{"id":51727,"date":"2024-09-04T09:52:01","date_gmt":"2024-09-04T07:52:01","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=51727"},"modified":"2024-09-04T09:52:02","modified_gmt":"2024-09-04T07:52:02","slug":"caste-a-urputne-bolesti-hlavy-diky-biologicke-lecbe-minulost","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=51727","title":{"rendered":"\u010cast\u00e9 a urputn\u00e9 bolesti hlavy? D\u00edky biologick\u00e9 l\u00e9\u010db\u011b minulost"},"content":{"rendered":"\n

Pacient\u016fm s migr\u00e9nou ubyly ataky i deprese<\/em><\/p>\n\n\n\n

Des\u00edtky dn\u016f utrpen\u00ed v\u00a0m\u011bs\u00edci, bezhlav\u00e9 polyk\u00e1n\u00ed pr\u00e1\u0161k\u016f proti bolestem hlavy, nulov\u00e1 schopnost fungovat doma i v\u00a0pr\u00e1ci \u2013 to v\u0161e je minulost pro pacienty s migr\u00e9nou, kte\u0159\u00ed se dostali k\u00a0biologick\u00e9 l\u00e9\u010db\u011b. Vypl\u00fdv\u00e1 to z\u00a0nov\u00fdch dat \u010cesk\u00e9ho <\/strong>registru pacient\u016f s\u00a0migr\u00e9nou na biologick\u00e9 terapii (ReMig). Data jasn\u011b ukazuj\u00ed, \u017ee tento typ l\u00e9\u010dby u pat\u0159i\u010dn\u00fdch pacient\u016f zab\u00edr\u00e1. Zvy\u0161uje kvalitu jejich \u017eivota a p\u0159in\u00e1\u0161\u00ed \u00faspory zdravotn\u00edmu syst\u00e9mu. Ne\u017e se ale pacienti s\u00a0migr\u00e9nou doberou spr\u00e1vn\u00e9 diagn\u00f3zy a dostanou k\u00a0pot\u0159ebn\u00e9 l\u00e9\u010db\u011b, trv\u00e1 mnohdy dlouh\u00e9 roky.<\/strong><\/p>\n\n\n\n

\u201eU nemocn\u00fdch, kte\u0159\u00ed podstupuj\u00ed biologickou l\u00e9\u010dbu, v\u00fdznamn\u011b kles\u00e1 pot\u0159eba tzv. akutn\u00ed terapie migr\u00e9ny. Pacienti tak sahaj\u00ed mnohem m\u00e9n\u011b po b\u011b\u017en\u00fdch pr\u00e1\u0161c\u00edch proti bolesti,\u201c<\/em> popisuje MUDr. Tom\u00e1\u0161 Ne\u017e\u00e1dal, Ph.D., z Neurologick\u00e9ho odd\u011blen\u00ed \u00dast\u0159edn\u00ed vojensk\u00e9 nemocnice Praha a z\u00e1rove\u0148 p\u0159edseda Sekce pro diagnostiku a l\u00e9\u010dbu bolesti hlavy \u010cesk\u00e9 neurologick\u00e9 spole\u010dnosti \u010cLS JEP. Jak vypl\u00fdv\u00e1 ze souhrnn\u00fdch dat registru ReMig za rok 2023, p\u0159ed za\u010d\u00e1tkem biologick\u00e9 l\u00e9\u010dby pot\u0159ebovali sledovan\u00ed pacienti tablety na bolest hlavy v pr\u016fm\u011bru 8 dn\u00ed v m\u011bs\u00edci. Po 6 m\u011bs\u00edc\u00edch l\u00e9\u010dby u nich v\u0161ak do\u0161lo k poklesu na 2,3 dne za m\u011bs\u00edc. \u201eS t\u00edm samoz\u0159ejm\u011b souvis\u00ed i v\u00fdrazn\u011b ni\u017e\u0161\u00ed po\u010det dn\u00ed s migr\u00e9nou za m\u011bs\u00edc. P\u0159ed nasazen\u00edm biologick\u00e9 l\u00e9\u010dby pacienti pro\u017e\u00edvali pr\u016fm\u011brn\u011b 11,6 dne s atakou nemoci. Pot\u00e9 do\u0161lo ke zna\u010dn\u00e9mu poklesu, a to u\u017e od prvn\u00ed kontroln\u00ed n\u00e1v\u0161t\u011bvy po 3 m\u011bs\u00edc\u00edch l\u00e9\u010dby \u2013 na 4,2 dne s migr\u00e9nou za m\u011bs\u00edc,\u201c<\/em> \u0159\u00edk\u00e1 neurolog. P\u0159ipom\u00edn\u00e1, \u017ee pr\u00e1v\u011b akutn\u00ed l\u00e9ky na ti\u0161en\u00ed bolesti p\u0159i dlouhodob\u00e9m pou\u017e\u00edv\u00e1n\u00ed naopak migr\u00e9nu zhor\u0161uj\u00ed.<\/p>\n\n\n\n

