Iva Hejskov\u00e1 pe\u010duje o t\u0159in\u00e1ctilet\u00e9ho syna Ond\u0159eje, jen\u017e m\u00e1 st\u0159edn\u011b t\u011b\u017ekou formu d\u011btsk\u00e9 mozkov\u00e9 obrny. Posti\u017een\u00ed vzniklo je\u0161t\u011b v t\u011bhotenstv\u00ed kv\u016fli nedostate\u010dn\u00e9mu prokrvov\u00e1n\u00ed mozku. Chlapec m\u00e1 posti\u017een\u00e9 v\u0161echny \u010dty\u0159i kon\u010detiny a zrakovou vadu. Ve sv\u00e9 p\u00e9\u010di je jeho matka d\u00edky vystudovan\u00e9 fyzioterapii profesion\u00e1lka. P\u0159esto se pot\u00fdk\u00e1 s mnoh\u00fdmi t\u011b\u017ekostmi. Krize nastala, kdy\u017e sama onemocn\u011bla.<\/p>\n\n\n\n
D\u00edky velk\u00e9mu \u00fasil\u00ed rodi\u010d\u016f a mnoha terapi\u00edm se Ondrovi zlep\u0161il zrak, um\u00ed l\u00e9zt po \u010dty\u0159ech, sed\u011bt a s dopomoc\u00ed ud\u011bl\u00e1 p\u00e1r kr\u016f\u010dk\u016f. Ruce jsou v\u0161ak posti\u017een\u00e9 v\u00edce, tud\u00ed\u017e pot\u0159ebuje pom\u00e1hat p\u0159i j\u00eddle, obl\u00e9k\u00e1n\u00ed a dal\u0161\u00edch b\u011b\u017en\u00fdch \u00fakonech. \u201eJeho ment\u00e1ln\u00ed v\u00fdvoj je srovnateln\u00fd s vrstevn\u00edky, nicm\u00e9n\u011b prokazuje ur\u010dit\u00e9 autistick\u00e9 projevy. T\u011b\u017eko zvl\u00e1d\u00e1 vybo\u010den\u00ed z re\u017eimu, obt\u00ed\u017en\u011b navazuje kontakty, nesn\u00e1\u0161\u00ed ne\u010dekan\u00e9 zvuky, m\u00edv\u00e1 z\u00e1chvaty vzteku,\u201c l\u00ed\u010d\u00ed maminka Iva Hejskov\u00e1. S p\u0159ib\u00fdvaj\u00edc\u00edm v\u011bkem tyto projevy na\u0161t\u011bst\u00ed sl\u00e1bnou.<\/p>\n\n\n\n
Chlapcovi se nevyhnuly ani epileptick\u00e9 z\u00e1chvaty, na n\u011b\u017e mus\u00ed br\u00e1t l\u00e9ky. Ne\u017e se je poda\u0159ilo vyladit, rodina za\u017e\u00edvala ka\u017edodenn\u00ed stres, kdy se z\u00e1chvat objev\u00ed a jak z\u00e1va\u017en\u00fd bude. \u201eSt\u00e1valo se mi, \u017ee syn dostal z\u00e1chvat, kdy\u017e jsem \u0159\u00eddila a nikdo jin\u00fd s n\u00e1mi v aut\u011b nebyl,\u201c popisuje Iva. Jin\u00ed lid\u00e9 se ho proto b\u00e1li hl\u00eddat. Rodi\u010de tak\u00e9 marn\u011b popt\u00e1vaj\u00ed krou\u017eky pro d\u011bti s handicapem a do t\u011bch b\u011b\u017en\u00fdch je v\u011bt\u0161inou necht\u011bj\u00ed.<\/p>\n\n\n\n
Maminka si proto m\u00e1lokdy odpo\u010dine. Volno m\u00e1 pouze ve v\u0161edn\u00ed dny dopoledne, kdy Ond\u0159ej nav\u0161t\u011bvuje pra\u017eskou z\u00e1kladn\u00ed \u0161kolu pro zrakov\u011b hendikepovan\u00e9. Ve \u0161kole m\u00e1 k dispozici asistentku a dotykov\u00fd po\u010d\u00edta\u010d s nahran\u00fdmi u\u010debnicemi. P\u0159i mimo\u0161koln\u00edch akc\u00edch ho mus\u00ed maminka kv\u016fli voz\u00edku doprov\u00e1zet.<\/p>\n\n\n\n
