{"id":50485,"date":"2024-07-09T13:08:38","date_gmt":"2024-07-09T11:08:38","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=50485"},"modified":"2024-07-09T13:08:38","modified_gmt":"2024-07-09T11:08:38","slug":"malemu-vilikovi-zbyva-jen-par-mesicu-rodina-proziva-posledni-spolecne-okamziky","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=50485","title":{"rendered":"Mal\u00e9mu Vil\u00edkovi zb\u00fdv\u00e1 jen p\u00e1r m\u011bs\u00edc\u016f. Rodina pro\u017e\u00edv\u00e1 posledn\u00ed spole\u010dn\u00e9 okam\u017eiky"},"content":{"rendered":"\n

ilustra\u010dn\u00ed foto<\/em><\/p>\n\n\n\n

\u201eKa\u017ed\u00e1 chv\u00edle, kdy se n\u00e1m poda\u0159\u00ed zapomenout, m\u00e1 cenu zlata,\u201c \u0159\u00edk\u00e1 tat\u00ednek sedmilet\u00e9ho Vil\u00edka. Chlapci byl toti\u017e n\u00e1hle diagnostikov\u00e1n velmi vz\u00e1cn\u00fd typ rakoviny – Ewing\u016fv sarkom s genem CIC. Rodi\u010d\u016fm zdrav\u00e9ho sportuj\u00edc\u00edho chlape\u010dka tak l\u00e9ka\u0159i najednou sd\u011blili fat\u00e1ln\u00ed diagn\u00f3zu s kr\u00e1tkou dobou do\u017eit\u00ed. Rodina souhlasila s uspo\u0159\u00e1d\u00e1n\u00edm sb\u00edrky, aby mohla s chlapcem str\u00e1vit posledn\u00ed spole\u010dn\u00e9 m\u011bs\u00edce. Doposud vybrali p\u0159es 2,4 milionu korun, tedy o cel\u00e9 dva miliony v\u00edce, ne\u017e p\u016fvodn\u011b v\u016fbec doufali.<\/p>\n\n\n\n

Sedmilet\u00fd Vil\u00edk \u017eije se svou maminkou, t\u00e1tou a br\u00e1\u0161kou Samuelem pobl\u00ed\u017e Hradce Kr\u00e1lov\u00e9. Stejn\u011b jako cel\u00e1 jeho rodina i on miluje sport. Spole\u010dn\u011b proto nejrad\u011bji tr\u00e1v\u00ed \u010das v p\u0159\u00edrod\u011b.<\/p>\n\n\n\n

P\u0159i jednom takov\u00e9m v\u00fdlet\u011b na kolech, p\u0159esn\u011b dne 24. z\u00e1\u0159\u00ed 2023, si za\u010dal Vil\u00edk st\u011b\u017eovat na velk\u00e9 bolesti na hrudn\u00edku. Rodina se tedy okam\u017eit\u011b vydala zp\u00e1tky dom\u016f. Jeliko\u017e ani po p\u0159\u00edjezdu bolesti neust\u00e1valy, rodi\u010de odjeli se synem na pohotovost.<\/p>\n\n\n\n

O p\u00e1r t\u00fddn\u016f pozd\u011bji si vyslechli velice bolestivou zpr\u00e1vu. Jejich syn Viliam trp\u00ed velmi vz\u00e1cn\u00fdm typem rakoviny – Ewing\u016fv sarkom s genem CIC (viz n\u00ed\u017ee).<\/p>\n\n\n\n

Tento typ rakoviny se sv\u011btov\u011b vyskytuje u m\u00e9n\u011b ne\u017e 1 % polulace. Jeliko\u017e se jedn\u00e1 o onemocn\u011bn\u00ed, kter\u00e9 bylo pops\u00e1no a\u017e v roce 2016, neexistuje zat\u00edm l\u00e9\u010dba. Rodina tak s nejv\u011bt\u0161\u00ed pravd\u011bpodobnost\u00ed pro\u017e\u00edv\u00e1 posledn\u00ed spole\u010dn\u00e9 okam\u017eiky.<\/p>\n\n\n\n

\u0160ance na vyl\u00e9\u010den\u00ed nen\u00ed velk\u00e1<\/p>\n\n\n\n

Dokto\u0159i ji\u017e na za\u010d\u00e1tku sd\u011blili rodi\u010d\u016fm, \u017ee \u0161ance na vyl\u00e9\u010den\u00ed je u Vil\u00edka miziv\u00e1. Maminka chlapce proto ihned opustila zam\u011bstn\u00e1n\u00ed, aby mohla ve\u0161ker\u00fd \u010das tr\u00e1vit s Vil\u00edkem v nemocnici. Tat\u00ednek se mezit\u00edm sna\u017eil skloubit svoji pr\u00e1ci s p\u00e9\u010d\u00ed o mlad\u0161\u00edho syna, na kter\u00e9ho z\u016fstal doma s\u00e1m.<\/p>\n\n\n\n

