N\u00e1v\u0161t\u011bvu l\u00e9ka\u0159e odkl\u00e1dal 37let\u00fd Luk\u00e1\u0161 Adamec z \u010cesk\u00e9 T\u0159ebov\u00e9 rok. Ob\u010dasn\u00e9 bolesti zad a k\u0159e\u010de p\u0159isuzoval zpo\u010d\u00e1tku nadm\u011brn\u00e9mu fyzick\u00e9mu zat\u00ed\u017een\u00ed. Zhor\u0161uj\u00edc\u00ed se p\u0159\u00edznaky a postupn\u00e9 ochabov\u00e1n\u00ed svalstva ho v\u0161ak dohnaly k l\u00e9ka\u0159i. Ten stanovil fat\u00e1ln\u00ed diagn\u00f3zu. Nyn\u00ed Luk\u00e1\u0161 u\u017e \u010dtvrt\u00fdm rokem bojuje s amyotrofickou later\u00e1ln\u00ed skler\u00f3zou neboli ALS. Se stejnou nemoc\u00ed, se kterou dok\u00e1zal astrofyzik Stephen Hawking \u017e\u00edt dlouh\u00fdch 55 let.<\/p>\n\n\n\n
Je\u0161t\u011b p\u0159ed p\u00e1r lety byl Luk\u00e1\u0161 Adamec sportovcem ka\u017ed\u00fdm coulem. M\u011bl r\u00e1d b\u011bh, cyklistiku, snowboarding, skialpy, b\u011b\u017eky i turistiku. Pak se u n\u011bj za\u010daly objevovat ob\u010dasn\u00e9 bolesti zad a k\u0159e\u010de, kter\u00fdm zprvu nev\u011bnoval pozornost. P\u0159ed dv\u011bma lety mu v\u0161ak bylo diagnostikov\u00e1no progresivn\u00ed nervosvalov\u00e9 onemocn\u011bn\u00ed, kter\u00e9 postihuje motorick\u00e9 nervov\u00e9 bu\u0148ky v mozku a m\u00ed\u0161e.<\/p>\n\n\n\n
Amyotrofick\u00e1 later\u00e1ln\u00ed skler\u00f3za (ALS) zp\u016fsobila, \u017ee m\u00e1 dnes otec \u010dty\u0159let\u00e9 dcery pot\u00ed\u017ee s jemnou i hrubou motorikou, mluven\u00edm a je odk\u00e1z\u00e1n na invalidn\u00ed voz\u00edk. Jeho pot\u00ed\u017ee se nav\u00edc budou nep\u0159edv\u00eddateln\u00fdm tempem zhor\u0161ovat, a\u017e mu jeho svaly p\u0159estanou fungovat \u00fapln\u011b. Ji\u017e te\u010f pot\u0159ebuje pomoc s ka\u017edodenn\u00edmi b\u011b\u017en\u00fdmi \u010dinnostmi.<\/p>\n\n\n\n
Nemoc p\u0159i\u0161la nen\u00e1padn\u011b<\/p>\n\n\n\n
Prvn\u00ed p\u0159\u00edznaky ALS (viz n\u00ed\u017ee) byly u Luk\u00e1\u0161e nen\u00e1padn\u00e9 a zpo\u010d\u00e1tku je nikdo nespojoval s jakkoliv z\u00e1va\u017en\u00fdm onemocn\u011bn\u00edm. Mu\u017e \u010dekal rok, ne\u017e se sv\u00fdmi probl\u00e9my nav\u0161t\u00edvil l\u00e9ka\u0159e. Za dal\u0161\u00edho p\u016fl roku u\u017e za\u010dala nemoc v\u00fdrazn\u011b ovliv\u0148ovat jeho ka\u017edodenn\u00ed \u017eivot, st\u00e1le ji v\u0161ak nem\u011bl diagnostikovanou.<\/p>\n\n\n\n
