T\u0159\u00edlet\u00fd V\u00e1clav m\u00e1 asi 25 diagn\u00f3z. D\u00edky nezm\u011brn\u00e9 p\u00e9\u010di rodi\u010d\u016f ale ne\u010dekan\u011b prosp\u00edv\u00e1. Jen\u017ee r\u016fzn\u00e9 terapie a pom\u016fcky stoj\u00ed spoustu pen\u011bz. P\u0159\u00edb\u011bh rodiny p\u0159edstavuje dal\u0161\u00ed d\u00edl seri\u00e1lu Ned\u00e1me je do \u00fastavu.<\/p>\n\n\n\n
Dnes t\u0159\u00edlet\u00fd Va\u0161\u00edk se mohl narodit jako zdrav\u00e9 miminko. Jen\u017ee p\u0159i\u0161el na sv\u011bt ji\u017e v p\u00e1t\u00e9m m\u011bs\u00edci, v\u00e1\u017eil 900 gram\u016f a chytil bakterii, kter\u00e1 ohro\u017eovala jeho \u017eivot. Selh\u00e1vala mu v\u011bt\u0161ina org\u00e1n\u016f, v srdci m\u011bl d\u00edru, krv\u00e1cel do mozku, ned\u00fdchal s\u00e1m, nevylu\u010doval.<\/p>\n\n\n\n
\u201eNa novorozeneck\u00e9 jipce jsem za\u017eila, jak ukon\u010duj\u00ed l\u00e9\u010dbu n\u011bkolika mimink\u016fm, kter\u00e1 m\u011bla \u010dtvrt\u00fd stupe\u0148 krv\u00e1cen\u00ed do mozku. Va\u0161\u00edk m\u011bl t\u0159et\u00ed. Modlila jsem se, aby s tou zpr\u00e1vou za n\u00e1mi doktor nep\u0159i\u0161el. Pak se jeho stav je\u0161t\u011b v\u00edce zhor\u0161il, nav\u00edc byl cel\u00fd rozp\u00edchan\u00fd, \u010dernaly mu nedokrven\u00e9 kone\u010dky prst\u016f a j\u00e1 jsem se s n\u00edm u\u017e rozlou\u010dila a p\u0159\u00e1la si, aby se tu u\u017e netr\u00e1pil,\u201c popisuje \u00fatrapy jeho maminka Michaela Bezou\u0161kov\u00e1.<\/p>\n\n\n\n
Po dvou m\u011bs\u00edc\u00edch se syn\u016fv stav za\u010dal pomalu obracet k lep\u0161\u00edmu, vyhr\u00e1no ale nem\u011bl. Krv\u00e1cen\u00ed do mozku po\u0161kodilo pohybov\u00e9 i \u0159e\u010dov\u00e9 centrum. V roce a p\u016fl prod\u011blal n\u011bkolik operac\u00ed mozku a jeho stav byl op\u011bt kritick\u00fd. Chlape\u010dek znovu zabojoval a i z t\u00e9to situace se dok\u00e1zal dostat.<\/p>\n\n\n\n
\u201eV\u00e1clav si vyslechl u\u017e spoustu \u0161patn\u00fdch diagn\u00f3z, ale v\u017edy si to ud\u011bl\u00e1 n\u011bjak po sv\u00e9m. \u0158\u00edkali, \u017ee z\u0159ejm\u011b nebude vid\u011bt a sly\u0161et, p\u0159esto vid\u00ed a sly\u0161\u00ed. Nem\u011bl nikdy s\u00e1m d\u00fdchat, d\u00fdch\u00e1 bez podpory. M\u011bl to b\u00fdt le\u017e\u00e1k, s moj\u00ed dopomoc\u00ed ud\u011bl\u00e1 p\u00e1r kr\u016f\u010dk\u016f,\u201c vyjmenov\u00e1v\u00e1 maminka.<\/p>\n\n\n\n
Pro pomoc nadac\u00ed jsme moc bohat\u00ed<\/p>\n\n\n\n
Po noc\u00edch, kdy\u017e Va\u0161\u00edk sp\u00ed, zkou\u0161\u00ed \u017e\u00e1dat o p\u0159\u00edsp\u011bvky st\u00e1t i nadace. \u201eSe st\u00e1tem je to na dlouh\u00e9 lokte a pro nadace m\u00e1me moc vysok\u00e9 p\u0159\u00edjmy. Jen\u017ee speci\u00e1ln\u00ed autoseda\u010dka pro v podstat\u011b bezvl\u00e1dn\u00e9 d\u00edt\u011b stoj\u00ed p\u0159es devades\u00e1t tis\u00edc,\u201c upozor\u0148uje. Podpory se nakonec do\u010dkali u nadace Dobr\u00fd And\u011bl, m\u011bs\u00ed\u010dn\u011b \u010din\u00ed zhruba sedm tis\u00edc korun.<\/p>\n\n\n\n
