Krist\u00fdna Hor\u00e1kov\u00e1 si dr\u017e\u00ed necht\u011bn\u00e9 sv\u011btov\u00e9 prvenstv\u00ed. Je jedinou \u017eij\u00edc\u00ed osobou na sv\u011bt\u011b, kter\u00e1 ji\u017e dvacet dva let odol\u00e1v\u00e1 l\u00e9\u010db\u011b onemocn\u011bn\u00ed, kter\u00e9 u jin\u00fdch pacient\u016f l\u00e9\u010dit lze. Krist\u00fdna nemoc\u00ed trp\u00ed od sv\u00fdch p\u011bti let. Chronick\u00e1 osteomyelitida ji prakticky p\u0159ipravila o polovinu obli\u010deje. T\u00fdna u\u017e prod\u011blala osmn\u00e1ct operac\u00ed, dal\u0161\u00ed ji \u010dek\u00e1 v lednu roku 2025. Jak ale dopadne, nikdo nev\u00ed. Je toti\u017e prvn\u00ed na sv\u011bt\u011b, kdo ji podstoup\u00ed. Oporou v t\u011b\u017ek\u00fdch chv\u00edl\u00edch jsou j\u00ed i tane\u010dn\u00edci Jan Onder a Nat\u00e1lie Ot\u00e1halov\u00e1, zn\u00e1m\u00ed nap\u0159\u00edklad ze sout\u011b\u017ee StarDance.<\/p>\n\n\n\n
\u201eKa\u017ed\u00fd za\u017eil bolest. Velkou \u010di malou. Zn\u00e1m bolest, u kter\u00e9 si za chvilku ani nev\u0161imnete, \u017ee byla. A pak je bolest, je\u017e m\u00e1 ur\u010dit\u00fd rytmus, kter\u00fd c\u00edt\u00edte a\u017e v kone\u010dc\u00edch prst\u016f. Dok\u00e1\u017ee v\u00e1s pohltit stejn\u011b jako hudba. Proch\u00e1z\u00ed cel\u00fdm t\u011blem a va\u0161e srdce bije stejn\u011b jako ona. Je asi tis\u00edc r\u016fzn\u00fdch druh\u016f bolesti a v\u0161echny jsou nanic. Zdaj\u00ed se nekone\u010dn\u00e9, ale v\u011b\u0159\u00edm, \u017ee ka\u017ed\u00e1 jednou p\u0159ejde,\u201c popisuje sv\u00e9 pocity sedmadvacetil\u00e1 Krist\u00fdna Hor\u00e1kov\u00e1. \u0158\u00edk\u00e1 si T\u00fdna a od d\u011btstv\u00ed se pere s chronickou osteomyelitidou. Zjednodu\u0161en\u011b \u0159e\u010deno se jedn\u00e1 o nep\u0159etr\u017eit\u00fd bakteri\u00e1ln\u00ed z\u00e1n\u011bt kostn\u00ed d\u0159en\u011b. V p\u0159\u00edpad\u011b T\u00fdny je lokalizov\u00e1n v obli\u010deji a m\u016f\u017ee skon\u010dit i smrt\u00ed.<\/p>\n\n\n\n
Kv\u016fli onemocn\u011bn\u00ed u\u017e mlad\u00e1 \u017eena podstoupila n\u011bkolik operac\u00ed. \u010c\u00e1st obli\u010deje m\u00e1 nahrazenou experiment\u00e1ln\u00edm implant\u00e1tem. Nikdo v\u0161ak nev\u00ed, jak se bude nemoc vyv\u00edjet d\u00e1l.<\/p>\n\n\n\n
T\u00fdna je jedin\u00e1 osoba na sv\u011bt\u011b, kter\u00e1 se s touto diagn\u00f3zou dlouhodob\u011b l\u00e9\u010d\u00ed a \u017e\u00e1dn\u00e9 zn\u00e1m\u00e9 postupy na ni nezab\u00edraj\u00ed. A to i p\u0159esto, \u017ee u jin\u00fdch pacient\u016f b\u00fdv\u00e1 l\u00e9\u010dba \u00fasp\u011b\u0161n\u00e1.<\/p>\n\n\n\n
Aby mohla pokra\u010dovat s hled\u00e1n\u00edm vhodn\u00e9 l\u00e9\u010dby, pot\u0159ebuje vybrat minim\u00e1ln\u011b 250 tis\u00edc korun. Pros\u00ed za ni i tane\u010dn\u00edci Jan Onder a Nat\u00e1lie Ot\u00e1halov\u00e1, kter\u00e9 si \u010de\u0161t\u00ed div\u00e1ci mohou pamatovat z popul\u00e1rn\u00ed sout\u011b\u017ee StarDance.<\/p>\n\n\n\n