\u201eOb\u010das se Luk\u00e1\u0161ovi zasekla z\u00e1da, objevila se k\u0159e\u010d a svalov\u00e1 slabost. To jsme v\u0161ak p\u0159ipisovali vysok\u00e9mu sportovn\u00edmu zat\u00ed\u017een\u00ed. Vylo\u017een\u011b prvn\u00edm p\u0159\u00edznakem bylo kr\u010den\u00ed ukazov\u00e1\u010dku lev\u00e9 ruky, celkov\u00e1 slabost horn\u00edch kon\u010detin a \u010dast\u011bj\u0161\u00ed zakop\u00e1v\u00e1n\u00ed,\u201c popisuje Luk\u00e1\u0161ova man\u017eelka Iveta Adamcov\u00e1 zm\u011bny, kter\u00e9 za\u010dali v rodin\u011b pozorovat.<\/p>\n\n\n\n
Strach a potvrzen\u00ed v\u00e1\u017en\u00e9 diagn\u00f3zy<\/p>\n\n\n\n
P\u0159\u00edznaky onemocn\u011bn\u00ed se ale rychle zhor\u0161ovaly a nemoc se za\u010dala sm\u011brem od horn\u00edch kon\u010detin nezastaviteln\u011b \u0161\u00ed\u0159it. Nejprve c\u00edtil kdysi nad\u0161en\u00fd sportovec rostouc\u00ed slabost, za\u010dala se u n\u011bj zhor\u0161ovat jemn\u00e1 motorika a m\u011bl \u010d\u00edm d\u00e1l t\u00edm v\u011bt\u0161\u00ed probl\u00e9my s uchopov\u00e1n\u00edm v\u011bc\u00ed.<\/p>\n\n\n\n
\u201eP\u0159idaly se i svalov\u00e9 z\u00e1\u0161kuby po cel\u00e9m t\u011ble. S p\u0159ib\u00fdvaj\u00edc\u00edmi obt\u00ed\u017eemi jsme se za\u010dali ob\u00e1vat v\u00e1\u017en\u011bj\u0161\u00ed diagn\u00f3zy. K l\u00e9ka\u0159i se man\u017eel rozhodl j\u00edt ve chv\u00edli, kdy mu z ruky vypadla pokli\u010dka od hrnce a rozbila varnou desku. To u\u017e jsme si v\u0161ichni \u0159\u00edkali, \u017ee se d\u011bje n\u011bco v\u00e1\u017en\u00e9ho,\u201c \u0159\u00edk\u00e1 Iveta Adamcov\u00e1.<\/p>\n\n\n\n
L\u00e9ka\u0159i n\u00e1sledn\u011b Luk\u00e1\u0161ovi diagnostikovali onemocn\u011bn\u00ed, je\u017e je bohu\u017eel v sou\u010dasn\u00e9 dob\u011b nel\u00e9\u010diteln\u00e9. Pr\u016fb\u011bh nemoci se li\u0161\u00ed p\u0159\u00edpad od p\u0159\u00edpadu a je v\u017edy velmi obt\u00ed\u017en\u00e9 p\u0159edpov\u00eddat dal\u0161\u00ed v\u00fdvoj.<\/p>\n\n\n\n
L\u00e9\u010dba zat\u00edm neexistuje<\/p>\n\n\n\n
Amyotrofick\u00e1 later\u00e1ln\u00ed skler\u00f3za je degenerativn\u00ed nervosvalov\u00e9 onemocn\u011bn\u00ed postihuj\u00edc\u00ed nervov\u00e9 bu\u0148ky v mozku a m\u00ed\u0161e.<\/p>\n\n\n\n
\u201ePokud tyto bu\u0148ky nefunguj\u00ed nebo odum\u0159ou, mozek nedok\u00e1\u017ee ovl\u00e1dat svaly a jejich pohyby. Ty pak postupn\u011b sl\u00e1bnou a atrofuj\u00ed. Jedn\u00e1 se o nemoc, na kterou dosud neexistuje l\u00e9\u010dba. V posledn\u00edch letech v\u0161ak prob\u00edh\u00e1 velmi intenzivn\u00ed v\u00fdzkum a do\u0161lo k n\u011bkolika kl\u00ed\u010dov\u00fdm objev\u016fm,\u201c popisuje onemocn\u011bn\u00ed spolek ALSA, kter\u00fd se v \u010cesk\u00e9 republice jako jedin\u00fd t\u00edmto onemocn\u011bn\u00edm zab\u00fdv\u00e1.<\/p>\n\n\n\n