Oce\u0148uje, jak \u010desk\u00e9 zdravotnictv\u00ed dok\u00e1\u017ee zachra\u0148ovat \u017eivoty. Podle n\u00ed ale syst\u00e9m selh\u00e1v\u00e1 v n\u00e1sledn\u00e9 pomoci. Aby V\u00e1clav prosp\u00edval, mus\u00ed neust\u00e1le rehabilitovat. M\u011bs\u00ed\u010dn\u011b v\u0161e stoj\u00ed des\u00edtky tis\u00edc korun, poji\u0161\u0165ovny podle n\u00ed proplat\u00ed jen malou \u010d\u00e1st.<\/p>\n\n\n\n
Podle mluv\u010d\u00edho ministerstva zdravotnictv\u00ed Ond\u0159eje Jakoba je fyzioterapie hrazena v rozsahu indikovan\u00e9m l\u00e9ka\u0159em. \u201ePouze konkr\u00e9tn\u00ed vy\u0161et\u0159en\u00ed maj\u00ed konkr\u00e9tn\u00ed vykazovac\u00ed omezen\u00ed, nap\u0159\u00edklad, \u017ee je mo\u017en\u00e9 je vyk\u00e1zat maxim\u00e1ln\u011b dvakr\u00e1t za den,\u201c uvedl.<\/p>\n\n\n\n
V p\u0159\u00edpad\u011b, \u017ee rozsah indikovan\u00e9 p\u00e9\u010de neodpov\u00edd\u00e1 pot\u0159eb\u00e1m pacienta, je podle n\u011bj t\u0159eba tuto situaci \u0159e\u0161it nejprve s o\u0161et\u0159uj\u00edc\u00edm l\u00e9ka\u0159em, p\u0159\u00edpadn\u011b pak se zdravotn\u00ed poji\u0161\u0165ovnou. Jakob tak\u00e9 upozornil, \u017ee ministerstvo zdravotnictv\u00ed v p\u0159ipravovan\u00e9 novele z\u00e1kona o ve\u0159ejn\u00e9m zdravotn\u00edm poji\u0161t\u011bn\u00ed roz\u0161i\u0159uje kompetence fyzioterapeut\u016fm, aby m\u011bli v\u011bt\u0161\u00ed vliv na rozsah poskytovan\u00e9 p\u00e9\u010de a nebyli pln\u011b z\u00e1visl\u00ed na indikac\u00edch od l\u00e9ka\u0159\u016f.<\/p>\n\n\n\n
Boj s \u00fa\u0159ady<\/p>\n\n\n\n
Michaela Bezou\u0161kov\u00e1 se slo\u017eit\u011b pot\u00fdk\u00e1 s \u00fa\u0159ady p\u0159i vy\u0159izov\u00e1n\u00ed d\u00e1vek. \u201eSt\u00e1t v\u00e1m prvn\u00ed rok nic ned\u00e1, proto\u017ee to bere tak, \u017ee na matce je zcela z\u00e1visl\u00e9 ka\u017ed\u00e9 takto mal\u00e9 d\u00edt\u011b. Jen\u017ee to posti\u017een\u00e9 mus\u00ed m\u00edt speci\u00e1ln\u00ed v\u00fd\u017eivu, pl\u00ednky, seda\u010dky, chod\u00edtko i ko\u010d\u00e1r, to v\u0161e je hrozn\u011b drah\u00e9. Zdrav\u00e9 d\u00edt\u011b v roce b\u011bh\u00e1 a kdy\u017e m\u00e1 hlad, vezme si t\u0159eba rohl\u00edk. J\u00e1 d\u00e1vala st\u0159\u00edka\u010dkou speci\u00e1ln\u00ed v\u00fd\u017eivu za t\u0159i stovky,\u201c konstatuje.<\/p>\n\n\n\n
Slova o tomto fungov\u00e1n\u00ed syst\u00e9mu potvrdila i Jitka Koutov\u00e1 z N\u00e1rodn\u00ed rady osob se zdravotn\u00edm posti\u017een\u00edm. \u201eN\u00e1rok na p\u0159\u00edsp\u011bvek na p\u00e9\u010di nem\u00e1 d\u00edt\u011b mlad\u0161\u00ed jednoho roku, nebo\u0165 se p\u0159edpokl\u00e1d\u00e1, \u017ee p\u00e9\u010de o n\u011bj je v podstat\u011b stejn\u011b n\u00e1ro\u010dn\u00e1, a\u0165 ji\u017e se jedn\u00e1 o d\u00edt\u011b zdrav\u00e9 \u010di se zdravotn\u00edm posti\u017een\u00edm,\u201c vysv\u011btlila na webu \u0160ance d\u011btem.<\/p>\n\n\n\n