Nemoc j\u00ed deformuje obli\u010dej<\/p>\n\n\n\n
T\u00fdna trp\u00ed chronickou osteomyelitidou od sv\u00fdch p\u011bti let. M\u00e1 za sebou osmn\u00e1ct velk\u00fdch operac\u00ed, dv\u011b klinick\u00e9 smrti a k\u00f3ma. Za celou dobu zat\u00edm ne\u00fasp\u011b\u0161n\u00e9 l\u00e9\u010dby za\u017eila obrovsk\u00e9 mno\u017estv\u00ed bolesti, a to jak fyzick\u00e9, tak psychick\u00e9. Trvalo dokonce n\u011bkolik let, ne\u017e j\u00ed l\u00e9ka\u0159i nemoc v\u016fbec diagnostikovali. Nejprve si pr\u00fd mysleli, \u017ee se jedn\u00e1 o rakovinu. I proto se u n\u00ed mohla osteomyelitida rozvinout v takov\u00e9 m\u00ed\u0159e.<\/p>\n\n\n\n
\u201ePrakticky nec\u00edt\u00edm p\u016flku tv\u00e1\u0159e. M\u00e1m omezenou hybnost obli\u010deje, otoky, absolutn\u011b zni\u010den\u00e9 zuby. Nemoc mi po\u0161kodila oko, ucho, chyb\u00ed mi skoro polovina spodn\u00ed \u010delisti. Byla mi transplantov\u00e1na \u010d\u00e1st horn\u00ed \u010delisti i cel\u00e1 l\u00edcn\u00ed kost, podo\u010dnicov\u00e1 oblast a sp\u00e1nkov\u00e1 kost,\u201c jmenuje T\u00fdna probl\u00e9my, kter\u00e9 kv\u016fli nemoci m\u00e1.<\/p>\n\n\n\n
Odebran\u00e9 \u010d\u00e1sti obli\u010deje j\u00ed byly nahrazeny do\u010dasn\u00fdm chirurgick\u00fdm cementem. Implant\u00e1t, kter\u00fd T\u00fdna v obli\u010deji m\u00e1, je v\u0161ak pouze do\u010dasn\u00fd a vysoce experiment\u00e1ln\u00ed. Dal\u0161\u00ed operace ji \u010dek\u00e1 v lednu roku 2025. B\u011bhem n\u00ed budou l\u00e9ka\u0159i T\u00fdn\u011b nahrazovat v\u0161echny odebran\u00e9 \u010d\u00e1sti lebky a obli\u010deje titanov\u00fdmi implant\u00e1ty a kostmi i svaly z jej\u00ed p\u00e1nve.<\/p>\n\n\n\n
Jedin\u00e1 na sv\u011bt\u011b, kter\u00e1 odol\u00e1v\u00e1 l\u00e9\u010db\u011b<\/p>\n\n\n\n
V T\u00fdnin\u011b p\u0159\u00edpad\u011b neexistuje nikdo, s k\u00fdm by mohl b\u00fdt pr\u016fb\u011bh jej\u00ed nemoci porovn\u00e1v\u00e1n. Podle jej\u00edho l\u00e9ka\u0159sk\u00e9ho t\u00fdmu toti\u017e nikde na sv\u011bt\u011b neexistuje druh\u00fd \u010dlov\u011bk, kter\u00fd by se s osteomyelitidou l\u00e9\u010dil tak dlouho a \u017e\u00e1dn\u00e1 zn\u00e1m\u00e1 l\u00e9\u010dba by na nemoc nezab\u00edrala.<\/p>\n\n\n\n
\u201eV\u017edy, kdy\u017e se d\u011bl\u00e1 n\u011bjak\u00e1 studie, bere se t\u0159eba sto lid\u00ed. J\u00e1 ale k sob\u011b nem\u00e1m dal\u0161\u00edch 99 pacient\u016f. Ch\u00e1pu, \u017ee l\u00e9ka\u0159i nemohou l\u00e9\u010dit \u00fasp\u011b\u0161n\u011b n\u011bco, co neznaj\u00ed a co mohou zkoumat jen na m\u011b,\u201c \u0159\u00edk\u00e1 s pochopen\u00edm T\u00fdna. I p\u0159esto si pr\u00fd v\u0161ak uv\u011bdomuje, jak daleko se medic\u00edna za dobu jej\u00edho onemocn\u011bn\u00ed posunula.<\/p>\n\n\n\n
