N\u011bkdej\u0161\u00ed sanit\u00e1\u0159 Fakultn\u00ed nemocnice Motol Martin Zelinka (46) se u\u017e sedm let doma star\u00e1 o man\u017eelku Evu (44), kter\u00e1 je na um\u011bl\u00e9 plicn\u00ed ventilaci. St\u00e1tu svou p\u00e9\u010d\u00ed \u0161et\u0159\u00ed statis\u00edce, nem\u00e1 za to ani korunu.<\/p>\n\n\n\n
Ev\u011b Zelinkov\u00e9 v roce 2011 diagnostikovali svalovou dystrofii, tedy ochabov\u00e1n\u00ed sval\u016f. Po operaci v roce 2017, je\u017e s diagn\u00f3zou nesouvisela, se zkou\u0161ela nap\u00edt. Kv\u016fli chorob\u011b j\u00ed v\u0161ak \u0161patn\u011b zafungoval polykac\u00ed sval, za\u010dala se d\u00e1vit a \u010d\u00e1st tekutiny j\u00ed skon\u010dila na plic\u00edch. Zd\u00e1nliv\u00e1 drobnost skon\u010dila m\u00e1lem fat\u00e1ln\u011b. Ned\u00fdchala, k v\u011bdom\u00ed ji p\u0159ivedli a\u017e za deset minut. Aby mohla d\u00fdchat, provedli j\u00ed tracheostomii. N\u00e1sledovala celkov\u00e1 sepse organismu a nev\u011bd\u011blo se, zda p\u0159e\u017eije.<\/p>\n\n\n\n
\u201eRok p\u0159ed t\u00edm mi ode\u0161el tat\u00ednek, p\u00e1r let p\u0159ed t\u00edm maminka. Prosil jsem P\u00e1na Boha, aby mi nechal aspo\u0148 man\u017eelku,\u201c vypr\u00e1v\u00ed Martin. Eva p\u0159e\u017eila, ale l\u00e9ka\u0159i mu sd\u011blili, \u017ee na um\u011bl\u00e9 plicn\u00ed ventilaci u\u017e bude muset z\u016fstat. A \u017ee v tomto stavu by se kv\u016fli svalov\u00e9 dystrofii ocitla a\u017e za patn\u00e1ct let, ale v\u0161e se t\u00edmto usp\u00ed\u0161ilo. \u201eMohli jsme je\u0161t\u011b patn\u00e1ct let \u017e\u00edt relativn\u011b norm\u00e1ln\u00ed \u017eivot, ale bohu\u017eel,\u201c konstatuje mu\u017e.<\/p>\n\n\n\n
V nemocnici si pobyla t\u0159i \u010dtvrt\u011b roku. Aby se mohl starat o man\u017eelku doma, p\u016fl roku za\u0159izoval dod\u00e1n\u00ed v\u0161ech speci\u00e1ln\u00edch p\u0159\u00edstroj\u016f a musel absolvovat zdravotnick\u00fd kurz a psychotesty. A tak\u00e9 podepsat pap\u00edry, \u017ee nese zodpov\u011bdnost za \u0159\u00e1dnou p\u00e9\u010di.<\/p>\n\n\n\n
Nem\u00e1 nikoho, kdo by ho vyst\u0159\u00eddal, na osobn\u00edho asistenta nemaj\u00ed pen\u00edze. A tak d\u011bl\u00e1 \u00fapln\u011b v\u0161echno: zdravotn\u00ed \u00fakony kolem plicn\u00ed ventilace, hygienu, va\u0159en\u00ed, krmen\u00ed a dom\u00e1cnost v\u010detn\u011b pran\u00ed a \u017eehlen\u00ed. S prac\u00ed musel skon\u010dit. Ned\u00e1vno se p\u0159est\u011bhovali z \u010cesk\u00fdch Bud\u011bjovic do Prahy, aby nemuseli doj\u00ed\u017ed\u011bt tak daleko za specializovan\u00fdmi l\u00e9ka\u0159i.<\/p>\n\n\n\n
