Meliska Hanu\u0161ov\u00e1 oslavila prvn\u00ed narozeniny, ud\u011blala prvn\u00ed kr\u016f\u010dky. Pak ale doslova ze dne na den zkolabovala a upadla do k\u00f3matu, ze kter\u00e9ho se dva m\u011bs\u00edce neprobudila. V\u0161emu p\u0159edch\u00e1zela b\u011b\u017en\u00e1 r\u00fdma doprov\u00e1zen\u00e1 zv\u00fd\u0161enou teplotou, kterou maminka p\u0159isuzovala rostouc\u00edm zoubk\u016fm. Po n\u011bkolika vy\u0161et\u0159en\u00edch j\u00ed v\u0161ak l\u00e9ka\u0159i diagnostikovali autoimunitn\u00ed onemocn\u011bn\u00ed \u2013 diseminovanou encefalomyelitidu ADEM, nemoc kter\u00e1 napad\u00e1 mozek.<\/p>\n\n\n\n
Meliska Hanu\u0161ov\u00e1 je t\u00e9m\u011b\u0159 rok a p\u016fl star\u00e1 hol\u010di\u010dka, kter\u00e1 a\u017e do 15m\u011bs\u00edc\u016f v\u011bku d\u011blala sv\u00e9 rodin\u011b jen samou radost. Pak ale p\u0159i\u0161el n\u00e1hl\u00fd obrat a na prvn\u00ed pohled zdrav\u00e1 hol\u010di\u010dka za\u010dala bojovat o sv\u016fj \u017eivot. Vin\u00edkem bylo n\u00e1hl\u00e9 rozvinut\u00ed autoimunitn\u00ed choroby \u2013 diseminovan\u00e9 encefalomyelitidy ADEM. Onemocn\u011bn\u00ed postihuje mozek a vyskytuje se p\u0159ev\u00e1\u017en\u011b u d\u011bt\u00ed. Typicky se objevuje po vakcinaci \u010di infek\u010dn\u00edm onemocn\u011bn\u00ed.<\/p>\n\n\n\n
\u201eP\u0159ed kolapsem byla Meliska \u00fapln\u011b zdrav\u00e1 hol\u010di\u010dka. Je\u0161t\u011b prvn\u00ed narozeniny oslavila v pln\u00e9m zdrav\u00ed. U\u017e za\u010d\u00ednala i chodit. Byla takov\u00fd n\u00e1\u0161 mal\u00fd and\u00edlek. Byla moc hodn\u00e1. V\u017edy jsem \u0159\u00edkala, \u017ee ji m\u00e1me za odm\u011bnu. Byla po\u0159\u00e1d takov\u00e9 hodn\u00e9 a spokojen\u00e9 d\u011b\u0165\u00e1tko,\u201c popisuje Melis\u010din stav p\u0159ed kolapsem jej\u00ed maminka Kate\u0159ina Hanu\u0161ov\u00e1.<\/p>\n\n\n\n
Nikdo ne\u010dekal, s jak t\u011b\u017ekou diagn\u00f3zou se bude v n\u00e1sleduj\u00edc\u00edch m\u011bs\u00edc\u00edch Meliska pot\u00fdkat a bojovat o sv\u016fj \u017eivot.<\/p>\n\n\n\n
Zhor\u0161en\u00ed Melisky p\u0159i\u0161lo n\u00e1hle<\/p>\n\n\n\n
Onemocn\u011bn\u00ed ADEM se \u010dasto objevuje po prob\u011bhl\u00e9 infekci dutin nebo vakcinaci. Meliska se u\u017e dva m\u011bs\u00edce pot\u00fdkala s r\u00fdmou, je\u017e doktorka l\u00e9\u010dila antibiotick\u00fdmi kapkami do nosu. \u201eTy ale nezab\u00edraly. N\u00e1sledn\u011b dostala Meliska celkov\u00e1 antibiotika, kter\u00e1 rovn\u011b\u017e nezabrala. T\u00fdden po dobr\u00e1n\u00ed antibiotik zkolabovala,\u201c \u0159\u00edk\u00e1 maminka.<\/p>\n\n\n\n
Den p\u0159ed kolapsem dostala Meliska k dlouhodob\u00e9 r\u00fdm\u011b nav\u00edc hore\u010dku. Nem\u011bla ale \u017e\u00e1dn\u00e9 p\u0159\u00edznaky, kter\u00e9 by poukazovaly na v\u00e1\u017en\u00e9 onemocn\u011bn\u00ed.<\/p>\n\n\n\n
\u201eDala jsem na noc Nurofen. N\u00e1sleduj\u00edc\u00ed den u\u017e cel\u00fd prospala, hore\u010dku jsem sr\u00e1\u017eela po \u0161esti hodin\u00e1ch, jak je doporu\u010deno. Netu\u0161ila jsem, \u017ee se d\u011bje n\u011bco v\u00e1\u017en\u00e9ho. Doufala jsem, \u017ee se hore\u010dka po pod\u00e1n\u00ed l\u00e9ku zm\u00edrn\u00ed,\u201c popisuje pr\u016fb\u011bh prvn\u00edch dn\u016f Melis\u010dina maminka.<\/p>\n\n\n\n
