Hekovi bojuj\u00ed o budoucnost sv\u00e9ho d\u00edt\u011bte. Podle progn\u00f3z m\u011bl b\u00fdt z jejich syna nemluv\u00edc\u00ed le\u017e\u00e1k, chlapce ale postupn\u011b rozchodili a \u010d\u00e1ste\u010dn\u011b rozmluvili. L\u00e9\u010dba stoj\u00ed velk\u00e9 pen\u00edze, krom\u011b toho rodi\u010de plat\u00ed hypot\u00e9ku a dosluhuje jim auto. P\u0159\u00edb\u011bh rodiny z Kadan\u011b p\u0159in\u00e1\u0161\u00ed dal\u0161\u00ed d\u00edl seri\u00e1lu Den\u00edku Ned\u00e1me je do \u00fastavu.<\/p>\n\n\n\n
Zde\u0148ka Hekov\u00e1 s man\u017eelem Janem \u017eij\u00ed v severo\u010desk\u00e9 Kadani a vychov\u00e1vaj\u00ed osmiletou Emily a p\u011btilet\u00e9ho Honz\u00edka, jen\u017e m\u00e1 od narozen\u00ed kombinovan\u00e9 posti\u017een\u00ed. V\u00fd\u010det jeho diagn\u00f3z je dlouh\u00fd – m\u00e1 epilepsii, autismus, lehkou ment\u00e1ln\u00ed retardaci, sm\u00ed\u0161enou dysf\u00e1zii, tupozrakost, slabozrakost, opo\u017ed\u011bn\u00fd psychomotorick\u00fd v\u00fdvoj a n\u00edzk\u00e9 svalov\u00e9 nap\u011bt\u00ed.<\/p>\n\n\n\n
Podle progn\u00f3z z n\u011bj m\u011bl vyr\u016fst le\u017e\u00edc\u00ed pacient. \u201eTak jsme se rozhodli, \u017ee prost\u011b le\u017e\u00e1k nebude, a zamak\u00e1me. P\u011btkr\u00e1t denn\u011b jsme cvi\u010dili Vojtovu metodu,\u201c \u0159\u00edk\u00e1 odhodlan\u011b maminka.<\/p>\n\n\n\n
Ov\u0161em postupn\u011b p\u0159ich\u00e1zely dal\u0161\u00ed a dal\u0161\u00ed diagn\u00f3zy. \u201eM\u011bli jsme krizi, bre\u010dela jsem, \u017ee u\u017e to nezvl\u00e1dnu a d\u00e1m ho do \u00fastavu. Jen\u017ee Honz\u00edk byl usm\u011bvav\u00fd a d\u011blal pokroky. A to n\u00e1s nab\u00edjelo. Ka\u017ed\u00fd jeho nov\u00fd posun mi \u0159\u00edkal, \u017ee to m\u00e1 smysl,\u201c vzpom\u00edn\u00e1 Zde\u0148ka Hekov\u00e1.<\/p>\n\n\n\n
Kdy\u017e za\u010dali jezdit do l\u00e1zn\u00ed, vid\u011bla, \u017ee mnoh\u00e9 d\u011bti jsou na tom daleko h\u016f\u0159. A \u017ee i kdy\u017e se maminky sna\u017e\u00ed a d\u0159ou, ned\u011blaj\u00ed pokroky v\u016fbec.<\/p>\n\n\n\n
Nejt\u011b\u017e\u0161\u00ed je pr\u00fd zvl\u00e1dat synovy z\u00e1chvaty vzteku. Kdy\u017e ho n\u011bco tr\u00e1p\u00ed, sval\u00ed se, k\u0159i\u010d\u00ed a ml\u00e1t\u00ed hlavou o zem. \u201eAle v\u016fbec nejt\u011b\u017e\u0161\u00ed je, kdy\u017e se to stane na ve\u0159ejnosti a lidi mi nad\u00e1vaj\u00ed, \u017ee m\u00e1m nevychovan\u00e9ho spratka a \u017ee si ho m\u00e1m uklidnit,\u201c popisuje nelehk\u00e9 chv\u00edle \u017eena.<\/p>\n\n\n\n
Lidi koukaj\u00ed, maj\u00ed pozn\u00e1mky<\/p>\n\n\n\n
