Radio\u017eurn\u00e1l\u00a0<\/p>\n\n\n\n
Nejsp\u00ed\u0161 v\u0161ichni m\u00e1me ve sv\u00e9m \u0161ir\u0161\u00edm okol\u00ed n\u011bkoho, kdo pe\u010duje o d\u00edt\u011b s v\u00e1\u017enou diagn\u00f3zou, a\u0165 u\u017e jako rodi\u010d nebo odborn\u00edk. Tak t\u011bmito v\u011btami dnes Nadace rodiny Vl\u010dkov\u00fdch oznamuje spu\u0161t\u011bn\u00ed prvn\u00ed ucelen\u00e9 online datab\u00e1ze slu\u017eeb pro d\u011bti a rodiny s d\u011btmi s onemocn\u011bn\u00edmi ohro\u017euj\u00edc\u00edmi \u017eivot, tzv. rozcestn\u00edk nab\u00edz\u00ed, nab\u00edz\u00ed nejr\u016fzn\u011bj\u0161\u00ed typy slu\u017eeb zdravotn\u00edch, soci\u00e1ln\u00edch nebo psychoterapeutick\u00fdch a psychologick\u00fdch. Na\u0161\u00edm hostem je programov\u00e1 mana\u017eerka Nadace rodiny Vl\u010dkov\u00fdch Katar\u00edna Carda, dobr\u00fd den.
M\u016f\u017eete p\u0159ibl\u00ed\u017eit, na jak\u00e9m principu je ta datab\u00e1ze zalo\u017eena a jak obs\u00e1hl\u00e1 v tuto chv\u00edli je?
Katarina Carda, programov\u00e1 mana\u017eerka
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Ur\u010dit\u011b, je to tedy datab\u00e1ze ov\u011b\u0159en\u00fdch slu\u017eeb pro pe\u010duj\u00edc\u00ed o v\u00e1\u017en\u011b nemocn\u00e9 d\u011bti, te\u010f jsme ji spustili a moment\u00e1ln\u011b obsahuje kolem 1000 za\u0159\u00edzen\u00ed a organizac\u00ed. Mapovali jsme zhruba 50 typ\u016f slu\u017eeb a z r\u016fzn\u00fdch rezort\u016f a v\u011b\u0159\u00edme, \u017ee se n\u00e1m d\u00e1le poda\u0159\u00ed tuto datab\u00e1zi roz\u0161i\u0159ovat a vlastn\u011b r\u00e1di bychom a ten c\u00edl, pro\u010d jsme tuto datab\u00e1zi tvo\u0159ili, byl, aby v ka\u017ed\u00e9 rodin\u011b, zvl\u00e1\u0161\u0165 nemocn\u00fdm d\u00edt\u011btem se dostalo stejn\u00e9 nab\u00eddky slu\u017eeb a pomoci, nehled\u011b na to, kde v \u010cesk\u00e9 republice \u017eije.
moder\u00e1tor
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Jak\u00fdm rodin\u00e1m a d\u011btem je ten onlinov\u00fd rozcestn\u00edk ur\u010den, m\u016f\u017eete uv\u00e9st p\u0159\u00edklady v\u00e1\u017en\u00fdch diagn\u00f3z, pro kter\u00e9 ten rozcestn\u00edk bude u\u017eite\u010dn\u00fd?
Katarina Carda, programov\u00e1 mana\u017eerka
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Vlastn\u011b ten rozcestn\u00edk je ur\u010den\u00fd jak samotn\u00fdm rodin\u00e1m, kter\u00e9 maj\u00ed d\u00edt\u011b za \u017eivot ohro\u017euj\u00edc\u00ed nebo \u017eivot limituj\u00edc\u00edm onemocn\u011bn\u00edm, co\u017e je opravdu stra\u0161n\u011b \u0161irok\u00e1 \u0161k\u00e1la onemocn\u011bn\u00ed, jsou to v\u011bt\u0161inou onemocn\u011bn\u00ed velmi vz\u00e1cn\u00e1 a vlastn\u011b jsou to \u010dasto onemocn\u011bn\u00ed, kter\u00e1 jsou velmi specifick\u00e1 a ty d\u011bti maj\u00ed komplexn\u00ed pot\u0159eby a ta datab\u00e1ze nen\u00ed tedy ur\u010den\u00e1 jenom p\u0159\u00edmo pro rodiny, ale je ur\u010den\u00e1 tak\u00e9 pro odborn\u00edky, kte\u0159\u00ed o n\u011b pe\u010duj\u00ed. My jsme vlastn\u011b prvotn\u011b a vym\u00fd\u0161leli datab\u00e1zi, kter\u00e1 bude n\u00e1strojem pro v\u0161echny, kte\u0159\u00ed pe\u010duj\u00ed o rodiny, tak\u017ee ta c\u00edlov\u00e1 skupina u n\u00e1s je nejen rodiny, ale tak\u00e9 odborn\u00edci.
moder\u00e1tor
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My u\u017e jsme uv\u00e1d\u011bli p\u0159\u00edklady t\u011bch zdravotn\u00edch nebo soci\u00e1ln\u00edch slu\u017eeb, kter\u00e9 jsou v t\u00e9 datab\u00e1zi k dispozici. M\u016f\u017eete to konkretizovat, co v\u0161echno tam tedy lid\u00e9 najdou a nakolik dostupn\u00e9 t\u0159eba i region\u00e1ln\u011b tyto slu\u017eby jsou?
