{"id":54689,"date":"2025-02-06T19:51:43","date_gmt":"2025-02-06T18:51:43","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=54689"},"modified":"2025-02-06T19:51:43","modified_gmt":"2025-02-06T18:51:43","slug":"k-moderni-lecbe-migreny-se-nedostanou-vsichni","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=54689","title":{"rendered":"K\u00a0modern\u00ed l\u00e9\u010db\u011b migr\u00e9ny se nedostanou v\u0161ichni"},"content":{"rendered":"\n

N\u011bkter\u00e1 centra jsou pln\u00e1 nebo u\u017e nemaj\u00ed pen\u00edze<\/em><\/p>\n\n\n\n

Praha, 5. 2. 2025 \u2013 \u201eJe plno\u201c nebo \u201eU\u017e m\u00e1me vy\u010derpan\u00fd rozpo\u010det\u201c \u2013 toto sl\u00fdch\u00e1v\u00e1 z \u00fast zdravotn\u00edk\u016f \u0159ada pacient\u016f s migr\u00e9nou, kdy\u017e se sna\u017e\u00ed domoci l\u00e9\u010dby ve specializovan\u00fdch za\u0159\u00edzen\u00edch. P\u0159esto\u017ee jim migr\u00e9na ni\u010d\u00ed \u017eivot, do center pro diagnostiku a l\u00e9\u010dbu bolesti hlavy se n\u011bkdy nedostanou. Nemoc je p\u0159itom <\/strong>nez\u0159\u00eddka <\/strong>tr\u00e1p\u00ed v\u00edce ne\u017e 10 dn\u00ed v m\u011bs\u00edci. Krom\u011b siln\u00fdch bolest\u00ed hlavy \u010dasto zvracej\u00ed, maj\u00ed poruchy vid\u011bn\u00ed, z\u00e1vrat\u011b. N\u011bkte\u0159\u00ed pacienti proto rad\u011bji cestuj\u00ed stovky kilometr\u016f do jin\u00fdch center, kde je je\u0161t\u011b \u201evolno\u201c. Na bari\u00e9ry, kter\u00e9 br\u00e1n\u00ed hladk\u00e9 cest\u011b pacienta s migr\u00e9nou za l\u00e9\u010dbou, upozor\u0148uje pacientsk\u00e1 organizace Migr\u00e9na-<\/strong>help.<\/strong><\/p>\n\n\n\n

\u201eObrac\u00ed se na n\u00e1s st\u00e1le v\u00edce pacient\u016f s t\u00edm, \u017ee se nemohou dostat k \u00fa\u010dinn\u00e9 l\u00e9\u010db\u011b. P\u0159esto\u017ee tr\u00e1v\u00ed zna\u010dnou \u010d\u00e1st m\u011bs\u00edce v bolestech, specializovan\u00e9 vy\u0161et\u0159en\u00ed a l\u00e9\u010dba, kterou pod\u00e1vaj\u00ed pouze v centrech, jim unik\u00e1,\u201c <\/em>\u0159\u00edk\u00e1 R\u00fdza Bla\u017eejovsk\u00e1, p\u0159edsedkyn\u011b pacientsk\u00e9 organizace Migr\u00e9na-help. Parafr\u00e1zuje n\u011bkter\u00e9 \u010dleny t\u00e9to organizace:<\/p>\n\n\n\n