\u201eB\u011bhem dvoum\u011bs\u00ed\u010dn\u00edho pobytu v nemocnici se z Vil\u00edka stal prakticky le\u017e\u00edc\u00ed pacient na um\u011bl\u00e9 v\u00fd\u017eiv\u011b s nep\u0159est\u00e1vaj\u00edc\u00edmi hore\u010dkami a bolestmi, kter\u00e9 l\u00e9ka\u0159i usm\u011br\u0148ovali d\u00e1vkov\u00e1n\u00edm l\u00e9ku morfia. Zhubl \u010dty\u0159i kilogramy. Kv\u016fli vz\u00e1cn\u00e9mu typu n\u00e1doru dost\u00e1val tento mal\u00fd bojovn\u00edk velmi agresivn\u00ed chemoterapii s kr\u00e1tk\u00fdmi pauzami a velk\u00fdmi d\u00e1vkami. Jin\u00e9 \u0161ance nebyly,\u201c popisuje situaci rodinn\u00e1 p\u0159\u00edtelkyn\u011b Jana \u010c\u00e1slavsk\u00e1, kter\u00e1 se rozhodla zalo\u017eit rodin\u011b sb\u00edrku na dobro\u010dinn\u00e9 platform\u011b Donio.<\/p>\n\n\n\n

\u201eNa konci listopadu se za \u00fa\u017easn\u00e9 podpory a motivace rodi\u010d\u016f Vil\u00edk postupn\u011b vracel na nohy, a\u010dkoliv to bylo p\u0159es silnou bolest,\u201c dod\u00e1v\u00e1 Jana \u010c\u00e1slavsk\u00e1.<\/p>\n\n\n\n

Vil\u00edk n\u00e1sledn\u011b podstoupil i n\u00e1ro\u010dnou \u0161estihodinovou operaci. B\u011bhem n\u00ed mu l\u00e9ka\u0159sk\u00fd t\u00fdm odstranil n\u00e1dor o velikosti 10 centimetr\u016f. Chlapec v\u0161ak p\u0159i\u0161el i o \u010d\u00e1st br\u00e1nice, pl\u00edce, jater a n\u011bkolik mezi\u017eebern\u00edch sval\u016f.<\/p>\n\n\n\n

Mal\u00fd bojovn\u00edk se pere o \u017eivot<\/p>\n\n\n\n

Aktu\u00e1ln\u011b je Vil\u00edk doma s rodi\u010di a ka\u017ed\u00fd den mus\u00ed spolykat mno\u017estv\u00ed siln\u00fdch l\u00e9k\u016f. Chemoterapeutika, kter\u00e1 bere, v\u0161ak ni\u010d\u00ed nejen rakovinn\u00e9 bu\u0148ky, ale i zdrav\u00e9 bu\u0148ky v t\u011ble. Terapie m\u00e1 proto \u0159adu vedlej\u0161\u00edch \u00fa\u010dink\u016f. Vil\u00edk m\u00e1 no\u010dn\u00ed bolesti, ka\u0161el, zvrac\u00ed a ka\u017ed\u00fd pohyb ho ihned vys\u00edl\u00ed. I proto se pohybuje p\u0159ev\u00e1\u017en\u011b na invalidn\u00edm voz\u00edku.<\/p>\n\n\n\n

\u201eNejv\u00edc n\u00e1s dostalo, kdy\u017e ho na ARO odpojili od um\u011bl\u00e9 plicn\u00ed ventilace a poprv\u00e9 ho po operaci probouzeli. Za\u010dal se n\u00e1m tich\u00fdm hlasem omlouvat, \u017ee nem\u016f\u017ee moc mluvit. Podot\u00fdk\u00e1m, \u017ee mu zrovna vyndali z krku hadici tlustou jako palec. Pak n\u00e1m \u0159ekl, bylo pozd\u011b ve\u010der, \u017ee u\u017e to zvl\u00e1dne, a\u0165 jdeme sp\u00e1t. \u017de bude v po\u0159\u00e1dku,\u201c \u0159\u00edk\u00e1 dojat\u011b tat\u00ednek chlapce.<\/p>\n\n\n\n

P\u0159ej\u00ed si, aby lidi v\u011bd\u011bli, \u017ee tu Vil\u00edk byl<\/p>\n\n\n\n

