\u010cT 1<\/p>\n\n\n\n
Za p\u016fl roku by oslavila dvac\u00e1t\u00e9 narozeniny. P\u0159esto\u017ee j\u00ed l\u00e9ka\u0159i predikovali dva roky \u017eivota. Se spin\u00e1ln\u00ed svalovou atrofi\u00ed prvn\u00edho stupn\u011b, kter\u00e1 postihuje nervy a znemo\u017e\u0148uje pohyb, se v \u010cesku rod\u00ed zhruba 10 d\u011bt\u00ed ro\u010dn\u011b. S\u00e1ra Kali\u0161ov\u00e1 byla v roce 2004 jedn\u00edm z nich. Z\u00e1sluhou rodiny m\u011bla dom\u00e1c\u00ed nep\u0159etr\u017eitou p\u00e9\u010di. V S\u00e1\u0159in\u00fdch sedmi letech musela rodina \u0159e\u0161it stejn\u011b jako \u0159ada jin\u00fdch pe\u010duj\u00edc\u00edch o\u00a0posti\u017een\u00e9<\/strong>, sn\u00ed\u017een\u00ed p\u0159\u00edsp\u011bvku na p\u00e9\u010di. <\/p>\n\n\n\n \u00a9 NEWTON Media, a. s., tel.: +420 22<\/p>\n","protected":false},"excerpt":{"rendered":" \u010cT 1 Za p\u016fl roku by oslavila dvac\u00e1t\u00e9 narozeniny. P\u0159esto\u017ee j\u00ed l\u00e9ka\u0159i predikovali dva roky \u017eivota. Se spin\u00e1ln\u00ed svalovou atrofi\u00ed prvn\u00edho stupn\u011b, kter\u00e1 postihuje nervy […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14373,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-48932","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/48932","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=48932"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/48932\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14373"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=48932"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=48932"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=48932"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
Alena Kali\u0161ov\u00e1, S\u00e1\u0159ina matka
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Sice t\u00edm, \u017ee S\u00e1rinka m\u011bla sedm rok\u016f, tak jsme dostali 3 000 K\u010d v\u00edc m\u011bs\u00ed\u010dn\u011b, ale na druhou stranu jsme p\u0159i\u0161li o rodi\u010dovsk\u00fd p\u0159\u00edsp\u011bvek a p\u0159\u00edsp\u011bvek na bydlen\u00ed.
moder\u00e1torka
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V dev\u00edti letech se stala doslova medic\u00ednsk\u00fdm z\u00e1zrakem.
Alena Kali\u0161ov\u00e1, S\u00e1\u0159ina matka
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Ty chce\u0161 ten mikrofon? Ty ned\u00e1\u0161 pokoj, doka\u010f ten mikrofon nedostane\u0161, \u017ee jo?
moder\u00e1torka
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M\u00edsto d\u00edt\u011bte, kter\u00e9 bude jenom bezmocn\u011b le\u017eet, byla zv\u00eddav\u00e1 a komunikativn\u00ed. Um\u011bla pohnout nohama i rukama. A kdy\u017e n\u011bco cht\u011bla, dok\u00e1zala se ozvat.
Alena Kali\u0161ov\u00e1, S\u00e1\u0159ina matka
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Kdy\u017e vlastn\u011b v\u0161ecko za\u010dalo a zjistili jsme, \u017ee S\u00e1rinka je nemocn\u00e1, v t\u00e9 dob\u011b jsem prost\u011b si \u0159\u00edkala, budu \u0161\u0165astn\u00e1, kdy\u017e se do\u017eije roku, \u017ee oslav\u00edme dev\u00edtku, a \u017ee m\u011b v dev\u00edti rok\u00e1ch zazp\u00edv\u00e1 t\u0159eba, j\u00e1 nev\u00edm, u\u017e um\u00ed i ruskou Ka\u0165u\u0161u, jo, melodiu. Tak to jsem prost\u011b nedoufala, \u017ee n\u011b\u010deho takov\u00e9ho kr\u00e1sn\u00e9ho se do\u010dk\u00e1me.
moder\u00e1torka
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V listopadu 2016 jsme spole\u010dn\u011b s Alinou Kali\u0161ovou, maminkou S\u00e1ry, tak trochu bilancovali.
