{"id":49355,"date":"2024-05-28T05:13:54","date_gmt":"2024-05-28T03:13:54","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=49355"},"modified":"2024-05-28T05:18:51","modified_gmt":"2024-05-28T03:18:51","slug":"pacienti-s-roztrousenou-sklerozou-zasadi-slunecnice","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=49355","title":{"rendered":"Pacienti s\u00a0roztrou\u0161enou skler\u00f3zou zasad\u00ed slune\u010dnice"},"content":{"rendered":"\n<p><em>Nemoc m\u00e1 v&nbsp;\u010cesku asi 26&nbsp;000 lid\u00ed<\/em><\/p>\n\n\n\n<p><strong>Des\u00edtky slune\u010dnic rozz\u00e1\u0159\u00ed ve \u010dtvrtek 30. kv\u011btna Kate\u0159inskou zahradu v&nbsp;Praze. Zasad\u00ed je sem pacienti s&nbsp;roztrou\u0161enou skler\u00f3zou (RS) v&nbsp;r\u00e1mci akce Rozsvi\u0165me \u010ceskou republiku. Ta se kon\u00e1 u p\u0159\u00edle\u017eitosti Sv\u011btov\u00e9ho dne RS a startuje v&nbsp;poledne. Lid\u00e9 s&nbsp;roztrou\u0161enou skler\u00f3zou budou spole\u010dn\u011b s l\u00e9ka\u0159i s\u00e1zet symbolicky za ka\u017ed\u00e9ho nov\u011b diagnostikovan\u00e9ho pacienta jednu slune\u010dnici. Cht\u011bj\u00ed t\u00edm upozornit na onemocn\u011bn\u00ed, kter\u00fdm v \u010cesku trp\u00ed p\u0159ibli\u017en\u011b 26&nbsp;000 lid\u00ed.<\/strong><\/p>\n\n\n\n<p>\u201e<em>Dlouhodob\u011b se sna\u017e\u00edme roz\u0161\u00ed\u0159it pov\u011bdom\u00ed o RS a nov\u00fdm pacient\u016fm uk\u00e1zat, \u017ee na svou nemoc nejsou sami. Kv\u011btiny symbolizuj\u00ed nad\u011bji \u2013 s&nbsp;t\u00edm, jak se neust\u00e1le vyv\u00edj\u00ed l\u00e9\u010dba a je mo\u017en\u00e9 ji pacient\u016fm nasazovat d\u0159\u00edve, se lidem otev\u00edraj\u00ed dve\u0159e do lep\u0161\u00ed budoucnosti,\u201c<\/em> \u0159\u00edk\u00e1 Kate\u0159ina B\u00e9mov\u00e1 z&nbsp;Nada\u010dn\u00edho fondu IMPULS, kter\u00fd akci po\u0159\u00e1d\u00e1.<\/p>\n\n\n\n<p> Leto\u0161n\u00ed 8. ro\u010dn\u00edk Rozsvi\u0165me \u010ceskou republiku se zam\u011b\u0159uje na v\u010dasnou diagnostiku a jej\u00ed dostupnost pro v\u0161echny pacienty. Akci dopln\u00ed i \u0159ada odborn\u00fdch p\u0159edn\u00e1\u0161ek na toto t\u00e9ma. Lid\u00e9 se dozv\u00ed o nov\u00fdch metod\u00e1ch rehabilitace a mo\u017enostech l\u00e9\u010dby. Ka\u017ed\u00e1 zasazen\u00e1 kv\u011btina symbolizuje nad\u011bji pro ka\u017ed\u00e9ho nov\u011b diagnostikovan\u00e9ho pacienta.<\/p>\n\n\n\n<p> \u201e<em>Roztrou\u0161enou skler\u00f3zou ro\u010dn\u011b onemocn\u00ed asi 700\u2013800 lid\u00ed, proto \u0159\u00edk\u00e1me, \u017ee denn\u011b se tuto diagn\u00f3zu dozv\u00ed dva a\u017e t\u0159i mlad\u00ed lid\u00e9<\/em>,\u201c p\u0159ibli\u017euje Kate\u0159ina B\u00e9mov\u00e1. \u201e<em>Potvrdit nebo vylou\u010dit, zda \u010dlov\u011bk trp\u00ed roztrou\u0161enou skler\u00f3zou, v&nbsp;dne\u0161n\u00ed dob\u011b nen\u00ed slo\u017eit\u00e9. N\u00e1ro\u010dn\u00e9 je ale na nemoc v\u016fbec pomyslet, proto pot\u0159ebujeme hodn\u011b osv\u011bty mezi praktick\u00fdmi l\u00e9ka\u0159i a praktick\u00fdmi neurology, aby pacienty pos\u00edlali zav\u010das na odborn\u00e1 vy\u0161et\u0159en\u00ed, kter\u00e1 nemoc odhal\u00ed,<\/em>\u201c \u0159\u00edk\u00e1 prof. MUDr. Eva Kubala Havrdov\u00e1, DrSc., vedouc\u00ed Centra pro demyeliniza\u010dn\u00ed onemocn\u011bn\u00ed Neurologick\u00e9 kliniky 1. LF UK a&nbsp;VFN v&nbsp;Praze.<\/p>\n\n\n\n<p>RS je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1ma. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v&nbsp;mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence je t\u011b\u017ek\u00e1. Nemoc se vyskytuje p\u0159edev\u0161\u00edm ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice Epsteina-Barrov\u00e9 virus, kou\u0159en\u00ed a nedostatek vitaminu D.