Lo\u017enice jako JIPka<\/p>\n\n\n\n
Martin Zelinka ukazuje jejich lo\u017enici, kter\u00e1 p\u0159ipom\u00edn\u00e1 sp\u00ed\u0161e jednotku intenzivn\u00ed p\u00e9\u010de. Bere si jednor\u00e1zov\u00e9 rukavice, ods\u00e1vac\u00ed katetr propoj\u00ed s trubi\u010dkou vedouc\u00ed do pr\u016fdu\u0161nice a odsaje man\u017eelce hleny. \u201eKdy\u017e je o\u0161kliv\u00e9 po\u010das\u00ed a vlhko, ods\u00e1v\u00e1m t\u0159eba ka\u017edou p\u016flhodinu,\u201c \u0159\u00edk\u00e1. Pak zapoj\u00ed p\u0159\u00edstroj zvan\u00fd ka\u0161lac\u00ed asistent, nastav\u00ed a pom\u00e1h\u00e1 man\u017eelce odka\u0161l\u00e1vat. N\u011bkolikr\u00e1t denn\u011b zapojuje man\u017eelku na plicn\u00ed ventil\u00e1tor, jen\u017e j\u00ed pom\u00e1h\u00e1 d\u00fdchat.<\/p>\n\n\n\n
Od \u017eeny se t\u00e9m\u011b\u0159 nem\u016f\u017ee hnout. \u201eKdykoliv se m\u016f\u017ee za\u010d\u00edt dusit a j\u00e1 ji mus\u00edm ihned ods\u00e1t. Jsem tu v byt\u011b zav\u0159en\u00fd skoro jako ve v\u011bzen\u00ed. Kdy\u017e pot\u0159ebuji n\u011bco za\u0159\u00eddit, mus\u00edm vz\u00edt Evu s sebou. Kdy\u017e pro m\u011b jednou jela z\u00e1chranka, museli n\u00e1s nalo\u017eit oba,\u201c l\u00ed\u010d\u00ed.<\/p>\n\n\n\n
Poji\u0161\u0165ovna mu pr\u00fd \u0159\u00edkala, \u017ee za den takov\u00e9to intenzivn\u00ed p\u00e9\u010de o \u010dlov\u011bka na plicn\u00ed ventilaci u\u0161et\u0159\u00ed st\u00e1tu deset tis\u00edc korun denn\u011b, tedy t\u0159i sta tis\u00edc za m\u011bs\u00edc. Jen\u017ee zat\u00edmco l\u016f\u017eko v nemocnici st\u00e1t dotuje a poji\u0161\u0165ovna pobyt propl\u00e1c\u00ed, on nedostane ani korunu. Man\u017eelka bere \u010dtvrt\u00fd stupe\u0148 p\u0159\u00edsp\u011bvku na p\u00e9\u010di a invalidn\u00ed d\u016fchod.<\/p>\n\n\n\n
Spor o pen\u00edze<\/p>\n\n\n\n
\u201eJe to cel\u00e9 takov\u00e9 nedo\u0159e\u0161en\u00e9. Martin se star\u00e1 cel\u00fd den, v nemocnici se mezit\u00edm vyst\u0159\u00eddaj\u00ed dv\u011b sestry, ale plat za to nedost\u00e1v\u00e1. Kde m\u00e1 vz\u00edt pen\u00edze t\u0159eba na sv\u00e9 o\u0161acen\u00ed nebo drogerii?\u201c \u0159\u00edk\u00e1 s n\u00e1mahou Eva a zacp\u00e1v\u00e1 si trubi\u010dku vedouc\u00ed do krku, aby se j\u00ed tudy neztr\u00e1cel vzduch a bylo ji l\u00e9pe sly\u0161et. \u201eCo bychom d\u011blali, kdyby se n\u00e1m rozbila pra\u010dka nebo ledni\u010dka, netu\u0161\u00edme. Takov\u00fd obnos nem\u00e1me,\u201c dod\u00e1v\u00e1.<\/p>\n\n\n\n
