Mirka Rychtov\u00e1 a \u0160\u00e1rka Bala\u017e\u00edkov\u00e1 jsou dv\u011b maminky, kter\u00e9 nejen\u017ee spojuje pr\u00e1ce s kv\u011btinami v opavsk\u00e9m spolku Kaprad\u00ed, ale ob\u011b tak\u00e9 pe\u010duj\u00ed o syny s ment\u00e1ln\u00edm posti\u017een\u00edm. S Den\u00edkem se pod\u011blily o to, jak\u00e9 radosti i starosti takov\u00e1 intenzivn\u00ed p\u00e9\u010de o bl\u00edzk\u00e9ho \u010dlov\u011bka p\u0159in\u00e1\u0161\u00ed.<\/p>\n\n\n\n
\u0160\u00e1rce je 49 let a poch\u00e1z\u00ed z Krnova. Mirce je 43 let a poch\u00e1z\u00ed z Opavy. Sp\u0159\u00e1telily se i d\u00edky tomu, \u017ee jejich synov\u00e9 jsou spolu\u017e\u00e1ci, oba nav\u0161t\u011bvuj\u00ed Z\u00e1kladn\u00ed \u0161kolu a Praktickou \u0161kolu v Opav\u011b. Te\u010f jsou nav\u00edc i bl\u00edzk\u00fdmi kolegyn\u011bmi v pr\u00e1ci. \u0160\u00e1r\u010din syn se jmenuje Dan, je mu sedmn\u00e1ct let, narodil se s Downov\u00fdm syndromem a k pohybu vyu\u017e\u00edv\u00e1 tak\u00e9 invalidn\u00ed voz\u00edk. \u010ctrn\u00e1ctilet\u00fd \u0160t\u011bp\u00e1n, syn Mirky, je chod\u00edc\u00ed, ale jeho ment\u00e1ln\u00ed intelekt odpov\u00edd\u00e1 asi \u010dty\u0159let\u00e9mu d\u00edt\u011bti.<\/p>\n\n\n\n
Sm\u00ed\u0159en\u00ed se s ne\u00faprosnou pravdou<\/p>\n\n\n\n
Narozen\u00ed d\u00edt\u011bte je pro v\u011bt\u0161inu rodin radostnou ud\u00e1lost\u00ed, nicm\u00e9n\u011b narozen\u00ed potomka s handicapem m\u016f\u017ee b\u00fdt pro rodinu n\u00e1ro\u010dn\u00e9. Den\u00edk zaj\u00edmalo, jak tyto \u017eeny pro\u017e\u00edvaly chv\u00edle, kdy\u017e se poprv\u00e9 dozv\u011bd\u011bly, \u017ee jejich synov\u00e9 nebudou jako ostatn\u00ed d\u011bti. \u201eN\u00e1\u0161 Dane\u010dek byl a\u017e do porodu pova\u017eov\u00e1n za zdrav\u00e9 d\u00edt\u011b, prenat\u00e1ln\u00ed screening a dal\u0161\u00ed vy\u0161et\u0159en\u00ed byly na vady negativn\u00ed. \u017de m\u00e1 Down\u016fv syndrom se zjistilo a\u017e po narozen\u00ed. Ve t\u0159ech letech m\u011bl nav\u00edc t\u011b\u017ekou plicn\u00ed sepsi, co\u017e se podepsalo na jeho ch\u016fzi, tak\u017ee mus\u00ed pou\u017e\u00edvat voz\u00edk. Nav\u00edc, du\u0161\u00ed je to p\u011btilet\u00fd chlapec.\u201c P\u0159iznala, \u017ee zpo\u010d\u00e1tku byla diagn\u00f3za \u0161ok, ale nakonec p\u0159i\u0161lo sm\u00ed\u0159en\u00ed. Nejv\u00edc nep\u0159\u00edjemn\u00e9 pro ni bylo, kdy\u017e ji v porodnici \u0159ekli, \u017ee si syna v\u016fbec nemus\u00ed br\u00e1t dom\u016f a m\u016f\u017ee jej d\u00e1t rovnou do \u00fastavu, \u017ee takov\u00e9 d\u011bti v rodin\u011b v\u016fbec vyr\u016fstat nemus\u00ed.<\/p>\n\n\n\n
