\u00a0\u010cT 1<\/p>\n\n\n\n
\u00a0\u010cT 1 D\u011btsk\u00fd hospic, D\u016fm pro Julii v Brn\u011b je postaven\u00fd a p\u0159ipraven\u00fd na prvn\u00ed klienty. Jedn\u00e1 se o prvn\u00ed stavbu sv\u00e9ho druhu v \u010cesku. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":50803,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-50801","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50801","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=50801"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50801\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/50803"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=50801"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=50801"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=50801"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
D\u011btsk\u00fd hospic, D\u016fm pro Julii v Brn\u011b je postaven\u00fd a p\u0159ipraven\u00fd na prvn\u00ed klienty. Jedn\u00e1 se o prvn\u00ed stavbu sv\u00e9ho druhu v \u010cesku. Bude poskytovat komplexn\u00ed p\u00e9\u010di a podporu rodin\u00e1m s nevyl\u00e9\u010diteln\u011b nemocn\u00fdmi d\u011btmi. Investice vy\u0161la na t\u00e9m\u011b\u0159 185 milion\u016f K\u010d, z toho 86 milion\u016f pokryla dotace, zbytek zaplatilo m\u011bsto ze sv\u00e9ho rozpo\u010dtu.
redaktorka \u010cT
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Hned po narozen\u00ed napadla t\u011blo Olivera bakterie, jeho bratr dvoj\u010de j\u00ed podlehl. Oliverovi samotn\u00e9mu d\u00e1vali l\u00e9ka\u0159i maxim\u00e1ln\u011b p\u011bt let. Dnes jemu 18.
Jarom\u00edr a Gabirela Uhdeovi, rodi\u010de Olivera
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Za\u010dali pozd\u011bji p\u0159ech\u00e1zet dal\u0161\u00ed v\u011bci. Vlastn\u011b pro\u0161la o\u010dn\u00ed operace, zjistilo se, \u017ee m\u00e1 d\u011btskou mozkovou obrnou, p\u0159idala se epilepsie a vlastn\u011b skon\u010dilo to tak, \u017ee m\u00e1 vlastn\u011b t\u011b\u017ek\u00e9 kombinovan\u00e9\u00a0posti\u017een\u00ed<\/strong>.
redaktorka \u010cT
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A vy\u017eaduje 24 hodinovou p\u00e9\u010di. Doma s n\u00edm proto z\u016fst\u00e1v\u00e1 matka. U\u017e od srpna bude rodina Olivera vyu\u017e\u00edvat slu\u017eby d\u011btsk\u00e9ho hospicu D\u016fm pro Julii, ten se nov\u011b nach\u00e1z\u00ed v Kr\u00e1lov\u011b Poli v Brn\u011b.
Jarom\u00edr a Gabirela Uhdeovi, rodi\u010de Olivera
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To se t\u011b\u0161\u00edme, \u017ee p\u016fjdeme s man\u017eelkou na dobrou ve\u010de\u0159i. No, a do kina.
A do kina, do divadla a nebude se muset p\u0159em\u00fd\u0161let o tom, kdy, kdy budeme doma a \u017ee si m\u016f\u017eeme d\u00e1t v Brn\u011b skleni\u010dku v\u00edna a p\u0159ijet vlakem v klidu.
redaktorka \u010cT
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D\u016fm pro Julii m\u00e1 kapacitu 10 l\u016f\u017eek, z toho osm z nich pro t\u00fddenn\u00ed odleh\u010dovac\u00ed pobyt a dv\u011b pro pro\u017eit\u00ed termin\u00e1ln\u00ed f\u00e1ze onemocn\u011bn\u00ed. Podle z\u00e1stupc\u016f Asociace poskytovatel\u016f hospicov\u00e9 paliativn\u00ed p\u00e9\u010de se ale ofici\u00e1ln\u011b o hospicovou l\u00e9\u010dbu nejedn\u00e1.
Docela oby\u010dejn\u011b, nen\u00ed v \u010cesk\u00e9 republice dostatek um\u00edraj\u00edc\u00edch v d\u011btsk\u00e9m v\u011bku, aby mohl p\u016fsobit efektivn\u011b samostatn\u00fd d\u011btsk\u00fd hospic. Byl by to demografick\u00fd i ekonomick\u00fd protimluv. N\u011bco jin\u00e9ho je p\u00e9\u010de o t\u011b\u017ece\u00a0posti\u017een\u00e9<\/strong>\u00a0d\u011bti, kde p\u0159edpoklad do\u017eit\u00ed jsou roky \u010di desetilet\u00ed. To v\u0161ak nen\u00ed hospic, z\u00e1konem definovan\u00e9 zdravotnick\u00e9 za\u0159\u00edzen\u00ed.
redaktorka \u010cT
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D\u00e1 se \u0159\u00edct, \u017ee parazitujete na ozna\u010den\u00ed hospic?
