{"id":53392,"date":"2024-11-27T12:40:30","date_gmt":"2024-11-27T11:40:30","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=53392"},"modified":"2024-11-27T12:40:39","modified_gmt":"2024-11-27T11:40:39","slug":"pacienti-s-rakovinou-casto-nevi-za-jakym-lekarem-jit","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=53392","title":{"rendered":"Pacienti s\u00a0rakovinou \u010dasto nev\u00ed, za\u00a0jak\u00fdm l\u00e9ka\u0159em j\u00edt"},"content":{"rendered":"\n

Pomohou n\u00e1vody mapuj\u00edc\u00ed p\u00e9\u010di v regionech<\/em><\/p>\n\n\n\n

Praha, 27. 11. 2024 \u2013 Pacienti s rakovinou \u010dasto v po\u010d\u00e1te\u010dn\u00ed f\u00e1zi nemoci nev\u00ed, za jak\u00fdm l\u00e9ka\u0159em maj\u00ed j\u00edt a co d\u00e1le d\u011blat. Vypl\u00fdv\u00e1 to z v\u00fdsledk\u016f dotazn\u00edkov\u00e9ho \u0161et\u0159en\u00ed, kter\u00e9 provedl spolek Hlas onkologick\u00fdch pacient\u016f (HOP). Zbyte\u010dn\u011b se tak prodlu\u017euje doba, ne\u017e se nemocn\u00ed dozv\u00ed spr\u00e1vnou diagn\u00f3zu a zah\u00e1j\u00ed l\u00e9\u010dbu. Nov\u011b by jim mohly pomoci tzv. region\u00e1ln\u00ed Cesty pacienta. Ty zmapuj\u00ed z\u00e1chytn\u00e1 m\u00edsta s l\u00e9ka\u0159skou p\u00e9\u010d\u00ed v kraj\u00edch a nemocn\u00fdm porad\u00ed, kam se mohou objednat na specializovan\u00e1 vy\u0161et\u0159en\u00ed. V sou\u010dasnosti spolek HOP spou\u0161t\u00ed tak\u00e9 2. f\u00e1zi dotazn\u00edku. Odborn\u00edci v n\u011bm budou zji\u0161\u0165ovat, jak rychle onkologi\u010dt\u00ed pacienti proch\u00e1zej\u00ed samotnou l\u00e9\u010dbou. Z\u00e1jemci mohou dotazn\u00edk vyplnit <\/strong>na webu<\/strong><\/a> do konce leto\u0161n\u00edho roku.<\/strong><\/p>\n\n\n\n

\u201eU zhoubn\u00fdch n\u00e1dor\u016f hraje zcela z\u00e1sadn\u00ed roli \u010das. Je d\u016fle\u017eit\u00e9, aby se onkologi\u010dt\u00ed pacienti dost\u00e1vali ke spr\u00e1vn\u00e9 diagn\u00f3ze a l\u00e9\u010db\u011b co nejrychleji. Jejich cesta syst\u00e9mem ale nen\u00ed v\u016fbec jednoduch\u00e1. Zat\u00edmco nap\u0159\u00edklad \u010dlov\u011bk s\u00a0nemocn\u00fdm srdcem nav\u0161t\u00edv\u00ed \u201apouze\u2018 kardiologa, pacient s\u00a0rakovinou mus\u00ed proj\u00edt rukama r\u016fzn\u00fdch specialist\u016f. Proto se jeho cesta m\u016f\u017ee n\u011bkdy zadrhnout. V\u00fdsledky dotazn\u00edkov\u00e9ho \u0161et\u0159en\u00ed n\u00e1m d\u00e1vaj\u00ed dobrou p\u0159edstavu o tom, kde jsou tato problematick\u00e1 m\u00edsta, na n\u011b\u017e bychom se m\u011bli zam\u011b\u0159it,\u201c<\/em> \u0159\u00edk\u00e1 prof. MUDr. Petra Tesa\u0159ov\u00e1, \u010dlenka v\u00fdboru \u010cesk\u00e9 onkologick\u00e9 spole\u010dnosti a p\u0159ednostka \u00dastavu radia\u010dn\u00ed onkologie FN Bulovka a 1. LF UK.<\/p>\n\n\n\n

