Celkem 1990 d\u00e1rc\u016f pomohlo k tomu, aby v jedin\u00e9m za\u0159\u00edzen\u00ed v \u010cesku, kter\u00e9 poskytuje komplexn\u00ed p\u00e9\u010di lidem s roztrou\u0161enou skler\u00f3zou, mohla vyr\u016fst nov\u00e1 budova odleh\u010dovac\u00ed slu\u017eby za 96 milion\u016f korun.<\/p>\n\n\n\n
„Je to velk\u00fd n\u00e1boj do na\u0161eho \u017eivota. Otv\u00edr\u00e1 \u00fapln\u011b jin\u00e9 mo\u017enosti,\u201c \u0159\u00edk\u00e1 Josef Tint\u011bra, kter\u00fd \u017eije s roztrou\u0161enou skler\u00f3zou v are\u00e1lu b\u00fdval\u00e9ho kl\u00e1\u0161tera v \u017dir\u010di. Je nad\u0161en\u00fd z chytr\u00fdch tr\u00e9ninkov\u00fdch byt\u016f a technick\u00fdch vymo\u017eenost\u00ed, kter\u00e9 jsou sou\u010d\u00e1st\u00ed nov\u011b otev\u0159en\u00e9ho Domova sv. Franti\u0161ka.<\/p>\n\n\n\n
Nov\u00e1 budova bude slou\u017eit nemocn\u00fdm s roztrou\u0161enou skler\u00f3zou v pokro\u010dil\u00e9m st\u00e1diu, kte\u0159\u00ed tam budou jezdit z cel\u00e9 republiky na odleh\u010dovac\u00ed pobyty s rehabilitacemi od jednoho t\u00fddne do t\u0159\u00ed m\u011bs\u00edc\u016f. Ro\u010dn\u011b by ji m\u011blo vyu\u017e\u00edt zhruba 200 nemocn\u00fdch.<\/p>\n\n\n\n
Josef Tint\u011bra sed\u00ed na invalidn\u00edm voz\u00edku a p\u0159edv\u00e1d\u00ed, jak pomoc\u00ed \u00fastn\u00ed my\u0161i dok\u00e1\u017ee snadno ovl\u00e1dat za\u0159\u00edzen\u00ed bytu nebo pracovat na internetu. \u201e\u00dastn\u00ed my\u0161 pou\u017e\u00edv\u00e1m vzhledem ke sv\u00e9mu handicapu,\u201c vysv\u011btluje a popisuje, jak za\u0159\u00edzen\u00ed funguje: \u201eFouknut\u00ed do ty\u010dinky nahrazuje lev\u00e9 tla\u010d\u00edtko norm\u00e1ln\u00ed my\u0161i, jemn\u00e9 vcucnut\u00ed nahrazuje prav\u00e9 tla\u010d\u00edtko. Pohybem \u00fasty kompenzuji to, jako bych ovl\u00e1dal my\u0161 zdravou rukou. Za pomoci \u00fastn\u00ed my\u0161i si najedu na monitoru na ikonu r\u00e1dia, fouknu a spust\u00ed se r\u00e1dio. Kdy\u017e si chci vyv\u011btrat, \u0165uknu na ikonu okna a otev\u0159e se okno.\u201c Vybaven\u00ed dom\u00e1cnosti je mo\u017en\u00e9 ovl\u00e1dat tak\u00e9 o\u010dima \u010di hlasem.<\/p>\n\n\n\n
176 \u017e\u00e1dost\u00ed o dlouhodob\u00fd pobyt<\/p>\n\n\n\n
Are\u00e1l Domova sv. Josefa v \u017dir\u010di v sou\u010dasn\u00e9 dob\u011b eviduje v po\u0159adn\u00edku 176 \u017e\u00e1dost\u00ed o dlouhodob\u00fd pobyt. Ten ale m\u016f\u017ee poskytnout pouze 29 nemocn\u00fdm. Proto se hledal zp\u016fsob, jak by lid\u00e9 s roztrou\u0161enou skler\u00f3zou mohli i nad\u00e1le \u017e\u00edt doma se svou rodinou. Dvoulet\u00e1 rekonstrukce prom\u011bnila zch\u00e1tral\u00fd d\u016fm, n\u011bkdej\u0161\u00ed hospod\u00e1\u0159skou budovu, na modern\u00ed objekt.<\/p>\n\n\n\n
