{"id":50627,"date":"2024-07-15T11:38:53","date_gmt":"2024-07-15T09:38:53","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=50627"},"modified":"2024-07-15T11:46:13","modified_gmt":"2024-07-15T09:46:13","slug":"navzdory-vzacne-nemoci-se-daniel-pokusil-zdolat-mont-blanc","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=50627","title":{"rendered":"Navzdory vz\u00e1cn\u00e9 nemoci se Daniel pokusil zdolat Mont Blanc"},"content":{"rendered":"\n

Na nejvy\u0161\u0161\u00ed horu Alp stoupal jako prvn\u00ed \u010desk\u00fd hemofilik<\/em><\/p>\n\n\n\n

P\u0159esto\u017ee trp\u00ed t\u011b\u017ekou poruchou sr\u00e1\u017elivosti krve, sna\u017eil se zdolat horu, na kterou by si netroufl leckter\u00fd zdrav\u00fd \u010dlov\u011bk. T\u0159iadvacetilet\u00fd Daniel se o v\u00fdstup na Mont Blanc (4 807,81 m n. m.) pokusil spole\u010dn\u011b s dal\u0161\u00edmi osmi hemofiliky z cel\u00e9ho sv\u011bta. C\u00edlem expedice byla podpora mezin\u00e1rodn\u00edho projektu <\/strong>Save One Life<\/strong><\/a>, kter\u00fd pom\u00e1h\u00e1 pacient\u016fm se \u0161patnou sr\u00e1\u017elivost\u00ed krve v\u202fm\u00e9n\u011b rozvinut\u00fdch zem\u00edch sv\u011bta. S hemofili\u00ed bojuje Daniel cel\u00fd \u017eivot.<\/strong><\/p>\n\n\n\n

\u201eV\u00fdstup na \u00fapln\u00fd vrchol se n\u00e1m sice kv\u016fli siln\u00e9mu v\u011btru nepoda\u0159il, byl to ale skv\u011bl\u00fd z\u00e1\u017eitek. Vybrali m\u011b jako z\u00e1stupce \u010cesk\u00e9ho svazu hemofilik\u016f, jeho\u017e \u010dlenem jsem u\u017e del\u0161\u00ed dobu. Byla to pro m\u011b obrovsk\u00e1 v\u00fdzva, a i kdy\u017e hory nejsou m\u016fj nejv\u011bt\u0161\u00ed kon\u00ed\u010dek, nemohl jsem takovou nab\u00eddku odm\u00edtnout,\u201c<\/em> popisuje Daniel. Expedici na Mont Blanc vedl americk\u00fd horolezec Chris Bombardier, jen\u017e poruchou sr\u00e1\u017elivosti krve tak\u00e9 s\u00e1m trp\u00ed.<\/p>\n\n\n\n

\u201eChris \u0159\u00edd\u00ed organizaci Save One Life, kter\u00e1 zaji\u0161\u0165uje l\u00e9\u010dbu hemofilie v zem\u00edch, kde nen\u00ed b\u011b\u017en\u011b dostupn\u00e1,\u201c <\/em>vysv\u011btluje Daniel. Ka\u017ed\u00fd hemofilik, kter\u00fd se v\u00fdstupu z\u00fa\u010dastnil, proto musel vybrat 4 000 eur. Pen\u00edze od v\u0161ech \u010dlen\u016f expedice poputuj\u00ed na \u00fahradu terapie nemocn\u00fdch v m\u00e9n\u011b rozvinut\u00fdch st\u00e1tech sv\u011bta. \u201eKa\u017ed\u00fd nem\u00e1 takov\u00e9 \u0161t\u011bst\u00ed jako j\u00e1, \u017ee \u017eije v \u010cesk\u00e9 republice, kde je k dispozici modern\u00ed l\u00e9\u010dba. Bez n\u00ed bych nav\u00edc takov\u00fd v\u00fdstup v\u016fbec nemohl absolvovat,\u201c<\/em> \u0159\u00edk\u00e1 Daniel.<\/p>\n\n\n\n