Proto moc hocha nebere na d\u011btsk\u00e1 h\u0159i\u0161t\u011b. \u201eLidi na syna v\u017edycky tak divn\u011b koukaj\u00ed a maj\u00ed pozn\u00e1mky. Mysl\u00edm, \u017ee tu chyb\u00ed v\u011bt\u0161\u00ed informovanost o handicapovan\u00fdch d\u011btech a o tom, jak se jejich posti\u017een\u00ed projevuje,\u201c l\u00ed\u010d\u00ed.<\/p>\n\n\n\n
Honz\u00edk doned\u00e1vna chodil do b\u011b\u017en\u00e9 \u0161kolky a m\u011bl svou asistentku. Jen\u017ee kdy\u017e nep\u0159i\u0161la nebo byla nemocn\u00e1, matka si ho musela vz\u00edt dom\u016f. T\u00edm se j\u00ed hodn\u011b komplikovalo hled\u00e1n\u00ed a udr\u017een\u00ed zam\u011bstn\u00e1n\u00ed.<\/p>\n\n\n\n
Kdy\u017e mu byly t\u0159i roky, skon\u010dila Zde\u0148ce rodi\u010dovsk\u00e1 dovolen\u00e1. Chlapci nejprve \u00fa\u0159ady uznaly jen prvn\u00ed stupe\u0148 p\u0159\u00edsp\u011bvku na p\u00e9\u010di, co\u017e u d\u011bt\u00ed \u010din\u00ed 3300 korun. \u201eS t\u00edm jsme nemohli dv\u011b d\u011bti u\u017eivit, i kdy\u017e man\u017eel d\u011bl\u00e1 na t\u0159\u00edsm\u011bnn\u00fd provoz. Kontaktovala jsem mistrovou z fabriky, kde jsem p\u0159ed mate\u0159skou d\u011blala. Ta na\u0161t\u011bst\u00ed m\u011bla pochopen\u00ed pro na\u0161i situaci a mohu tam pracovat n\u00e1razov\u011b, kdy\u017e je Honz\u00edk ve \u0161kolce a nem\u00e1 \u017e\u00e1dn\u00e9 l\u00e9ka\u0159e. Tak\u017ee jsem je\u0161t\u011b m\u011bla \u0161t\u011bst\u00ed,\u201c vypr\u00e1v\u00ed maminka.<\/p>\n\n\n\n
M\u011bs\u00ed\u010dn\u011b si vyd\u011bl\u00e1 p\u011bt a\u017e deset tis\u00edc korun. \u010c\u00e1st pen\u011bz si ukl\u00e1d\u00e1 stranou, aby nast\u0159\u00e1dala pen\u00edze na l\u00e1zn\u011b, kter\u00e9 synovi velmi prosp\u00edvaj\u00ed. Jeliko\u017e man\u017eel\u00e9 spl\u00e1cej\u00ed hypot\u00e9ku, za\u010dala chodit je\u0161t\u011b na dal\u0161\u00ed brig\u00e1du. Vypom\u00e1h\u00e1 jako u\u010ditelka plav\u00e1n\u00ed.<\/p>\n\n\n\n
Honz\u00edka ve t\u0159\u00edd\u011b necht\u011bj\u00ed, sepsali petici<\/p>\n\n\n\n
Syn ned\u00e1vno dostal ve \u0161kolce novou asistentku, nezvykl si na ni a k\u0159i\u010del. L\u00e9ka\u0159 mu nasadil antidepresiva, kter\u00e1 ho zklid\u0148ovala. Jen\u017ee rodi\u010de ostatn\u00edch d\u011bt\u00ed ze \u0161kolky mezit\u00edm napsali petici, \u017ee Honz\u00edka ve t\u0159\u00edd\u011b necht\u011bj\u00ed. Proto bude nyn\u00ed p\u0159estupovat do nult\u00e9ho ro\u010dn\u00edku speci\u00e1ln\u00ed \u0161koly.<\/p>\n\n\n\n
V Kadani nav\u00edc nejsou dostupn\u00e9 specializovan\u00e9 terapie nebo takzvan\u00e1 snoezelen, tedy multisenzorick\u00e1 stimulace. Odehr\u00e1v\u00e1 se multifunk\u010dn\u00ed m\u00edstnosti, v n\u00ed\u017e p\u0159edm\u011bty blikaj\u00ed, vibruj\u00ed a vyd\u00e1vaj\u00ed zvuky. Snoezelen dok\u00e1\u017ee uklidnit a uvolnit autistick\u00e9 d\u011bti. A tak\u00e9 Honz\u00edk ji miluje.<\/p>\n\n\n\n