Ob\u010das j\u00ed v p\u00e9\u010di pom\u00e1h\u00e1 man\u017eel. \u201eJe mi obrovskou oporou. V\u00edm, \u017ee mu\u017ei \u010dasto takovou situaci nezvl\u00e1daj\u00ed a rodinu opou\u0161t\u00ed,\u201c vypr\u00e1v\u00ed \u017eena. Man\u017eel ale \u010dasto odj\u00ed\u017ed\u00ed na del\u0161\u00ed zahrani\u010dn\u00ed cesty. Tehdy b\u00fdv\u00e1 na d\u00edt\u011b zcela sama. Prarodi\u010de bydl\u00ed daleko a nemaj\u00ed u\u017e na p\u00e9\u010di o posti\u017een\u00e9ho vnuka dostatek sil. Iva se tak nem\u016f\u017ee na st\u00e1l\u00fd \u00favazek vr\u00e1tit do pr\u00e1ce.<\/p>\n\n\n\n
P\u0159ed mate\u0159skou pracovala patn\u00e1ct let jako fyzioterapeutka, hlavn\u011b s hendikepovan\u00fdmi d\u011btmi. Jej\u00ed p\u00e9\u010de je tud\u00ed\u017e profesion\u00e1ln\u00ed. \u201eRozum\u00edm \u0159e\u010di l\u00e9ka\u0159\u016f, m\u00e1m p\u0159ehled o metod\u00e1ch i mo\u017enostech. V\u00edm, na koho se obr\u00e1tit, na co si d\u00e1t pozor,\u201c l\u00ed\u010d\u00ed.<\/p>\n\n\n\n
Z\u00e1rove\u0148 ale c\u00edt\u00ed velk\u00fd tlak, aby coby odborn\u00edk neud\u011blala chybu. \u201eU vlastn\u00edho d\u00edt\u011bte mus\u00edte \u0159e\u0161it i spoustu jin\u00fdch \u00fakon\u016f, na odborn\u00e9 v\u011bci nezb\u00fdv\u00e1 dostatek \u010dasu, klidu a energie,\u201c vysv\u011btluje.<\/p>\n\n\n\n
V roce 2019 se zapojila do spolku pe\u010duj\u00edc\u00edch maminek P\u00e9\u010de bez p\u0159ek\u00e1\u017eek, kter\u00fd se sna\u017e\u00ed zkvalit\u0148ovat \u017eivot hendikepovan\u00fdm i jejich rodin\u00e1m. Z\u00fa\u010dastnila se tak\u00e9 podp\u016frn\u00e9ho programu Pe\u010dovat a \u017e\u00edt. \u201eUv\u011bdomila jsem si, co p\u0159esn\u011b chci d\u011blat a jak se m\u016f\u017eu aktivn\u011b zapojit p\u0159i sv\u00e9 hlavn\u00ed profesi pe\u010duj\u00edc\u00ed maminky,\u201c konstatuje Hejskov\u00e1. P\u0159es spolek rozjela v roce 2021 vlastn\u00ed projekt bezplatn\u00e9ho online fyzioporadenstv\u00ed pro pe\u010duj\u00edc\u00ed.<\/p>\n\n\n\n
Aktivn\u011b se \u00fa\u010dastn\u00ed jedn\u00e1n\u00ed pra\u017esk\u00e9ho magistr\u00e1tu, konferenc\u00ed a workshop\u016f t\u00fdkaj\u00edc\u00edch se pe\u010duj\u00edc\u00edch. \u201eSpolek dok\u00e1zal podn\u00edtit vznik \u010dty\u0159 odleh\u010dovac\u00edch slu\u017eeb v Praze, kter\u00e9 tu chyb\u011bly a te\u010f pom\u00e1haj\u00ed mnoha des\u00edtk\u00e1m rodin s posti\u017een\u00fdmi d\u011btmi,\u201c konstatuje. Nedostate\u010dn\u00e1 kapacita soci\u00e1ln\u00edch slu\u017eeb podle n\u00ed ale st\u00e1le z\u016fst\u00e1v\u00e1 pal\u010div\u00fdm probl\u00e9mem.<\/p>\n\n\n\n
