\u017dena u\u017e t\u00e9m\u011b\u0159 25\u00a0let pe\u010duje o\u00a0posti\u017eenou dceru. Na \u00fakor sv\u00fdch sil, pen\u011bz i\u00a0rodinn\u00e9ho \u017eivota. Nyn\u00ed j\u00ed st\u00e1t sebral na p\u00e9\u010di dvan\u00e1ct tis\u00edc korun m\u011bs\u00ed\u010dn\u011b.<\/p>\n\n\n\n
Cel\u00fd\u00a0\u017eivot\u00a0se nyn\u00ed dvaapades\u00e1tilet\u00e1 Tereza star\u00e1 o\u00a0dceru Ane\u017eku s\u00a0vrozen\u00fdm posti\u017een\u00edm. Redakce zn\u00e1 jejich cel\u00e1 jm\u00e9na a do\u00a0seri\u00e1lu Ned\u00e1me je do \u00fastavu\u00a0tyto \u017eeny z\u00a0Prahy\u00a0doporu\u010dila podp\u016frn\u00e1 organizace\u00a0Alfa Human Service. Ta pom\u00e1h\u00e1 rodin\u00e1m, je\u017e se staraj\u00ed o\u00a0nemohouc\u00edho bl\u00edzk\u00e9ho.<\/p>\n\n\n\n
Ji\u017e v\u00a0ran\u00e9m d\u011btstv\u00ed nyn\u00ed \u010dty\u0159iadvacetilet\u00e9 Ane\u017ece diagnostikovali\u00a0v\u00fdvojovou dysf\u00e1zii\u00a0s\u00a0t\u011b\u017ekou poruchou \u0159e\u010di. \u201eOd narozen\u00ed m\u011bla opo\u017ed\u011bn\u00fd psychomotorick\u00fd v\u00fdvoj. K\u00a0tomu m\u00e1 ADHD a poruchy chov\u00e1n\u00ed. Nyn\u00ed m\u00e1 jako z\u00e1kladn\u00ed diagn\u00f3zu st\u0159edn\u011b t\u011b\u017ek\u00e9 ment\u00e1ln\u00ed posti\u017een\u00ed,\u201c dopl\u0148uje matka.<\/p>\n\n\n\n
Od sedmi let dcera dost\u00e1vala t\u0159et\u00ed stupe\u0148 p\u0159\u00edsp\u011bvku na p\u00e9\u010di, nyn\u00ed v\u00a0dubnu jim v\u0161ak p\u0159i\u0161lo rozhodnut\u00ed od posudkov\u00e9 komise\u00a0\u010cesk\u00e9 spr\u00e1vy soci\u00e1ln\u00edho zabezpe\u010den\u00ed (\u010cSSZ), \u017ee po p\u0159ezkoum\u00e1n\u00ed sn\u00ed\u017eila stupe\u0148 skokov\u011b a\u017e na ten nejni\u017e\u0161\u00ed. Pohor\u0161\u00ed si tak t\u00e9m\u011b\u0159 o\u00a0dvan\u00e1ct tis\u00edc korun m\u011bs\u00ed\u010dn\u011b, kdy\u017e m\u00edsto 12\u00a0800\u00a0korun budou pob\u00edrat pouze 880.<\/p>\n\n\n\n
Od 1.\u00a0\u010dervence bude rozd\u00edl \u010dinit t\u00e9m\u011b\u0159 14\u00a0tis\u00edc korun m\u011bs\u00ed\u010dn\u011b, nebo\u0165 se t\u0159et\u00ed stupe\u0148 zv\u00fd\u0161\u00ed na 14\u00a0800\u00a0korun, zat\u00edmco ten prvn\u00ed z\u016fstane jako jedin\u00fd nezv\u00fd\u0161en\u00fd. \u201eSni\u017eov\u00e1n\u00ed stupn\u011b p\u0159\u00edsp\u011bvku te\u010f \u0159e\u0161\u00ed v\u00a0komunit\u011b posti\u017een\u00fdch spousta lid\u00ed. P\u0159ijde mi to jako syst\u00e9mov\u00e1 v\u011bc. Aby mohli ozn\u00e1mit zv\u00fd\u0161en\u00ed p\u0159\u00edsp\u011bvku, mus\u00ed na n\u011bj z\u00edskat\u00a0pen\u00edze\u00a0t\u00edm, \u017ee mnoha posti\u017een\u00fdm sn\u00ed\u017e\u00ed jeho stupe\u0148,\u201c domn\u00edv\u00e1 se Tereza.<\/p>\n\n\n\n