Do dotazn\u00edkov\u00e9ho \u0161et\u0159en\u00ed se zapojilo p\u0159es 900 onkologick\u00fdch pacientek a pacient\u016f. Odborn\u00edci u nich zji\u0161\u0165ovali, jak rychle se v jednotliv\u00fdch regionech dost\u00e1vaj\u00ed ke spr\u00e1vn\u00e9 diagn\u00f3ze a zda se orientuj\u00ed v tom, co je \u010dek\u00e1. \u201eNejv\u011bt\u0161\u00ed probl\u00e9my jsme zaznamenali v\u00a0situac\u00edch, kdy si byli pacienti nuceni cestu syst\u00e9mem zorganizovat sami. V\u00fdsledky dotazn\u00edku ukazuj\u00ed, \u017ee lid\u00e9 jdou v\u00a0naprost\u00e9 v\u011bt\u0161in\u011b p\u0159\u00edpad\u016f tam, kam je po\u0161le jejich l\u00e9ka\u0159. Kdy\u017e pacienta hned objedn\u00e1 k\u00a0dal\u0161\u00edmu vy\u0161et\u0159en\u00ed u specialisty, nebo mu alespo\u0148 doporu\u010d\u00ed vhodn\u00e9 pracovi\u0161t\u011b, kam se d\u00e1le obr\u00e1tit, projde nemocn\u00fd syst\u00e9mem rychleji. V\u00a0opa\u010dn\u00e9m p\u0159\u00edpad\u011b zbyte\u010dn\u011b ztr\u00e1c\u00ed \u010das, kter\u00fd ho m\u016f\u017ee st\u00e1t \u017eivot,\u201c<\/em> p\u0159ibli\u017euje Mgr. Petra Ad\u00e1mkov\u00e1, p\u0159edsedkyn\u011b V\u00fdboru Hlasu onkologick\u00fdch pacient\u016f. <\/p>\n\n\n\n

Problematick\u00e9 se uk\u00e1zaly b\u00fdt tak\u00e9 region\u00e1ln\u00ed rozd\u00edly v\u00a0dostupnosti p\u00e9\u010de \u2013 des\u00edtky respondent\u016f uvedly, \u017ee musej\u00ed za sv\u00fdm specialistou doj\u00ed\u017ed\u011bt v\u00edce ne\u017e 50 kilometr\u016f. K\u00a0onkologovi to m\u00e1 stejn\u011b daleko 20 % dot\u00e1zan\u00fdch. \u201eNa\u0161\u00ed snahou je podpo\u0159it z\u00e1jem o region\u00e1ln\u00ed centra a umo\u017enit pacient\u016fm, aby se i zde dostali k\u00a0modern\u00ed l\u00e9\u010db\u011b. Zd\u00e1 se nesmysln\u00e9, aby nemocn\u00ed museli doj\u00ed\u017ed\u011bt n\u011bkdy a\u017e stovky kilometr\u016f daleko jen proto, aby dostali sv\u00e9 l\u00e9ky,\u201c<\/em> uv\u00e1d\u00ed prof. Tesa\u0159ov\u00e1.<\/p>\n\n\n\n

A\u017e t\u0159etina dot\u00e1zan\u00fdch pak m\u011bla probl\u00e9m s t\u00edm, \u017ee pln\u011b nerozum\u011bla tomu, co jim o\u0161et\u0159uj\u00edc\u00ed l\u00e9ka\u0159 \u0159\u00edk\u00e1. \u201eS\u00a0rostouc\u00edm stresem se pro onkologick\u00e9 pacienty st\u00e1v\u00e1 \u010d\u00edm d\u00e1l n\u00e1ro\u010dn\u011bj\u0161\u00edm porozum\u011bt v\u0161emu, co si p\u0159i vy\u0161et\u0159en\u00edch vyslechnou. Je proto d\u016fle\u017eit\u00e9, aby si mohli n\u00e1sledn\u011b dohledat dostatek relevantn\u00edch informac\u00ed. Pomoci jim v\u00a0tom mohou ji\u017e zpracovan\u00e9 n\u00e1vody, tzv. <\/em>Cesty pacienta<\/em><\/a>,\u201c<\/em> up\u0159es\u0148uje Ad\u00e1mkov\u00e1. <\/p>\n\n\n\n

V\u00a0p\u0159\u00ed\u0161t\u00edm roce pl\u00e1nuje spolek HOP p\u0159ipravit tak\u00e9 region\u00e1ln\u00ed verze t\u011bchto n\u00e1vod\u016f. Pacienti, kte\u0159\u00ed nedostanou doporu\u010den\u00ed na dal\u0161\u00ed vy\u0161et\u0159en\u00ed od sv\u00e9ho l\u00e9ka\u0159e, by si tak jednodu\u0161e mohli vyhledat, na koho se v\u00a0dan\u00e9m kraji obr\u00e1tit \u2013 a\u0165 u\u017e jde o n\u00e1v\u0161t\u011bvu specialisty, proveden\u00ed biopsie a histologie, nebo registraci u onkologa. Sn\u00e1ze by se tak dostali k\u00a0v\u010dasn\u00e9 diagn\u00f3ze i l\u00e9\u010db\u011b.<\/p>\n\n\n\n

