P\u0159i\u0161lo to jako blesk z \u010dist\u00e9ho nebe. Pan\u00ed Veronika se za\u010dala probouzet s nevysv\u011btlitelnou \u00fanavou, t\u0159esy a slabost\u00ed cel\u00e9ho t\u011bla. N\u00e1sledovala nejr\u016fzn\u011bj\u0161\u00ed vy\u0161et\u0159en\u00ed a akutn\u00ed operace. Po nark\u00f3ze se v\u0161ak probudila s pocitem, \u017ee je n\u011bco v je\u0161t\u011b v\u011bt\u0161\u00edm nepo\u0159\u00e1dku. Nyn\u00ed jen le\u017e\u00ed na l\u016f\u017eku a nen\u00ed schopn\u00e1 prakticky \u017e\u00e1dn\u00e9ho pohybu. Nav\u00edc se boj\u00ed toho, \u017ee u\u017e nav\u017edy bude odk\u00e1z\u00e1na na pomoc ostatn\u00edch.<\/p>\n\n\n\n
Kdysi byla pan\u00ed Veronika (\u017eena si nep\u0159\u00e1la zve\u0159ej\u0148ovat sv\u00e9 cel\u00e9 jm\u00e9no, redakce v\u0161ak jej\u00ed toto\u017enost zn\u00e1) pln\u00e1 energie a radosti ze \u017eivota, dnes jen le\u017e\u00ed na l\u016f\u017eku a nev\u00ed, zda se jej\u00ed stav n\u011bkdy zlep\u0161\u00ed. Po akutn\u00ed operaci j\u00ed byla diagnostikov\u00e1na neurologick\u00e1 funk\u010dn\u00ed porucha hybnosti, kter\u00e1 vyp\u00edn\u00e1 propojen\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu s cel\u00fdm t\u011blem.<\/p>\n\n\n\n
Jej\u00ed stav je velice v\u00e1\u017en\u00fd a pan\u00ed Veronika pot\u0159ebuje podp\u016frn\u00e9 terapie, kter\u00e9 j\u00ed mohou \u017eivot alespo\u0148 usnadnit. Kv\u016fli dlouholet\u00e9 z\u00e1slu\u017en\u00e9 pr\u00e1ci v cizin\u011b v\u0161ak nedos\u00e1hne na podporu a \u017eije s nulov\u00fdm p\u0159\u00edjmem. Bez pomoci druh\u00fdch se neobejde. Zalo\u017eila proto sb\u00edrku, ve kter\u00e9 by r\u00e1da vybrala 300 000 korun.<\/p>\n\n\n\n
Za\u010dalo to slabost\u00ed a t\u0159esy<\/p>\n\n\n\n
Dokto\u0159i se zprvu domn\u00edvali, \u017ee pan\u00ed Veronika trp\u00ed roztrou\u0161enou skler\u00f3zou. Nemoc, p\u0159i kter\u00e9 lidsk\u00fd imunitn\u00ed syst\u00e9m napad\u00e1 centr\u00e1ln\u00ed nervovou soustavu, ale byla nakonec vylou\u010dena. N\u00e1sleduj\u00edc\u00edch sedm m\u011bs\u00edc\u016f str\u00e1vila v nehybn\u00e9m stavu na l\u016f\u017eku a \u010dekala na dal\u0161\u00ed vy\u0161et\u0159en\u00ed.<\/p>\n\n\n\n
\u201eByla mi diagnostikov\u00e1na neurologick\u00e1 funk\u010dn\u00ed porucha hybnosti. Ta vyp\u00edn\u00e1 centr\u00e1ln\u00ed nervov\u00fd syst\u00e9m a jeho propojen\u00ed s t\u011blem svaly od krku a\u017e po doln\u00ed kon\u010detiny. Nav\u00edc m\u00e1m silnou degeneraci v\u0161ech kloub\u016f, chrupavek a \u0161patn\u011b vst\u0159eb\u00e1v\u00e1m \u017eiviny,\u201c hovo\u0159\u00ed o sv\u00e9m onemocn\u011bn\u00ed na dobro\u010dinn\u00e9 platform\u011b Znesn\u00e1ze pan\u00ed Veronika.<\/p>\n\n\n\n
Zhor\u0161en\u00ed p\u0159\u00edznak\u016f i \u017eivota<\/p>\n\n\n\n