Roman (Brno): Ataky migr\u00e9ny m\u00e1m v pr\u016fm\u011bru osmkr\u00e1t za m\u011bs\u00edc. Beru triptany a zkou\u0161el jsem i r\u016fzn\u00e9 preventivn\u00ed l\u00e9ky. I kdy\u017e jsem je bral v\u017edy alespo\u0148 t\u0159i m\u011bs\u00edce, nezab\u00edraly a m\u011bly nep\u0159\u00edjemn\u00e9 vedlej\u0161\u00ed \u00fa\u010dinky. P\u0159i posledn\u00ed n\u00e1v\u0161t\u011bv\u011b jsem se zm\u00ednil, zda by nebyla mo\u017enost zkusit biologickou l\u00e9\u010dbu. Pan\u00ed doktorka mi \u0159ekla, \u017ee j\u00ed do\u0161ly prost\u0159edky na p\u0159edeps\u00e1n\u00ed biologick\u00e9 l\u00e9\u010dby u\u017e v \u010dervenci a je probl\u00e9m p\u0159edepisovat dal\u0161\u00ed.<\/p>\n\n\n\n

Mark\u00e9ta (Prose\u010d, Chrudim): V lednu to budou dva roky, co doj\u00ed\u017ed\u00edm z Prose\u010de do Thomayerovy nemocnice v Praze. Marn\u011b jsem se asi \u010dty\u0159i m\u011bs\u00edce sna\u017eila dostat do Pardubic nebo Hradce. Po ka\u017ed\u00e9m zavol\u00e1n\u00ed mi bylo \u0159e\u010deno, \u017ee maj\u00ed stop stav a a\u0165 si zavol\u00e1m za m\u011bs\u00edc nebo a\u0165 zkus\u00edm jin\u00e9 centrum. Te\u010f, i kdy\u017e je to autem p\u0159es dv\u011b hodiny a jen samotn\u00e1 cesta mi kolikr\u00e1t vyvol\u00e1 ataku, bych nem\u011bnila.  <\/p>\n\n\n\n

Alena (Strakonice): L\u00e9\u010dila jsem se n\u011bkolik let ve strakonick\u00e9 nemocnici, podstoupila jsem t\u0159i preventivn\u00ed l\u00e9\u010dby, kter\u00e9 mi byly vysazeny kv\u016fli vedlej\u0161\u00edm \u00fa\u010dink\u016fm. L\u00e9ka\u0159i zhodnotili, \u017ee st\u00e1le nem\u00e1m n\u00e1rok na biologickou l\u00e9\u010dbu. Tak jsem se sebrala a jela do Prahy do Motola do centra pro l\u00e9\u010dbu bolest\u00ed hlavy. Vzali m\u011b t\u0159i t\u00fddny po objedn\u00e1n\u00ed a hned na prvn\u00ed n\u00e1v\u0161t\u011bv\u011b mi biologickou l\u00e9\u010dbu schv\u00e1lili. Ka\u017ed\u00e9 t\u0159i m\u011bs\u00edce tak doj\u00ed\u017ed\u00edm 120 km na kapa\u010dku.<\/p>\n\n\n\n

Petra (Mikulov): Chod\u00edm do centra a z\u00e1chvat\u016f m\u00e1m p\u0159es 10, ale l\u00e9ka\u0159ka mi nasadila antidepresiva, i kdy\u017e u m\u011b selhaly u\u017e \u010dty\u0159i mo\u017enosti klasick\u00e9 l\u00e9\u010dby. L\u00e9ky mi bohu\u017eel nepom\u00e1haj\u00ed \u2013 po n\u011bkolika m\u011bs\u00edc\u00edch jsem je cht\u011bla vysadit, ale l\u00e9ka\u0159ka mi \u0159ekla, \u017ee je m\u00e1m br\u00e1t d\u00e1l. Jezd\u00edm 50 km jen proto, aby mi sd\u011blili, \u017ee je p\u0159e\u010derp\u00e1n limit na biologickou l\u00e9\u010dbu, a abych dostala recept na l\u00e9ky, kter\u00e9 mi nezab\u00edraj\u00ed.<\/p>\n\n\n\n

