Emmi\u010dka m\u00edvala u\u017e od d\u011btstv\u00ed v\u00e1\u017en\u00e9 zdravotn\u00ed probl\u00e9my. To, co se j\u00ed ale p\u0159ihodilo po operaci kr\u010dn\u00edch a nosn\u00edch mandl\u00ed, ji nen\u00e1vratn\u011b p\u0159ipravilo o zdrav\u00ed. Hol\u010di\u010dka toti\u017e celou noc krv\u00e1cela do mozku, ani\u017e by to kdokoli tu\u0161il. Dnes jeden\u00e1ctilet\u00e1 sle\u010dna z Karlov\u00fdch Var\u016f se kv\u016fli b\u011b\u017en\u00e9mu z\u00e1kroku v\u00fdvojov\u011b zastavila ve v\u011bku p\u011bti let. Trp\u00ed \u010detn\u00fdmi poruchami a jej\u00ed stav se v n\u011bkter\u00fdch ohledech d\u00e1le zhor\u0161uje. Emmina maminka se nyn\u00ed sna\u017e\u00ed vybrat pen\u00edze, aby pomohla dce\u0159i k lep\u0161\u00ed budoucnosti a alespo\u0148 \u010d\u00e1ste\u010dn\u00e9 samostatnosti. Vyhl\u00eddky v\u0161ak nejsou dobr\u00e9.<\/p>\n\n\n\n
Emmi\u010dka se narodila jako zdrav\u00e1 hol\u010di\u010dka. Po n\u011bkolika m\u011bs\u00edc\u00edch se v\u0161ak u n\u00ed za\u010daly objevovat \u010dast\u00e9 infekce, opakovan\u00e9 z\u00e1paly plic, z\u00e1n\u011bty pr\u016fdu\u0161ek a musela b\u00fdt i hospitalizov\u00e1na na JIP. Z tohoto d\u016fvodu bylo rodi\u010d\u016fm l\u00e9ka\u0159i doporu\u010deno, aby d\u00edvenka ve sv\u00fdch p\u011bti letech podstoupila operativn\u00ed odstran\u011bn\u00ed kr\u010dn\u00edch i nosn\u00edch mandl\u00ed.<\/p>\n\n\n\n
Po proveden\u00e9 operaci byla propu\u0161t\u011bna do dom\u00e1c\u00edch podm\u00ednek, kde ov\u0161em celou noc krv\u00e1cela do mozku. Ani\u017e by to n\u011bkdo v\u011bd\u011bl.<\/p>\n\n\n\n
Dnes je Emmi\u010dce jeden\u00e1ct let. Sama se neobl\u00e9kne, j\u00ed s dopomoc\u00ed, je \u010dasto zmaten\u00e1, nerozum\u00ed a nen\u00ed schopn\u00e1 jak\u00e9koliv samostatnosti. Rodi\u010de nav\u00edc \u017eij\u00ed s v\u011bdom\u00edm, \u017ee se stav jejich dcery nikdy nezlep\u0161\u00ed. Sp\u00ed\u0161 d\u011blaj\u00ed v\u0161e proto, aby z\u016fstal alespo\u0148 takov\u00fd, jak\u00fd je dnes.<\/p>\n\n\n\n
Krv\u00e1cela do mozku, nikdo to nev\u011bd\u011bl<\/p>\n\n\n\n
Osudovou operaci podstoupila Emmi\u010dka p\u0159ed \u0161esti lety. Jak popsala maminka d\u00edvky Michaela Fleka\u010dov\u00e1, kr\u010dn\u00ed mandle jej\u00ed dcery byly dle vyj\u00e1d\u0159en\u00ed l\u00e9ka\u0159\u016f ji\u017e odum\u0159el\u00e9. Z\u016fstaly v\u0161ak nafoukl\u00e9 a pln\u00e9 bakteri\u00ed, jako je stafylokok, streptokok \u010di hemofil. Odstran\u011bn\u00ed mandl\u00ed se proto v r\u00e1mci prevence vracej\u00edc\u00edch se infekt\u016f nab\u00edzelo.<\/p>\n\n\n\n
\u201ePo operaci pustili Emmi\u010dku dom\u016f. R\u00e1no se ale probudila s t\u00edm, \u017ee j\u00ed je \u0161patn\u011b. Za\u010dala zvracet natr\u00e1venou i nenatr\u00e1venou krev, a to a\u017e prakticky do bezv\u011bdom\u00ed. Hned jsem volala z\u00e1chranku. Pr\u00fd jsem zavolala za p\u011bt minut dvan\u00e1ct. Emmi\u010dka plakala, \u017ee u\u017e nevid\u00ed. Musela jsem na n\u00ed mluvit a ledovat j\u00ed krk, abych ji udr\u017eovala p\u0159i v\u011bdom\u00ed,\u201c popisuje hr\u016fzn\u00e9 okam\u017eiky maminka.<\/p>\n\n\n\n