Postupn\u011b p\u0159e\u0161la pan\u00ed Veronika na oporu berl\u00ed, jeliko\u017e nemohla zapojovat svalstvo. Chodilo se j\u00ed h\u016f\u0159 a h\u016f\u0159, musela st\u00e1le ul\u00e9hat na l\u016f\u017eko. Brn\u011blo ji cel\u00e9 t\u011blo, c\u00edtila obrovskou celkovou svalovou slabost, bolesti, t\u0159esy a silnou nespavost, kterou trp\u00ed dodnes spolu s nevysv\u011btlitelnou \u00fanavou.<\/p>\n\n\n\n
\u201eKa\u017edodenn\u00ed \u017eivot je velmi n\u00e1ro\u010dn\u00fd. Je pro m\u011b obt\u00ed\u017en\u00e9 doj\u00edt p\u00e1r metr\u016f na toaletu nebo se jen udr\u017eet. St\u00e1t za podpory berl\u00ed nevydr\u017e\u00edm d\u00e9le ne\u017e p\u00e1r minut. Nem\u016f\u017eu u\u017e bolest\u00ed ani sed\u011bt,\u201c pokra\u010duje zakladatelka sb\u00edrky.<\/p>\n\n\n\n
Jej\u00ed schopnost zapojit svaly a cvi\u010dit je nav\u00edc minim\u00e1ln\u00ed, co\u017e nutn\u011b vede k dal\u0161\u00edmu ochabov\u00e1n\u00ed t\u011bla. Kv\u016fli nemo\u017enosti zapojit svalstvo trupu a zad nav\u00edc doch\u00e1z\u00ed k tomu, \u017ee u\u017e nen\u00ed schopn\u00e1 ani del\u0161\u00ed dobu sed\u011bt.<\/p>\n\n\n\n
Pan\u00ed Veronice byla tak\u00e9 diagnostikov\u00e1na fibromyalgie. Tato porucha postihuje svaly a m\u011bkkou tk\u00e1\u0148, \u010d\u00edm\u017e zp\u016fsobuje chronickou bolest sval\u016f, zv\u00fd\u0161enou citlivost, \u00fanavu a poruchy sp\u00e1nku.<\/p>\n\n\n\n
Odk\u00e1z\u00e1na na dobro ostatn\u00edch<\/p>\n\n\n\n
V minulosti byla pan\u00ed Veronika velmi veselou aktivn\u00ed \u017eenou, kter\u00e1 vystudovala \u010desk\u00e9 i zahrani\u010dn\u00ed vysok\u00e9 \u0161koly. V profesn\u00edm i soukrom\u00e9m \u017eivot\u011b se v\u011bnovala d\u011btem, byla pe\u010dovatelkou a r\u00e1da pom\u00e1hala druh\u00fdm. Jej\u00ed pracovn\u00ed aktivity v\u0161ak \u010dasto sm\u011b\u0159ovaly za hranice Evropsk\u00e9 unie. A pr\u00e1v\u011b kv\u016fli tomu nespl\u0148uje podm\u00ednky \u010desk\u00e9 legislativy o vym\u011b\u0159en\u00ed jak\u00fdchkoliv d\u00e1vek od st\u00e1tu.<\/p>\n\n\n\n
\u201eNepob\u00edr\u00e1m \u017e\u00e1dn\u00e9 nemocensk\u00e9 d\u00e1vky, d\u00e1vky z \u00fa\u0159adu pr\u00e1ce ani invalidn\u00ed d\u016fchod. Nem\u00e1m zkr\u00e1tka \u017e\u00e1dn\u00e9 p\u0159\u00edjmy. Situace je pro m\u011b dlouhodob\u011b tak\u0159ka ne\u00fanosn\u00e1. Jsem odk\u00e1z\u00e1na pouze na pomoc bl\u00edzk\u00fdch. Vidina, \u017ee bych se vr\u00e1tila do pr\u00e1ce, je vzhledem k m\u00e9mu zdravotn\u00edmu stavu nere\u00e1ln\u00e1,\u201c popisuje svou situaci pan\u00ed Veronika.<\/p>\n\n\n\n