S ostatn\u00edmi \u010dleny v\u00fdpravy byl Daniel, kter\u00fd v sou\u010dasn\u00e9 dob\u011b studuje matematiku na Univerzit\u011b Karlov\u011b v Praze, v kontaktu od \u00fanora leto\u0161n\u00edho roku. Osobn\u011b se poprv\u00e9 se\u0161li necel\u00fd t\u00fdden p\u0159ed akc\u00ed. \u201eJe skv\u011bl\u00e9, \u017ee se do projektu zapojili hemofilici z tolika zem\u00ed, nap\u0159\u00edklad z Francie, Anglie, It\u00e1lie, N\u011bmecka nebo Slovinska. V r\u00e1mci aklimatizace jsme spole\u010dn\u011b absolvovali n\u011bkolik v\u00fdstup\u016f v okol\u00ed hory Mont Blanc. Trasy se velmi podobaly t\u00e9 hlavn\u00ed, kter\u00e1 byla p\u0159ed n\u00e1mi,\u201c <\/em>p\u0159ibli\u017euje Daniel. <\/p>\n\n\n\n

B\u011bhem v\u00fdpravy na nejvy\u0161\u0161\u00ed vrchol Alp, kter\u00e1 trvala dva dny, ale \u00fa\u010dastn\u00edk\u016fm expedice nep\u0159\u00e1lo po\u010das\u00ed. V\u00fdstup na \u00fapln\u00fd vrchol hory jim p\u0159ekazil siln\u00fd v\u00edtr. \u201eJeden z \u010dlen\u016f na\u0161\u00ed v\u00fdpravy je z\u00e1rove\u0148 hematologem, a po ruce jsme tak celou dobu m\u011bli i l\u00e9ka\u0159e. Byli jsme opravdu bl\u00edzko vrcholu a fyzicky jsme je\u0161t\u011b mohli. V\u00edtr byl ale tak velk\u00fd, \u017ee jsme nakonec z bezpe\u010dnostn\u00edch d\u016fvod\u016f skon\u010dili ve v\u00fd\u0161ce 4 400 m n. m.,\u201c<\/em> dopl\u0148uje Daniel.<\/p>\n\n\n\n

\u017de trp\u00ed hemofili\u00ed, zjistili jeho rodi\u010de v dob\u011b, kdy se po narozen\u00ed za\u010dal v\u00edc h\u00fdbat v post\u00fdlce a nar\u00e1\u017eet do jej\u00edch bok\u016f. Na jeho t\u011ble se objevovalo st\u00e1le v\u00edce mod\u0159in. \u201eRodi\u010de se proto obr\u00e1tili na l\u00e9ka\u0159e, kte\u0159\u00ed zjistili, \u017ee m\u00e1m hemofilii \u2013 genetick\u00e9 onemocn\u011bn\u00ed projevuj\u00edc\u00ed se poruchou sr\u00e1\u017elivosti krve,\u201c <\/em>popisuje Daniel. L\u00e9ka\u0159i mu okam\u017eit\u011b nasadili tzv. profylaktickou l\u00e9\u010dbu, p\u0159i n\u00ed\u017e se pravideln\u011b nitro\u017eiln\u011b aplikuje chyb\u011bj\u00edc\u00ed koncentr\u00e1t sr\u00e1\u017eec\u00edho faktoru p\u0159\u00edmo do krve.<\/p>\n\n\n\n

