{"id":53875,"date":"2024-12-21T01:43:41","date_gmt":"2024-12-21T00:43:41","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=53875"},"modified":"2024-12-21T01:43:42","modified_gmt":"2024-12-21T00:43:42","slug":"dianka-se-narodila-s-rozdelenym-jazykem-a-vzacnym-syndromem-ted-touzi-chodit","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=53875","title":{"rendered":"Dianka se narodila s rozd\u011blen\u00fdm jazykem a vz\u00e1cn\u00fdm syndromem. Te\u010f tou\u017e\u00ed chodit"},"content":{"rendered":"\n

ilustra\u010dn\u00ed foto<\/em><\/p>\n\n\n\n

Pro hol\u010di\u010dku z Doma\u017elicka jsou jedinou nad\u011bj\u00ed rehabilitace, kter\u00e9 ale zdravotn\u00ed poji\u0161\u0165ovny nehrad\u00ed.<\/p>\n\n\n\n

Sudi\u010dky, je\u017e st\u00e1ly u kol\u00e9bky Dianky, kter\u00e1 \u017eije s rodi\u010di Pavlou a Martinem \u0158ezn\u00ed\u010dkov\u00fdmi v Post\u0159ekov\u011b na Doma\u017elicku, j\u00ed nad\u011blily hodn\u011b t\u011b\u017ek\u00fd osud. Narodila se s jazykem rozd\u011blen\u00fdm na t\u0159i \u010d\u00e1sti a p\u0159edev\u0161\u00edm z\u00e1va\u017enou nemoc\u00ed, kv\u016fli n\u00ed\u017e ve sv\u00fdch t\u0159ech letech dosud nechod\u00ed a m\u00e1 velk\u00e9 probl\u00e9my i s mluven\u00edm. Je to ale velk\u00e1 bojovnice a rodi\u010de d\u011blaj\u00ed v\u0161e pro to, aby se postavila na vlastn\u00ed no\u017ei\u010dky a chodila. Pomoci j\u00ed k tomu mohou rehabilitace, kter\u00e9 jsou ale n\u00e1kladn\u00e9 a poji\u0161\u0165ovna je nehrad\u00ed.<\/p>\n\n\n\n

Dianka se narodila s jazykem na t\u0159i \u010d\u00e1sti, kter\u00e9 bylo t\u0159eba chirurgicky spojit. Ihned po p\u0159\u00edchodu na sv\u011bt musela podstoupit tracheostomii, k tomu j\u00ed byla zavedena sonda na p\u0159\u00edjem potravy. Trp\u00ed vz\u00e1cn\u00fdm DPG+ syndromem a hypotonick\u00fdm cel\u00fdm t\u011blem. Jde o vz\u00e1cn\u00e9 posti\u017een\u00ed, kter\u00e9 ovliv\u0148uje svalov\u00fd tonus a zp\u016fsobuje celkovou slabost t\u011bla, co\u017e Diance zt\u011b\u017euje z\u00e1kladn\u00ed pohyby, jako je lezen\u00ed, ch\u016fze nebo mluven\u00ed. \u201eDianka nechod\u00ed, ale dok\u00e1\u017ee se sama p\u0159esunout, kam chce, a\u0165 ji\u017e kut\u00e1len\u00edm, pohyby po kolenou \u010di plazen\u00edm. Je jako klasick\u00e9 d\u00edt\u011b, chce si hr\u00e1t a podobn\u011b, ale je limitovan\u00e1 sv\u00fdm t\u011blem. To se projevuje i p\u0159i \u0159e\u010di. P\u00e1r slov zvl\u00e1dne, ale sna\u017e\u00ed se sp\u00ed\u0161e znakovat a ukazovat p\u0159es obr\u00e1zky,\u201c popsala maminka Pavla \u0158ezn\u00ed\u010dkov\u00e1. Ta v\u011b\u0159\u00ed, \u017ee jej\u00ed dcera si kone\u010dn\u011b u\u017eije V\u00e1noce tak jako zdrav\u00e9 d\u011bti. P\u0159i v\u0161ech p\u0159edchoz\u00edch toti\u017e byla nemocn\u00e1, m\u011bla nap\u0159\u00edklad silnou st\u0159evn\u00ed ch\u0159ipku, jindy musela b\u00fdt po sv\u00e1tc\u00edch operov\u00e1na kv\u016fli krv\u00e1cen\u00ed do b\u0159\u00ed\u0161ka. \u201eLetos v\u016fbec poprv\u00e9 si u\u017eila \u010derty, and\u011bla a Mikul\u00e1\u0161e, poprv\u00e9 nebyla nemocn\u00e1 \u010di v nemocnici. Tak douf\u00e1me, \u017ee to vyjde i s V\u00e1nocemi. Radost j\u00ed ur\u010dit\u011b ud\u011bl\u00e1 ply\u0161ov\u00fd pejsek, tato zv\u00ed\u0159\u00e1tka m\u00e1 moc r\u00e1da,\u201c sv\u011b\u0159ila se maminka.<\/p>\n\n\n\n