Kdy\u017e se Jana \u010c\u00e1slavsk\u00e1 p\u016fvodn\u011b otce Vil\u00edka zeptala, jestli by s man\u017eelkou uv\u00edtali finan\u010dn\u00ed sb\u00edrku, aby mohli spole\u010dn\u011b str\u00e1vit maximum \u010dasu, kter\u00fd jim s Vil\u00edkem zb\u00fdv\u00e1, byl pr\u00fd zprvu proti.<\/p>\n\n\n\n

\u201eDote\u010f mi bylo cokoliv proti srsti. \u0158\u00edkal jsem, \u017ee nepot\u0159ebujeme nic. Chodil jsem norm\u00e1ln\u011b do pr\u00e1ce a v\u011b\u0159il, \u017ee to zvl\u00e1dneme. Situace se ale zm\u011bnila. Tak\u00e9 bych si p\u0159\u00e1l, aby se co nejv\u00edce lid\u00ed dozv\u011bd\u011blo, \u017ee tady ten kluk je. A co v\u0161echno u\u017e musel vytrp\u011bt, ale stejn\u011b to nikdy nevzdal,\u201c \u0159\u00edk\u00e1 hrd\u011b o sv\u00e9m chlapci tat\u00ednek.<\/p>\n\n\n\n

Se sb\u00edrkou nakonec souhlasil pot\u00e9, co se dozv\u011bd\u011bl, \u017ee se nemoc nepoda\u0159ilo zastavit. P\u0159\u00e1l si toti\u017e moci p\u0159eru\u0161it zam\u011bstn\u00e1n\u00ed a str\u00e1vit se synem ve\u0161ker\u00fd zb\u00fdvaj\u00edc\u00ed \u010das.<\/p>\n\n\n\n

\u201eOd l\u00e9ka\u0159\u016f ve FN Motol jsme si bohu\u017eel vyslechli 7. 6. 2024 zdrcuj\u00edc\u00ed zpr\u00e1vu. Sarkom m\u011bkk\u00fdch tk\u00e1n\u00ed s alterac\u00ed genu CIC d\u00e1l postupuje. Ji\u017e jsme vyzkou\u0161eli v\u0161echno. Nad\u00e1le u\u017e v modern\u00ed medic\u00edn\u011b neexistuje zp\u016fsob, jak ho zastavit. Aktu\u00e1ln\u00ed progn\u00f3za do\u017eit\u00ed je v \u0159\u00e1du ni\u017e\u0161\u00edch jednotek m\u011bs\u00edc\u016f,\u201c prezentoval vyj\u00e1d\u0159en\u00ed doktor\u016f Vil\u00edk\u016fv tat\u00ednek.<\/p>\n\n\n\n

N\u00e1sledn\u011b otec chlapce sd\u00edlel i rozhovor s Vil\u00edkem:<\/p>\n\n\n\n

Vil\u00edk: \u201eTati, u\u017e nemus\u00edm do nemocnice?\u201c<\/p>\n\n\n\n

T\u00e1ta: \u201eAno Vil\u00edku, kdy\u017e se bude\u0161 takhle hezky l\u00e9\u010dit doma, tak u\u017e ne.\u201c<\/p>\n\n\n\n

Vil\u00edk: \u201eTak\u017ee tu u\u017e s v\u00e1mi budu doma nav\u017edycky, v\u00e1\u017en\u011b?\u201c<\/p>\n\n\n\n

T\u00e1ta: \u201eAno, l\u00e1sko, bude\u0161 s n\u00e1mi doma u\u017e nav\u017edycky.\u201c<\/p>\n\n\n\n

Jak sb\u00edrka pom\u016f\u017ee<\/p>\n\n\n\n

\u017d\u00e1dn\u00e9 pen\u00edze bohu\u017eel nemohou zvr\u00e1tit Vil\u00edk\u016fv osud. Pomohou v\u0161ak rodin\u011b v t\u011b\u017ek\u00e9 \u017eivotn\u00ed chv\u00edli nemyslet na existencion\u00e1ln\u00ed z\u00e1le\u017eitosti a umo\u017en\u00ed jim str\u00e1vit v\u0161echen zb\u00fdvaj\u00edc\u00ed \u010das po boku sv\u00e9ho d\u00edt\u011bte.<\/p>\n\n\n\n

\u201eVil\u00edk je skv\u011bl\u00fd chlapec. Miluje pohyb, nep\u0159ehl\u00e9dne \u017e\u00e1dn\u00e9 d\u011btsk\u00e9 h\u0159i\u0161t\u011b, r\u00e1d jezd\u00ed na kole, na brusl\u00edch, miluje turistiku, plav\u00e1n\u00ed i \u0161norchlov\u00e1n\u00ed. Je to citliv\u00e1 du\u0161i\u010dka pln\u00e1 l\u00e1sky, kter\u00e1 by z fleku dala domov ka\u017ed\u00e9mu zv\u00ed\u0159\u00e1tku. Je to ale z\u00e1rove\u0148 tvr\u010f\u00e1k, kter\u00fd dost\u00e1v\u00e1 injekce a ani nemrkne,\u201c mluv\u00ed o Vil\u00edkovi zakladatelka sb\u00edrky Jana \u010c\u00e1slavsk\u00e1.<\/p>\n\n\n\n