\u201ePostup m\u00e9 nemoci i reakce na l\u00e9\u010dbu jsou \u00fapln\u011b jin\u00e9, ne\u017e bylo doposud zaznamen\u00e1no,\u201c dod\u00e1v\u00e1 T\u00fdna s t\u00edm, \u017ee jednu dobu svou nemoc sn\u00e1\u0161ela dokonce tak \u0161patn\u011b, \u017ee p\u0159em\u00fd\u0161lela i nad sebevra\u017edou.<\/p>\n\n\n\n
\u201eCht\u011bla jsem um\u0159\u00edt a ut\u00e9ct z tohohle sv\u011bta. Ze \u017eivota. Strach z toho, \u017ee nev\u00edm, co je na druh\u00e9 stran\u011b, byl ale v\u011bt\u0161\u00ed ne\u017e touha to zjistit. A to mi zachr\u00e1nilo \u017eivot,\u201c \u0159\u00edk\u00e1 T\u00fdna. Nakonec v\u0161ak i p\u0159es nelehkou \u017eivotn\u00ed situaci p\u0159evl\u00e1dl optimistick\u00fd p\u0159\u00edstup k \u017eivotu.<\/p>\n\n\n\n
Sv\u016fj l\u00e9ka\u0159sk\u00fd t\u00fdm chv\u00e1l\u00ed<\/p>\n\n\n\n
Sv\u016fj zdravotn\u00ed stav i aktu\u00e1ln\u00ed pocity T\u00fdna pravideln\u011b sd\u00edl\u00ed na soci\u00e1ln\u00edch s\u00edt\u00edch, kde se sv\u011b\u0159uje se v\u0161\u00edm, \u010d\u00edm si pr\u00e1v\u011b proch\u00e1z\u00ed. Jednou by o sv\u00e9 nemoci r\u00e1da nato\u010dila i podcast nebo report\u00e1\u017e pro televizi.<\/p>\n\n\n\n
Ob\u010das si lid\u00e9 u jej\u00edch p\u0159\u00edsp\u011bvk\u016f st\u011b\u017euj\u00ed na nedostate\u010dnou p\u00e9\u010di l\u00e9ka\u0159\u016f, kte\u0159\u00ed podle nich mohli ud\u011blat pro T\u00fdnu v\u00edce. Sv\u016fj aktu\u00e1ln\u00ed l\u00e9ka\u0159sk\u00fd t\u00fdm v\u0161ak ona z\u00e1sadn\u011b br\u00e1n\u00ed.<\/p>\n\n\n\n
\u201eMoje nemoc je v dne\u0161n\u00ed dob\u011b sama o sob\u011b celkem vz\u00e1cn\u00e1. Kdy\u017e jsem ale p\u0159ed dvaadvaceti lety onemocn\u011bla, tak tady nebyla v\u016fbec. Nav\u00edc v \u010delisti, kde to m\u00e1m j\u00e1, se osteomyelitida objevovala minim\u00e1ln\u011b. J\u00e1 byla tenkr\u00e1t jedin\u00fd pacient v d\u011btsk\u00e9m v\u011bku. Proto bych cht\u011bla zd\u016fraznit, \u017ee to nebylo o tom, \u017ee by dokto\u0159i necht\u011bli nic d\u011blat, ale oni zkr\u00e1tka nev\u011bd\u011bli co,\u201c postavila se za sv\u00e9 doktory T\u00fdna.<\/p>\n\n\n\n
Je si pr\u00fd jist\u00e1, \u017ee v danou chv\u00edli l\u00e9ka\u0159i ud\u011blali v\u0161e, co bylo v jejich mo\u017enostech. I kdy\u017e uzn\u00e1v\u00e1, \u017ee ob\u010das c\u00edtila, \u017ee mysl\u00ed sp\u00ed\u0161 na to, co jejich v\u00fdzkum p\u0159inese do budoucna, ne\u017e jak pomoci p\u0159\u00edmo j\u00ed.<\/p>\n\n\n\n
\u201eKdy\u017e m\u00e1te pocit, \u017ee l\u00e9ka\u0159i d\u011blaj\u00ed m\u00e1lo, hledejte dal\u0161\u00ed n\u00e1zory. J\u00e1 jsem to ud\u011blala a\u017e pozd\u011b, a i proto jsem se dostala do takov\u00e9 f\u00e1ze, ve kter\u00e9 jsem dnes,\u201c rad\u00ed T\u00fdna p\u0159edev\u0161\u00edm rodi\u010d\u016fm mal\u00fdch d\u011bt\u00ed, kter\u00e9 nejsou schopn\u00e9 se samy za sebe postavit.<\/p>\n\n\n\n