\u017den\u011b chyb\u00ed prost\u0159edky jak na b\u011b\u017en\u00e9 \u017eivobyt\u00ed a z\u00e1kladn\u00ed pot\u0159eby, tak i na podp\u016frn\u00e9 terapie, kter\u00e9 j\u00ed mohou usnadnit \u017eivot. V\u0161echny terapie si nav\u00edc mus\u00ed platit sama, jeliko\u017e nejsou hrazen\u00e9 z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed. V\u0161ude mus\u00ed b\u00fdt tak\u00e9 p\u0159epravov\u00e1na, \u010d\u00edm\u017e vznikaj\u00ed dal\u0161\u00ed n\u00e1klady. Aktu\u00e1ln\u011b se c\u00edt\u00ed tak \u0161patn\u011b, \u017ee se boj\u00ed, \u017ee do V\u00e1noc nevydr\u017e\u00ed.<\/p>\n\n\n\n
Do sb\u00edrky lze p\u0159isp\u011bt jakoukoliv \u010d\u00e1stkou ZDE: https:\/\/www.znesnaze21.cz\/sbirka\/pomozme-veronice-zit-dustojny-zivot#o-sbirce<\/a><\/p>\n\n\n\n Neurologick\u00e1 funk\u010dn\u00ed porucha hybnosti<\/p>\n\n\n\n Podle \u010dasopisu Neurologie pro praxi maj\u00ed funk\u010dn\u00ed poruchy hybnosti pov\u011bst obt\u00ed\u017en\u011b diagnostikovateln\u00fdch a je\u0161t\u011b obt\u00ed\u017en\u011bji l\u00e9\u010diteln\u00fdch onemocn\u011bn\u00ed.<\/p>\n\n\n\n \u201eFunk\u010dn\u00ed poruchy hybnosti jsou charakterizovan\u00e9 p\u0159edev\u0161\u00edm m\u011bnliv\u00fdmi, nest\u00e1l\u00fdmi p\u0159\u00edznaky. Z hlediska progn\u00f3zy je rozhoduj\u00edc\u00ed \u010dasn\u00e9 stanoven\u00ed diagn\u00f3zy. Hlavn\u00ed roli v \u0159\u00edzen\u00ed cel\u00e9ho l\u00e9\u010debn\u00e9ho postupu m\u00e1 neurolog,\u201c tvrd\u00ed neurolo\u017eka Tereza Serranov\u00e1 z Neurologick\u00e9 kliniky a Centra klinick\u00fdch neurov\u011bd, UK v Praze, 1. LF a VFN v Praze.<\/p>\n\n\n\n Ro\u010dn\u011b se onemocn\u011bn\u00ed, je\u017e vznik\u00e1 nej\u010dast\u011bji mezi 20. a 50. rokem v\u011bku, vyskytne u 4 a\u017e 12 pacient\u016f na 100 000 obyvatel.<\/p>\n\n\n\n Kate\u0159ina N\u011bmcov\u00e1<\/p>\n\n\n\n Pardubick\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/pardubicky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" P\u0159i\u0161lo to jako blesk z \u010dist\u00e9ho nebe. Pan\u00ed Veronika se za\u010dala probouzet s nevysv\u011btlitelnou \u00fanavou, t\u0159esy a slabost\u00ed cel\u00e9ho t\u011bla. N\u00e1sledovala nejr\u016fzn\u011bj\u0161\u00ed vy\u0161et\u0159en\u00ed a akutn\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":2052,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-53743","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/53743","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=53743"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/53743\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/2052"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=53743"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=53743"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=53743"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}