P\u0159ed p\u00e1r lety si pro\u017eila no\u010dn\u00ed m\u016fru v\u0161ech rodinn\u00fdch pe\u010duj\u00edc\u00edch. Vy\u0159adila ji nemoc a dva m\u011bs\u00edce prole\u017eela. Dva t\u00fddny zaji\u0161\u0165oval p\u00e9\u010di man\u017eel, ale pak se musel vr\u00e1tit do pr\u00e1ce. Sehnala pouze pracovn\u00edky b\u011b\u017en\u00fdch hl\u00eddac\u00edch agentur, ne\u0161kolen\u00e9 na pr\u00e1ci s handicapovan\u00fdmi.<\/p>\n\n\n\n
Jak potvrzuje vedouc\u00ed projektu Diakonie Pe\u010duj doma Sarah Huikari, rodinn\u00ed pe\u010duj\u00edc\u00ed \u010dasto odkl\u00e1daj\u00ed zdravotn\u00ed z\u00e1kroky, je\u017e by je upoutaly na l\u016f\u017eko, proto\u017ee je v p\u00e9\u010di nem\u00e1 kdo zastoupit. \u201eKlient\u016fm doporu\u010dujeme vypracovat nouzov\u00fd pl\u00e1n p\u00e9\u010de a m\u00edt sjednan\u00e9 aspo\u0148 dva kontakty, kter\u00e9 je zastoup\u00ed,\u201c popisuje.<\/p>\n\n\n\n
Pl\u00e1n vyv\u011b\u0161en\u00fd v dom\u00e1cnosti by m\u011bl obsahovat v\u0161e nezbytn\u00e9, co je k p\u00e9\u010di pot\u0159eba v\u011bd\u011bt. \u201eNedo\u0159e\u0161en\u00e9 je to s n\u00e1hlou hospitalizac\u00ed. Z\u00e1chran\u00e1\u0159i mohou o\u0161et\u0159ovat n\u011bkoho, na jeho\u017e pomoci je z\u00e1visl\u00e1 dal\u0161\u00ed osoba, a nemus\u00ed to v\u011bd\u011bt,\u201c upozor\u0148uje Huikari. Ne\u010dekan\u00e9 vykryt\u00ed p\u00e9\u010de by podle n\u00ed m\u011bl \u0159e\u0161it soci\u00e1ln\u00ed pracovn\u00edk na obecn\u00edm, m\u011bstsk\u00e9m \u010di krajsk\u00e9m \u00fa\u0159ad\u011b.<\/p>\n\n\n\n
Rodi\u010de posti\u017een\u00fdch d\u011bt\u00ed se pot\u00fdkaj\u00ed i se schvalov\u00e1n\u00edm kompenza\u010dn\u00edch pom\u016fcek jako ort\u00e9zy, chod\u00edtka \u010di voz\u00edky. \u201eNebyla snad jedin\u00e1 v\u011bc, kterou by n\u00e1m revizn\u00ed l\u00e9ka\u0159 schv\u00e1lil napoprv\u00e9. Lid\u00e9 se div\u00ed, \u017ee se nepropl\u00e1c\u00ed n\u00e1kladn\u00e1 l\u00e9\u010dba, ale my se pereme o p\u00e1r des\u00edtek tis\u00edc korun,\u201c p\u0159ibli\u017euje Hejskov\u00e1.<\/p>\n\n\n\n
Huikari doporu\u010duje p\u016fj\u010dovnu kompenza\u010dn\u00edch pom\u016fcek. Zde pr\u00fd um\u00ed poradit a nechaj\u00ed pom\u016fcku vyzkou\u0161et v praxi. V p\u0159\u00edpad\u011b v\u011bt\u0161\u00edho doplatku se lze obr\u00e1tit na n\u011bjak\u00fd nada\u010dn\u00ed fond \u010di oslovit drobn\u00e9 d\u00e1rce.<\/p>\n\n\n\n