Mluv\u010d\u00ed \u010cSSZ Tereza Koukolov\u00e1 u\u017e d\u0159\u00edve odm\u00edtla, \u017ee by za sni\u017eov\u00e1n\u00edm \u010di odeb\u00edr\u00e1n\u00edm p\u0159\u00edsp\u011bvk\u016f zdravotn\u011b posti\u017een\u00fdm st\u00e1li \u00fa\u0159edn\u00edci s p\u0159\u00edkazem \u0161et\u0159it. \u201eZ\u00e1sadn\u011b se ohrazujeme proti na\u0159\u010den\u00ed, \u017ee by v jak\u00e9mkoliv procesu posuzov\u00e1n\u00ed pro \u00fa\u010dely soci\u00e1ln\u00edho zabezpe\u010den\u00ed existovalo n\u011bco jako \u201a\u00fakol \u0161et\u0159it\u2018. Posuzov\u00e1n\u00ed zdravotn\u00edho stavu je postupem, kter\u00fd m\u00e1 z\u00e1konem jasn\u011b vymezen\u00e9 mantinely a posuzuj\u00edc\u00ed osoba aplikuje zji\u0161t\u011bn\u00ed o zdravotn\u00edm stavu do legislativn\u00edho r\u00e1mce. Podkladem pro posudek je zejm\u00e9na zdravotnick\u00e1 dokumentace, ze kter\u00e9 je rozhoduj\u00edc\u00ed vy\u0161et\u0159en\u00edm zji\u0161t\u011bn\u00fd funk\u010dn\u00ed stav, tedy stav objektivn\u00ed,\u201c prohl\u00e1sila.<\/p>\n\n\n\n
Ane\u017e\u010din\u00a0zdravotn\u00ed\u00a0stav posudk\u00e1\u0159i p\u0159ezkoum\u00e1vali jednou za p\u011bt let, nyn\u00ed poprv\u00e9 dosp\u011bli k\u00a0n\u00e1zoru, \u017ee je schopna \u0161esti z\u00a0deseti zkouman\u00fdch oblast\u00ed \u017eivota. \u201eZ\u00e1rove\u0148 ale do posudku napsali, \u017ee jej\u00ed stav je nem\u011bnn\u00fd a nen\u00ed nad\u011bje na zlep\u0161en\u00ed, tak\u017ee n\u00e1m tu jedni\u010dku u\u017e daj\u00ed nav\u017edy,\u201c krout\u00ed maminka nech\u00e1pav\u011b hlavou.<\/p>\n\n\n\n
Jeliko\u017e pracuje jako advok\u00e1tka, z\u00a0n\u011bkter\u00fdch rozhodnut\u00ed \u00fa\u0159ad\u016f j\u00ed z\u016fst\u00e1v\u00e1 rozum st\u00e1t. \u201eN\u011bkdy skute\u010dn\u011b nemaj\u00ed logiku. Proto\u017ee t\u0159eba v\u00a0pr\u016fkazu osoby se zdravotn\u00edm posti\u017een\u00edm j\u00ed dali do\u017eivotn\u011b tu nejvy\u0161\u0161\u00ed kategorii pro osoby ze zvl\u00e1\u0161\u0165 t\u011b\u017ek\u00fdm posti\u017een\u00edm, tedy ZTP\/P,\u201c podot\u00fdk\u00e1.<\/p>\n\n\n\n
\u00da\u0159ady podle Terezy neberou v\u00a0potaz, \u017ee\u00a0posuzovan\u00ed lid\u00e9\u00a0n\u011bjak\u00fd \u00fakon sice dok\u00e1\u017eou, ale jen jednor\u00e1zov\u011b, kdy\u017e mu ho pe\u010duj\u00edc\u00ed osoba na\u0159\u00edd\u00ed a pom\u016f\u017ee mu s\u00a0n\u00edm. \u201eAno, dcera um\u00ed vl\u00e9zt do vany a um\u00fdt si dole vzadu kus\u00a0vlas\u016f. Ale samotnou by ji to nenapadlo v\u016fbec, a aby m\u011bla hlavu skute\u010dn\u011b umytou, mus\u00edm to ud\u011blat j\u00e1. Dojde si sice na z\u00e1chod, ale neut\u0159e se,\u201c popisuje matka.<\/p>\n\n\n\n