<\/p>\n\n\n\n<p> <em>\u201eRoztrou\u0161en\u00e1 skler\u00f3za se bohu\u017eel ned\u00e1 vyl\u00e9\u010dit. Projevuje se poruchami ch\u016fze, zraku \u2013 nap\u0159\u00edklad dvojit\u00fdm nebo mlhav\u00fdm vid\u011bn\u00edm, motorick\u00fdmi probl\u00e9my, poruchami citlivosti, koordinace \u010di funkc\u00ed sv\u011bra\u010d\u016f. \u010casto ji prov\u00e1z\u00ed \u00fanava a&nbsp;\u00fazkost nebo deprese. Spou\u0161t\u011b\u010dem nemoci m\u016f\u017ee b\u00fdt infekce nebo velk\u00fd stres,\u201c&nbsp;<\/em>popisuje profesorka Eva Kubala Havrdov\u00e1. I z&nbsp;toho d\u016fvodu po\u0159\u00e1d\u00e1 NF IMPULS spolu s&nbsp;l\u00e9ka\u0159i a&nbsp;fyzioterapeuty pro pacienty pravideln\u011b r\u016fzn\u00e9 aktivity, kter\u00e9 jim dod\u00e1vaj\u00ed pocit soun\u00e1le\u017eitosti a&nbsp;odvahu se s&nbsp;nemoc\u00ed \u201epoprat\u201c.<\/p>\n\n\n\n<p>Akci Rozsvi\u0165me \u010ceskou republiku mohou lid\u00e9 podpo\u0159it i na d\u00e1lku, a to darov\u00e1n\u00edm virtu\u00e1ln\u00ed slune\u010dnice v&nbsp;r\u00e1mci projektu Kytka pro zdrav\u00ed, kter\u00fd NF IMPULS spustil v&nbsp;lo\u0148sk\u00e9m roce. \u201e<em>Ka\u017ed\u00e1 zakoupen\u00e1 slune\u010dnice p\u0159edstavuje 15 minut psychoterapie nebo fyzioterapie pro nemocn\u00e9ho s&nbsp;roztrou\u0161enou skler\u00f3zou. P\u0159esto\u017ee je to velmi d\u016fle\u017eit\u00e1 sou\u010d\u00e1st l\u00e9\u010dby, tak si ji pacienti \u010dasto nemohou dovolit \u2013 my jim chceme t\u00edmto zp\u016fsobem zprost\u0159edkovat pomoc,\u201c <\/em>dopl\u0148uje Kate\u0159ina B\u00e9mov\u00e1.<\/p>\n\n\n\n<p>Rozsvi\u0165me \u010ceskou republiku se kon\u00e1 u p\u0159\u00edle\u017eitosti Sv\u011btov\u00e9ho dne RS, jen\u017e p\u0159ipad\u00e1 na 30.\u00a0kv\u011btna. Informace o nemoci mohou pacienti naj\u00edt tak\u00e9 na webu aktivnizivot.cz nebo rskompas.cz.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"382\" height=\"260\" src=\"https:\/\/www.invarena.cz\/wp-content\/uploads\/Rozsvitme-CESKO-382x260.jpg\" alt=\"\" class=\"wp-image-49360\" style=\"width:454px;height:auto\"\/><\/figure>\n\n\n\n<p><strong>O Nada\u010dn\u00edm fondu IMPULS<\/strong><\/p>\n\n\n\n<p>Nada\u010dn\u00ed fond IMPULS (NFI) vznikl v roce 2000. Jeho c\u00edlem je podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou (RS) mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii, kter\u00e9 nejsou pln\u011b hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je z\u0159izovatelem celost\u00e1tn\u00edho registru pacient\u016f s RS ReMuS a jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. V\u00edce informac\u00ed na <a href=\"http:\/\/www.nfimpuls.cz\/\"><em>www.nfimpuls.cz<\/em><\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>Nemoc m\u00e1 v&nbsp;\u010cesku asi 26&nbsp;000 lid\u00ed Des\u00edtky slune\u010dnic rozz\u00e1\u0159\u00ed ve \u010dtvrtek 30. kv\u011btna Kate\u0159inskou zahradu v&nbsp;Praze. Zasad\u00ed je sem pacienti s&nbsp;roztrou\u0161enou skler\u00f3zou (RS) v&nbsp;r\u00e1mci akce <a class=\"mh-excerpt-more\" href=\"https:\/\/www.invarena.cz\/?p=49355\" title=\"Pacienti s\u00a0roztrou\u0161enou skler\u00f3zou zasad\u00ed slune\u010dnice\">[&#8230;]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":49357,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-49355","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/49355","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=49355"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/49355\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/49357"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=49355"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=49355"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=49355"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}