Hol\u010di\u010dka z Doma\u017elicka musela absolvovat u\u017e \u0159adu operac\u00ed, ale je to velk\u00e1 bojovnice, co\u017e potvrzuje i zdravotn\u00ed sestra Radka M\u00fcllerov\u00e1, kter\u00e1 rodinu pravideln\u011b nav\u0161t\u011bvuje. \u201eDianka si sv\u016fj \u017eivot doslova vybojovala. Doj\u00ed\u017ed\u00edm za n\u00ed jedenkr\u00e1t t\u00fddn\u011b a v\u017edy po intenzivn\u00ed rehabilitaci je vid\u011bt posun vp\u0159ed. Moc bych si p\u0159\u00e1la, aby mohla absolvovat co nejv\u00edce rehabilitac\u00ed a t\u00edm se st\u00e1le posouvat vp\u0159ed,\u201c uvedla M\u00fcllerov\u00e1.<\/p>\n\n\n\n

Rehabilitace jsou pro Dianku kl\u00ed\u010dem k lep\u0161\u00ed budoucnosti. D\u00edky nim dok\u00e1\u017ee p\u0159ekon\u00e1vat limity sv\u00e9ho t\u011bla a postupn\u00fdmi kr\u016f\u010dky zvl\u00e1dat v\u011bci, kter\u00e9 se zd\u00e1ly d\u0159\u00edve nemo\u017en\u00e9. \u201eTerapie j\u00ed d\u00e1vaj\u00ed nad\u011bji, \u017ee jednoho dne bude sama chodit,\u201c v\u011b\u0159\u00ed Pavla \u0158ezn\u00ed\u010dkov\u00e1, kter\u00e1 s Diankou pravideln\u011b doj\u00ed\u017ed\u00ed na n\u00e1kladn\u00e9 terapie. \u201eV dne\u0161n\u00ed dob\u011b je bohu\u017eel drtiv\u00e1 v\u011bt\u0161ina terapi\u00ed a rehabilitac\u00ed pro d\u011bti, jako je Dianka, br\u00e1na jako jak\u00fdsi nad-standard, za kter\u00fd si rodi\u010de mus\u00ed p\u0159iplatit. Z t\u011bch, kter\u00e9 dcera pot\u0159ebuje, bohu\u017eel zdravotn\u00ed poji\u0161\u0165ovna nep\u0159isp\u00edv\u00e1 na \u017e\u00e1dnou,\u201c posteskla si maminka nemocn\u00e9 hol\u010di\u010dky.<\/p>\n\n\n\n

Celkov\u00e9 ro\u010dn\u00ed n\u00e1klady na rehabilitace se po\u010d\u00edtaj\u00ed ve statis\u00edc\u00edch korun. Dianka ale pot\u0159ebuje pravidelnou p\u00e9\u010di, jinak by nem\u011bla v\u016fbec \u017e\u00e1dnou \u0161anci na to, \u017ee jednou bude moct b\u011bhat, hr\u00e1t si a pro\u017e\u00edvat radost z pohybu jako jin\u00e9 d\u011bti. Nyn\u00ed rodin\u011b chyb\u00ed necel\u00fdch t\u0159icet tis\u00edc korun k pokryt\u00ed aktu\u00e1ln\u011b pl\u00e1novan\u00e9 rehabilitace.<\/p>\n\n\n\n

Pomoci m\u016f\u017eete prost\u0159ednictv\u00edm sb\u00edrky, kterou po\u0159\u00e1d\u00e1 charitativn\u00ed projekt Patron d\u011bt\u00ed a najdete ji na jeho str\u00e1nk\u00e1ch pod n\u00e1zvem Rehabilitace d\u00e1vaj\u00ed Diance nad\u011bji, \u017ee bude chodit zde: https:\/\/patrondeti.cz\/pribeh\/rehabilitace-davaji-diance-nadeji-ze-bude-chodit<\/a><\/p>\n\n\n\n

\u201eT\u0159\u00edlet\u00e1 Dianka je jedn\u00edm z d\u011bt\u00ed, kter\u00e9 podporujujeme. Na pomoc d\u00edvence p\u016fjde sto procent ka\u017ed\u00e9ho p\u0159\u00edsp\u011bvku, proto\u017ee provoz Patrona d\u011bt\u00ed financuje jej\u00ed zakladatelka Nadace S\u00edrius. Ka\u017ed\u00fd dar, a\u0165 u\u017e velk\u00fd nebo mal\u00fd, posune Dianku bl\u00ed\u017ee k jej\u00edmu snu \u2013 st\u00e1t na vlastn\u00edch nohou,\u201c uzav\u0159ela Kate\u0159ina Malatincov\u00e1 z Patrona d\u011bt\u00ed.<\/p>\n\n\n\n

Milan Kili\u00e1n<\/p>\n\n\n\n

Klatovsk\u00fd den\u00edk<\/p>\n\n\n\n

https:\/\/klatovsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

ilustra\u010dn\u00ed foto Pro hol\u010di\u010dku z Doma\u017elicka jsou jedinou nad\u011bj\u00ed rehabilitace, kter\u00e9 ale zdravotn\u00ed poji\u0161\u0165ovny nehrad\u00ed. Sudi\u010dky, je\u017e st\u00e1ly u kol\u00e9bky Dianky, kter\u00e1 \u017eije s rodi\u010di […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":24138,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-53875","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/53875","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=53875"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/53875\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/24138"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=53875"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=53875"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=53875"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}