Ane\u017eka chod\u00ed na st\u0159edn\u00ed \u0161kolu na praktick\u00fd dvoulet\u00fd\u00a0obor\u00a0pro posti\u017een\u00e9. B\u011bhem jej\u00edho vyu\u010dov\u00e1n\u00ed, po ve\u010derech a o\u00a0v\u00edkendech Tereza zkou\u0161\u00ed doh\u00e1n\u011bt svou advok\u00e1tn\u00ed pr\u00e1ci. D\u00edky\u00a0organizaci\u00a0Alfa Human Service\u00a0absolvovala psychorehabilita\u010dn\u00ed pobyt rodi\u010d\u016f s\u00a0d\u011btmi, chod\u00ed tak\u00e9 na skupinov\u00e1 setk\u00e1n\u00ed maminek zdravotn\u011b posti\u017een\u00fdch potomk\u016f.<\/p>\n\n\n\n
V\u00fdrazn\u011b by j\u00ed pomohlo, kdyby existovalo v\u00edce odleh\u010dovac\u00edch a pobytov\u00fdch slu\u017eeb pro posti\u017een\u00e9. Probl\u00e9m nast\u00e1v\u00e1 hlavn\u011b v dob\u011b letn\u00edch pr\u00e1zdnin, kdy dcera nechod\u00ed do \u0161koly a nem\u00e1 ji kam d\u00e1t. Zaplat\u00ed j\u00ed t\u0159i t\u00fddenn\u00ed pobyty, ale dal\u0161\u00edch p\u011bt a\u017e \u0161est t\u00fddn\u016f u\u017e je na n\u00ed a na man\u017eelovi. P\u00e9\u010di vykryj\u00ed jedin\u011b tak, \u017ee si vyb\u00edr\u00e1 dovolenou bu\u010f jeden, nebo druh\u00fd. \u201eNem\u016f\u017eeme si dovolit b\u00fdt spolu, velmi n\u00e1m to zasahuje do rodinn\u00e9ho \u017eivota. I za kulturou chod\u00edme ka\u017ed\u00fd zvl\u00e1\u0161\u0165 a druh\u00fd se star\u00e1 o dceru,\u201c l\u00ed\u010d\u00ed.<\/p>\n\n\n\n
Dod\u00e1v\u00e1, \u017ee po t\u00e9m\u011b\u0159 p\u011btadvaceti letech u\u017e je opravdu hodn\u011b unaven\u00e1. \u201eJak st\u00e1rnu, ub\u00fdvaj\u00ed mi s\u00edly. Pot\u0159ebovala bych dceru n\u011bkam t\u0159eba na m\u011bs\u00edc um\u00edstit, kde j\u00ed bude dob\u0159e, odpojit se od p\u00e9\u010de, ut\u00e9ct n\u011bkam do lesa a nabrat novou s\u00edlu,\u201c p\u0159eje si.<\/p>\n\n\n\n
St\u00e1rnouc\u00ed rodi\u010de posti\u017een\u00fdch potomk\u016f tak\u00e9 dle jej\u00edch slov tr\u00e1p\u00ed obavy, co bude, a\u017e tady nebudou, zda budou d\u011bti zabezpe\u010deny a najde se pro n\u011b chr\u00e1n\u011bn\u00e9\u00a0bydlen\u00ed. Tereza popisuje, jak se za cenu psychick\u00e9ho vy\u010derp\u00e1n\u00ed a zna\u010dn\u00fdch\u00a0financ\u00ed\u00a0staraj\u00ed, aby se zdravotn\u00ed stav jejich d\u011bt\u00ed nezhor\u0161oval, nebo se hor\u0161il co nejpomaleji. \u201eAle za tuto snahu jste st\u00e1tem potrest\u00e1ni odebr\u00e1n\u00edm \u010di sn\u00ed\u017een\u00edm p\u0159\u00edsp\u011bvku,\u201c konstatuje.<\/p>\n\n\n\n