Radka Vernerov\u00e1, \u0159editelka, D\u016fm pro Julii
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J\u00e1 si mysl\u00edm, \u017ee ne. Tam jde sp\u00ed\u0161 o to, \u017ee d\u011btsk\u00e1 paliativn\u00ed p\u00e9\u010de obecn\u011b je v \u010cesk\u00e9 republice velmi mlad\u00fd obor. Ten z\u00e1sadn\u00ed probl\u00e9m je, \u017ee d\u011btsk\u00fd hospic legislativa nezn\u00e1 a d\u011btsk\u00fd hospic se sv\u00fdmi slu\u017ebami jako z\u00e1sadn\u011b li\u0161\u00ed od slu\u017eeb hospice pro dosp\u011bl\u00e9, ov\u0161em gr\u00f3 d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de je prost\u011b podpora rodiny b\u011bhem \u017eivota d\u00edt\u011bte.
redaktorka \u010cT
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Pro ty nejmen\u0161\u00ed do sedmi let je ur\u010den\u00e1 tzv. ran\u00e1 p\u00e9\u010de, ter\u00e9nn\u00ed slu\u017eba. Te\u010f ji v \u010cesku vyu\u017e\u00edv\u00e1 asi 900 rodin. Z\u00e1jemc\u016f je ale zhruba o 1\/5 v\u00edc, p\u0159es 60 % poskytovatel\u016f t\u00e9to slu\u017eby pro n\u011b vede po\u0159adn\u00edky.
moder\u00e1torka
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A j\u00e1 u\u017e te\u010f ve vys\u00edl\u00e1n\u00ed v\u00edt\u00e1m Janu Holom\u010d\u00edk Leitnerovou, radn\u00ed Jihomoravsk\u00e9ho kraje pro soci\u00e1ln\u00ed a rodinnou politiku, dobr\u00fd ve\u010der.
Sly\u0161eli jsme v report\u00e1\u017ei v\u00fdtky Asociace hospic\u016f, \u017ee v p\u0159\u00edpad\u011b Domu pro Julii o hospic nejde. Jak to tedy vn\u00edm\u00e1te vy?
Jana Holom\u010d\u00edk Leinerov\u00e1, radn\u00ed pro soci\u00e1ln\u00ed oblast, Jihomoravsk\u00fd kraj \/Pir\u00e1ti\/
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Tak \u010d\u00e1ste\u010dn\u011b mus\u00edm d\u00e1t samoz\u0159ejm\u011b za pravdu, proto\u017ee co se t\u00fd\u010de legislativy \u010desk\u00e9, tak to opravdu moment\u00e1ln\u011b vlastn\u011b neum\u00ed \u00fapln\u011b pojmout v tom z\u00e1kon\u011b \u010d. 372 o t\u011bch zdravotn\u00edch slu\u017eb\u00e1ch, d\u011btskou paliativn\u00ed p\u00e9\u010di a hospic, proto\u017ee ten je opravdu zam\u011b\u0159en na to termin\u00e1ln\u00ed stadium, na to d\u016fstojn\u00e9 do\u017eit\u00ed, kde se bav\u00edme o n\u011bjak\u00fdch \u0159\u00e1dech t\u00fddn\u016f a m\u011bs\u00edc\u016f. My takov\u00e9 kamenn\u00e9 hospice v Jihomoravsk\u00e9m kraji m\u00e1me dva. Nicm\u00e9n\u011b my v\u00edme a j\u00e1 jsem velmi r\u00e1da, \u017ee Ministerstvo pr\u00e1ce, soci\u00e1ln\u00edch v\u011bc\u00ed a Ministerstvo zdravotnictv\u00ed tu syst\u00e9movou zm\u011bnu te\u010fka p\u0159in\u00e1\u0161\u00ed skrze z\u00e1kon o soci\u00e1ln\u011b zdravotn\u00edch slu\u017eb\u00e1ch, \u017ee i ta popt\u00e1vka po t\u00e9 d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010di opravdu je. Tady se ale samoz\u0159ejm\u011b bav\u00edme o n\u011bjak\u00fdch pot\u0159eb\u00e1ch rodin v r\u00e1mci Jihomoravsk\u00e9ho kraje. A proto jsem velmi r\u00e1da, \u017ee v\u016fbec tahle ta slu\u017eba v Jihomoravsk\u00e9m kraji te\u010f nov\u011b otev\u00edr\u00e1 a vlastn\u011b provozuje u\u017e odleh\u010dovac\u00ed slu\u017ebu pro rodiny, to znamen\u00e1, jak v tom dom\u00e1c\u00edm prost\u0159ed\u00ed, tak bude te\u010f tedy p\u0159\u00edmo v tom pobytov\u00e9m za\u0159\u00edzen\u00ed.