Pro lidi se i tak jedn\u00e1 o z\u00e1t\u011b\u017e nav\u00edc. \u201eM\u00e1m pocit, \u017ee se my pe\u010duj\u00edc\u00ed mus\u00edme neust\u00e1le s n\u011bk\u00fdm dohadovat, o n\u011bco bojovat \u010di se st\u00e1le n\u011bkoho dopro\u0161ovat. P\u0159itom jsme nic \u0161patn\u00e9ho neud\u011blali, jen jsme nem\u011bli p\u0159i narozen\u00ed d\u00edt\u011bte takov\u00e9 \u0161t\u011bst\u00ed,\u201c konstatuje Hejskov\u00e1.<\/p>\n\n\n\n
Ned\u00e1me je do \u00fastavu<\/p>\n\n\n\n
O sv\u00e9 p\u0159\u00edbuzn\u00e9 doma pe\u010duje a\u017e milion lid\u00ed. Zhruba 200 tis\u00edc \u010cech\u016f ale kv\u016fli p\u00e9\u010di o sv\u00e9 bl\u00edzk\u00e9 nezvl\u00e1d\u00e1 pracovat na pln\u00fd \u00favazek, pot\u00fdk\u00e1 se s nedostatkem pen\u011bz, mimo\u0159\u00e1dn\u00fdm stresem, spole\u010denskou izolac\u00ed a leckdy i rozpadem partnersk\u00fdch vztah\u016f. P\u0159esto se sna\u017e\u00ed v\u0161e zvl\u00e1dnout, aby nemuseli d\u00e1t t\u011b\u017ece nemocn\u00e9ho bl\u00edzk\u00e9ho do \u00fastavn\u00ed p\u00e9\u010de. T\u00edm st\u00e1tu \u0161et\u0159\u00ed spoustu pen\u011bz.<\/p>\n\n\n\n
Jejich osudy se zab\u00fdv\u00e1 nov\u00fd seri\u00e1l Den\u00edku.cz a organizace Neviditeln\u00ed Ned\u00e1me je do \u00fastavu.<\/p>\n\n\n\n
Pot\u00fdk\u00e1te se tak\u00e9 s p\u00e9\u010d\u00ed o sv\u00e9 nemohouc\u00ed bl\u00edzk\u00e9? Napi\u0161te n\u00e1m sv\u016fj p\u0159\u00edb\u011bh na email zuzana.hronova@denik.cz.<\/p>\n\n\n\n
Zuzana Hronov\u00e1<\/p>\n\n\n\n
Den\u00edk.cz<\/p>\n\n\n\n
https:\/\/www.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Iva Hejskov\u00e1 pe\u010duje o t\u0159in\u00e1ctilet\u00e9ho syna Ond\u0159eje, jen\u017e m\u00e1 st\u0159edn\u011b t\u011b\u017ekou formu d\u011btsk\u00e9 mozkov\u00e9 obrny. Posti\u017een\u00ed vzniklo je\u0161t\u011b v t\u011bhotenstv\u00ed kv\u016fli nedostate\u010dn\u00e9mu prokrvov\u00e1n\u00ed mozku. Chlapec […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":13212,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-48837","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/48837","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=48837"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/48837\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/13212"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=48837"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=48837"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=48837"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}