V za\u010d\u00e1tc\u00edch \u0160\u00e1rce velmi pomohli odborn\u00edci ze St\u0159ediska ran\u00e9 p\u00e9\u010de, kte\u0159\u00ed jezdili k nim dom\u016f. Mimo jin\u00e9 poskytli Danovi r\u016fzn\u00e9 rehabilita\u010dn\u00ed pom\u016fcky a hra\u010dky pro lep\u0161\u00ed smyslovou stimulaci a podporuj\u00edc\u00ed psychomotorick\u00fd v\u00fdvoj.<\/p>\n\n\n\n
Mirka Rychtov\u00e1 pro\u017eila n\u011bco jin\u00e9ho ne\u017e jej\u00ed kamar\u00e1dka. \u201eM\u011bla jsem komplikovan\u00fd porod. \u0160t\u011bp\u00e1nk\u016fv handicap se zjistil v pr\u016fb\u011bhu toho, jak rostl. Fyzicky se vyv\u00edjel dob\u0159e, ale kdy\u017e m\u011bl s n\u00e1mi za\u010d\u00edt komunikovat, tak v\u016fbec nemluvil. Nereagoval na podn\u011bty a nespolupracoval,\u201c sd\u011blila Mirka. Mir\u010din syn \u0160t\u011bp\u00e1n v\u016fbec nevyd\u00e1val \u017e\u00e1dn\u00e9 zvuky a \u017eil si podle slov maminky ve sv\u00e9m sv\u011bt\u011b. \u201eTo, \u017ee s n\u00edm nen\u00ed n\u011bco v po\u0159\u00e1dku, jsme zjistili asi v jeho dvou letech, mysleli jsme si, \u017ee bude m\u00edt n\u011bjakou vadu \u0159e\u010di,\u201c up\u0159esnila Mirka. A\u017e ve \u0160t\u011bp\u00e1nov\u00fdch p\u011bti \u010di \u0161esti letech se s man\u017eelem dozv\u011bd\u011bli diagn\u00f3zu: ment\u00e1ln\u00ed posti\u017een\u00ed. \u201eNecht\u011bla jsem se dlouho sm\u00ed\u0159it s t\u00edm, \u017ee je to trval\u00e9. To, \u017ee vlastn\u011b moje d\u00edt\u011b je jin\u00e9, a nebude se to zlep\u0161ovat,\u201c popsala Mirka Rychtov\u00e1 sv\u00e9 pocity.<\/p>\n\n\n\n
Ve v\u011bku od dvou do \u0161esti let \u0160t\u011bp\u00e1na byla Mirka s man\u017eelem toti\u017e v nejistot\u011b. Nev\u011bd\u011bli, co s jejich synem bude, ale z\u00e1rove\u0148 v sob\u011b chovali jistou nad\u011bji, o kterou s vy\u0159\u010den\u00edm diagn\u00f3zy p\u0159i\u0161li. Nicm\u00e9n\u011b i tak bylo toto obdob\u00ed pln\u00e9 stresuj\u00edc\u00edho o\u010dek\u00e1v\u00e1n\u00ed. Nikdo nedok\u00e1zal \u0159\u00edct, jestli se stav jejich syna bude zlep\u0161ovat, nebo naopak zhor\u0161ovat. Mirka i \u0160\u00e1rka maj\u00ed ob\u011b velkou oporu ve sv\u00fdch mu\u017e\u00edch, jejich man\u017eelstv\u00ed vydr\u017eela i p\u0159es velkou z\u00e1t\u011b\u017e, kter\u00fdm narozen\u00ed d\u00edt\u011bte s handicapem b\u00fdv\u00e1.<\/p>\n\n\n\n
Mirka: Lid\u00e9 si mysl\u00ed, \u017ee m\u00e1m nevychovan\u00e9 d\u00edt\u011b<\/p>\n\n\n\n