Dal\u0161\u00ed den r\u00e1no se d\u00edven\u010din stav v\u00fdrazn\u011b zhor\u0161il. Nedok\u00e1zala se postavit na nohy, neudr\u017eela hlavi\u010dku, zorni\u010dka jednoho oka j\u00ed uj\u00ed\u017ed\u011bla do strany a t\u00e9m\u011b\u0159 ztr\u00e1cela v\u011bdom\u00ed. Rodi\u010de ji proto okam\u017eit\u011b vzali do nemocnice.<\/p>\n\n\n\n
\u017divot ohro\u017euj\u00edc\u00ed diagn\u00f3za<\/p>\n\n\n\n
Ne\u017e se v\u0161ak rodi\u010de dozv\u011bd\u011bli zdrcuj\u00edc\u00ed diagn\u00f3zu, \u010dekalo je je\u0161t\u011b p\u0159ej\u00ed\u017ed\u011bn\u00ed z nemocnice do nemocnice. Nejprve zam\u00ed\u0159ili na pohotovost do Vy\u0161kova, n\u00e1sledn\u011b byli odesl\u00e1ni do Prost\u011bjova na ORL, odkud je p\u0159eposlali zp\u011bt. Ve vy\u0161kovsk\u00e9 nemocnici si Melisku u\u017e nechali a z rozboru krve a mo\u010di odhalili, \u017ee se nejedn\u00e1 o bakteri\u00e1ln\u00ed ani virov\u00e9 onemocn\u011bn\u00ed. Na vy\u0161et\u0159en\u00ed hlavi\u010dky, kter\u00e9 m\u011blo n\u00e1sledovat, v\u0161ak museli p\u0159ejet do Brna. Melis\u010din stav se p\u0159itom d\u00e1le zhor\u0161oval.<\/p>\n\n\n\n
\u201eBohu\u017eel v tu chv\u00edli nebyla voln\u00e1 sanitka, tak\u017ee jsme museli \u010dekat dal\u0161\u00ed dv\u011b hodiny. Byla jsem u\u017e velmi zoufal\u00e1 a bezmocn\u00e1. Kolem osm\u00e9 ve\u010der n\u00e1s p\u0159evezli do Brna, kde Melisce okam\u017eit\u011b ud\u011blali magnetickou rezonanci. V noci p\u0159i\u0161la pan\u00ed doktorka s diagn\u00f3zou z\u00e1va\u017en\u00e9ho autoimunitn\u00edho onemocn\u011bn\u00ed,\u201c \u0159\u00edk\u00e1 zhroucen\u011b Melis\u010dina maminka Kate\u0159ina Hanu\u0161ov\u00e1.<\/p>\n\n\n\n
Nen\u00e1vratn\u00e9 po\u0161kozen\u00ed mozku<\/p>\n\n\n\n
Po no\u010dn\u00edm pobytu v nemocnici se Melis\u010din stav je\u0161t\u011b zhor\u0161il, co\u017e vedlo k celkov\u00e9 spasticit\u011b (zv\u00fd\u0161en\u00e9mu svalov\u00e9mu nap\u011bt\u00ed, pozn. red.). N\u00e1sledovalo zv\u00fd\u0161en\u00ed d\u00e1vky sedativ, kter\u00e9 potla\u010duj\u00ed vliv centr\u00e1ln\u00ed nervov\u00e9 soustavy a navozuj\u00ed klid a uvoln\u011bn\u00ed. Nakonec byla d\u00edvence zavedena i trubice do d\u00fdchac\u00edch cest. I p\u0159es ve\u0161kerou snahu l\u00e9ka\u0159\u016f v\u0161ak Meliska utrp\u011bla nevratn\u00e9 po\u0161kozen\u00ed mozkov\u00e9 tk\u00e1n\u011b.<\/p>\n\n\n\n
\u201ePrvn\u00ed l\u00e9\u010dba nezabrala a a\u017e po siln\u00e9m l\u00e9ku, kter\u00fd v\u00fdrazn\u011b srazil imunitu, se z\u00e1n\u011bt poda\u0159ilo zastavit. O po\u0161kozen\u00ed mozku jsme se dozv\u011bd\u011bli asi po t\u0159ech t\u00fddnech, kdy magnetick\u00e1 rezonance odhalila, \u017ee z\u00e1n\u011bt sice v\u00fdrazn\u011b ustoupil, ale zp\u016fsobil nen\u00e1vratn\u00e9 \u0161kody,\u201c pokra\u010duje Melis\u010dina maminka, kter\u00e1 s dcerou byla v nemocnici ka\u017ed\u00fd den.<\/p>\n\n\n\n
Jen d\u00edky obrovsk\u00e9 podpo\u0159e rodiny a p\u0159\u00e1tel se psychicky \u00fapln\u011b nezhroutila. \u201eBylo to n\u00e1ro\u010dn\u00e9. \u010clov\u011bk si \u0159\u00edk\u00e1, \u017ee je to snad jen zl\u00fd sen. Ale mus\u00edte to zvl\u00e1dnout, jinak to nejde. Nav\u00edc l\u00e9ka\u0159i jednali opravdu rychle a velmi n\u00e1m pomohli,\u201c \u0159\u00edk\u00e1 s pokorou Melis\u010dina maminka Kate\u0159ina Hanu\u0161ov\u00e1.<\/p>\n\n\n\n
V\u0161ichni doufaj\u00ed v z\u00e1zrak<\/p>\n\n\n\n