Nemocn\u00ed s roztrou\u0161enou skler\u00f3zou z\u00edskaj\u00ed v \u017dir\u010di kr\u00e1tkodob\u00e9 p\u0159echodn\u00e9 bydlen\u00ed, odbornou pomoc a podporu. D\u00edky \u0159ad\u011b terapi\u00ed a aktivit jim odborn\u00edci z Domova sv. Josefa pomohou zv\u00fd\u0161it sob\u011bsta\u010dnost, aby mohli i nad\u00e1le \u017e\u00edt doma se svoj\u00ed rodinou a st\u00fdkat se s p\u0159\u00e1teli. \u201eD\u00edky nov\u00e9 budov\u011b m\u016f\u017eeme mnohem l\u00e9pe ne\u017e dosud pom\u00e1hat nemocn\u00fdm a jejich bl\u00edzk\u00fdm, kte\u0159\u00ed s roztrou\u0161enou skler\u00f3zou bojuj\u00ed doma,\u201c zd\u016fraz\u0148uje Miroslav Wajsar, \u0159editel Oblastn\u00ed charity \u010cerven\u00fd Kostelec, kter\u00e1 za\u0159\u00edzen\u00ed provozuje.<\/p>\n\n\n\n
V m\u00edstn\u00ed \u010d\u00e1sti Dvora Kr\u00e1lov\u00e9 nad Labem \u017dir\u010di je nov\u011b k dispozici 17 l\u016f\u017eek odleh\u010dovac\u00ed slu\u017eby. Chytr\u00e9 byty jsou t\u0159i a p\u0159edstavuj\u00ed revoluci v p\u00e9\u010di o nemocn\u00e9 roztrou\u0161enou skler\u00f3zou. Klient\u016fm maj\u00ed pomoct k v\u011bt\u0161\u00ed sob\u011bsta\u010dnosti. Budou m\u00e9n\u011b z\u00e1visl\u00ed na sv\u00fdch pe\u010duj\u00edc\u00edch \u201eZ\u00edsk\u00e1v\u00e1me t\u00edm jednu velkou v\u011bc – svobodu,\u201c dod\u00e1v\u00e1 Josef Tint\u011bra, kter\u00fd poch\u00e1z\u00ed z Vysok\u00e9ho M\u00fdta.<\/p>\n\n\n\n
Chytr\u00e9 technologie pe\u010dliv\u011b zkoumal i Josef Bure\u0161, kter\u00fd jezd\u00ed do \u017dir\u010de kv\u016fli roztrou\u0161en\u00e9 skler\u00f3ze z obce Orel na Chrudimsku. \u201eJsem nad\u0161en\u00fd z toho, co se tady v \u017dir\u010di poda\u0159ilo, zvl\u00e1\u0161\u0165 v dne\u0161n\u00ed slo\u017eit\u00e9 dob\u011b. Je to unikum. Budu doufat, \u017ee m\u011b sem p\u0159ijmou.\u201c<\/p>\n\n\n\n
Novinky nejv\u00edce uv\u00edtaj\u00ed kv\u016fli televizi<\/p>\n\n\n\n
P\u0159i v\u00fdb\u011bru technologi\u00ed se pracovn\u00edci Domova sv. Josefa inspirovali klienty, za kter\u00fdmi vyj\u00ed\u017ed\u00ed ter\u00e9nn\u00ed slu\u017eba. Nej\u010dast\u011bji se setk\u00e1vali s po\u017eadavky na ovl\u00e1d\u00e1n\u00ed televize, okenn\u00edch \u017ealuzi\u00ed nebo chytr\u00fdch z\u00e1mk\u016f do dve\u0159\u00ed. To v\u0161e pomoc\u00ed chytr\u00e9ho telefonu \u010di tabletu.<\/p>\n\n\n\n
\u201eDo konceptu chytr\u00e9ho bytu pat\u0159\u00ed cokoli, co lze zapojit do chytr\u00e9 z\u00e1suvky a sp\u00e1rovat s telefonem. Pat\u0159\u00ed sem i na prvn\u00ed pohled hra\u010dky, d\u00edky kter\u00fdm se ale nemocn\u00fd c\u00edt\u00ed v\u00edce sob\u011bsta\u010dn\u00fd. Jako t\u0159eba automatizovan\u00fd d\u00e1vkova\u010d krmiva pro ko\u010dky, kter\u00fd klient ovl\u00e1d\u00e1 pomoc\u00ed sv\u00e9ho mobilu a dok\u00e1\u017ee se tak postarat o sv\u00e9ho dom\u00e1c\u00edho mazl\u00ed\u010dka,\u201c up\u0159es\u0148uje Petr \u010cerm\u00e1k, vedouc\u00ed IT.<\/p>\n\n\n\n