Pr\u00e1v\u011b biologick\u00e1 l\u00e9\u010dba, vyvinut\u00e1 pro prevenci atak migr\u00e9ny, um\u00ed podle odborn\u00edk\u016f sn\u00ed\u017eit po\u010det z\u00e1chvat\u016f o polovinu a v\u00edce, zkracuje jejich trv\u00e1n\u00ed a zm\u00edr\u0148uje intenzitu. L\u00e9\u010dbu v\u0161ak mohou l\u00e9ka\u0159i podat pouze ve specializovan\u00fdch centrech pro diagnostiku a l\u00e9\u010dbu bolest\u00ed hlavy \u2013 t\u011bch je v \u010cesku p\u0159es 40. Podle p\u0159edsedkyn\u011b Migr\u00e9na-help tato centra st\u00e1le nejsou po republice rovnom\u011brn\u011b rozm\u00edst\u011bn\u00e1 a n\u011bkter\u00e1 nemaj\u00ed uzav\u0159en\u00e9 smlouvy se v\u0161emi zdravotn\u00edmi poji\u0161\u0165ovnami.<\/p>\n\n\n\n

\u201eU\u00a0pacient\u016f s men\u0161\u00edm po\u010dtem z\u00e1chvat\u016f v\u011bt\u0161inou sta\u010d\u00ed nasadit akutn\u00ed l\u00e9\u010dbu \u2013 analgetika nebo triptany. P\u0159i v\u00edce ne\u017e \u010dty\u0159ech atak\u00e1ch m\u011bs\u00ed\u010dn\u011b nebo kdy\u017e jsou z\u00e1chvaty t\u011b\u017ek\u00e9 a trvaj\u00ed d\u00e9le ne\u017e 48 hodin, je u\u017e ale dobr\u00e9 <\/em>nasadit profylaktick\u00e9 l\u00e9ky, kter\u00e9 se u\u017e\u00edvaj\u00ed denn\u011b, obvykle po dobu 6 m\u011bs\u00edc\u016f a d\u00e9le. C\u00edlem t\u00e9to l\u00e9\u010dby je sn\u00ed\u017eit po\u010det, intenzitu i dobu trv\u00e1n\u00ed z\u00e1chvat\u016f<\/em>. A kdy\u017e ani to nezafunguje zah\u00e1jit l\u00e9\u010dbu biologickou<\/em> monoklon\u00e1ln\u00edmi protil\u00e1tkami, <\/em>kter\u00e9 se aplikuj\u00ed jednou m\u011bs\u00ed\u010dn\u011b nebo \u010dtvrtletn\u011b. Dal\u0161\u00ed modern\u00ed terapi\u00ed jsou mal\u00e9 molekuly zvan\u00e9 gepanty, kter\u00e9 jsou \u00fa\u010dinn\u00e9 pro prevenci i akutn\u00ed l\u00e9\u010dbu. <\/em>Za \u00fasp\u011b\u0161n\u00e9 pova\u017eujeme sn\u00ed\u017een\u00ed frekvence z\u00e1chvat\u016f minim\u00e1ln\u011b o polovinu a zlep\u0161en\u00ed kvality \u017eivota<\/em>,\u201c <\/em>potvrzujeMUDr. Ji\u0159\u00ed Neumann, prim\u00e1\u0159 neurologick\u00e9ho odd\u011blen\u00ed chomutovsk\u00e9 nemocnice. Jak d\u00e1le uv\u00e1d\u00ed, zdej\u0161\u00ed centrum by zvl\u00e1dlo pomoci modern\u00ed l\u00e9\u010dbou v\u00edce lidem z regionu. \u201eM\u00e1me je\u0161t\u011b voln\u00e9 kapacity. Nyn\u00ed biologicky l\u00e9\u010d\u00edme 28 lid\u00ed s\u00a0migr\u00e9nou. Terapie jim sn\u00ed\u017eila po\u010det migren\u00f3zn\u00edch z\u00e1chvat\u016f o 50\u201375 %,\u201c <\/em>popisuje neurolog.<\/p>\n\n\n\n

