{"id":50088,"date":"2024-06-24T15:13:46","date_gmt":"2024-06-24T13:13:46","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=50088"},"modified":"2024-06-24T15:13:47","modified_gmt":"2024-06-24T13:13:47","slug":"lidem-kterym-nemoc-meni-tvar-telo-i-zivot-pomaha-psychoterapie","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=50088","title":{"rendered":"Lidem, kter\u00fdm nemoc m\u011bn\u00ed tv\u00e1\u0159, t\u011blo i \u017eivot, pom\u00e1h\u00e1 psychoterapie"},"content":{"rendered":"\n

P\u0159esto j\u00ed vyu\u017e\u00edv\u00e1 jen necel\u00e1 polovina nemocn\u00fdch<\/em><\/p>\n\n\n\n

Praha, 24. 6. 2024 \u2013 Jen necel\u00e1 polovina pacient\u016f se sklerodermi\u00ed vyhled\u00e1 pomoc psychologa. A to p\u0159esto, \u017ee by jim pomohla p\u0159i l\u00e9\u010db\u011b choroby, kter\u00e1 m\u011bn\u00ed nemocn\u00fdm nejen vzhled, ale i\u00a0pohyblivost a n\u011bkdy i funk\u010dnost org\u00e1n\u016f. <\/strong><\/p>\n\n\n\n

Z\u00a0dotazn\u00edku, kter\u00fd rozeslala pacientsk\u00e1 skupina Skleroderma p\u016fsob\u00edc\u00ed v\u00a0r\u00e1mci organizace Revma Liga \u010cR, jasn\u011b vyplynulo, \u017ee k psychologovi \u010di terapeutovi si p\u0159ijde pro pomoc jen 42 % dot\u00e1zan\u00fdch. D\u016fvodem je nap\u0159\u00edklad nedostupnost psychoterapeut\u016f nebo to, \u017ee tato slu\u017eba b\u00fdv\u00e1 vn\u00edm\u00e1na jako tabu. U autoimunitn\u00edch onemocn\u011bn\u00ed jako pr\u00e1v\u011b syst\u00e9mov\u00e1 sklerodermie je p\u0159itom p\u00e9\u010de o du\u0161evn\u00ed zdrav\u00ed z\u00e1sadn\u00ed a podle l\u00e9ka\u0159\u016f by m\u011bla b\u00fdt sou\u010d\u00e1st\u00ed tzv. multidisciplin\u00e1rn\u00ed l\u00e9\u010dby. Upozor\u0148uj\u00ed na to p\u0159i p\u0159\u00edle\u017eitosti Sv\u011btov\u00e9ho dne sklerodermie, kter\u00fd p\u0159ipad\u00e1 na 29.\u00a0\u010dervna.<\/strong><\/p>\n\n\n\n

\u201eSyst\u00e9mov\u00e1 sklerodermie prim\u00e1rn\u011b nepo\u0161kozuje psychiku nemocn\u00e9ho, jako se to m\u016f\u017ee d\u00edt u jin\u00fdch nemoc\u00ed. Psychick\u00fd stav ale ovliv\u0148uj\u00ed jednotliv\u00e9 projevy diagn\u00f3zy, jako jsou chronick\u00e9 bolesti, omezen\u00ed pohybu nebo i viditeln\u00e9 zm\u011bny k\u016f\u017ee, nap\u0159\u00edklad na obli\u010deji,\u201c <\/em>popisuje doc.\u00a0MUDr.\u00a0Tom\u00e1\u0161 Soukup, Ph.D., vedouc\u00ed l\u00e9ka\u0159 II. intern\u00ed gastroenterologick\u00e9 kliniky LF UK a FN v\u00a0Hradci Kr\u00e1lov\u00e9. <\/p>\n\n\n\n