Alena Kali\u0161ov\u00e1, S\u00e1\u0159ina matka
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V \u017eivot\u011b jsem si nezap\u00e1lila cigaretu. V \u017eivot\u011b jsem se nenapila alkoholu ani na vlastn\u00ed svatb\u011b. A nakonec se mi narodilo nemocn\u00e9 d\u011b\u0165\u00e1tko. M\u011bla jsem tehdy asi 23 rok\u016f, tak\u017ee jsem za\u010dala hledat informace, co je to svalov\u00e1 atrofie, jak\u00e1 je mo\u017enost l\u00e9\u010dby v\u016fbec, jak ji m\u016f\u017eu pomoct. No a vlastn\u011b v podstat\u011b v\u0161ecko jsem \u0159e\u0161ila s p\u0159edstihem. Za\u0159\u00eddila jsem d\u00edky pomoci d\u00e1rc\u016f ve\u0161ker\u00e9 zdravotnick\u00e9 p\u0159\u00edstroje, ne\u017e v\u016fbec jich S\u00e1rinka je\u0161t\u011b pot\u0159ebovala, aby a\u017e se dostane na p\u0159\u00edstroji, a\u017e u\u017e nebude sama zvl\u00e1dat d\u00fdchat, abysme m\u011bli v\u0161ecko doma pro n\u011bho za\u0159\u00edzen\u00e9. A to se mn\u011b na\u0161t\u011bst\u00ed poda\u0159ilo.
moder\u00e1torka
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To v\u0161echno nonstop bez jak\u00e9koliv dovolen\u00e9. Bez pomoci o\u0161et\u0159ovatelek, kter\u00e9 by si podle Kali\u0161ov\u00fdch rodina nemohla dovolit. Kdy\u017e bylo S\u00e1\u0159e 15 let, bylo v \u010cesku 160 mal\u00fdch pacient\u016f jako ona.
Z Aleny Kali\u0161ov\u00e9, p\u016fvodn\u011b ekonomky, se stala t\u00e9m\u011b\u0159 profesion\u00e1ln\u00ed zdravotnice.
Alena Kali\u0161ov\u00e1, S\u00e1\u0159ina matka
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Proto\u017ee, kdy\u017e by se j\u00ed to ucpalo a volala jsem z\u00e1chranku, tak za 15 minut, kdy\u017e by mn\u011b nem\u011bla d\u00fdchat, tak u\u017e asi \u017e\u00edt nebude.
moder\u00e1torka
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Naposledy jsme u Kali\u0161ov\u00fdch nat\u00e1\u010deli, kdy\u017e bylo S\u00e1\u0159e 18.
Alena Kali\u0161ov\u00e1, S\u00e1\u0159ina matka
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Kdy\u017e bych m\u011bla porovnat, co se t\u00fdk\u00e1 p\u0159\u00edsp\u011bvku na p\u00e9\u010di na takto nemocn\u00e9ho pacienta, kdyby S\u00e1rinka nem\u011bla n\u00e1s rodi\u010d\u016f, tak by si mohla zaplatit pe\u010dovatelku nanejv\u00fd\u0161 na 3-4 dny. S\u00e1rinka m\u00e1 \u010dtvrt\u00fd stupe\u0148 p\u0159\u00edsp\u011bvku na p\u00e9\u010di, a to je 19 200 m\u011bs\u00ed\u010dn\u011b. Ono v podstat\u011b cokoliv \u0159eknu, tak je t\u011b\u017ek\u00e9 pochopit, dokud to \u010dlov\u011bk neza\u017eije, tak stejn\u011b je t\u011b\u017ek\u00e9 n\u011bco vysv\u011btlovat, proto\u017ee to norm\u00e1ln\u00ed b\u011b\u017en\u00fd \u010dlov\u011bk toto nem\u016f\u017ee pochopit.
moder\u00e1torka
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Nemocn\u00e9 srdce S\u00e1ry Kali\u0161ov\u00e9 dotlouklo 2. kv\u011btna 2024.<\/p>\n\n\n\n