\u010cesk\u00fd rozhlas<\/p>\n\n\n\n
Ro\u010dn\u00ed Vil\u00edk z Brna se narodil se vz\u00e1cnou nemoc\u00ed a d\u00edky d\u00e1rc\u016fm bude moct podstoupit speci\u00e1ln\u00ed terapii. Vybran\u00e1 \u010d\u00e1stka p\u0159es 20 000 000 K\u010d mu umo\u017en\u00ed zapojit se do studie v Austr\u00e1lii, kter\u00e1 by mohla dal\u0161\u00ed rozvoj spastick\u00e9 paraplegie zastavit, tuhle diagn\u00f3zu, p\u0159i kter\u00e9 ochabuj\u00ed svaly, m\u00e1 30 lid\u00ed na sv\u011bt\u011b. Vil\u00edk se neplaz\u00ed, m\u00e1 probl\u00e9my s p\u0159\u00edjmem potravy a v budoucnu by l\u00e9k na tuto i j\u00ed podobn\u00e9 nemoci mohli zas za dostupn\u011bj\u0161\u00ed ceny vyr\u00e1b\u011bt v\u011bdci v nov\u00e9m specializovan\u00e9m centru v Brn\u011b.
mluv\u010d\u00ed 10,
——————–
Pom\u016f\u017ee mu to uv\u011bdomit si ty ru\u010di\u010dky, aby se mohl l\u00e9pe op\u0159\u00edt, r\u00e1d se na to d\u00edv\u00e1.
redaktorka
——————–
Ro\u010dn\u00ed Vil\u00edk le\u017e\u00ed na b\u0159i\u0161e na podlo\u017ece a jako spousta batolat pase kon\u00edky, jenom\u017ee pot\u0159ebuje pomoct fyzioterapeutky Ivy Mik\u0161lov\u00e9. P\u0159idr\u017euje ho a ruce mu d\u00e1v\u00e1 na \u017elutou kulatou podlo\u017eku, tam mu pod nimi vibruje a kdy\u017e jeho pozornost trochu opadne, natahuje se \u017eena pro \u017elutou plastovou housenku.
mluv\u010d\u00ed 10,
——————–
Housenku m\u00e1m pro pr\u00e1ci v prostoru a d\u011bti to bav\u00ed, u t\u011bch nejmen\u0161\u00edch u\u017e jenom bav\u00ed to, \u017ee to blik\u00e1, \u017ee to hraje.
redaktorka
——————–
Pom\u00e1h\u00e1 chlape\u010dkovi zpevnit t\u011blo, aby mohl ot\u00e1\u010det hlavou, br\u00e1t do rukou v\u011bci, prost\u011b pozn\u00e1vat sv\u011bt, a to rozhodn\u011b chce. Kdy\u017e le\u017e\u00ed po fyzioterapii v ko\u010d\u00e1rku, pokou\u0161\u00ed se natahovat hlavu a sledovat ruch v ulici. T\u0159eba proj\u00ed\u017ed\u011bj\u00edc\u00ed seka\u010dku nebo auta. Nemoc mu v tom br\u00e1n\u00ed. B\u011b\u017en\u011b oslabuje hlavn\u011b ruce. U Vil\u00edka je to ale podle jeho otce Jana Ku\u010dery slo\u017eit\u011bj\u0161\u00ed.
mluv\u010d\u00ed 11,
——————–
Vil\u00edk, zd\u00e1 se m\u00e1 komplikovanou formu t\u00e9to nemoci a m\u00e1 probl\u00e9my s motorikou i horn\u00edch kon\u010detin, ale i jeho cel\u00e9 t\u011bl\u00ed\u010dko je zesl\u00e1bl\u00e9 a m\u00e1 probl\u00e9my i s polyk\u00e1n\u00edm, s p\u0159\u00edjmem potravy.
redaktorka
——————–
Hned po narozen\u00ed p\u0159itom chlape\u010dek vypadal jako zdrav\u00e9 miminko.
mluv\u010d\u00ed 12,
——————–
V p\u00e1t\u00e9m m\u011bs\u00edci jeho v\u011bku se za\u010dly objevovat prvn\u00ed motorick\u00e9 pot\u00ed\u017ee.
, redaktorka
——————–
Jedinou \u0161anc\u00ed je te\u010f pro mal\u00e9ho Vil\u00edka za\u0159azen\u00ed do klinick\u00e9 studie v Austr\u00e1lii. \u010clenkou \u010desk\u00e9ho t\u00fdmu, kter\u00e1 jeho zdravotn\u00ed stav posuzovala, byla i farmakolo\u017eka Regina Demlov\u00e1 z nov\u011b vznikl\u00e9ho St\u0159edoevropsk\u00e9ho centra pro pokro\u010dilou terapii a imunoterapii v Brn\u011b.
Regina Demlov\u00e1
——————–
Kdyby to cel\u00e9 fungovalo, co\u017e je ale v tuto chv\u00edli p\u0159ed\u010dasn\u00e9 tvrdit, kdy\u017e v\u011b\u0159\u00edme, tak by m\u011blo doj\u00edt vlastn\u011b k nahrazen\u00ed toho nefunk\u010dn\u00edho genu, kter\u00fd je po\u0161kozen\u00fd nebo nefunguje tak, jak m\u00e1, a ta nemoc by se m\u011bla v t\u00e9 sv\u00e9 progresi zastavit, a to onemocn\u011bn\u00ed by se d\u00e1le Nerozv\u00edjelo
redaktorka
——————–
do budoucna by mohlo d\u011btem s podobn\u00fdmi nemocemi, jakou m\u00e1 Vil\u00edk, pomoct pr\u00e1v\u011b letos Zalo\u017een\u00e9 centrum, kde budou hledat nov\u00e9 l\u00e9ky na genov\u00e9 a bun\u011b\u010dn\u00e9 nemoci. <\/p>\n\n\n\n
\u010cesk\u00fd rozhlas
<\/p>\n","protected":false},"excerpt":{"rendered":"
\u010cesk\u00fd rozhlas Ro\u010dn\u00ed Vil\u00edk z Brna se narodil se vz\u00e1cnou nemoc\u00ed a d\u00edky d\u00e1rc\u016fm bude moct podstoupit speci\u00e1ln\u00ed terapii. Vybran\u00e1 \u010d\u00e1stka p\u0159es 20 000 000 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14373,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-50966","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50966","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=50966"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/50966\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14373"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=50966"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=50966"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=50966"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}