V jej\u00edm p\u0159\u00edpad\u011b to v\u0161ak bylo komplikovan\u00e9. V dob\u011b, kdy s nemoc\u00ed za\u010d\u00ednala bojovat, existovalo pouze jedno specializovan\u00e9 pracovi\u0161t\u011b, na kter\u00e9m ona byla. Dal\u0161\u00ed specialisty nebylo dle jej\u00ed v\u00fdpov\u011bdi prakticky mo\u017en\u00e9 naj\u00edt.<\/p>\n\n\n\n
Pom\u00e1h\u00e1 v\u011bd\u011b v\u00edc ne\u017e kdokoliv jin\u00fd<\/p>\n\n\n\n
I p\u0159esto, \u017ee na 27letou d\u00edvku zat\u00edm \u017e\u00e1dn\u00e1 zn\u00e1m\u00e1 l\u00e9\u010dba nezab\u00edr\u00e1, p\u0159isp\u011bla do v\u011bdeck\u00fdch v\u00fdzkum\u016f v\u00edce ne\u017e b\u011b\u017en\u00ed lid\u00e9. Hovo\u0159\u00ed nap\u0159\u00edklad o l\u00e9ku na osteopor\u00f3zu.<\/p>\n\n\n\n
\u201eP\u0159ivezli mi l\u00e9k z Ameriky, kter\u00fd m\u011b m\u011bl l\u00e9\u010dit. Dostala jsem ho v kapa\u010dce na deset hodin. Nezabral mi. Byla jsem ale prvn\u00edm d\u00edt\u011btem v \u010cesk\u00e9 republice, kter\u00e9 tento l\u00e9k vyzkou\u0161elo. I d\u00edky mn\u011b se zjistilo, \u017ee skv\u011ble funguje na osteopor\u00f3zu,\u201c pokra\u010duje T\u00fdna.<\/p>\n\n\n\n
\u201eDnes m\u016f\u017eu \u0159\u00edct, \u017ee m\u00e1m kolem sebe nejlep\u0161\u00ed t\u00fdm, kter\u00fd v \u010cech\u00e1ch je. Nen\u00ed nikdo, kdo by se mi nesna\u017eil pomoci. Jenom mn\u011b a m\u00e9 nemoci se v\u011bnuje zhruba dv\u011b st\u011b lid\u00ed,\u201c d\u011bkuje sv\u00e9mu l\u00e9ka\u0159sk\u00e9mu t\u00fdmu T\u00fdna.<\/p>\n\n\n\n
L\u00e9\u010dbu T\u00fdn\u011b nikdo nezaplat\u00ed<\/p>\n\n\n\n
Aby mohla ve sv\u00e9 l\u00e9\u010db\u011b pokra\u010dovat (a hledat pro sebe tu, kter\u00e1 kone\u010dn\u011b zabere), pot\u0159ebuje T\u00fdna rehabilitovat a platit nezbytn\u00e9 l\u00e9ky i dopl\u0148ky stravy. Jeliko\u017e v\u0161ak d\u00edky \u010dast\u00fdm pobyt\u016fm v nemocnici nem\u016f\u017ee chodit pravideln\u011b do zam\u011bstn\u00e1n\u00ed, ocitla se na pokraji chudoby. Nen\u00ed bohu\u017eel nikdo, kdo by j\u00ed v jej\u00ed situaci pomohl.<\/p>\n\n\n\n
\u201eVzhledem k d\u00e9lce m\u00e9 nemoci a aktu\u00e1ln\u00edmu stavu jsem jedin\u00e1 s touto diagn\u00f3zou. Jednodu\u0161e \u0159e\u010deno: nepat\u0159\u00edm do \u017e\u00e1dn\u00e9 tabulky. I p\u0159es obrovskou snahu a p\u00e9\u010di l\u00e9ka\u0159\u016f m\u011b poji\u0161\u0165ovna neuzn\u00e1v\u00e1 nemocnou a pln\u011b invalidn\u00ed. Proto jsem nucena vyhl\u00e1sit ve\u0159ejnou sb\u00edrku a po\u017e\u00e1dat o pomoc,\u201c pros\u00ed mlad\u00e1 \u017eena ve\u0159ejnost na dobro\u010dinn\u00e9 platform\u011b Donio. Sb\u00edrku j\u00ed pomohli zalo\u017eit jej\u00ed kamar\u00e1di, zn\u00e1m\u00ed tane\u010dn\u00edci Jan Onder a Nat\u00e1lie Ot\u00e1halov\u00e1.<\/p>\n\n\n\n