V\u00fdsledky dotazn\u00edku pouk\u00e1zaly tak\u00e9 na d\u016fle\u017eitost preventivn\u00edch prohl\u00eddek. Celkem 23 % dot\u00e1zan\u00fdch onkologick\u00fdch pacient\u016f absolvovalo specializovan\u00e9 vy\u0161et\u0159en\u00ed pot\u00e9, co je na zdravotn\u00ed probl\u00e9m upozornil l\u00e9ka\u0159 p\u0159i pravideln\u00e9 kontrole. \u201eJe to takov\u00fd apel na v\u0161echny, aby si zkusili naj\u00edt praktika, se kter\u00fdm budou dlouhodob\u011b v kontaktu \u2013 kter\u00fd je bude zn\u00e1t, a pokud se objev\u00ed n\u011bjak\u00e9 neobvykl\u00e9 pot\u00ed\u017ee, za\u010dne to okam\u017eit\u011b \u0159e\u0161it. Stejn\u011b tak je z\u00e1sadn\u00ed, aby lid\u00e9 chodili pravideln\u011b na prevenci, jedin\u011b tak toti\u017e m\u016f\u017ee jejich l\u00e9ka\u0159 zav\u010das odhalit po\u010d\u00ednaj\u00edc\u00ed p\u0159\u00edznaky onemocn\u011bn\u00ed,\u201c<\/em> \u0159\u00edk\u00e1 Ad\u00e1mkov\u00e1.<\/p>\n\n\n\n

V\u00a0sou\u010dasnosti spou\u0161t\u00ed odborn\u00edci 2. \u010d\u00e1st dotazn\u00edkov\u00e9ho \u0161et\u0159en\u00ed. Zat\u00edmco v\u00a01. f\u00e1zi \u0159e\u0161ili cestu k\u00a0diagn\u00f3ze, nyn\u00ed se zam\u011b\u0159\u00ed na l\u00e9\u010dbu. \u201eDotazn\u00edk mohou <\/em>na webu<\/em><\/a> do konce leto\u0161n\u00edho roku vyplnit v\u0161ichni onkologi\u010dt\u00ed pacienti, kte\u0159\u00ed jsou maxim\u00e1ln\u011b 5 let od skon\u010den\u00ed l\u00e9\u010dby. Zaj\u00edm\u00e1 n\u00e1s, jak\u00fdm zp\u016fsobem prob\u00edhala jejich cesta,\u201c<\/em> popisuje Ad\u00e1mkov\u00e1. Prvn\u00ed v\u00fdsledky \u0161et\u0159en\u00ed by m\u011bly b\u00fdt zn\u00e1my v\u00a0polovin\u011b roku 2025. Odborn\u00edci d\u00edky nim z\u00edskaj\u00ed ucelen\u011bj\u0161\u00ed p\u0159ehled o tom, jak syst\u00e9m p\u00e9\u010de o onkologick\u00e9 pacienty v\u00a0\u010cesku funguje. <\/p>\n\n\n\n

\u201eV\u00fdsledky komunikujeme s\u00a0odborn\u00fdmi l\u00e9ka\u0159sk\u00fdmi spole\u010dnostmi, specialisty i praktick\u00fdmi l\u00e9ka\u0159i. Na\u0161\u00edm c\u00edlem je, abychom cestu syst\u00e9mem pacient\u016fm co nejv\u00edce zjednodu\u0161ili. M\u00e1m velkou radost, \u017ee dost\u00e1v\u00e1me pozitivn\u00ed zp\u011btnou vazbu od l\u00e9ka\u0159\u016f i pacient\u016f,\u201c<\/em> dopl\u0148uje Ad\u00e1mkov\u00e1.<\/p>\n\n\n\n