S migr\u00e9nou se v \u010cesk\u00e9 republice pot\u00fdk\u00e1 p\u0159es milion osob. Na biologickou terapii maj\u00ed n\u00e1rok ti pacienti, kte\u0159\u00ed trp\u00ed v\u00edce ne\u017e \u010dty\u0159mi z\u00e1chvaty migr\u00e9ny za m\u011bs\u00edc a nezab\u00edr\u00e1 jim preventivn\u00ed l\u00e9\u010dba. \u201eJedn\u00e1 se o<\/em> prvn\u00ed c\u00edlenou terapii migr\u00e9ny. N\u011bkte\u0159\u00ed pacienti s chronickou migr\u00e9nou jsou d\u00edky biologick\u00e9 l\u00e9\u010db\u011b zcela bez bolest\u00ed,\u201c <\/em>vysv\u011btluje MUDr. Tom\u00e1\u0161 Ne\u017e\u00e1dal. Biologick\u00e1 terapie podle n\u011bj na jedn\u00e9 stran\u011b p\u0159isp\u00edv\u00e1 ke zv\u00fd\u0161en\u00ed kvality \u017eivota nemocn\u00fdch, na stran\u011b druh\u00e9 p\u0159in\u00e1\u0161\u00ed i ekonomick\u00e9 \u00faspory. To potvrzuj\u00ed i data registru ReMig. Plyne z nich, \u017ee p\u0159i zah\u00e1jen\u00ed biologick\u00e9 l\u00e9\u010dby nadu\u017e\u00edvalo akutn\u00ed medikaci 34,1 % pacient\u016f, po t\u0159ech m\u011bs\u00edc\u00edch terapie v\u0161ak pod\u00edl t\u011bchto pacient\u016f klesl na pouh\u00fdch 3,6 %. \u201eEfekt biologick\u00e9 l\u00e9\u010dby je jasn\u00fd a v\u00fdrazn\u00fd. Lid\u00e9 d\u00edky n\u00ed funguj\u00ed l\u00e9pe a c\u00edt\u00ed se dob\u0159e i po psychick\u00e9 str\u00e1nce. Nemus\u00ed u\u017e tak \u010dasto sahat po pr\u00e1\u0161c\u00edch nebo jezdit na pohotovost. To v\u0161e \u0161et\u0159\u00ed pen\u00edze zdravotn\u00edmu syst\u00e9mu,\u201c<\/em> dopl\u0148uje neurolog.<\/p>\n\n\n\n

Specializovan\u00e1 centra pro diagnostiku a l\u00e9\u010dbu bolest\u00ed hlavy<\/a>, kde l\u00e9ka\u0159i pacient\u016fm biologickou terapii nasazuj\u00ed, ale podle odborn\u00edk\u016f v n\u011bkter\u00fdch oblastech republiky nar\u00e1\u017e\u00ed na nedostate\u010dn\u00fd po\u010det l\u00e9ka\u0159\u016f a sester i na chyb\u011bj\u00edc\u00ed prostory. \u201eTo n\u00e1m br\u00e1n\u00ed o\u0161et\u0159it v\u00edce pacient\u016f a v krat\u0161\u00edm \u010dase,\u201c <\/em>\u0159\u00edk\u00e1 MUDr. Tom\u00e1\u0161 Ne\u017e\u00e1dal.<\/p>\n\n\n\n