Postupn\u00fdmi kr\u016f\u010dky a finan\u010dn\u011b n\u00e1ro\u010dn\u00fdmi terapiemi Zde\u0148ka zvl\u00e1dla, aby syn nepot\u0159eboval plenky, nebo aby se nau\u010dil alespo\u0148 p\u00e1r slov a mohl s nimi n\u011bjak komunikovat. \u201eU\u017e jsme na sedmdes\u00e1ti slovech, co\u017e znamen\u00e1 velk\u00fd pokrok. U\u017e si um\u00ed \u0159\u00edct o n\u011bkter\u00e9 v\u011bci,\u201c konstatuje spokojen\u011b.<\/p>\n\n\n\n
Z\u00e1rove\u0148 ale dod\u00e1v\u00e1, \u017ee v\u0161echny odborn\u00e9 procedury rodinu st\u00e1li mno\u017estv\u00ed pen\u011bz. A v\u00fdsledkem Honz\u00edkova pokroku bude, \u017ee mu \u00fa\u0159ady sn\u00ed\u017e\u00ed p\u0159\u00edsp\u011bvek na p\u00e9\u010di. Na chv\u00edli toti\u017e dostal druh\u00fd stupe\u0148 a nyn\u00ed p\u0159i p\u0159ezkoum\u00e1n\u00ed z\u0159ejm\u011b znovu klesne na nejni\u017e\u0161\u00ed, nebo\u0165 se mu sn\u00ed\u017e\u00ed po\u010det \u010dinnost\u00ed, kter\u00e9 nezvl\u00e1d\u00e1.<\/p>\n\n\n\n
Z MHD m\u00e1 Honz\u00edk paniku<\/p>\n\n\n\n
Finan\u010dn\u011b zat\u00edm Hekov\u00fdm pom\u00e1h\u00e1 charitativn\u00ed projekt Patron d\u011bt\u00ed, jen\u017e sh\u00e1n\u00ed d\u00e1rce pro zdravotn\u011b a soci\u00e1ln\u011b znev\u00fdhodn\u011bn\u00e9 d\u011bti a jejich rodiny. Tyto pen\u00edze v\u0161ak Honz\u00edkov\u00fdm rodi\u010d\u016fm nesta\u010d\u00ed na jejich sou\u010dasn\u00fd velk\u00fd probl\u00e9m – dosluhuje jim jejich star\u00e9 auto.<\/p>\n\n\n\n
Podali si proto \u017e\u00e1dost o p\u0159\u00edsp\u011bvek na motorov\u00e9 vozidlo a nyn\u00ed \u010dekaj\u00ed, zda ho dostanou. \u201eNev\u00edm, co bychom d\u011blali, Honz\u00edk m\u00e1 z ve\u0159ejn\u00e9 dopravy paniku. K\u0159i\u010d\u00ed, po\u0159\u00e1d n\u011bkam zal\u00e9z\u00e1 a v\u0161e chce rozmontovat,\u201c rozva\u017euje Zde\u0148ka.<\/p>\n\n\n\n
Dod\u00e1v\u00e1, \u017ee by jim sta\u010dilo jak\u00e9koliv star\u00e9 funk\u010dn\u00ed auto. \u201eHlavn\u011b, aby n\u00e1s dovezlo do l\u00e1zn\u00ed v Ko\u0161umberku. Tam syn toti\u017e d\u011bl\u00e1 obrovsk\u00e9 pokroky,\u201c vysv\u011btluje.<\/p>\n\n\n\n
Na dotaz, jak\u00e9 jin\u00e9 p\u0159\u00e1n\u00ed by m\u011bla do budoucna, se na chv\u00edli zamysl\u00ed a pak \u0159\u00edk\u00e1, \u017ee by si p\u0159\u00e1la dostupn\u011bj\u0161\u00ed speci\u00e1ln\u00ed \u0161kolky a \u0161koly, l\u00e9pe pro\u0161kolen\u00e9 asistentky, v\u011bt\u0161\u00ed dostupnost zdravotnick\u00e9ho person\u00e1lu, v\u00edce bezplatn\u00fdch terapi\u00ed a tak\u00e9 v\u011bt\u0161\u00ed finan\u010dn\u00ed podporu od st\u00e1tu.<\/p>\n\n\n\n