Z\u00e1va\u017en\u00e9 autoimunitn\u00ed onemocn\u011bn\u00ed postihuje krom\u011b k\u016f\u017ee tak\u00e9 c\u00e9vy, klouby, pl\u00edce nebo tr\u00e1vic\u00ed soustavu. V\u00a0\u010cesku j\u00edm trp\u00ed p\u0159ibli\u017en\u011b 1\u00a0760 lid\u00ed, \u010dasto se projevuje u \u017een v produktivn\u00edm v\u011bku kolem 30 let. \u201eZvl\u00e1\u0161t\u011b pro n\u011b m\u016f\u017ee b\u00fdt sklerodermie psychicky n\u00e1ro\u010dn\u00e1, proto\u017ee diagn\u00f3za dok\u00e1\u017ee extr\u00e9mn\u011b zm\u011bnit vzhled. K\u016f\u017ee se stahuje, objevuj\u00ed se na n\u00ed v\u00fdrazn\u00e9 skvrny, deformuje prsty na rukou. Je t\u011b\u017ek\u00e9 p\u0159ijmout nemoc a s\u00a0n\u00ed i souvisej\u00edc\u00ed zm\u011bny<\/em>, nap\u0159\u00edklad pracovn\u00ed omezen\u00ed, kter\u00e9 mohou p\u0159evr\u00e1tit \u017eivot naruby,<\/em>\u201c \u0159\u00edk\u00e1 Michaela Linkov\u00e1, vedouc\u00ed pacientsk\u00e9 skupiny Skleroderma, kter\u00e1 se s\u00a0t\u00edmto onemocn\u011bn\u00edm tak\u00e9 pot\u00fdk\u00e1.<\/p>\n\n\n\n

P\u0159esto\u017ee psychoterapie lidem s\u00a0touto nemoc\u00ed v\u00fdrazn\u011b pom\u00e1h\u00e1, ne ka\u017ed\u00fd pacient ji ale vyhled\u00e1. \u201ePacienti \u010dasto nar\u00e1\u017e\u00ed na nedostupnost psychoterapeut\u016f v\u00a0bl\u00edzk\u00e9m okol\u00ed. N\u011bkdy se zase boj\u00ed, co by tomu \u0159ekli jejich bl\u00edzc\u00ed \u2013 psychologickou p\u00e9\u010di toti\u017e vn\u00edmaj\u00ed jako tabu<\/em>,\u201c vysv\u011btluje Michaela Linkov\u00e1. Podle n\u00ed by v\u00fdrazn\u011b pomohlo, kdyby byl psycholog sou\u010d\u00e1st\u00ed multidisciplin\u00e1rn\u00edho t\u00fdmu, kter\u00fd se o\u00a0pacienty se sklerodermi\u00ed kv\u016fli p\u0159esahu onemocn\u011bn\u00ed do r\u016fzn\u00fdch org\u00e1n\u016f obvykle star\u00e1. Sou\u010d\u00e1st\u00ed takov\u00e9ho t\u00fdmu je krom\u011b revmatologa nap\u0159\u00edklad plicn\u00ed l\u00e9ka\u0159, radiolog, kardiolog nebo gastroenterolog. <\/p>\n\n\n\n

\u201eV ide\u00e1ln\u00edm p\u0159\u00edpad\u011b by m\u011bl pacienta k\u00a0n\u00e1v\u0161t\u011bv\u011b psychoterapeuta vyzvat p\u0159\u00edmo o\u0161et\u0159uj\u00edc\u00ed l\u00e9ka\u0159,<\/em>\u201c dod\u00e1v\u00e1 Michaela Linkov\u00e1. Podpora du\u0161evn\u00edho zdrav\u00ed toti\u017e zna\u010dn\u011b pozitivn\u011b ovliv\u0148uje pr\u016fb\u011bh l\u00e9\u010dby sklerodermie a jej\u00edch jednotliv\u00fdch symptom\u016f. \u201eDnes jsou zn\u00e1m\u00e9 biologick\u00e9 mechanismy, kter\u00e9 n\u00e1m propojuj\u00ed nervov\u00fd, endokrinn\u00ed a imunitn\u00ed syst\u00e9m. A hlavn\u00edm modul\u00e1torem, zvl\u00e1\u0161t\u011b u t\u011bchto autoimunitn\u00edch onemocn\u011bn\u00ed, je stres. Proto je d\u016fle\u017eit\u00e1 jeho redukce a pr\u00e1ce s n\u00edm<\/em>,\u201c p\u0159ibli\u017euje psycholo\u017eka MUDr. Monika \u010cervinkov\u00e1, kter\u00e1 p\u016fsob\u00ed v\u00a0Revmaporadn\u011b pacientsk\u00e9 skupiny Skleroderma. <\/p>\n\n\n\n