Nemocn\u00ed nav\u00edc mnohdy \u010dekaj\u00ed na spr\u00e1vn\u00e9 ur\u010den\u00ed nemoci, a tedy adekv\u00e1tn\u00ed l\u00e9\u010dbu i roky. \u201eV <\/em>pr\u016fzkumu<\/em><\/a>, kter\u00fd jsme prov\u00e1d\u011bli p\u0159ed dv\u011bma lety, p\u0159ibli\u017en\u011b \u010dtvrtina pacient\u016f uvedla, \u017ee na stanoven\u00ed spr\u00e1vn\u00e9 diagn\u00f3zy \u010dekala v\u00edce ne\u017e p\u011bt let. A 11 % dot\u00e1zan\u00fdch muselo nav\u0161t\u00edvit v\u00edce ne\u017e \u010dty\u0159i specialisty, ne\u017e se dobralo toho, co jim ve skute\u010dnosti je,\u201c<\/em> p\u0159ibli\u017euje p\u0159edsedkyn\u011b pacientsk\u00e1 organizace Migr\u00e9na-help R\u00fdza Bla\u017eejovsk\u00e1. \u201e\u017de probl\u00e9m trv\u00e1, potvrdil i pr\u016fzkum z leto\u0161n\u00edho roku s n\u00e1zvem <\/em>Migr\u00e9na vs. stigma<\/em><\/a>. Pot\u00ed\u017ee s nalezen\u00edm \u00fa\u010dinn\u00e9 l\u00e9\u010dby m\u011bla podle n\u011bj t\u00e9m\u011b\u0159 p\u011btina respondent\u016f,\u201c<\/em> dopl\u0148uje. To je i jeden z d\u016fvod\u016f, pro\u010d organizace Migr\u00e9na-help ka\u017edoro\u010dn\u011b po\u0159\u00e1d\u00e1 festival Migr\u00e9na n\u00e1s spojuje<\/a>. Krom\u011b pacient\u016f na n\u011bj toti\u017e v\u017edy doraz\u00ed tak\u00e9 \u0159ada odborn\u00edk\u016f a nemocn\u00ed se zde dozv\u00ed o nejnov\u011bj\u0161\u00edch trendech v oblasti l\u00e9\u010dby. \u201ePacienti mohou na festivalu zkonzultovat svoje probl\u00e9my i s l\u00e9ka\u0159kou. Leto\u0161n\u00ed ro\u010dn\u00edk se kon\u00e1 v Praze 12. z\u00e1\u0159\u00ed. Na m\u00edst\u011b bude k dispozici neurologick\u00e1 a soci\u00e1ln\u00ed poradna a \u00fa\u010dastn\u00edci se mohou t\u011b\u0161it i na uk\u00e1zky fyzioterapie nebo na osobn\u00ed zku\u0161enosti s migr\u00e9nou zn\u00e1m\u00e9ho \u0161\u00e9fkucha\u0159e Pavla Drdela,\u201c<\/em> p\u0159ibli\u017euje R\u00fdza Bla\u017eejovsk\u00e1 a dod\u00e1v\u00e1, \u017ee nemocn\u00ed se o mo\u017enostech l\u00e9\u010dby mohou dozv\u011bd\u011bt tak\u00e9 v tzv. Cest\u011b pacienta s migr\u00e9nou \u010desk\u00fdm zdravotn\u00edm syst\u00e9mem<\/a>, kterou zpracovala organizace Migr\u00e9na-help.<\/p>\n\n\n\n