Aby pacienti v\u011bd\u011bli, \u010deho by se jim v\u00a0cest\u011b za \u00falevou od nemoci m\u011blo spr\u00e1vn\u011b dostat, zpracovala pacientsk\u00e1 organizace Migr\u00e9na-help spole\u010dn\u011b s\u00a0Czech Headache Society (Sekce pro diagnostiku a l\u00e9\u010dbu bolest\u00ed hlavy p\u0159i \u010cesk\u00e9 neurologick\u00e9 spole\u010dnosti)\u00a0dokument Cesta pacienta s\u00a0migr\u00e9nou. <\/p>\n\n\n\n

\u201ePopisuje, jak by m\u011bla ide\u00e1ln\u00ed cesta pacienta syst\u00e9mem vypadat, a mapuje i p\u0159ek\u00e1\u017eky, kter\u00e9 tomu br\u00e1n\u00ed,\u201c<\/em> p\u0159ibli\u017euje R\u00fdza Bla\u017eejovsk\u00e1. \u201eZe strany l\u00e9ka\u0159\u016f, zejm\u00e9na ambulantn\u00edch neurolog\u016f a praktik\u016f, je to nap\u0159\u00edklad podce\u0148ov\u00e1n\u00ed z\u00e1va\u017enosti migr\u00e9ny, nespr\u00e1vn\u00e1 diagnostika \u010di neodesl\u00e1n\u00ed pacienta na komplexn\u00ed vy\u0161et\u0159en\u00ed do specializovan\u00e9ho centra.\u201c<\/em> Pacienti si zase cestu komplikuj\u00ed nedodr\u017eov\u00e1n\u00edm l\u00e9\u010dby nebo t\u00edm, \u017ee nadu\u017e\u00edvaj\u00ed analgetika \u2013 l\u00e9ky na rychlou \u00falevu od bolesti.<\/p>\n\n\n\n

\u201eSituaci tak\u00e9 neprosp\u00edvaj\u00ed p\u0159\u00edli\u0161 tvrd\u00e9 podm\u00ednky zdravotn\u00edch poji\u0161\u0165oven pro pod\u00e1n\u00ed biologick\u00e9 terapie a gepant\u016f a n\u011bkdy i n\u00edzk\u00e9 rozpo\u010dty stanoven\u00e9 poji\u0161\u0165ovnou<\/em> pro st\u00e1vaj\u00edc\u00ed centra,\u201c <\/em>dod\u00e1v\u00e1 MUDr. Eva Medov\u00e1, specialistka na migr\u00e9nu z centra pro diagnostiku a l\u00e9\u010dbu bolest\u00ed hlavy ve FNKV v Praze.Pr\u00e1v\u011b pacientsk\u00e1 organizace Migr\u00e9na-help kv\u016fli tomu loni organizovala kulat\u00fd st\u016fl<\/u><\/a> na p\u016fd\u011b poslaneck\u00e9 sn\u011bmovny, za \u00fa\u010dasti z\u00e1stupc\u016f ministerstva zdravotnictv\u00ed, sen\u00e1tor\u016f a neurolog\u016f. Ten byl sou\u010d\u00e1st\u00ed projektu Zmen\u0161ujeme p\u0159ek\u00e1\u017eky na cest\u011b pacienta s\u00a0migr\u00e9nou (https:\/\/www.migrena-help.cz\/l\/zmensujeme-prekazky-na-ceste-pacienta-s-migrenou-zdravotnim-systemem\/<\/u><\/a>) a v\u00fdsledkem je v\u00fdzva k\u00a0odstran\u011bn\u00ed sou\u010dasn\u00fdch bari\u00e9r. V \u010cesku se s migr\u00e9nou pot\u00fdk\u00e1 odhadem p\u0159es milion lid\u00ed.<\/p>\n\n\n\n