\u201eTento druh l\u00e9\u010dby m\u011b chr\u00e1n\u00ed p\u0159ed krv\u00e1cen\u00edm a komplikacemi, kter\u00e9 jsou s n\u00edm spojen\u00e9 a mohou zp\u016fsobit i trval\u00e9 po\u0161kozen\u00ed kloub\u016f,\u201c<\/em> vysv\u011btluje student matematiky. D\u00edky opatrnosti a pravideln\u00e9 terapii se da\u0159\u00ed dr\u017eet Danielovu nemoc pod kontrolou. N\u011bkter\u00fdm aktivit\u00e1m by se ale m\u011bl vyh\u00fdbat, zejm\u00e9na v d\u011btstv\u00ed mu l\u00e9ka\u0159i nedoporu\u010dovali nap\u0159\u00edklad ly\u017eov\u00e1n\u00ed a bruslen\u00ed. I minim\u00e1ln\u00ed \u00faraz toti\u017e u n\u011bj m\u016f\u017ee vyvolat nezvykle dlouh\u00e9 krv\u00e1cen\u00ed. Velmi rizikov\u00e1 jsou p\u0159edev\u0161\u00edm krv\u00e1cen\u00ed do \u017eivotn\u011b d\u016fle\u017eit\u00fdch org\u00e1n\u016f \u2013 mozku nebo za\u017e\u00edvac\u00edho traktu \u2013<\/em> a tak\u00e9 krv\u00e1cen\u00ed do<\/em> sval\u016f. \u201eSportovat se ale s hemofili\u00ed d\u00e1. R\u00e1d plavu a jezd\u00edm na kole,\u201c<\/em> popisuje Daniel, kter\u00fd v\u00fdstupy s expedic\u00ed zvl\u00e1dl nejenom d\u00edky modern\u00ed l\u00e9\u010db\u011b, ale pr\u00e1v\u011b i tomu, \u017ee je zvykl\u00fd sportovat. Svaly toti\u017e chr\u00e1n\u00ed jeho klouby a t\u011blo p\u0159ed zran\u011bn\u00edm a potenci\u00e1ln\u00edm krv\u00e1cen\u00edm.<\/p>\n\n\n\n

\u201eTr\u00e9nink jsem p\u0159ed v\u00fdstupem je\u0161t\u011b zn\u00e1sobil, \u010dast\u011bji jsem b\u011bhal, plaval a chodil do posilovny,\u201c<\/em> p\u0159ibli\u017euje Daniel. Spole\u010dn\u011b s\u00a0ostatn\u00edmi hemofiliky z\u00a0cel\u00e9ho sv\u011bta tak dok\u00e1zal, \u017ee pokud se k\u00a0t\u00e9to vz\u00e1cn\u00e9 nemoci p\u0159istupuje zodpov\u011bdn\u011b, d\u00e1 se s n\u00ed i\u00a0plnohodnotn\u011b \u017e\u00edt. \u201eHemofilii beru jako ned\u00edlnou sou\u010d\u00e1st sebe sama. Nau\u010dila m\u011b v\u00e1\u017eit si v\u0161eho, co m\u00e1m. \u00dapln\u011b stejn\u011b k\u00a0n\u00ed p\u0159istupuj\u00ed i v\u0161ichni ostatn\u00ed, kte\u0159\u00ed se se mnou na Mont Blanc vydali,\u201c<\/em> \u0159\u00edk\u00e1. \u201eV\u011b\u0159\u00edm, \u017ee se n\u00e1m poda\u0159ilo inspirovat mlad\u0161\u00ed generaci hemofilik\u016f. I oni si mohou plnit sv\u00e9 sny,\u201c <\/em>uzav\u00edr\u00e1 Daniel.<\/p>\n\n\n\n

\"\"
Daniel Mont Blanc<\/figcaption><\/figure>\n","protected":false},"excerpt":{"rendered":"

Na nejvy\u0161\u0161\u00ed horu Alp stoupal jako prvn\u00ed \u010desk\u00fd hemofilik P\u0159esto\u017ee trp\u00ed t\u011b\u017ekou poruchou sr\u00e1\u017elivosti krve, sna\u017eil se zdolat horu, na kterou by si netroufl leckter\u00fd […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":50629,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-50627","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50627","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=50627"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50627\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/50629"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=50627"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=50627"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=50627"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}