Pokud byste T\u00fdn\u011b r\u00e1di p\u0159isp\u011bli jakoukoli \u010d\u00e1stkou, m\u016f\u017eete tak u\u010dinit ZDE: https:\/\/donio.cz\/sbirka-pro-nemocnou-tynu<\/a>. Vybran\u00e9 pen\u00edze budou konkr\u00e9tn\u011b pou\u017eity na l\u00e9ky, rehabilitace, dopl\u0148ky stravy, kvalitn\u00ed j\u00eddlo a dal\u0161\u00ed nezbytn\u00e9 pot\u0159eby pro T\u00fdnin plnohodnotn\u011bj\u0161\u00ed \u017eivot.<\/p>\n\n\n\n Jak osteomyelitida vznik\u00e1<\/p>\n\n\n\n \u201ePrim\u00e1rn\u011b je to nemoc zlomen\u00fdch kost\u00ed. To znamen\u00e1, \u017ee kdy\u017e si ud\u011bl\u00e1te n\u011bjakou otev\u0159enou zlomeninu, nebo v\u00e1m trhaj\u00ed osmi\u010dky, m\u016f\u017ee se u v\u00e1s osteomyelitida objevit v podob\u011b z\u00e1n\u011btu. Kdy\u017e jste ale pod l\u00e9ka\u0159skou p\u00e9\u010d\u00ed, tak ji dok\u00e1\u017eou l\u00e9ka\u0159i rychle zachytit. M\u011b se to ale stalo v dob\u011b, kdy nemoc nebyla zn\u00e1m\u00e1. A u\u017e v\u016fbec nikdo ne\u010dekal, \u017ee by ji dostalo mal\u00e9 d\u00edt\u011b,\u201c popisuje Krist\u00fdna Hor\u00e1kov\u00e1.<\/p>\n\n\n\n Kdyby se T\u00fdn\u011b dostal z\u00e1n\u011bt a\u017e do mozku, za\u010dal by zp\u016fsobovat opakovan\u00e9 z\u00e1n\u011bty mozkov\u00fdch blan. V d\u016fsledku nich by ji pr\u00fd \u010dekala dlouh\u00e1 a pomal\u00e1 smrt.<\/p>\n\n\n\n \u201eAkutn\u00ed osteomyelitida m\u016f\u017ee ohrozit pacienta na \u017eivot\u011b. Chronick\u00e1 se m\u016f\u017ee \u010dasto vracet a zp\u016fsobit i ztr\u00e1tu kon\u010detiny. Je nevyl\u00e9\u010diteln\u00e1 a st\u0159\u00eddaj\u00ed se p\u0159i n\u00ed obdob\u00ed klidu a zhor\u0161ov\u00e1n\u00ed stavu. Jedn\u00e1 se o velmi vz\u00e1cn\u00e9 onemocn\u011bn\u00ed,\u201c p\u00ed\u0161e atesta\u010dn\u00ed ortopedicky web Ortoportal.<\/p>\n\n\n\n Kate\u0159ina N\u011bmcov\u00e1<\/p>\n\n\n\n Karlovarsk\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/karlovarsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Krist\u00fdna Hor\u00e1kov\u00e1 si dr\u017e\u00ed necht\u011bn\u00e9 sv\u011btov\u00e9 prvenstv\u00ed. Je jedinou \u017eij\u00edc\u00ed osobou na sv\u011bt\u011b, kter\u00e1 ji\u017e dvacet dva let odol\u00e1v\u00e1 l\u00e9\u010db\u011b onemocn\u011bn\u00ed, kter\u00e9 u jin\u00fdch pacient\u016f […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14888,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-50781","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50781","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=50781"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50781\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14888"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=50781"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=50781"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=50781"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}