Po chvilce je\u0161t\u011b dod\u00e1v\u00e1: \u201eA tak\u00e9 bych si moc p\u0159\u00e1la, aby bylo v ka\u017ed\u00e9m m\u011bst\u011b aspo\u0148 jedno speci\u00e1ln\u00ed h\u0159i\u0161t\u011b pouze pro handicapovan\u00e9 d\u011bti. Aby zdravotn\u00edci m\u011bli s posti\u017een\u00fdmi d\u011btmi v\u00edce trp\u011blivosti. A aby byli \u010ce\u0161i v\u00edce informovan\u00ed, \u017ee jsou i jin\u00ed lid\u00e9. Cht\u011bla bych zkr\u00e1tka lep\u0161\u00ed \u017eivot a budoucnost pro v\u0161echny posti\u017een\u00e9 d\u011bti.\u201c<\/p>\n\n\n\n
Ned\u00e1me je do \u00fastavu<\/p>\n\n\n\n
O sv\u00e9 p\u0159\u00edbuzn\u00e9 doma pe\u010duje a\u017e milion lid\u00ed. Zhruba 200 tis\u00edc \u010cech\u016f ale kv\u016fli p\u00e9\u010di o sv\u00e9 bl\u00edzk\u00e9 nezvl\u00e1d\u00e1 pracovat na pln\u00fd \u00favazek, pot\u00fdk\u00e1 se s nedostatkem pen\u011bz, mimo\u0159\u00e1dn\u00fdm stresem, spole\u010denskou izolac\u00ed a leckdy i rozpadem partnersk\u00fdch vztah\u016f. P\u0159esto se sna\u017e\u00ed v\u0161e zvl\u00e1dnout, aby nemuseli d\u00e1t t\u011b\u017ece nemocn\u00e9ho bl\u00edzk\u00e9ho do \u00fastavn\u00ed p\u00e9\u010de. T\u00edm st\u00e1tu \u0161et\u0159\u00ed spoustu pen\u011bz.<\/p>\n\n\n\n
Jejich osudy se zab\u00fdv\u00e1 nov\u00fd seri\u00e1l Den\u00edku.cz a organizace Neviditeln\u00ed Ned\u00e1me je do \u00fastavu.<\/p>\n\n\n\n
Pot\u00fdk\u00e1te se tak\u00e9 s p\u00e9\u010d\u00ed o sv\u00e9 nemohouc\u00ed bl\u00edzk\u00e9? Napi\u0161te n\u00e1m sv\u016fj p\u0159\u00edb\u011bh na email zuzana.hronova@denik.cz.<\/p>\n\n\n\n
Zuzana Hronov\u00e1<\/p>\n\n\n\n
Den\u00edk.cz<\/p>\n\n\n\n
https:\/\/www.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Hekovi bojuj\u00ed o budoucnost sv\u00e9ho d\u00edt\u011bte. Podle progn\u00f3z m\u011bl b\u00fdt z jejich syna nemluv\u00edc\u00ed le\u017e\u00e1k, chlapce ale postupn\u011b rozchodili a \u010d\u00e1ste\u010dn\u011b rozmluvili. L\u00e9\u010dba stoj\u00ed velk\u00e9 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":38606,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-52421","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/52421","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=52421"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/52421\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/38606"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=52421"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=52421"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=52421"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}