Zda se jednalo o krv\u00e1cen\u00ed z kr\u010dn\u00edch \u010di nosn\u00edch mandl\u00ed, na tom se l\u00e9ka\u0159i nedok\u00e1zali shodnout.<\/p>\n\n\n\n
Michaela Fleka\u010dov\u00e1 ale dod\u00e1v\u00e1, \u017ee u\u017e p\u0159ed samotnou operac\u00ed m\u011bla Emmi\u010dka \u0161patn\u00e9 p\u0159edopera\u010dn\u00ed v\u00fdsledky, kter\u00e9 poukazovaly na zhor\u0161enou sr\u00e1\u017elivost krve. Mysl\u00ed si, \u017ee kdyby jej\u00ed dcera z\u016fstala na pozorov\u00e1n\u00ed v nemocnici o den nebo dva d\u00e9le, mohlo v\u0161echno dopadnout jinak.<\/p>\n\n\n\n
Mozek odum\u0159el na mnoha m\u00edstech<\/p>\n\n\n\n
Na JIP n\u00e1sledn\u011b l\u00e9ka\u0159i zachr\u00e1nili d\u00edvce \u017eivot. Kdy\u017e se vr\u00e1tila dom\u016f, v\u0161ichni si mysleli, \u017ee je nejhor\u0161\u00ed za nimi. A \u017ee odte\u010f u\u017e bude v\u0161e dobr\u00e9. M\u011bs\u00edc po t\u00e9to zku\u0161enosti si v\u0161ak maminka Emmi\u010dky v\u0161imla, \u017ee d\u00edvka m\u00e1 oteklou tv\u00e1\u0159. N\u00e1sledovala dal\u0161\u00ed vy\u0161et\u0159en\u00ed, kter\u00e1 odhalila absces (dutina vypln\u011bn\u00e1 hnisem; pozn. red.) v m\u011bkk\u00fdch tk\u00e1n\u00edch.<\/p>\n\n\n\n
V m\u00edst\u011b d\u00edv\u010dina bydli\u0161t\u011b si s nastalou situac\u00ed l\u00e9ka\u0159i nev\u011bd\u011bli p\u0159\u00edli\u0161 rady, proto doporu\u010dili p\u0159evoz do pra\u017esk\u00e9ho Motola. Dle slov maminky dostala Emmi\u010dka koktejl antibiotik, kortikoid\u016f a dal\u0161\u00edch l\u00e9k\u016f, kter\u00fd i podle v\u00fdsledk\u016f magnetick\u00e9 rezonance zabral.<\/p>\n\n\n\n
\u201eKdy\u017e ale Emmi\u010dka nastoupila do prvn\u00ed t\u0159\u00eddy, v\u0161imli jsme si, \u017ee je n\u011bco \u0161patn\u011b. Ne\u0161la j\u00ed p\u00edsmenka a byla celkov\u011b pozadu. Za\u010dali jsem proto chodit po r\u016fzn\u00fdch doktorech, a\u017e n\u00e1m logopedka \u0159ekla, \u017ee je tam jasn\u00e1 dysf\u00e1zie a\u017e af\u00e1zie (porucha produkce a porozum\u011bn\u00ed \u0159e\u010di, kter\u00e1 vznik\u00e1 po\u0161kozen\u00edm mozku; pozn. red.). Postupn\u011b jsme za\u010dali nav\u0161t\u011bvovat dal\u0161\u00ed specialisty a odhalovat v\u00edce,\u201c pokra\u010duje Michaela Fleka\u010dov\u00e1.<\/p>\n\n\n\n
Na \u00farovni p\u011btilet\u00e9ho d\u00edt\u011bte<\/p>\n\n\n\n
Krv\u00e1cen\u00ed, kter\u00e9 n\u00e1sledovalo po relativn\u011b b\u011b\u017en\u00e9m z\u00e1kroku, toti\u017e zp\u016fsobilo d\u00edvce v\u00e1\u017en\u00e9 po\u0161kozen\u00ed mozku. Jej\u00ed motorick\u00fd v\u00fdvoj je tedy zpomalen\u00fd. Vidli\u010dkou nebo l\u017e\u00edc\u00ed se sice sama naj\u00ed, ale jej\u00ed lev\u00e1 hemisf\u00e9ra nespolupracuje s pravou. Emmi\u010dka se obl\u00e9k\u00e1 s dopomoc\u00ed, nevyzn\u00e1 se v \u010dase, celkov\u011b se neorientuje, neum\u00ed si s mnoha b\u011b\u017en\u00fdmi v\u011bcmi poradit a ob\u010das trochu ut\u00edk\u00e1 do vlastn\u00edho sv\u011bta.<\/p>\n\n\n\n