A reakce ministerstva pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed? \u201eNeform\u00e1ln\u00edm pe\u010duj\u00edc\u00edm \u2013 v tomto p\u0159\u00edpad\u011b jednomu z man\u017eel\u016f \u2013 n\u00e1le\u017e\u00ed p\u0159\u00edsp\u011bvek na p\u00e9\u010di. Ur\u010dit\u011b tedy nelze souhlasit s t\u00edm, \u017ee by neform\u00e1ln\u00ed pe\u010duj\u00edc\u00ed byli zcela bez p\u0159\u00edjmu. P\u0159\u00edsp\u011bvek lze vyu\u017e\u00edt t\u0159eba i na zaji\u0161t\u011bn\u00ed soci\u00e1ln\u00edch slu\u017eeb dom\u00e1c\u00ed p\u00e9\u010de, kter\u00e9 jsou schopny neform\u00e1ln\u011b pe\u010duj\u00edc\u00edmu odleh\u010dit, aby mohl nap\u0159\u00edklad chodit do pr\u00e1ce,\u201c uvedl na dotaz Den\u00edku mluv\u010d\u00ed resortu Jakub Augusta.<\/p>\n\n\n\n
S t\u00edmto pohledem v\u0161ak Zelinka nesouhlas\u00ed. \u201eKdy\u017e \u0159ekneme, \u017ee jde o pacientku na um\u011bl\u00e9 plicn\u00ed ventilaci, nejsou lidi, kte\u0159\u00ed by to d\u011blali. Pe\u010dovatelka nesm\u00ed prov\u00e1d\u011bt zdravotnick\u00e9 \u00fakony,\u201c \u0159\u00edk\u00e1. \u201eSt\u00e1t by m\u011bl lidi motivovat, aby se starali o sv\u00e9 bl\u00edzk\u00e9 doma, a u\u0161et\u0159il tak na \u00fastavn\u00ed p\u00e9\u010di. M\u00edsto toho mus\u00edte po\u0159\u00e1d jen n\u011bkde \u0161kemrat,\u201c dod\u00e1v\u00e1.<\/p>\n\n\n\n
Mluv\u010d\u00ed Augusta rovn\u011b\u017e p\u0159ipomn\u011bl, \u017ee p\u0159\u00edsp\u011bvek na p\u00e9\u010di se od 1. \u010dervence 2024 v\u00fdrazn\u011b navy\u0161uje. Ve \u010dtvrt\u00e9m stupni p\u016fjde v p\u0159\u00edpad\u011b osoby, o n\u00ed\u017e je pe\u010dov\u00e1no doma, o 27 tis\u00edc korun nam\u00edsto sou\u010dasn\u00fdch 19 200 korun.<\/p>\n\n\n\n
Jen\u017ee i nav\u00fd\u0161en\u00e1 \u010d\u00e1stka je ur\u010dena v\u00fdhradn\u011b na p\u00e9\u010di a sta\u010d\u00ed na pokryt\u00ed jen n\u011bkolika dn\u016f asistence. Rodinn\u00ed pe\u010duj\u00edc\u00ed pro sv\u00e9 pot\u0159eby pen\u00edze nemaj\u00ed, roky proto volaj\u00ed po sv\u00e9m hmotn\u00e9m zabezpe\u010den\u00ed, jako maj\u00ed t\u0159eba p\u011bstouni. \u201eO podobn\u00e9m hmotn\u00e9m zabezpe\u010den\u00ed jako u p\u011bstoun\u016f se v tuto chv\u00edli neuva\u017euje,\u201c odpov\u011bd\u011bl Augusta na dotaz Den\u00edku.<\/p>\n\n\n\n
Pom\u00e1haj\u00ed neziskovky<\/p>\n\n\n\n
Oporu pro Zelinkovy p\u0159edstavuje agentura dom\u00e1c\u00ed zdravotn\u00ed p\u00e9\u010de Bonum Finem. Odtud maj\u00ed Evina o\u0161et\u0159uj\u00edc\u00edho l\u00e9ka\u0159e Martina Vold\u0159icha, specialisty z ARO. Pom\u00e1h\u00e1 jim tak\u00e9 neziskovka Dech \u017eivota, \u0159e\u0161\u00edc\u00ed n\u00e1vrat pacient\u016f na um\u011bl\u00e9 plicn\u00ed ventilaci dom\u016f. Man\u017eel\u00e9 si jejich slu\u017eby pochvaluj\u00ed a ukazuj\u00ed video, jak je neziskovka vzala s dal\u0161\u00edmi pacienty na Pra\u017esk\u00fd hrad, kde do\u0161lo i na setk\u00e1n\u00ed s prvn\u00ed d\u00e1mou Evou Pavlovou.<\/p>\n\n\n\n