Bohu\u017eel se ob\u011b \u017eeny st\u00e1le setk\u00e1vaj\u00ed s nepochopen\u00edm lid\u00ed. V\u00edce s t\u00edm bojuje Mirka, proto\u017ee projevy jej\u00edho syna na ve\u0159ejnosti jsou nep\u0159im\u011b\u0159en\u00e9 jeho v\u011bku a fyzick\u00e9 kondici. Lid\u00e9 si proto velmi \u010dasto mysl\u00ed, \u017ee m\u00e1 nevychovan\u00e9 d\u00edt\u011b. \u201eOn se chov\u00e1 jinak. V podstat\u011b jako \u010dty\u0159let\u00e9 rozpustil\u00e9 d\u00edt\u011b. Je hodn\u011b aktivn\u00ed, divok\u00fd, neust\u00e1le m\u00e1 pot\u0159ebu mluvit, v\u011bt\u0161inou opakuje dv\u011b a\u017e t\u0159i v\u011bty st\u00e1le dokola, m\u00e1 probl\u00e9my s autoritou. Na pohled ale vypad\u00e1, \u017ee je zdrav\u00fd \u010dtrn\u00e1ctilet\u00fd kluk,\u201c popsala Mirka sv\u00e9ho syna. Pod\u011blila se i nap\u0159\u00edklad o z\u00e1\u017eitek z jejich \u017eivota. N\u011bkdy si za\u010dne jej\u00ed syn v autobuse zp\u00edvat nebo se vztekat, nad\u00e1vat, bouchat kolem sebe a v\u0161ichni cestuj\u00edc\u00ed se za n\u00edm ot\u00e1\u010dej\u00ed. Slo\u017eit\u00e9 je jet tak\u00e9 na dovolenou, je t\u0159eba si naj\u00edt izolovan\u00e9 ubytov\u00e1n\u00ed, kde syn neru\u0161\u00ed sv\u00fdm hlu\u010dn\u00fdm chov\u00e1n\u00edm a brzk\u00fdm vst\u00e1v\u00e1n\u00edm lidi v okol\u00ed.<\/p>\n\n\n\n
\u0160\u00e1rka to m\u011bla s Danem jin\u00e9. U\u017e p\u0159i pohledu do ko\u010d\u00e1rku bylo poznat, \u017ee se Dan od zdrav\u00fdch d\u011bt\u00ed odli\u0161uje. (D\u011bti s Downov\u00fdm syndromem maj\u00ed typickou stigmatizaci pozn. red). Stigma \u201ejin\u00e9ho d\u00edt\u011bte\u201d u n\u011bj tedy bylo od po\u010d\u00e1tku, a rodina se ji\u017e od jeho narozen\u00ed vyrovn\u00e1vala s reakcemi, je\u017e ve sv\u00e9m okol\u00ed vyvol\u00e1valo.<\/p>\n\n\n\n
Neust\u00e1l\u00e1 p\u00e9\u010de a dozor<\/p>\n\n\n\n
N\u00e1ro\u010dn\u00e1 je tak\u00e9 ka\u017edodenn\u00ed p\u00e9\u010de. Mirka popsala, \u017ee mus\u00ed b\u00fdt po\u0159\u00e1d v pozoru, jeliko\u017e syn m\u016f\u017ee v nest\u0159e\u017een\u00e9m okam\u017eiku ut\u00e9ct z domu, nebo si ubl\u00ed\u017eit. Neum\u00ed se o sebe postarat, ned\u00e1v\u00e1 pozor.<\/p>\n\n\n\n
Svou kamar\u00e1dku doplnila i \u0160\u00e1rka: \u201eJ\u00e1 \u0159\u00edk\u00e1m, \u017ee jsem jako dozorce. Mus\u00edm syna hl\u00eddat p\u0159i ka\u017ed\u00e9 \u010dinnosti. Dopomoc pot\u0159ebuje v podstat\u011b ve v\u0161ech oblastech ka\u017edodenn\u00ed \u010dinnosti. S\u00e1m si nap\u0159\u00edklad nep\u0159iprav\u00ed j\u00eddlo, pomoc pot\u0159ebuje i s hygienou, orientac\u00ed v prostoru a \u010dase a tak d\u00e1le. Kluci