od st\u00e1tu neodpov\u00edd\u00e1 realit\u011b. Ani p\u00e9\u010di, kterou Vojt\u00ed\u0161ek pot\u0159ebuje. Z \u010d\u00e1stky nen\u00ed mo\u017en\u00e9 zajistit p\u00e9\u010di pro tak v\u00e1\u017en\u011b nemocn\u00e9 d\u00edt\u011b se v\u0161\u00edm, co pot\u0159ebuje. Od kompenza\u010dn\u00edch pom\u016fcek, neurologick\u00fdch rehabilitac\u00ed, l\u00e9k\u016f, speci\u00e1ln\u00edho vybaven\u00ed bytu a\u017e po n\u00e1klady na b\u011b\u017en\u00e9 p\u0159e\u017eit\u00ed,\u201c tvrd\u00ed zakladatelka sb\u00edrky Stanislava Gury\u010dov\u00e1.<\/p>\n\n\n\n
Pot\u0159eba vlastn\u00edho bydlen\u00ed<\/p>\n\n\n\n
Vojt\u00ed\u0161ek nyn\u00ed \u017eije se svou maminkou Luci\u00ed Kunovskou v dom\u011b jej\u00edch rodi\u010d\u016f. Ten v\u0161ak naprosto nevyhovuje pot\u0159eb\u00e1m \u010dlov\u011bka s tak v\u00e1\u017en\u00fdm zdravotn\u00edm posti\u017een\u00edm. Maminka je nucena p\u0159en\u00e1\u0161et Vojt\u00ed\u0161ka z m\u00edstnosti do m\u00edstnosti, co\u017e je pro ni u\u017e te\u010f fyzicky n\u00e1ro\u010dn\u00e9. S p\u0159ib\u00fdvaj\u00edc\u00edm v\u011bkem chlapce a n\u00e1r\u016fstem jeho v\u00e1hy to v\u0161ak ji\u017e brzy bude zcela nemo\u017en\u00e9.<\/p>\n\n\n\n
\u201eVojt\u00ed\u0161kova maminka na mate\u0159sk\u00e9 dovolen\u00e9, ani pozd\u011bji jako pe\u010duj\u00edc\u00ed osoba, finan\u010dn\u011b nedos\u00e1hne na vlastn\u00ed bezbari\u00e9rov\u00e9 bydlen\u00ed, kter\u00e9 by jim usnadnilo u\u017e tak dost nep\u0159\u00edznivou existen\u010dn\u00ed situaci,\u201c tvrd\u00ed zakladatelka v z\u00e1v\u011bru sb\u00edrky.<\/p>\n\n\n\n
Do sb\u00edrky, jej\u00ed\u017e v\u00fdt\u011b\u017eek pom\u016f\u017ee mamince Vojt\u00ed\u0161ka uhradit bezbari\u00e9rov\u00e9 bydlen\u00ed, zdravotnickou \u010di odleh\u010duj\u00edc\u00ed slu\u017ebu, asistenta pedagoga, rehabilitace a pot\u0159ebn\u00e9 kompenza\u010dn\u00ed pom\u016fcky, je mo\u017en\u00e9 p\u0159isp\u011bt jakoukoliv \u010d\u00e1stkou.<\/p>\n\n\n\n
P\u0159isp\u011bt v r\u00e1mci sb\u00edrky \u201ePomoc pro v\u00e1\u017en\u011b nemocn\u00e9ho Vojt\u00ed\u0161ka a jeho maminku Lucii\u201c na Doniu m\u016f\u017eete ZDE: https:\/\/www.donio.cz\/pomoc-pro-vazne-nemocneho-vojtiska-a-jeho-maminku-lucii?fbclid=IwAR1UvfawVecwScvPWDw16VhUqbU5TG_xPW-Ler4xVe-D1R-4yxbz0oC0auA<\/a><\/p>\n\n\n\n Herpetick\u00e1 encefalitida<\/p>\n\n\n\n Jde o virov\u00e9 onemocn\u011bn\u00ed, kter\u00e9 vznik\u00e1 dr\u00e1\u017ed\u011bn\u00edm mozkov\u00e9 tk\u00e1n\u011b virem herpes simplex.<\/p>\n\n\n\n Jedn\u00e1 se o velice z\u00e1va\u017en\u00e9 onemocn\u011bn\u00ed s vysokou \u00famrtnost\u00ed.<\/p>\n\n\n\n U p\u0159e\u017eiv\u0161\u00edch p\u0159etrv\u00e1vaj\u00ed \u010dasto neurologick\u00e9 n\u00e1sledky.<\/p>\n\n\n\n Projevuje se bolest\u00ed hlavy, hore\u010dkou, zvracen\u00edm, r\u016fzn\u011b z\u00e1va\u017en\u00fdmi poruchami v\u011bdom\u00ed a dal\u0161\u00edmi p\u0159\u00edznaky.<\/p>\n\n\n\n Onemocn\u011bn\u00ed postihuje jedince mlad\u0161\u00edho a st\u0159edn\u00edho v\u011bku, vz\u00e1cn\u011b d\u011bti. Mu\u017ei i \u017eeny jsou posti\u017eeni stejn\u011b \u010dasto.<\/p>\n\n\n\n Zat\u00edm neexistuj\u00ed informace o mo\u017enosti p\u0159\u00edm\u00e9ho mezilidsk\u00e9ho p\u0159enosu v pr\u016fb\u011bhu akutn\u00edho onemocn\u011bn\u00ed.<\/p>\n\n\n\n zdroj: Medixa<\/p>\n\n\n\n Nejt\u011b\u017e\u0161\u00ed forma epilepsie<\/p>\n\n\n\n Chlapci byl diagnostikov\u00e1n Lennox-Gastaut\u016fv syndrom, kter\u00fd je pova\u017eov\u00e1n za jednu z nejt\u011b\u017e\u0161\u00edch forem epilepsie. Po\u010d\u00e1tky m\u00edv\u00e1 pr\u00e1v\u011b v d\u011btsk\u00e9m v\u011bku.<\/p>\n\n\n\n \u201eLennox-Gastaut\u016fv syndrom (LGS) je t\u011b\u017ek\u00e1 forma epilepsie. Je spojena s nezvladateln\u00fdmi z\u00e1chvaty a naru\u0161en\u00edm kognitivn\u00edch funkc\u00ed. Onemocn\u011bn\u00ed se obvykle objevuje mezi 2. a 8. rokem \u017eivota a postihuje p\u0159ev\u00e1\u017en\u011b chlapce,\u201c p\u0159ibli\u017euje onemocn\u011bn\u00ed organizace Orphan Anesthesia, kter\u00e1 zve\u0159ej\u0148uje doporu\u010den\u00ed pro anesteziology pacient\u016f se vz\u00e1cn\u00fdm onemocn\u011bn\u00edm.<\/p>\n\n\n\n Kate\u0159ina N\u011bmcov\u00e1<\/p>\n\n\n\n Den\u00edk.cz<\/p>\n\n\n\n https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Mal\u00fd Vojt\u00ed\u0161ek se ji\u017e dva roky pot\u00fdk\u00e1 s nejt\u011b\u017e\u0161\u00ed formou epilepsie. Z\u00e1chvaty r\u016fzn\u00fdch typ\u016f a intenzity m\u00edv\u00e1 nep\u0159etr\u017eit\u011b, ve dne i v noci. P\u0159esto\u017ee se […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":41873,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-47877","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/47877","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=47877"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/47877\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/41873"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=47877"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=47877"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=47877"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}