\u201eDnes je Emmi\u010dka ve v\u00fdvoji na \u00farovni p\u011btilet\u00e9ho d\u00edt\u011bte. Pot\u00fdk\u00e1 se s mnoha\u010detn\u00fdmi zdravotn\u00edmi probl\u00e9my. Aby mohla udr\u017eovat sv\u00e9 schopnosti, pot\u0159ebuje pravidelnou a n\u00e1ro\u010dnou p\u00e9\u010di,\u201c \u0159\u00edk\u00e1 Michaela Fleka\u010dov\u00e1 ve sb\u00edrce na dobro\u010dinn\u00e9 platform\u011b Znesn\u00e1ze21.<\/p>\n\n\n\n
Aktu\u00e1ln\u011b se Emmi\u010d\u010din v\u00fdvoj nikam d\u00e1l neposouv\u00e1. Podle l\u00e9ka\u0159\u016f bude i ve sv\u00fdch dvaceti letech po\u0159\u00e1d na \u00farovni p\u0159ed\u0161koln\u00edho d\u00edt\u011bte. Rodina se proto alespo\u0148 sna\u017e\u00ed, aby to, co Emmi\u010dka v tuto chv\u00edli um\u00ed, nezapomn\u011bla. Udr\u017eovat d\u00edv\u010din aktu\u00e1ln\u00ed stav se rodina sna\u017e\u00ed pomoc\u00ed terapi\u00ed a procedur, na kter\u00e9 vyb\u00edr\u00e1 pen\u00edze ve sb\u00edrce.<\/p>\n\n\n\n
\u201eVybran\u00e9 prost\u0159edky by byly pou\u017eity na Neurofeedback terapii (viz n\u00ed\u017ee), kter\u00e1 nen\u00ed hrazena zdravotn\u00ed poji\u0161\u0165ovnou. D\u00e1le na hipoterapii, logopedii, psychoterapii a dal\u0161\u00ed odbornou p\u00e9\u010d\u00ed,\u201c \u0159\u00edk\u00e1 Emmi\u010d\u010dina maminka.<\/p>\n\n\n\n
Pobyt, kter\u00fd m\u016f\u017ee pomoci<\/p>\n\n\n\n
\u201eEmmi\u010dka m\u00e1 lo\u017eiska af\u00e1zie (z\u00edskan\u00e1 porucha produkce a porozum\u011bn\u00ed \u0159e\u010di; pozn. red.) na mozku, v\u00fdvojovou sm\u00ed\u0161enou dysf\u00e1zii, zachoval\u00e9 primitivn\u00ed reflexy (kter\u00e9 v b\u011b\u017en\u00e9m v\u00fdvoji u miminek zanikaj\u00ed; pozn. red.), traumata a fobie, ADHD a po\u0161kozenou kr\u00e1tkodobou pam\u011b\u0165. Jej\u00ed stav stagnuje. A v n\u011b\u010dem se dokonce zhor\u0161uje. Proto n\u00e1m byly doporu\u010deny i l\u00e1zn\u011b zam\u011b\u0159en\u00e9 na tyto pot\u00ed\u017ee. Pokud by se poda\u0159ilo vybrat v\u00edce pen\u011bz, budou pou\u017eity i na tyto slu\u017eby,\u201c doplnila ke sb\u00edrce Emmi\u010d\u010dina maminka.<\/p>\n\n\n\n
Rodina v\u0161ak \u010del\u00ed velk\u00e9mu tlaku, jeliko\u017e n\u00e1klady na Emmi\u010d\u010dinu zdravotn\u00ed p\u00e9\u010di jsou vysok\u00e9. Pravideln\u011b mus\u00ed absolvovat cesty do Plzn\u011b a dal\u0161\u00edch m\u011bst; do \u0161koly, za l\u00e9ka\u0159i a terapeuty. To je n\u00e1ro\u010dn\u00e9 nejen \u010dasov\u011b, ale i finan\u010dn\u011b.<\/p>\n\n\n\n
Nen\u00e1vistn\u00e9 koment\u00e1\u0159e<\/p>\n\n\n\n
To bohu\u017eel nen\u00ed v\u0161e, \u010demu rodina \u010del\u00ed. Jako mnoho dal\u0161\u00edch lid\u00ed, kte\u0159\u00ed se sna\u017e\u00ed vybrat pen\u00edze na l\u00e9\u010dbu hendikepovan\u00fdch \u010di nemocn\u00fdch \u010dlen\u016f rodiny, se bohu\u017eel i maminka Emi\u010dky setkala s negativn\u00edmi koment\u00e1\u0159i a obvin\u011bn\u00edmi.<\/p>\n\n\n\n
\u201eNech\u00e1pu, kde se bere tolik zla a nepochopen\u00ed. Na\u0161el se n\u011bjak\u00fd dobr\u00e1k, kter\u00e9ho nebudu jmenovat, jen\u017e napsal ke sb\u00edrce, \u017ee na\u0161e Emm\u010da nikam nedoj\u00ed\u017ed\u00ed a \u017ee jsme finan\u010dn\u011b zaopat\u0159eni. Pokud m\u00e1te jak\u00e9koliv pochyby, napi\u0161te p\u0159\u00edmo m\u011b, r\u00e1da v\u0161e vysv\u011btl\u00edm,\u201c vzk\u00e1zala v\u0161em na soci\u00e1ln\u00edch s\u00edt\u00edch.<\/p>\n\n\n\n