Migr\u00e9na <\/strong><\/p>\n\n\n\n

Migr\u00e9na je chronick\u00e9 onemocn\u011bn\u00ed, kter\u00e9 se projevuje opakovan\u00fdmi z\u00e1chvaty bolesti hlavy s doprovodn\u00fdmi p\u0159\u00edznaky (sv\u011btloplachost, p\u0159ecitliv\u011blost na zvuky, nevolnost nebo zvracen\u00ed). Podle po\u010dtu dn\u016f v m\u011bs\u00edci s bolest\u00ed hlavy se rozli\u0161uje epizodick\u00e1 (0\u201314 migren\u00f3zn\u00edch dn\u016f v m\u011bs\u00edci) a chronick\u00e1 migr\u00e9na (\u2265 15 migren\u00f3zn\u00edch dn\u016f v m\u011bs\u00edci). L\u00e9\u010dba migr\u00e9ny je akutn\u00ed a preventivn\u00ed. Akutn\u00ed l\u00e9\u010dba se pod\u00e1v\u00e1 p\u0159i z\u00e1chvatu a zahrnuje analgetika, triptany nebo nejnov\u011bji tak\u00e9 gepanty. P\u0159i v\u00edce ne\u017e \u010dty\u0159ech migren\u00f3zn\u00edch dnech v m\u011bs\u00edci se potom obvykle zva\u017euje zah\u00e1jen\u00ed preventivn\u00ed l\u00e9\u010dby, nutn\u00e9 je v\u0161ak vy\u0161et\u0159en\u00ed l\u00e9ka\u0159em, a to bu\u010f ambulantn\u00edm neurologem, nebo l\u00e9ka\u0159em v centru pro diagnostiku a l\u00e9\u010dbu bolest\u00ed hlavy. V\u00edce informac\u00ed je na V\u00edce o migr\u00e9n\u011b na http:\/\/www.migrena-kompas.cz<\/a>.<\/p>\n\n\n\n

S nemoc\u00ed lidem pom\u00e1h\u00e1 tak\u00e9 mobiln\u00ed aplikace Migr\u00e9na Kompas<\/a>, u\u017eivatel\u016fm umo\u017e\u0148uje zaznamenat jednotliv\u00e9 z\u00e1chvaty, jejich d\u00e9lku, intenzitu a u\u017eit\u00e9 l\u00e9ky.<\/p>\n\n\n\n

Migr\u00e9na-help<\/strong><\/p>\n\n\n\n

Migr\u00e9na-help je prvn\u00ed pacientsk\u00e1 organizace v\u202f\u010cesk\u00e9 republice podporuj\u00edc\u00ed osoby s\u202fmigr\u00e9nou a jejich bl\u00edzk\u00e9. \u0160\u00ed\u0159\u00ed osv\u011btu, poskytuje informa\u010dn\u00ed servis a poradenstv\u00ed, koordinuje kruhy sd\u00edlen\u00ed, zprost\u0159edkov\u00e1v\u00e1 psychoterapii, realizuje pr\u016fzkumy, zasazuje se o syst\u00e9mov\u00e9 zm\u011bny a mnoho dal\u0161\u00edho. Jde o neziskovou organizaci, kter\u00e1 sv\u00e9 slu\u017eby nab\u00edz\u00ed za symbolick\u00fd poplatek p\u0159\u00edpadn\u011b zdarma. V\u00edce informac\u00ed na www.migrena-help.cz<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

N\u011bkter\u00e1 centra jsou pln\u00e1 nebo u\u017e nemaj\u00ed pen\u00edze Praha, 5. 2. 2025 \u2013 \u201eJe plno\u201c nebo \u201eU\u017e m\u00e1me vy\u010derpan\u00fd rozpo\u010det\u201c \u2013 toto sl\u00fdch\u00e1v\u00e1 z \u00fast zdravotn\u00edk\u016f […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":10615,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-54689","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54689","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=54689"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54689\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/10615"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=54689"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=54689"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=54689"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}