\u201ePo sd\u011blen\u00ed diagn\u00f3zy se lid\u00e9 mus\u00ed se svou nemoc\u00ed vyrovnat a\u00a0p\u0159ijmout fakt, \u017ee je sklerodermie nevyl\u00e9\u010diteln\u00e1 a \u010dasto s\u00a0sebou p\u0159in\u00e1\u0161\u00ed i omezen\u00ed v\u00a0b\u011b\u017en\u00fdch denn\u00edch aktivit\u00e1ch \u010di v pracovn\u00ed oblasti. Pomoc pacienti nevyhled\u00e1vaj\u00ed jen zpo\u010d\u00e1tku, ale i v\u00a0pr\u016fb\u011bhu dal\u0161\u00edch let s\u00a0nemoc\u00ed, nap\u0159\u00edklad kdy\u017e se ke sklerodermii p\u0159id\u00e1 dal\u0161\u00ed komplikace nebo se objev\u00ed pot\u00ed\u017ee z\u00a0jin\u00e9 oblasti \u017eivota<\/em>,\u201c p\u0159ibli\u017euje psycholo\u017eka \u010cervinkov\u00e1 a p\u0159ipom\u00edn\u00e1, \u017ee pacienti mohou vyu\u017e\u00edt psychologick\u00e9 konzultace pr\u00e1v\u011b v\u00a0Revmaporadn\u011b, a to osobn\u011b v\u00a0Praze nebo online. Revmaporadna za necel\u00e9 t\u0159i roky zprost\u0159edkovala psychologickou podporu 105 nemocn\u00fdm, v\u00a085 % \u0161lo o pacienty se syst\u00e9movou sklerodermi\u00ed.<\/p>\n\n\n\n

O Revmaporadn\u011b<\/strong><\/p>\n\n\n\n

Revmaporadna je psychologick\u00e1 poradna pro pacienty se syst\u00e9movou sklerodermi\u00ed, myozitidou a nov\u011b i syst\u00e9mov\u00fdm lupusem. Je spole\u010dn\u00fdm projektem pacientsk\u00e9 skupiny Skleroderma, organizace Revma Liga \u010cR, spole\u010dnosti Boehringer Ingelheim, spole\u010dnosti uL\u00e9ka\u0159e.cz a nov\u011b i spole\u010dnosti AstraZeneca. Jedn\u00e1 se o \u201eakutn\u00ed\u201c psychologickou pomoc nejen nov\u011b diagnostikovan\u00fdm pacient\u016fm, ale v\u0161em, kte\u0159\u00ed v pr\u016fb\u011bhu sv\u00e9ho \u017eivota s nemoc\u00ed pot\u0159ebuj\u00ed pomoci. Poradna je ur\u010dena pacient\u016fm se syst\u00e9movou sklerodermi\u00ed, myozitidou a letos nov\u011b i pacient\u016fm se syst\u00e9mov\u00fdm lupusem. Z\u00e1jemci mohou vyu\u017e\u00edt psychologick\u00e9 konzultace zdarma. Revmaporadnu je mo\u017en\u00e9 nav\u0161t\u00edvit bu\u010f osobn\u011b v Praze, nebo si sjednat sch\u016fzku online. V\u00edce na www.revmaporadna.cz<\/a>.<\/p>\n\n\n\n

O pacientsk\u00e9 skupin\u011b Skleroderma<\/strong><\/p>\n\n\n\n

Pacientsk\u00e1 skupina Skleroderma p\u016fsob\u00ed v r\u00e1mci organizace Revma Liga \u010cR. Od roku 2018 pom\u00e1h\u00e1 pacient\u016fm se z\u00e1va\u017en\u00fdm a vz\u00e1cn\u00fdm autoimunitn\u00edm onemocn\u011bn\u00edm syst\u00e9mov\u00e9 sklerodermie. Krom\u011b poskytov\u00e1n\u00ed psychologick\u00e9 pomoci organizuje pacientsk\u00e1 skupina Skleroderma p\u0159edn\u00e1\u0161ky, tematick\u00e9 workshopy a webin\u00e1\u0159e a vyd\u00e1v\u00e1 pro pacienty odborn\u00e9 publikace. V\u00edce na www.revmaliga.cz\/klub\/skleroderma<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

P\u0159esto j\u00ed vyu\u017e\u00edv\u00e1 jen necel\u00e1 polovina nemocn\u00fdch Praha, 24. 6. 2024 \u2013 Jen necel\u00e1 polovina pacient\u016f se sklerodermi\u00ed vyhled\u00e1 pomoc psychologa. A to p\u0159esto, \u017ee […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14167,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-50088","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50088","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=50088"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50088\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14167"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=50088"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=50088"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=50088"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}