Na dotaz, jestli Martina t\u011bch sedm let n\u00e1ro\u010dn\u00e9 p\u00e9\u010de poh\u00e1n\u00ed l\u00e1ska, p\u0159ikyvuje hlavou. \u201eKdy\u017e jsem si Evi\u010dku bral, tak jsem sl\u00edbil, \u017ee s n\u00ed z\u016fstanu v dobr\u00e9m i zl\u00e9m. Tak te\u010f pln\u00edm slib,\u201c \u0159\u00edk\u00e1 a usm\u00edv\u00e1 se na ni.<\/p>\n\n\n\n
Ned\u00e1me je do \u00fastavu<\/p>\n\n\n\n
O sv\u00e9 p\u0159\u00edbuzn\u00e9 doma pe\u010duje a\u017e milion lid\u00ed. Zhruba 200 tis\u00edc \u010cech\u016f ale kv\u016fli p\u00e9\u010di o sv\u00e9 bl\u00edzk\u00e9 nezvl\u00e1d\u00e1 pracovat na pln\u00fd \u00favazek, pot\u00fdk\u00e1 se s nedostatkem pen\u011bz, mimo\u0159\u00e1dn\u00fdm stresem, spole\u010denskou izolac\u00ed a leckdy i rozpadem partnersk\u00fdch vztah\u016f. P\u0159esto se sna\u017e\u00ed v\u0161e zvl\u00e1dnout, aby nemuseli d\u00e1t t\u011b\u017ece nemocn\u00e9ho bl\u00edzk\u00e9ho do \u00fastavn\u00ed p\u00e9\u010de. T\u00edm st\u00e1tu \u0161et\u0159\u00ed spoustu pen\u011bz.<\/p>\n\n\n\n
Jejich osudy se zab\u00fdv\u00e1 nov\u00fd seri\u00e1l Den\u00edku.cz a organizace Neviditeln\u00ed Ned\u00e1me je do \u00fastavu.<\/p>\n\n\n\n
Pot\u00fdk\u00e1te se tak\u00e9 s p\u00e9\u010d\u00ed o sv\u00e9 nemohouc\u00ed bl\u00edzk\u00e9? Napi\u0161te n\u00e1m sv\u016fj p\u0159\u00edb\u011bh na email zuzana.hronova@denik.cz.<\/p>\n\n\n\n
Zuzana Hronov\u00e1<\/p>\n\n\n\n
Olomouck\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/olomoucky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" N\u011bkdej\u0161\u00ed sanit\u00e1\u0159 Fakultn\u00ed nemocnice Motol Martin Zelinka (46) se u\u017e sedm let doma star\u00e1 o man\u017eelku Evu (44), kter\u00e1 je na um\u011bl\u00e9 plicn\u00ed ventilaci. St\u00e1tu […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14577,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-50489","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50489","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=50489"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50489\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14577"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=50489"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=50489"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=50489"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}