Doplnila tak\u00e9, \u017ee kdy\u017e jej\u00ed d\u00edt\u011b nen\u00ed p\u0159ed smrt\u00ed, neznamen\u00e1 to, \u017ee na tom nen\u00ed \u0161patn\u011b. Progn\u00f3zy do budoucna nejsou pro Emi\u010dku dle slov Michaely Fleka\u010dov\u00e9 bohu\u017eel v\u016fbec dobr\u00e9. I tak se v\u0161ak rodina raduje z ka\u017ed\u00e9ho mal\u00e9ho pokroku.<\/p>\n\n\n\n
\u201eKdy\u017e m\u00e1te zdrav\u00e9 d\u00edt\u011b, kter\u00e9 dost\u00e1v\u00e1 dobr\u00e9 zn\u00e1mky, jste \u0161\u0165astn\u00ed. Kdy\u017e on nebo ona ud\u011bl\u00e1 to, co jim \u0159eknete, jste \u0161\u0165astn\u00ed. Je to b\u011b\u017en\u00e1 radost, kter\u00e1 ale nen\u00ed samoz\u0159ejm\u00e1. Kdy\u017e v\u0161ak m\u00e1te d\u00edt\u011b s n\u011bjak\u00fdm omezen\u00edm, s ka\u017ed\u00fdm mal\u00fdm \u00fasp\u011bchem pulzujete a vibrujete, jako byste vyhr\u00e1li mistrovstv\u00ed,\u201c napsala ned\u00e1vno na sv\u00fdch soci\u00e1ln\u00edch s\u00edt\u00edch maminka.<\/p>\n\n\n\n
Emmi\u010dce lze na terapie i pobyt v l\u00e1zn\u00edch p\u0159isp\u011bt jakoukoliv \u010d\u00e1stkou ZDE: https:\/\/www.znesnaze21.cz\/sbirka\/emmicka-po-operaci-mandli-utrpela-krvaceni-do-mozku-pomozme#o-sbirce<\/a><\/p>\n\n\n\n Co je neurofeedback<\/p>\n\n\n\n Jedn\u00e1 se o tr\u00e9ninkovou metodu, kter\u00e1 \u010dlov\u011bku umo\u017e\u0148uje m\u011bnit fungov\u00e1n\u00ed mozku pomoc\u00ed zp\u011btn\u00e9 vazby z po\u010d\u00edta\u010de.<\/p>\n\n\n\n Tr\u00e9nink je to bezbolestn\u00fd a neinvazivn\u00ed. Po\u010d\u00edta\u010d pouze sn\u00edm\u00e1 informace o tom, jak mozek klienta funguje, a to pomoc\u00ed dvou sn\u00edmac\u00edch elektrod na hlav\u011b a jedn\u00e9 na uchu.<\/p>\n\n\n\n Informace jsou pak klientovi vraceny zp\u00e1tky, d\u00edky \u010demu\u017e se mozek u\u010d\u00ed a rozv\u00edj\u00ed. <\/p>\n\n\n\n Zdroj: Institut celo\u017eivotn\u00edho vzd\u011bl\u00e1v\u00e1n\u00ed<\/p>\n\n\n\n Kate\u0159ina N\u011bmcov\u00e1<\/p>\n\n\n\n Moravskoslezsk\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/moravskoslezsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Emmi\u010dka m\u00edvala u\u017e od d\u011btstv\u00ed v\u00e1\u017en\u00e9 zdravotn\u00ed probl\u00e9my. To, co se j\u00ed ale p\u0159ihodilo po operaci kr\u010dn\u00edch a nosn\u00edch mandl\u00ed, ji nen\u00e1vratn\u011b p\u0159ipravilo o zdrav\u00ed. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14511,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-53200","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/53200","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=53200"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/53200\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14511"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=53200"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=53200"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=53200"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}