{"id":48224,"date":"2024-04-19T04:58:20","date_gmt":"2024-04-19T02:58:20","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=48224"},"modified":"2024-04-19T04:58:20","modified_gmt":"2024-04-19T02:58:20","slug":"rettuv-syndrom","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=48224","title":{"rendered":"Rett\u016fv syndrom\u00a0\u00a0"},"content":{"rendered":"\n

NOVA\u00a0– Televizn\u00ed noviny

Do nelehk\u00e9 situace se dostala rodina ani ne t\u0159\u00edlet\u00e9ho Mathiase z Brnkovic na Vy\u0161kovsku. Chlapci toti\u017e dramaticky komplikuje \u017eivot tzv. Rett\u016fv syndrom.

24 hodin denn\u011b se neobejde bez p\u00e9\u010de sv\u00fdch rodi\u010d\u016f, stejn\u00e9\u00a0posti\u017een\u00ed<\/strong>\u00a0maj\u00ed pouze dal\u0161\u00ed \u010dty\u0159i chlapci v \u010cesk\u00e9 republice.

redaktor
——————–
Mal\u00fd Mathias bez pomoci jin\u00fdch nedok\u00e1\u017ee nic chytit do rukou, naj\u00edst se, nato\u017e se postavit. V\u016fbec nemluv\u00ed, p\u0159itom po narozen\u00ed vypadal jako zdrav\u00e9 miminko.

Petr Kremz, otec
——————–
Za\u010dali jsme pozorovat n\u011bjak\u00fd opo\u017ed\u011bn\u00ed, \u017ee vlastn\u011b se neza\u010dal jakoby tolik jakoby stav\u011bt t\u0159eba na ty \u010dty\u0159i, nep\u00e1sl ty kon\u00ed\u010dky a byl tam takov\u00fd jak\u00fdsi regres ve v\u00fdvoji.

redaktor
——————–
Mlad\u00e9 rodin\u011b, kter\u00e1 vychov\u00e1v\u00e1 je\u0161t\u011b \u0161estilet\u00e9ho syna, se tak diagn\u00f3zou Rett\u016fv syndrom v m\u017eiku \u00fapln\u011b zm\u011bnil \u017eivot.

Eva Kalabusov\u00e1, p\u0159edsedkyn\u011b Sdru\u017een\u00ed praktick\u00fdch l\u00e9ka\u0159\u016f pro d\u011bti a dorost pro Zl\u00ednsk\u00fd kraj
——————–
Je to onemocn\u011bn\u00ed, kter\u00e9 vznik\u00e1 na b\u00e1zi genetick\u00e9 odchylky, postihuje cel\u00fd psychomotorick\u00fd v\u00fdvoj, miminko nenavazuje o\u010dn\u00ed kontakt, m\u00e1 takov\u00e9 nekoordinovan\u00e9 pohyby kon\u010detin.

Michaela Kremzov\u00e1, matka
——————–
Pot\u0159ebujeme po\u0159\u00eddit zdravotnick\u00fd ko\u010d\u00e1rek, na to se potom v\u00e1\u017ee vlastn\u011b i ta dod\u00e1vka, v\u011bt\u0161\u00ed auto. Mimo t\u011bch rehabilitac\u00ed, l\u00e1zn\u011b, r\u016fznorod\u00fd rehabilitace, vlastn\u011b kter\u00e9 absolvujeme u\u017e te\u010f.

redaktor
——————–
Rodi\u010de mal\u00e9ho Mathiase musej\u00ed pou\u017e\u00edvat celou \u0159adu speci\u00e1ln\u00edch pom\u016fcek, nap\u0159\u00edklad tyto dv\u011b \u017eidle. Ne v\u0161echno ale zaplat\u00ed poji\u0161\u0165ovna, rehabilitace, l\u00e1zn\u011b a v\u0161echno kolem stoj\u00ed ro\u010dn\u011b a\u017e p\u016fl milionu korun.

Petr Kremz, otec
——————–
My jsme museli po\u0159izovat i dal\u0161\u00ed pom\u016fcky, kter\u00fd vlastn\u011b jsou samoz\u0159ejm\u011b n\u00e1kladn\u00fd, je tady s\u00e1drokartonov\u00fd strop a podobn\u00e9 v\u011bci, tak je pot\u0159eba tady ud\u011blat r\u016fzn\u00e9 traverzy a z\u00e1v\u011bsn\u00e9 syst\u00e9my, cel\u00fd to tady jakoby p\u0159ebudovat.

redaktor
——————–
\u017de speci\u00e1ln\u00ed cvi\u010den\u00ed a procedury pom\u00e1haj\u00ed, si u\u017e v\u0161imli i chlapcovi rodi\u010de.

Michaela Kremzov\u00e1, matka
——————–
U\u017e se dok\u00e1\u017ee usm\u00e1t, a to je \u00fapln\u011b nejv\u00edc. No, kdy\u017e jakoby se usm\u011bje, kdy\u017e ho n\u011bco rozvesel\u00ed, co\u017e je stra\u0161n\u011b m\u00e1lo v\u011bc\u00ed, ale kdy\u017e se jako usm\u011bje, tak je to hrozn\u011b hezk\u00fd.

redaktor
——————–
Pokud chcete Mathiasovi pomoct i vy, pod\u00edvejte se na n\u00e1\u0161 web TN.cz. <\/p>\n\n\n\n

televize Nova.<\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

NOVA\u00a0– Televizn\u00ed noviny Do nelehk\u00e9 situace se dostala rodina ani ne t\u0159\u00edlet\u00e9ho Mathiase z Brnkovic na Vy\u0161kovsku. Chlapci toti\u017e dramaticky komplikuje \u017eivot tzv. Rett\u016fv syndrom. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":48226,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-48224","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/48224","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=48224"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/48224\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/48226"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=48224"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=48224"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=48224"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}