moder\u00e1torka
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Pokud je\u0161t\u011b z\u016fstaneme tedy u toho n\u00e1zvoslov\u00ed, jak vlastn\u011b podstatn\u00e9 je? Ovliv\u0148uje to nap\u0159\u00edklad n\u011bjak financov\u00e1n\u00ed toho za\u0159\u00edzen\u00ed?
Jana Holom\u010d\u00edk Leinerov\u00e1, radn\u00ed pro soci\u00e1ln\u00ed oblast, Jihomoravsk\u00fd kraj \/Pir\u00e1ti\/
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Z pohledu odboru soci\u00e1ln\u00edch v\u011bc\u00ed ne, proto\u017ee my m\u00e1me zaregistrovanou slu\u017ebu odleh\u010dovac\u00ed, kter\u00e1 vlastn\u011b spad\u00e1 pod z\u00e1kon o soci\u00e1ln\u00edch slu\u017eb\u00e1ch a \u0159\u00edd\u00ed se \u00fahradovou vyhl\u00e1\u0161kou. A tam je samoz\u0159ejm\u011b potom ten k\u00e1men \u00farazu na tu zdravotn\u00ed slu\u017ebu, a to je pr\u00e1v\u011b v\u011bc, o kter\u00e9 jsem hovo\u0159ila, \u017ee nyn\u00ed na z\u00e1klad\u011b t\u011bch dat, kter\u00e1 se propojila mezi zdravotnictv\u00edm a soci\u00e1ln\u00edmi nebo soci\u00e1ln\u00ed politikou, tak vznik\u00e1 vlastn\u011b nebo sna\u017e\u00ed se te\u010f ministerstva jako \u0159e\u0161it tenhleten syst\u00e9mov\u00fd nedostatek. Z hlediska poskytov\u00e1n\u00ed t\u00e9 te\u010f sou\u010dasnosti to ale pro kraj ur\u010dit\u011b probl\u00e9m nen\u00ed.
moder\u00e1torka
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Te\u010f k up\u0159esn\u011bn\u00ed n\u011bkter\u00fdch term\u00edn\u016f. Hospic m\u016f\u017ee tedy fungovat jako stacion\u00e1\u0159 ve form\u011b denn\u00edch n\u00e1v\u0161t\u011bv, kter\u00e9 pom\u00e1haj\u00ed jeho zdravotn\u00ed probl\u00e9my \u0159e\u0161it, m\u016f\u017ee ale taky nab\u00edzet l\u016f\u017eka, takov\u00e1 za\u0159\u00edzen\u00ed slou\u017e\u00ed obvykle pro klienty v kone\u010dn\u00fdch f\u00e1z\u00edch onemocn\u011bn\u00ed. Hospicov\u00e1 p\u00e9\u010de pak existuje i v tzv. mobiln\u00ed form\u011b, kdy jezd\u00ed t\u00fdmy l\u00e9ka\u0159\u016f a o\u0161et\u0159ovatel\u016f k pacient\u016fm dom\u016f. Ta jedin\u00e1 je v\u011bt\u0161inou ur\u010den\u00e1 i d\u011btem. V Jihomoravsk\u00e9m i Zl\u00ednsk\u00e9m kraji funguje n\u011bkolik za\u0159\u00edzen\u00ed, kter\u00e1 se specializuj\u00ed pr\u00e1v\u011b taky na mobiln\u00ed hospicovou p\u00e9\u010di pro d\u011bti. Je to t\u0159eba Nada\u010dn\u00ed fond d\u011btsk\u00e9 onkologie Krtek, Hospic Znojmo, Ondr\u00e1\u0161ek nebo Strom \u017eivota. Nicm\u00e9n\u011b z\u0159izovatel zam\u011b\u0159en\u00fd pouze na paliativn\u00ed p\u00e9\u010di pro d\u011bti zat\u00edm chyb\u011bl.