Po prvn\u00edch narozenin\u00e1ch za\u017e\u00e1dali rodi\u010de Va\u0161\u00edka o p\u0159\u00edsp\u011bvek na p\u00e9\u010di, k \u017e\u00e1dosti p\u0159ilo\u017eili des\u00edtky l\u00e9ka\u0159sk\u00fdch zpr\u00e1v s p\u011btadvaceti diagn\u00f3zami. P\u0159esto dostali jen druh\u00fd stupe\u0148 na p\u00e9\u010di, proti \u010demu\u017e se odvolali. Nejvy\u0161\u0161\u00edho, \u010dtvrt\u00e9ho stupn\u011b, se do\u010dkali, a\u017e kdy\u017e dali v\u011bc k soudu.<\/p>\n\n\n\n
Nyn\u00ed se rodina sna\u017e\u00ed z\u00edskat pen\u00edze na nov\u00e9 auto uzp\u016fsoben\u00e9 synov\u011b handicapu. \u201eAbychom si mohli za\u017e\u00e1dat o p\u0159\u00edsp\u011bvek na mobilitu, mus\u00edme m\u00edt platnou karti\u010dku ZTP, ale \u017e\u00e1dost le\u017e\u00ed u\u017e p\u016fl roku na \u00fa\u0159ad\u011b. Napsala jsem dvac\u00edtce nadac\u00ed, zda by nebylo mo\u017en\u00e9 p\u0159isp\u011bt n\u00e1m na auto. Zat\u00edm jich odpov\u011bd\u011blo jeden\u00e1ct, \u017ee nebylo, \u017ee si m\u00e1me ud\u011blat ve\u0159ejnou sb\u00edrku,\u201c vypr\u00e1v\u00ed Va\u0161\u00edkova m\u00e1ma.<\/p>\n\n\n\n
Zalo\u017eila proto sb\u00edrku na platform\u011b Donio (https:\/\/donio.cz\/pomocvasikovi<\/a>). \u201eMn\u011b se ale nechce po\u0159\u00e1d n\u011bkde \u017eebrat. Jsem pr\u00e1vni\u010dka, v pohod\u011b bych se u\u017eivila, ale u n\u00e1s ve St\u0159edo\u010desk\u00e9m kraji je nedostatek odleh\u010dovac\u00edch slu\u017eeb pro mal\u00e9 d\u011bti, nepoda\u0159ilo se mi sehnat ani placen\u00e9ho asistenta. M\u00e1m jedin\u00e9 \u0161t\u011bst\u00ed, \u017ee pat\u0159\u00edm mezi jednu z deseti \u017een, kter\u00e9 man\u017eel neopustil kv\u016fli d\u00edt\u011bti s posti\u017een\u00edm a \u017ee se fakt sna\u017e\u00ed n\u00e1s u\u017eivit,\u201c uzav\u00edr\u00e1 Michaela Bezou\u0161kov\u00e1.<\/p>\n\n\n\n Podle ministerstva pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed by se m\u011bla situace pe\u010duj\u00edc\u00edch zlep\u0161it novelou z\u00e1kona o soci\u00e1ln\u00edch slu\u017eb\u00e1ch, kter\u00fd na podzim schv\u00e1lila vl\u00e1da. Mimo jin\u00e9 se d\u00edky n\u00ed zrychl\u00ed \u0159\u00edzen\u00ed o p\u0159\u00edsp\u011bvku na p\u00e9\u010di t\u00edm, \u017ee bude pln\u011b v kompetenci \u010cesk\u00e9 spr\u00e1vy soci\u00e1ln\u00edho zabezpe\u010den\u00ed. D\u0159\u00edve o n\u011bm spr\u00e1va rozhodovala, ale vy\u0159izoval ho \u00fa\u0159ad pr\u00e1ce. Pod\u00e1vat \u017e\u00e1dosti a komunikovat s \u00fa\u0159adem bude nov\u011b mo\u017en\u00e9 online pomoc\u00ed Klientsk\u00e9 z\u00f3ny Jenda.