Mezi typick\u00e9 p\u0159\u00edznaky ALS podle N\u00e1rodn\u00edho institutu neurologick\u00fdch poruch a c\u00e9vn\u00ed mozkov\u00e9 p\u0159\u00edhody pat\u0159\u00ed:<\/p>\n\n\n\n
svalov\u00e9 z\u00e1\u0161kuby v ruce, noze nebo jazyku<\/p>\n\n\n\n
svalov\u00e9 k\u0159e\u010de<\/p>\n\n\n\n
napjat\u00e9 svaly (spasticita)<\/p>\n\n\n\n
svalov\u00e1 slabost<\/p>\n\n\n\n
nez\u0159eteln\u00e1 nosov\u00e1 \u0159e\u010d<\/p>\n\n\n\n
pot\u00ed\u017ee s polyk\u00e1n\u00edm \u010di \u017ev\u00fdk\u00e1n\u00edm<\/p>\n\n\n\n
\u201eV\u011bt\u0161ina lid\u00ed, u kter\u00fdch se ALS rozvine, je ve v\u011bku \u010dty\u0159icet a\u017e sedmdes\u00e1t let. Pr\u016fm\u011brn\u00fd v\u011bk v dob\u011b diagn\u00f3zy je pades\u00e1t p\u011bt let. Objevuj\u00ed se v\u0161ak p\u0159\u00edpady i mezi mlad\u0161\u00edmi lidmi,\u201c p\u00ed\u0161e o onemocn\u011bn\u00ed americk\u00e1 asociace ALS.<\/p>\n\n\n\n
Mezi n\u011b pat\u0159\u00ed i Luk\u00e1\u0161 Adamec, kter\u00e9mu byla nemoc diagnostikov\u00e1na p\u0159ed dovr\u0161en\u00edm v\u011bku 40 let. Za posledn\u00ed rok se nav\u00edc jeho stav v\u00fdrazn\u011b zhor\u0161il.<\/p>\n\n\n\n
\u201eL\u00e9ka\u0159i n\u00e1m \u0159ekli, \u017ee je toto onemocn\u011bn\u00ed v t\u011ble naprogramov\u00e1no u\u017e od narozen\u00ed. Bu\u0148ky zdrav\u00e9ho \u010dlov\u011bka jsou pr\u00fd obecn\u011b nastaven\u00e9 zhruba na sto dvacet let \u017eivota. Luk\u00e1\u0161ovy bohu\u017eel na mnohem krat\u0161\u00ed dobu. Jakou, to nedok\u00e1\u017ee nikdo \u0159\u00edct,\u201c \u0159\u00edk\u00e1 Iveta Adamcov\u00e1.<\/p>\n\n\n\n
\u201eNemoc jsem p\u0159ijmul. Beru to tak, jak to je. \u017diju podle toho, co mi ALS dovol\u00ed,\u201c dod\u00e1v\u00e1 sm\u00ed\u0159en\u011b dnes 37let\u00fd Luk\u00e1\u0161 Adamec.<\/p>\n\n\n\n
Jak Luk\u00e1\u0161e Adamce podpo\u0159it<\/p>\n\n\n\n
Mu\u017ee, kter\u00fd v nejlep\u0161\u00edch letech onemocn\u011bl fat\u00e1ln\u00ed diagn\u00f3zou, lze podpo\u0159it prost\u0159ednictv\u00edm sb\u00edrky na dobro\u010dinn\u00e9 platform\u011b Donio: https:\/\/donio.cz\/jdemeslukasem?fbclid=IwY2xjawEUDsVleHRuA2FlbQIxMAABHY38tHe5i7WQXykCLwH2m_XtEwTCVFtP9UorhNrEiPvIj5gN_b6gVvqFAg_aem_Ht_YgUz-wLIgbBruAx-Vbw<\/a>. Na nezbytnou rekonstrukci bydlen\u00ed, nov\u00fd invalidn\u00ed voz\u00edk, kompenza\u010dn\u00ed zdravotn\u00ed pom\u016fcky, l\u00e1ze\u0148sk\u00e9 pobyty a dal\u0161\u00ed pot\u0159eby se sna\u017e\u00ed Luk\u00e1\u0161ovi kamar\u00e1di vybrat 4 720 000 korun.