Jaroslav \u0160t\u011brba, p\u0159ednosta, Klinika d\u011btsk\u00e9 onkologie, FN Brno
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Ty v\u00fdsledky l\u00e9\u010dby se obrovsk\u00fdm zp\u016fsobem zlep\u0161ily. Na druhou stranu po\u0159\u00e1d jsou tady d\u011bti, kter\u00e9 ztr\u00e1c\u00edme. A ta pomoc jak t\u00e9 \u010d\u00e1sti respitn\u00ed, tak t\u00e9 \u010d\u00e1sti hospicov\u00e9, Domu pro Julii, tedy je obrovsk\u00e9 plus. Drtiv\u00e1 v\u011bt\u0161ina t\u011bchto d\u011bt\u00ed um\u00edr\u00e1 doma, jsou to skute\u010dn\u011b jednotliv\u00ed pacienti, kte\u0159\u00ed budou od n\u00e1s vyu\u017e\u00edvat D\u016fm pro Julii, ale daleko v\u011bt\u0161\u00ed pot\u0159eba je v jin\u00fdch oblastech d\u011btsk\u00e9 medic\u00edny.
moder\u00e1torka
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Sly\u0161eli jsme pana \u0160t\u011brbu, kter\u00fd zmi\u0148uje d\u016fle\u017eitost takov\u00e9ho za\u0159\u00edzen\u00ed. Vy jste o tom koneckonc\u016f u\u017e tak\u00e9 mluvila. Na druhou stranu ale podle n\u011bj drtiv\u00e1 v\u011bt\u0161ina nemocn\u00fdch d\u011bt\u00ed um\u00edr\u00e1 doma. Je to t\u00edm, \u017ee dosud, \u0159ekn\u011bme, nebyla jin\u00e1 mo\u017enost? Jak moc tedy ta nov\u00e1 slu\u017eba rodin\u00e1m skute\u010dn\u011b, \u0159ekn\u011bme, v r\u00e1mci mo\u017enost\u00ed, odleh\u010d\u00ed?
Jana Holom\u010d\u00edk Leinerov\u00e1, radn\u00ed pro soci\u00e1ln\u00ed oblast, Jihomoravsk\u00fd kraj \/Pir\u00e1ti\/
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Je to hodn\u011b slo\u017eit\u00e9 t\u00e9ma, proto\u017ee samoz\u0159ejm\u011b kdy\u017e um\u00edr\u00e1 d\u00edt\u011b, zejm\u00e9na pokud se to t\u00fdk\u00e1 n\u011bjak\u00e9 v\u00e1\u017en\u00e9 nemoci a sami to mohli div\u00e1ci vid\u011bt v t\u00e9 report\u00e1\u017ei, \u017ee ob\u010das l\u00e9ka\u0159i \u0159eknou, d\u00e1v\u00e1me d\u00edt\u011bti tolik a tolik let \u017eivota, ono se potom do\u017eije i dosp\u011blosti, tak\u017ee opravdu je to hodn\u011b specifick\u00e9 a mus\u00edme p\u0159istupovat k t\u011bm jednotliv\u00fdm p\u0159\u00edpad\u016fm velmi individu\u00e1ln\u011b, proto jsem r\u00e1da, \u017ee v\u016fbec n\u011bjak\u00e1 kapacita toho hospice v Jihomoravsk\u00e9m kraji vznik\u00e1. Z\u00e1rove\u0148 my jako koalice, jako veden\u00ed Jihomoravsk\u00e9ho kraje tady pln\u00edme dal\u0161\u00ed slib, \u017ee budeme rozv\u00edjet a podporovat tu paliativn\u00ed p\u00e9\u010di, velmi se n\u00e1m to da\u0159\u00ed pr\u00e1v\u011b u t\u00e9 mobiln\u00ed hospicov\u00e9 p\u00e9\u010de do domu a do toho dom\u00e1c\u00edho prost\u0159ed\u00ed a tohle to jakoby vlastn\u011b dal\u0161\u00ed sou\u010d\u00e1st toho, co jsme i sl\u00edbili v t\u00e9 schv\u00e1len\u00e9 koncepci podpory paliativn\u00ed p\u00e9\u010de v Jihomoravsk\u00e9m kraji.
moder\u00e1torka
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\u0158\u00edk\u00e1 Jana Holom\u010d\u00edk Leitnerov\u00e1, d\u011bkujeme za v\u00e1\u0161 \u010das.
A j\u00e1 u\u017e jen dod\u00e1m, \u017ee podobn\u00e9 za\u0159\u00edzen\u00ed, jako je D\u016fm pro Julii, vznik\u00e1 v Praze nedaleko motolsk\u00e9 nemocnice. Fungovat by m\u011blo od roku 2026. Opravy pam\u00e1tkov\u011b chr\u00e1n\u011bn\u00e9 budovy a dostavba nov\u00e9 budovy hospice by m\u011bly st\u00e1t zhruba 500 milion\u016f K\u010d.<\/p>\n","protected":false},"excerpt":{"rendered":"