<\/p>\n\n\n\n Zat\u00edmco dosud \u0159\u00edzen\u00ed trvalo a\u017e 135 dn\u016f, od z\u00e1\u0159\u00ed 2025 by m\u011blo trvat ide\u00e1ln\u011b 60 dn\u00ed, maxim\u00e1ln\u011b 90 dn\u00ed v p\u0159\u00edpad\u011b ne\u00fapln\u00fdch \u017e\u00e1dost\u00ed. \u201eV t\u00e9to citliv\u00e9 oblasti, kde ka\u017ed\u00fd den zpo\u017ed\u011bn\u00ed m\u016f\u017ee zp\u016fsobit komplikace pro \u017eadatele a jejich rodiny, se bude rozhodovat rychleji. Zam\u011b\u0159ujeme se proto na odstran\u011bn\u00ed nadbyte\u010dn\u00e9 byrokracie,\u201c uvedl po schv\u00e1len\u00ed novely vl\u00e1dou ministr pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed Marian Jure\u010dka.<\/p>\n\n\n\n Ned\u00e1me je do \u00fastavu<\/p>\n\n\n\n O sv\u00e9 p\u0159\u00edbuzn\u00e9 doma pe\u010duje a\u017e milion lid\u00ed. Zhruba 200 tis\u00edc \u010cech\u016f ale kv\u016fli p\u00e9\u010di o sv\u00e9 bl\u00edzk\u00e9 nezvl\u00e1d\u00e1 pracovat na pln\u00fd \u00favazek, pot\u00fdk\u00e1 se s nedostatkem pen\u011bz, mimo\u0159\u00e1dn\u00fdm stresem, spole\u010denskou izolac\u00ed a leckdy i rozpadem partnersk\u00fdch vztah\u016f. P\u0159esto se sna\u017e\u00ed v\u0161e zvl\u00e1dnout, aby nemuseli d\u00e1t t\u011b\u017ece nemocn\u00e9ho bl\u00edzk\u00e9ho do \u00fastavn\u00ed p\u00e9\u010de. T\u00edm st\u00e1tu \u0161et\u0159\u00ed spoustu pen\u011bz.<\/p>\n\n\n\n Jejich osudy se zab\u00fdv\u00e1 nov\u00fd seri\u00e1l Den\u00edku.cz a organizace Neviditeln\u00ed Ned\u00e1me je do \u00fastavu.<\/p>\n\n\n\n Pot\u00fdk\u00e1te se tak\u00e9 s p\u00e9\u010d\u00ed o sv\u00e9 nemohouc\u00ed bl\u00edzk\u00e9? Napi\u0161te n\u00e1m sv\u016fj p\u0159\u00edb\u011bh na email zuzana.hronova@denik.cz.<\/p>\n\n\n\n Zuzana Hronov\u00e1<\/p>\n\n\n\n Den\u00edk.cz<\/p>\n\n\n\n https:\/\/www.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" T\u0159\u00edlet\u00fd V\u00e1clav m\u00e1 asi 25 diagn\u00f3z. D\u00edky nezm\u011brn\u00e9 p\u00e9\u010di rodi\u010d\u016f ale ne\u010dekan\u011b prosp\u00edv\u00e1. Jen\u017ee r\u016fzn\u00e9 terapie a pom\u016fcky stoj\u00ed spoustu pen\u011bz. P\u0159\u00edb\u011bh rodiny p\u0159edstavuje dal\u0161\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":19489,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-54111","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54111","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=54111"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54111\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/19489"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=54111"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=54111"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=54111"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}