Usnadnit lidem pr\u016fchod l\u00e9\u010dbou by nov\u011b mohly pomoci tak\u00e9 tzv. pacientsk\u00e9 rady, kter\u00e9 vznikaj\u00ed na onkologick\u00fdch klinik\u00e1ch nap\u0159\u00ed\u010d regiony. \u201eV rad\u00e1ch jsou zastoupeni pacienti, kte\u0159\u00ed maj\u00ed s dan\u00fdm pracovi\u0161t\u011bm osobn\u00ed zku\u0161enost. S ostatn\u00edmi tak mohou sd\u00edlet pot\u0159ebn\u00e9 informace, um\u00ed zajistit i kvalitn\u00ed psychologickou, soci\u00e1ln\u00ed a du\u0161evn\u00ed pomoc. Aktu\u00e1ln\u011b m\u00e1me zalo\u017een\u00e9 pacientsk\u00e9 rady na onkologick\u00fdch klinik\u00e1ch ve FN Motol, v Thomayerov\u011b nemocnici a ve FN Kr\u00e1lovsk\u00e9 Vinohrady. Chyst\u00e1me spolupr\u00e1ci s Plzn\u00ed, Olomouc\u00ed, Zl\u00ednem a Pardubicemi. Na\u0161\u00edm c\u00edlem je, aby do poloviny roku 2025 fungovaly pacientsk\u00e9 rady na v\u0161ech klinik\u00e1ch \u010di komplexn\u00edch onkologick\u00fdch centrech v \u010cesku,\u201c<\/em> \u0159\u00edk\u00e1 Bc. Michaela T\u016fmov\u00e1, m\u00edstop\u0159edsedkyn\u011b V\u00fdboru HOP. Pacientskou radu chystaj\u00ed tak\u00e9 ve FN Bulovka. Inspirac\u00ed je mj. Masaryk\u016fv onkologick\u00fd \u00fastav, kde pacientsk\u00e1 rada funguje od roku 2017.<\/p>\n\n\n\n

D\u016fle\u017eitou roli v\u00a0\u017eivot\u011b onkologicky nemocn\u00fdch hraj\u00ed tak\u00e9 pacientsk\u00e9 organizace. \u201eKrom\u011b sd\u00edlen\u00ed relevantn\u00edch informac\u00ed nab\u00edz\u00edme i \u0159adu aktivit, kter\u00e9 pom\u00e1haj\u00ed s\u00a0n\u00e1vratem do b\u011b\u017en\u00e9ho \u017eivota. S\u00a0pacienty pravideln\u011b cvi\u010d\u00edme onko j\u00f3gu, po\u0159\u00e1d\u00e1me terapeutick\u00e9 odleh\u010dovac\u00ed pobyty \u010di osv\u011btov\u00e9 akce a nab\u00edz\u00edme tak\u00e9 prostor ke sd\u00edlen\u00ed zku\u0161enost\u00ed. Proto\u017ee \u010dasto jen zji\u0161t\u011bn\u00ed, \u017ee to, co se d\u011bje v\u00a0\u017eivot\u011b dan\u00e9ho pacienta, se d\u011bje i v\u00a0jin\u00fdch rodin\u00e1ch, hodn\u011b pom\u016f\u017ee,\u201c<\/em> p\u0159ibli\u017euje Ing. Nikol Pazderov\u00e1, \u010dlenka V\u00fdboru HOP.<\/p>\n\n\n\n

O roli pacientsk\u00fdch organizac\u00ed se bude mluvit tak\u00e9 na kongresu European Cancer Forum 2024, kter\u00fd se kon\u00e1 4. prosince v Bruselu. Za \u010ceskou republiku na n\u011bm vystoup\u00ed Mgr. Petra Ad\u00e1mkov\u00e1 z Hlasu onkologick\u00fdch pacient\u016f, kter\u00e1 p\u0159edstav\u00ed konkr\u00e9tn\u00ed aktivity spolku a jejich p\u0159\u00ednos pro nemocn\u00e9 s rakovinou.<\/p>\n\n\n\n

O Hlasu onkologick\u00fdch pacient\u016f<\/strong><\/p>\n\n\n\n

Hlas onkologick\u00fdch pacient\u016f<\/a> je spolek sdru\u017euj\u00edc\u00ed neziskov\u00e9 organizace (pacientsk\u00e9 a podp\u016frn\u00e9 organizace), kter\u00e9 se v\u011bnuj\u00ed napl\u0148ov\u00e1n\u00ed zdravotn\u00edch, soci\u00e1ln\u00edch a psychologick\u00fdch pot\u0159eb onkologick\u00fdch pacient\u016f a jejich bl\u00edzk\u00fdch. Poskytuje konzultace a poradenstv\u00ed k jak\u00e9mukoli typu onkologick\u00e9 diagn\u00f3zy.<\/p>\n","protected":false},"excerpt":{"rendered":"

Pomohou n\u00e1vody mapuj\u00edc\u00ed p\u00e9\u010di v regionech Praha, 27. 11. 2024 \u2013 Pacienti s rakovinou \u010dasto v po\u010d\u00e1te\u010dn\u00ed f\u00e1zi nemoci nev\u00ed, za jak\u00fdm l\u00e9ka\u0159em maj\u00ed j\u00edt a co […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":15420,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-53392","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/53392","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=53392"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/53392\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/15420"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=53392"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=53392"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=53392"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}