Registr ReMig evidoval k 31. 12. 2023 celkem 3 149 pacient\u016f s diagn\u00f3zou migr\u00e9ny, kte\u0159\u00ed jsou nebo byli l\u00e9\u010deni biologickou terapi\u00ed. Pr\u016fm\u011brn\u00fd v\u011bk pacient\u016f v registru je 46 let a p\u0159eva\u017euj\u00ed \u017eeny (87,4 %). Prvn\u00ed z\u00e1chvat migr\u00e9ny m\u011bli sledovan\u00ed pacienti nej\u010dast\u011bji ve v\u011bku 10\u201319 let (50,1 %). U 65,2 % pacient\u016f byla migr\u00e9na zaznamen\u00e1na i v rodinn\u00e9 anamn\u00e9ze. Sou\u010d\u00e1st\u00ed souhrnn\u00fdch dat registru jsou v\u00fdstupy z pacientsk\u00fdch dotazn\u00edk\u016f. Z nich vypl\u00fdv\u00e1, \u017ee biologick\u00e1 l\u00e9\u010dba v\u00fdznamn\u011b ovliv\u0148uje tak\u00e9 deprese nemocn\u00fdch. V dob\u011b zah\u00e1jen\u00ed aktu\u00e1ln\u00ed l\u00e9\u010dby bylo bez deprese celkem 24,3 % pacient\u016f. St\u0159edn\u00ed depresi m\u011blo 20,1 % nemocn\u00fdch a z\u00e1va\u017enou formu deprese 3,5 % pacient\u016f. Po roce l\u00e9\u010dby bylo bez deprese 57 % pacient\u016f, st\u0159edn\u00ed depresi m\u011blo 6,7 % nemocn\u00fdch a z\u00e1va\u017enou 1,1 % pacient\u016f.<\/p>\n\n\n\n

O l\u00e9\u010db\u011b migr\u00e9ny<\/strong><\/p>\n\n\n\n

V sou\u010dasn\u00e9 dob\u011b je na migr\u00e9nu k dispozici \u00fa\u010dinn\u00e1 l\u00e9\u010dba, kter\u00e1 se d\u011bl\u00ed na akutn\u00ed a preventivn\u00ed. V p\u0159\u00edpad\u011b, \u017ee m\u00e1 pacient do \u010dty\u0159 dn\u00ed s migr\u00e9nou (MMD) do m\u011bs\u00edce a pom\u016f\u017ee mu od bolesti tableta l\u00e9ku ze skupiny triptan\u016f, sta\u010d\u00ed akutn\u00ed l\u00e9\u010dba a nen\u00ed t\u0159eba nasazovat l\u00e9\u010dbu preventivn\u00ed. Ov\u0161em p\u0159i vy\u0161\u0161\u00edm po\u010dtu dn\u016f s migr\u00e9nou (\u010dty\u0159i a v\u00edce do m\u011bs\u00edce) doch\u00e1z\u00ed k v\u00fdrazn\u00e9mu sn\u00ed\u017een\u00ed kvality \u017eivota pacienta. Zde je vhodn\u00e9 nasadit preventivn\u00ed (tzv. profylaktickou) l\u00e9\u010dbu, jej\u00edm\u017e c\u00edlem je sn\u00ed\u017eit po\u010det a intenzitu z\u00e1chvat\u016f a omezit d\u00e9lku jejich trv\u00e1n\u00ed. V\u00edce o migr\u00e9n\u011b na www.migrena-kompas.cz<\/a>.<\/p>\n\n\n\n

O registru ReMig<\/strong><\/p>\n\n\n\n

Registr ReMig je \u010desk\u00fd registr pacient\u016f s migr\u00e9nou na biologick\u00e9 terapii. Registr byl zalo\u017een v roce 2021 a spr\u00e1vcem je Nada\u010dn\u00ed fond Hedalga ve spolupr\u00e1ci s v\u00fdborem Sekce pro diagnostiku a l\u00e9\u010dbu bolest\u00ed hlavy \u010cesk\u00e9 neurologick\u00e9 spole\u010dnosti \u010cLS JEP (Czech Headache Society). Provoz registru, technick\u00e9 zabezpe\u010den\u00ed a anal\u00fdzu dat zaji\u0161\u0165uje spole\u010dnost VALUE OUTCOMES s.r.o., kter\u00e1 je sou\u010dasn\u011b zpracovatelem osobn\u00edch \u00fadaj\u016f v r\u00e1mci registru. V\u00edce informac\u00ed na ReMig \u2013 Nada\u010dn\u00ed font HEDALGA<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

Pacient\u016fm s migr\u00e9nou ubyly ataky i deprese Des\u00edtky dn\u016f utrpen\u00ed v\u00a0m\u011bs\u00edci, bezhlav\u00e9 polyk\u00e1n\u00ed pr\u00e1\u0161k\u016f proti bolestem hlavy, nulov\u00e1 schopnost fungovat doma i v\u00a0pr\u00e1ci \u2013 to v\u0161e […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":10615,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-51727","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/51727","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=51727"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/51727\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/10615"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=51727"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=51727"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=51727"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}