zkr\u00e1tka nemohou ani sami nikam j\u00edt, i kdy\u017e by moc cht\u011bli. Zde vznik\u00e1 rozpor mezi jejich p\u0159\u00e1n\u00edm a skute\u010dn\u00fdmi mo\u017enostmi hoch\u016f. Pro \u0160\u00e1rku jsou velkou oporou jej\u00ed \u010dtrn\u00e1ctilet\u00e1 dcera a jednadvacetilet\u00fd syn. D\u00edky nim si m\u016f\u017ee vy\u0159\u00eddit co pot\u0159ebuje, proto\u017ee bratra pohl\u00eddaj\u00ed. Mirka m\u00e1 krom\u011b \u0160t\u011bp\u00e1na je\u0161t\u011b t\u0159i dal\u0161\u00ed syny ve v\u011bku 18, 15 a 11 let. S hl\u00edd\u00e1n\u00edm pom\u00e1h\u00e1 ob\u011bma \u017een\u00e1m i \u0161ir\u0161\u00ed rodina. Dovolen\u00e1 je ale pro \u0160\u00e1rku i Mirku ciz\u00ed slovo.<\/p>\n\n\n\n
Podpora st\u00e1tu<\/p>\n\n\n\n
D\u016fle\u017eit\u00e1 je v p\u00e9\u010di o posti\u017een\u00e9 \u010dleny rodiny i podpora st\u00e1tu, a ta je podle \u0160\u00e1rky dostate\u010dn\u00e1, nicm\u00e9n\u011b Mirka by byla r\u00e1da, kdyby byla lep\u0161\u00ed informovanost o tom, kde hledat informace, hlavn\u011b na za\u010d\u00e1tku cel\u00e9ho procesu vy\u0159izov\u00e1n\u00ed.<\/p>\n\n\n\n
Nejasn\u00e1 je hlavn\u011b budoucnost po skon\u010den\u00ed \u0161koln\u00ed doch\u00e1zky, kdy jim podle \u0160\u00e1rky z\u016fstanou na krku je\u0161t\u011b v\u00edc. V tuto chv\u00edli kluci d\u00edky \u0161kole maj\u00ed alespo\u0148 n\u011bjak\u00fd za\u017eit\u00fd re\u017eim. \u201eNicned\u011bl\u00e1n\u00ed je pro n\u011b zab\u00edjej\u00edc\u00ed, fat\u00e1ln\u00ed,\u201c \u0159ekla v\u00e1\u017en\u011b \u0160\u00e1rka. Mirka zase zd\u016fraznila pot\u0159ebu toho, aby byli v\u0161ichni ostatn\u00ed v rodin\u011b zdrav\u00ed.<\/p>\n\n\n\n
Jedn\u00edm dechem v\u0161ak dodala, \u017ee nejt\u011b\u017e\u0161\u00ed je soci\u00e1ln\u00ed izolace. \u201eTo, co si lid\u00e9 za\u017e\u00edvali b\u011bhem covidu, my za\u017e\u00edv\u00e1me po\u0159\u00e1d,\u201c vysv\u011btlila. Z t\u00e9to izolace ob\u011b \u017eeny vyt\u00e1hla pr\u00e1v\u011b pr\u00e1ce pro spolek Kaprad\u00ed.<\/p>\n\n\n\n
Na z\u00e1v\u011br Den\u00edk zaj\u00edmalo, co \u017een\u00e1m handicap jejich syn\u016f dal a vzal. Mirka \u0159ekla, \u017ee lid\u00e9 \u017eij\u00edc\u00ed v rodin\u00e1ch s d\u011btmi s posti\u017een\u00edm maj\u00ed siln\u011bj\u0161\u00ed soci\u00e1ln\u00ed c\u00edt\u011bn\u00ed. Podle jej\u00edch slov m\u00e1 \u010dlov\u011bk v\u011bt\u0161\u00ed pochopen\u00ed pro druh\u00e9 lidi. \u0160\u00e1rce zase jej\u00ed syn p\u0159inesl do \u017eivota velkou trp\u011blivost a toleranci k ostatn\u00edm lidem. Jinak maj\u00ed postaven\u00fd \u017eeb\u0159\u00ed\u010dek hodnot tak\u00e9 jejich ostatn\u00ed d\u011bti, kter\u00e9 se t\u00edm, \u017ee \u017eij\u00ed s posti\u017een\u00fdm sourozencem, od vrstevn\u00edk\u016f li\u0161\u00ed.<\/p>\n\n\n\n