Klienti uv\u00edtaj\u00ed chytr\u00e9 technologie nap\u0159\u00edklad p\u0159i obl\u00edben\u00e9m sledov\u00e1n\u00ed televize. Dosud byli z\u00e1visl\u00ed na tom, \u017ee jim ji n\u011bkdo musel zapnout, p\u0159ep\u00ednat program, zv\u00fd\u0161it hlasitost. Te\u010f to zvl\u00e1dnou sami, by\u0165 ztratili hybnost v rukou. \u201eOvl\u00e1d\u00e1n\u00ed televize klienti \u0159e\u0161\u00ed ze v\u0161eho nejv\u00edc, proto\u017ee ji hodn\u011b sleduj\u00ed. Pro nemocn\u00e9 je d\u016fle\u017eit\u00e9 zachovat jejich svobodu, aby nebyli odk\u00e1zan\u00ed a z\u00e1visl\u00ed na druh\u00e9 osob\u011b, aby mohli b\u00fdt samostatn\u00ed v situac\u00edch, kdy to je mo\u017en\u00e9. O tom p\u0159em\u00fd\u0161l\u00edme a vym\u00fd\u0161l\u00edme nov\u00e9 zp\u016fsoby, kter\u00e9 umo\u017en\u00ed jejich v\u011bt\u0161\u00ed samostatnost,\u201c \u0159\u00edk\u00e1 Dominik Melichar, \u0159editel Domova sv. Josefa v \u017dir\u010di.<\/p>\n\n\n\n
Sb\u00edrka Chytr\u00e9 byty pro blbou nemoc zabodovala<\/p>\n\n\n\n
Vybudov\u00e1n\u00ed nov\u00e9ho Domova sv. Franti\u0161ka umo\u017enily dotace EU, st\u00e1tu a kraje. Evropsk\u00e1 unie poskytla 57 milion\u016f korun, Kr\u00e1lov\u00e9hradeck\u00fd kraj 17 milion\u016f. Dal\u0161\u00ed prost\u0159edky se poda\u0159ilo zajistit d\u00edky Ministerstvu pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed a St\u00e1tn\u00edmu fondu \u017eivotn\u00edho prost\u0159ed\u00ed. Skv\u011bl\u00fdm zp\u016fsobem se povedla pracovn\u00edk\u016fm Domova sv. Josefa sb\u00edrka Chytr\u00e9 byty pro blbou nemoc. Do n\u00ed p\u0159isp\u011blo bezm\u00e1la dva tis\u00edce soukrom\u00fdch a firemn\u00edch d\u00e1rc\u016f. Vybralo se v n\u00ed p\u0159es 5,4 milionu korun.<\/p>\n\n\n\n
V \u010cesku je 25 000 lid\u00ed s roztrou\u0161enou skler\u00f3zou, z toho t\u00e9m\u011b\u0159 7 000 v pokro\u010dil\u00e9m stadiu nemoci. \u201e\u010c\u00edm d\u00e1l v\u00edce rodin pe\u010duje doma o nemocn\u00e9. Na\u0161\u00edm c\u00edlem je uleh\u010dit pe\u010duj\u00edc\u00edm osob\u00e1m, zv\u00fd\u0161it sob\u011bsta\u010dnost nemocn\u00fdch v dom\u00e1c\u00edm prost\u0159ed\u00ed a pomoci jim zapojit se do b\u011b\u017en\u00e9ho \u017eivota. D\u00edky odleh\u010dovac\u00ed slu\u017eb\u011b se postar\u00e1me o nemocn\u00e9 p\u0159i pobytech, kter\u00e9 trvaj\u00ed od jednoho t\u00fddne do t\u0159\u00ed m\u011bs\u00edc\u016f. P\u0159idanou hodnotou pobytu je aktivita a n\u00e1cvik \u010dinnost\u00ed pomoc\u00ed modern\u00edch technologi\u00ed, p\u0159i kter\u00e9m klienti natr\u00e9nuj\u00ed v\u011bt\u0161\u00ed sob\u011bsta\u010dnost,\u201c dopl\u0148uje Dominik Melichar.<\/p>\n\n\n\n
Ch\u00e1traj\u00edc\u00ed kl\u00e1\u0161ter nev\u00eddan\u011b rozkvetl<\/p>\n\n\n\n
Otev\u0159en\u00ed Domova sv. Franti\u0161ka znamen\u00e1 dal\u0161\u00ed v\u00fdznamn\u00fd prvek prom\u011bny b\u00fdval\u00e9ho kl\u00e1\u0161tera v \u017dir\u010di, kter\u00fd byl na odpis. M\u00edsto toho u\u017e 23 let pom\u00e1h\u00e1 lidem s roztrou\u0161enou skler\u00f3zou.<\/p>\n\n\n\n