Katarina Carda, programov\u00e1 mana\u017eerka
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To je velice t\u011b\u017ek\u00e1 ot\u00e1zka. R\u00e1da bych v\u00e1m nen\u00ed odpov\u011bd\u011bla. My se vlastn\u011b sna\u017e\u00edme n\u011bkde za\u010d\u00edt, proto\u017ee je to prvn\u00ed pokus o to sestavit takhle komplexn\u00ed \u0159e\u0161en\u00ed, takhle komplexn\u00ed datab\u00e1zi a vlastn\u011b dosud existuje spousta registr\u016f, kter\u00e9 nejsou propojen\u00e9, vlastn\u011b ka\u017ed\u00fd rezort m\u00e1 n\u011bjak\u00fd sv\u016fj vlastn\u00ed registr, jsou vlastn\u00ed datab\u00e1zi, je tady spousta organizac\u00ed, kter\u00e9 nab\u00edzej\u00ed r\u016fzn\u00e9 slu\u017eby a informace a my vlastn\u011b jsme se sna\u017eili zmapovat to, co v\u0161echno rodiny, zvl\u00e1\u0161t\u011b nemocn\u00fdmi d\u011btmi pot\u0159ebuj\u00ed. A vlastn\u011b moment\u00e1ln\u011b je tam asi 55 typ\u016f slu\u017eeb, jsou to slu\u017eby zdravotn\u00ed, psychologick\u00e9, psychoterapeutick\u00e9, vzd\u011bl\u00e1vac\u00ed, r\u016fzn\u00e9 \u0161koly, asistence, volno\u010dasov\u00e9 krou\u017eky, jsou tam nap\u0159\u00edklad tak\u00e9 v\u00fdrobci pom\u016fcek pom\u016fcek, p\u016fj\u010dovn\u00edch pom\u016fcek, poh\u0159ebn\u00ed slu\u017eby, r\u016fzn\u00e9 nadace a finan\u010dn\u00ed pomoc, pacientsk\u00e9 organizace a mnoho opravdu dal\u0161\u00edch je tam, jak jsem \u0159\u00edkala, v\u00edc jak 50 typ\u016f.
moder\u00e1tor
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P\u0159i\u010dem\u017e kdy\u017e jsem se d\u00edval na ten rozcestn\u00edk, tak jeho pou\u017e\u00edv\u00e1n\u00ed je vlastn\u011b intuitivn\u00ed, \u010dlov\u011bk si m\u016f\u017ee vybrat filtrov\u00e1n\u00ed nebo vyhled\u00e1v\u00e1n\u00ed podle typu slu\u017eby nebo podle diagn\u00f3zy nebo podle kraje nebo podle v\u011bku d\u00edt\u011bte nebo podle v\u0161ech t\u011bchto parametr\u016f. P\u0159edpokl\u00e1d\u00e1m, \u017ee jste se sna\u017eili to ud\u011blat pr\u00e1v\u011b tak, aby to bylo co nejjednodu\u0161\u0161\u00ed pro v\u0161echny ty, kdo to budou pou\u017e\u00edvat?
Katarina Carda, programov\u00e1 mana\u017eerka
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P\u0159esn\u011b tak, jak jsem \u0159\u00edkala, existuje tady spousta r\u016fzn\u00fdch datab\u00e1z\u00ed a v\u011bt\u0161inou je velmi, velmi slo\u017eit\u00e9 se v nich orientovat a vlastn\u011b naj\u00edt ty informace a my jsme se sna\u017eili pr\u00e1v\u011b o to, aby ta na\u0161e datab\u00e1ze byla intuitivn\u00ed, odpov\u00eddala tomu, jak se b\u011b\u017en\u011b chovaj\u00ed lid\u00e9 na mobiln\u00edm za\u0159\u00edzen\u00ed, tak\u017ee my tam m\u00e1me v\u0161echno optimalizovan\u00e9 na to, aby ta datab\u00e1ze byla p\u0159\u00edstupn\u00e1 i v ter\u00e9nu, proto\u017ee \u010dasto je pomoc pr\u00e1v\u011b poskytovan\u00e1 v ter\u00e9nu, tak\u017ee je to v\u0161echno p\u0159ehledn\u00e9, velmi jednoduch\u00e9, vlastn\u011b funguje to tak jako vyhled\u00e1v\u00e1n\u00ed nap\u0159\u00edklad na eshopech a dal\u0161\u00edch datab\u00e1z\u00edch, kter\u00e9 lid\u00e9 b\u011b\u017en\u011b v dne\u0161n\u00ed dob\u011b pou\u017e\u00edvaj\u00ed.
moder\u00e1tor
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Vy jste u\u017e mluvila o tom, \u017ee nav\u00edc chcete ten rozcestn\u00edk roz\u0161i\u0159ovat p\u0159\u00edmo na tituln\u00ed stran\u011b, tak je mo\u017enost, pokud by n\u011bkdo cht\u011bl svoji slu\u017ebu p\u0159idat do toho registru, aby se v\u00e1m ozval, abyste ji mohli p\u0159idat, tak\u017ee asi i to bychom m\u011bli doplnit. Katarina Carda, programov\u00e1 mana\u017eerka Nadace rodiny Vl\u010dkov\u00fdch, byla na\u0161\u00edm hostem. D\u00edky za rozhovor, na sly\u0161enou.
<\/p>\n","protected":false},"excerpt":{"rendered":"
Radio\u017eurn\u00e1l\u00a0 Nejsp\u00ed\u0161 v\u0161ichni m\u00e1me ve sv\u00e9m \u0161ir\u0161\u00edm okol\u00ed n\u011bkoho, kdo pe\u010duje o d\u00edt\u011b s v\u00e1\u017enou diagn\u00f3zou, a\u0165 u\u017e jako rodi\u010d nebo odborn\u00edk. Tak t\u011bmito v\u011btami […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":50587,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[12],"tags":[],"class_list":["post-50566","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rozhovory"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50566","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=50566"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50566\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/50587"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=50566"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=50566"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=50566"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}