K T\u00c9MATU<\/p>\n\n\n\n
Down\u016fv syndrom:<\/p>\n\n\n\n
Down\u016fv syndrom, zn\u00e1m\u00fd tak\u00e9 jako trizomie 21, je genetick\u00e1 porucha zp\u016fsoben\u00e1 p\u0159\u00edtomnost\u00ed cel\u00e9 t\u0159et\u00ed kopie 21. chromozomu nebo jeho \u010d\u00e1sti. Obvykle je spojena s opo\u017ed\u011bn\u00fdm t\u011blesn\u00fdm r\u016fstem, lehk\u00fdm a\u017e st\u0159edn\u011b t\u011b\u017ek\u00fdm ment\u00e1ln\u00edm posti\u017een\u00edm a charakteristick\u00fdmi rysy obli\u010deje. Pr\u016fm\u011brn\u00fd inteligen\u010dn\u00ed kvocient mlad\u00e9ho dosp\u011bl\u00e9ho \u010dlov\u011bka s Downov\u00fdm syndromem je 50, co\u017e odpov\u00edd\u00e1 ment\u00e1ln\u00edm schopnostem osmilet\u00e9ho nebo dev\u00edtilet\u00e9ho d\u00edt\u011bte, ale tato hodnota se m\u016f\u017ee zna\u010dn\u011b li\u0161it.<\/p>\n\n\n\n
Ment\u00e1ln\u00ed posti\u017een\u00ed:<\/p>\n\n\n\n
Ment\u00e1ln\u00ed posti\u017een\u00ed, je trval\u00e9 sn\u00ed\u017een\u00ed inteligence v d\u016fsledku organick\u00e9ho po\u0161kozen\u00ed mozku. Nelze jej tedy l\u00e9\u010dit, proto\u017ee nejde o nemoc, ale trval\u00fd stav \u2013 zaostal\u00fd v\u00fdvoj rozumov\u00fdch schopnost\u00ed a odli\u0161n\u00fd v\u00fdvoj n\u011bkter\u00fdch psychick\u00fdch vlastnost\u00ed.<\/p>\n\n\n\n
Zdroj: Wikipedie<\/p>\n\n\n\n
Vendula \u010cerm\u00e1kov\u00e1<\/p>\n\n\n\n
Moravskoslezsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/moravskoslezsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Mirka Rychtov\u00e1 a \u0160\u00e1rka Bala\u017e\u00edkov\u00e1 jsou dv\u011b maminky, kter\u00e9 nejen\u017ee spojuje pr\u00e1ce s kv\u011btinami v opavsk\u00e9m spolku Kaprad\u00ed, ale ob\u011b tak\u00e9 pe\u010duj\u00ed o syny s […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":27495,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-53351","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/53351","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=53351"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/53351\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/27495"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=53351"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=53351"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=53351"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}