Podle mluv\u010d\u00edho\u00a0ministerstva pr\u00e1ce\u00a0Jakuba Augusty by se m\u011blo zlep\u0161it postaven\u00ed pe\u010duj\u00edc\u00edch navrhovanou novelou z\u00e1kona o\u00a0soci\u00e1ln\u00edch slu\u017eb\u00e1ch. V\u00a0n\u00ed se m\u00e1 kone\u010dn\u011b objevit definice pe\u010duj\u00edc\u00ed osoby, kter\u00e1 doposud nebyla pr\u00e1vn\u011b ukotvena. \u201eNovela by tak\u00e9 m\u011bla up\u0159ednost\u0148ovat\u00a0soci\u00e1ln\u00ed\u00a0slu\u017eby, kter\u00e9 umo\u017en\u00ed setrv\u00e1n\u00ed dan\u00e9 osoby v\u00a0jej\u00edm p\u0159irozen\u00e9m soci\u00e1ln\u00edm prost\u0159ed\u00ed, roz\u0161\u00ed\u0159en\u00ed z\u00e1kladn\u00edho soci\u00e1ln\u00edho poradenstv\u00ed a \u010dinnost\u00ed na podporu pe\u010duj\u00edc\u00edch,\u201c doplnil Augusta.<\/p>\n\n\n\n
Ned\u00e1me je do \u00fastavu<\/strong> Pot\u00fdk\u00e1te se tak\u00e9 s\u00a0p\u00e9\u010d\u00ed o sv\u00e9 nemohouc\u00ed bl\u00edzk\u00e9? Napi\u0161te n\u00e1m sv\u016fj p\u0159\u00edb\u011bh na email\u00a0zuzana.hronova@denik.cz.<\/p>\n\n\n\n Zuzana Hronov\u00e1<\/p>\n\n\n\n Den\u00edk.cz<\/p>\n\n\n\n https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" \u017dena u\u017e t\u00e9m\u011b\u0159 25\u00a0let pe\u010duje o\u00a0posti\u017eenou dceru. Na \u00fakor sv\u00fdch sil, pen\u011bz i\u00a0rodinn\u00e9ho \u017eivota. Nyn\u00ed j\u00ed st\u00e1t sebral na p\u00e9\u010di dvan\u00e1ct tis\u00edc korun m\u011bs\u00ed\u010dn\u011b. Cel\u00fd\u00a0\u017eivot\u00a0se […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":5390,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-48433","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/48433","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=48433"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/48433\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/5390"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=48433"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=48433"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=48433"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
O sv\u00e9 p\u0159\u00edbuzn\u00e9 doma pe\u010duje a\u017e milion lid\u00ed. Zhruba 200 tis\u00edc \u010cech\u016f ale kv\u016fli p\u00e9\u010di o sv\u00e9 bl\u00edzk\u00e9 nezvl\u00e1d\u00e1 pracovat na pln\u00fd \u00favazek, pot\u00fdk\u00e1 se s\u00a0nedostatkem pen\u011bz, mimo\u0159\u00e1dn\u00fdm stresem, spole\u010denskou izolac\u00ed a leckdy i rozpadem partnersk\u00fdch vztah\u016f. P\u0159esto se sna\u017e\u00ed v\u0161e zvl\u00e1dnout, aby nemuseli d\u00e1t t\u011b\u017ece nemocn\u00e9ho bl\u00edzk\u00e9ho do \u00fastavn\u00ed p\u00e9\u010de. T\u00edm st\u00e1tu \u0161et\u0159\u00ed spoustu pen\u011bz.\u00a0Jejich osudy se zab\u00fdv\u00e1 nov\u00fd seri\u00e1l Den\u00edku.cz a organizace\u00a0Neviditeln\u00ed\u00a0Ned\u00e1me je do \u00fastavu.\u00a0<\/p>\n\n\n\n