B\u011bhem t\u00e9to doby se poda\u0159ilo opravit sedm barokn\u00edch objekt\u016f, revitalizovat park, n\u00e1m\u011bst\u00ed i bylinkovou zahradu. Domov sv. Josefa poskytl klient\u016fm p\u0159es 5 000 pobyt\u016f, dohromady v\u00edce ne\u017e 300 000 l\u016f\u017ekodn\u016f. \u201eDomov sv. Josefa je skute\u010dn\u011b velk\u00fd z\u00e1zrak, kdy se d\u00edky d\u00e1rc\u016fm poda\u0159ilo prakticky z popela, z rozpadl\u00e9ho kl\u00e1\u0161tera, vybudovat specializovan\u00e9 za\u0159\u00edzen\u00ed pro nemocn\u00e9 roztrou\u0161enou skler\u00f3zou. Bez podporovatel\u016f bychom ale nedok\u00e1zali zafinancovat ani jeden rok provozu,\u201c upozor\u0148uje zakladatel Domova sv. Josefa Miroslav Wajsar, \u0159editel Oblastn\u00ed charity \u010cerven\u00fd Kostelec.<\/p>\n\n\n\n
Z celkov\u00e9ho po\u010dtu 25 000 lid\u00ed s roztrou\u0161enou skler\u00f3zou v \u010cesku je t\u00e9m\u011b\u0159 7 000 v pokro\u010dil\u00e9m stadiu nemoci. Dostupn\u00e1 l\u00e9\u010dba jim nezab\u00edr\u00e1. Nemoc jim ni\u010d\u00ed nervov\u00e1 vl\u00e1kna a zp\u016fsobuje postupn\u00e9 ochabov\u00e1n\u00ed sval\u016f. Ztr\u00e1cej\u00ed sv\u00e9 z\u00e1liby, pr\u00e1ci a mnohdy bohu\u017eel i rodinu a p\u0159\u00e1tele. Nemoc jim bere svobodu.<\/p>\n\n\n\n
Oslavy jara v Domov\u011b sv. Josefa<\/p>\n\n\n\n
Rozlou\u010den\u00ed s jarem a p\u0159iv\u00edt\u00e1n\u00ed nov\u00e9 sezony se kon\u00e1 v sobotu 25. kv\u011btna v Domov\u011b sv. Josefa v \u017dir\u010di. N\u00e1v\u0161t\u011bvn\u00edci se m\u016f\u017eou t\u011b\u0161it po cel\u00fd den na dobr\u00e9 z\u00e1kusky a ob\u010derstven\u00ed z kav\u00e1rny Caf\u00e9 Dami\u00e1n, v Bylinkov\u00e9 zahrad\u011b si zakoupit kv\u011btiny, zeleninovou sadbu nebo balk\u00f3novky. Na programu bude autorsk\u00e9 \u010dten\u00ed obl\u00edben\u00e9 spisovatelky B\u00e1ry \u0160\u0165astn\u00e9, pop-folkov\u00e1 hudba Payi May a Davida Jakubce. P\u0159ipravena bude tak\u00e9 v\u00fdstava obraz\u016f a prodej keramiky nebo st\u00e1l\u00e1 expozice cyklistiky v Cyklomuzeu.<\/p>\n\n\n\n
Jan Braun<\/p>\n\n\n\n
Krkono\u0161sk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/krkonossky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Celkem 1990 d\u00e1rc\u016f pomohlo k tomu, aby v jedin\u00e9m za\u0159\u00edzen\u00ed v \u010cesku, kter\u00e9 poskytuje komplexn\u00ed p\u00e9\u010di lidem s roztrou\u0161enou skler\u00f3zou, mohla vyr\u016fst nov\u00e1 budova odleh\u010dovac\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":48605,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-49284","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/49284","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=49284"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/49284\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/48605"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=49284"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=49284"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=49284"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}