V tuto chv\u00edli ji\u017e Meliska nen\u00ed ve vegetativn\u00ed f\u00e1zi k\u00f3matu. Pomalu se probouz\u00ed a bojuje o n\u00e1vrat k pln\u00e9mu v\u011bdom\u00ed. Postupuje rehabilitace, kter\u00e9 se sna\u017e\u00ed zm\u00edrnit epileptick\u00e9 z\u00e1chvaty, je\u017e nemoc vyvolala. Rehabilitace jsou v\u0161ak n\u00e1kladn\u00e9 a zat\u00edm v\u0161ichni teprve zji\u0161\u0165uj\u00ed, co dal\u0161\u00edho bude Meliska pot\u0159ebovat, aby m\u011bla \u0161anci se jednou vr\u00e1tit k plnohodnotn\u00e9mu \u017eivotu.<\/p>\n\n\n\n
\u201eJak to bude d\u00e1l, nev\u00edme. Ani l\u00e9ka\u0159i n\u00e1m to nedok\u00e1\u017eou \u0159\u00edct. V\u011b\u0159\u00edme ale, \u017ee d\u00edky plasticit\u011b mozku u tak mal\u00fdch d\u011bt\u00ed p\u0159evezmou po\u0161kozen\u00e9 dr\u00e1hy jin\u00e9 \u010d\u00e1sti mozku. Douf\u00e1me v to a ud\u011bl\u00e1me maximum pro to, aby mohla m\u00edt jednou Meliska plnohodnotn\u00fd \u017eivot jak ment\u00e1ln\u011b, tak pohybov\u011b,\u201c \u0159\u00edk\u00e1 Kate\u0159ina Hanu\u0161ov\u00e1.<\/p>\n\n\n\n
Prost\u0159ednictv\u00edm dobro\u010dinn\u00e9 platformy Znesn\u00e1ze21 se sna\u017e\u00ed pro svou nemocnou dceru ve sb\u00edrce s n\u00e1zvem Pomoc pro Melisku. Podpo\u0159te boj state\u010dn\u00e9 hol\u010di\u010dky s vz\u00e1cnou nemoc\u00ed (https:\/\/www.znesnaze21.cz\/sbirka\/pomoc-pro-melisku-podporte-boj-statecne-holcicky-s-vzacnou-nemoci#o-sbirce<\/a>) vybrat 1 milion korun. Doposud se j\u00ed poda\u0159ilo vybrat ji\u017e p\u0159es 664 tis\u00edc.<\/p>\n\n\n\n Akutn\u00ed diseminovan\u00e1 encefalomyelitida – ADEM<\/p>\n\n\n\n \u201eVz\u00e1cn\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00ed nervov\u00e9 soustavy postihuj\u00edc\u00ed p\u0159ev\u00e1\u017en\u011b b\u00edlou hmotu mozkom\u00ed\u0161n\u00ed. Vyskytuje se hlavn\u011b u d\u011bt\u00ed a mlad\u00fdch dosp\u011bl\u00fdch. P\u0159\u00edznaky zahrnuj\u00ed kombinaci slabosti, ochabov\u00e1n\u00ed sval\u016f, posti\u017een\u00ed obou doln\u00edch kon\u010detin, z\u00e1n\u011btu m\u00edchy i poruch v\u011bdom\u00ed. Obvykle se rozv\u00edjej\u00ed b\u011bhem hodin a\u017e n\u011bkolika dn\u016f,\u201c popisuje onemocn\u011bn\u00ed odborn\u00fd \u010dasopis Neurologie pro praxi. Vz\u00e1cn\u00e9 onemocn\u011bn\u00ed se podle studie s n\u00e1zvem Akutn\u00ed diseminovan\u00e1 encefalomyelitida z ledna roku 2024 objev\u00ed ka\u017ed\u00fd rok v 0,07 a\u017e 0,9 p\u0159\u00edpadech na ka\u017ed\u00fdch 100 000 d\u011bt\u00ed.<\/p>\n\n\n\n Kate\u0159ina N\u011bmcov\u00e1<\/p>\n\n\n\n Pra\u017esk\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/prazsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Meliska Hanu\u0161ov\u00e1 oslavila prvn\u00ed narozeniny, ud\u011blala prvn\u00ed kr\u016f\u010dky. Pak ale doslova ze dne na den zkolabovala a upadla do k\u00f3matu, ze kter\u00e9ho se dva m\u011bs\u00edce […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14373,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-50892","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50892","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=50892"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50892\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14373"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=50892"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=50892"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=50892"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}