<\/p>\n\n\n\n Zat\u00edm se do sb\u00edrky zapojilo v\u00edce ne\u017e 1 100 d\u00e1rc\u016f, kte\u0159\u00ed dohromady p\u0159isp\u011bli \u010d\u00e1stkou p\u0159esahuj\u00edc\u00ed 2,4 milionu korun. To i podle charitativn\u00edho webu Jdeme s Luk\u00e1\u0161em znamen\u00e1, \u017ee rodina m\u016f\u017ee po\u0159\u00eddit zdravotnick\u00e9 pom\u016fcky, zaplatit rehabilitace a po\u0159\u00eddit speci\u00e1ln\u011b upraven\u00fd automobil. Tolik pot\u0159ebn\u00e9 bezbari\u00e9rov\u00e9 bydlen\u00ed je v\u0161ak st\u00e1le v nedohlednu.<\/p>\n\n\n\n Podpo\u0159it Luk\u00e1\u0161e Adamce bylo mo\u017en\u00e9 i prost\u0159ednictv\u00edm dra\u017eby podepsan\u00e9ho hran\u00e9ho dresu fotbalisty Ladislava Krej\u010d\u00edho z v\u00fdro\u010dn\u00edho utk\u00e1n\u00ed 26. 11. 2023. Ten den slavila AC Sparta Praha 130 let od sv\u00e9ho zalo\u017een\u00ed. Dra\u017eilo se na prvn\u00ed dobro\u010dinn\u00e9 auk\u010dn\u00ed platform\u011b v \u010cesku Dobrobot.<\/p>\n\n\n\n Z dat spolku ALSA vypl\u00fdv\u00e1, \u017ee se nemoc ka\u017ed\u00fd rok nov\u011b objev\u00ed u 2 lid\u00ed na 100 tis\u00edc obyvatel. 20 % lid\u00ed s ALS \u017eije d\u00e9le ne\u017e 5 let, 10 % \u017eije v\u00edce ne\u017e 10 let a 5 % se do\u017e\u00edv\u00e1 20 let a v\u00edce. Ka\u017ed\u00fdch 90 minut je na sv\u011bt\u011b nemoc n\u011bkomu diagnostikov\u00e1na a n\u011bkdo na ni zem\u0159e.<\/p>\n\n\n\n Kate\u0159ina N\u011bmcov\u00e1<\/p>\n\n\n\n Den\u00edk.cz<\/p>\n\n\n\n https:\/\/www.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" N\u00e1v\u0161t\u011bvu l\u00e9ka\u0159e odkl\u00e1dal 37let\u00fd Luk\u00e1\u0161 Adamec z \u010cesk\u00e9 T\u0159ebov\u00e9 rok. Ob\u010dasn\u00e9 bolesti zad a k\u0159e\u010de p\u0159isuzoval zpo\u010d\u00e1tku nadm\u011brn\u00e9mu fyzick\u00e9mu zat\u00ed\u017een\u00ed. Zhor\u0161uj\u00edc\u00ed se p\u0159\u00edznaky a postupn\u00e9 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":13669,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-51172","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/51172","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=51172"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/51172\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/13669"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=51172"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=51172"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=51172"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}