\u201eZ\u00e1zraky se pr\u00fd d\u011bj\u00ed t\u011bm, kte\u0159\u00ed v\u011b\u0159\u00ed. J\u00e1 jsem tedy nev\u011b\u0159il, ale te\u010f u\u017e budu,\u201c tvrd\u00ed Vil\u00edk\u016fv tat\u00ednek, kter\u00fd spole\u010dn\u011b s man\u017eelkou nep\u0159est\u00e1v\u00e1 doufat.<\/p>\n\n\n\n

C\u00edlov\u00e1 \u010d\u00e1stka ji\u017e byla ve sb\u00edrce na Donio sice dosa\u017eena (a dokonce mnohon\u00e1sobn\u011b p\u0159ekon\u00e1na), ale i tak lze nad\u00e1le p\u0159isp\u00edvat. M\u00edsto p\u016fvodn\u00edch 300 tis\u00edc korun p\u0159isp\u011blo ji\u017e celkem 4 627 d\u00e1rc\u016f v\u00edce ne\u017e 2,4 miliony korun.<\/p>\n\n\n\n

\u201eMoc si v\u00e1\u017e\u00edme ve\u0161ker\u00e9 pomoci a solidarity, kter\u00e1 n\u00e1m pom\u00e1h\u00e1 v t\u011bchto chv\u00edl\u00edch j\u00edt d\u00e1l. I kdy\u017e se ka\u017ed\u00fd den bl\u00ed\u017e\u00edme k n\u011b\u010demu, co douf\u00e1me, \u017ee nikdy nep\u0159ijde. V neposledn\u00ed \u0159ad\u011b d\u011bkujeme cel\u00e9mu t\u00fdmu FN Motol za jejich profesion\u00e1ln\u00ed pr\u00e1ci,\u201c dod\u00e1vaj\u00ed rodi\u010de na z\u00e1v\u011br.<\/p>\n\n\n\n

Ewing\u016fv sarkom<\/p>\n\n\n\n

Jedn\u00e1 se o n\u00e1dor neurogenn\u00edho p\u016fvodu.<\/p>\n\n\n\n

\u201eVe v\u011bt\u0161in\u011b p\u0159\u00edpad\u016f je prim\u00e1rn\u011b posti\u017eena kost, vz\u00e1cn\u011b m\u016f\u017ee vyr\u016fstat z m\u011bkk\u00fdch tk\u00e1n\u00ed. \u010cast\u00e9 je rovn\u011b\u017e \u0161\u00ed\u0159en\u00ed s pror\u016fst\u00e1n\u00edm do okoln\u00edch tk\u00e1n\u00ed, p\u0159edev\u0161\u00edm v oblasti hrudn\u00ed st\u011bny. N\u00e1dory t\u00e9to skupiny jsou typick\u00e9 pro v\u011bkovou skupinu d\u011bt\u00ed a adolescent\u016f,\u201c hovo\u0159\u00ed o onemocn\u011bn\u00ed odborn\u00fd \u010dasopis Onkologie CS.<\/p>\n\n\n\n

Devades\u00e1t procent pacient\u016f je mlad\u0161\u00edch 20 let. Progn\u00f3za je v\u0161ak nep\u0159\u00edzniv\u00e1, s maxim\u00e1ln\u011b 5let\u00fdm p\u0159e\u017eit\u00edm. Pokud nav\u00edc dojde k posti\u017een\u00ed skeletu \u010di kostn\u00ed d\u0159en\u011b, je pravd\u011bpodobnost t\u00e9to doby p\u0159e\u017eit\u00ed pouze 10%. <\/p>\n\n\n\n

Kate\u0159ina N\u011bmcov\u00e1<\/p>\n\n\n\n

Plze\u0148sk\u00fd den\u00edk<\/p>\n\n\n\n

https:\/\/plzensky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

ilustra\u010dn\u00ed foto \u201eKa\u017ed\u00e1 chv\u00edle, kdy se n\u00e1m poda\u0159\u00ed zapomenout, m\u00e1 cenu zlata,\u201c \u0159\u00edk\u00e1 tat\u00ednek sedmilet\u00e9ho Vil\u00edka. Chlapci byl toti\u017e n\u00e1hle diagnostikov\u00e1n velmi vz\u00e1cn\u00fd typ rakoviny […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":21852,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-50485","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50485","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=50485"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50485\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/21852"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=50485"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=50485"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=50485"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}