{"id":54856,"date":"2025-02-16T08:51:37","date_gmt":"2025-02-16T07:51:37","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=54856"},"modified":"2025-02-16T08:51:38","modified_gmt":"2025-02-16T07:51:38","slug":"nevylecitelne-nemocnym-detem-a-jejich-rodinam-se-casto-nedostava-pomoci","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=54856","title":{"rendered":"Nevyl\u00e9\u010diteln\u011b nemocn\u00fdm d\u011btem a jejich rodin\u00e1m se \u010dasto nedost\u00e1v\u00e1 pomoci\u00a0"},"content":{"rendered":"\n

\u010cT 1\u00a0– Ud\u00e1losti

Nevyl\u00e9\u010diteln\u011b nemocn\u00fdm d\u011btem a jejich rodin\u00e1m se \u010dasto nedost\u00e1v\u00e1 pomoci. 10 let usiluj\u00ed specialist\u00e9 z d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de o propojen\u00ed slu\u017eeb a o jejich roz\u0161i\u0159ov\u00e1n\u00ed do region\u016f. Cht\u011bj\u00ed tak d\u011btem umo\u017enit navzdory diagn\u00f3ze pro\u017e\u00edt \u017eivot kvalitn\u011b. T\u00e9matu se v\u011bnuje dokument, kter\u00fd odvys\u00edlala \u010cT2.

D\u011btsk\u00e1 paliativn\u00ed p\u00e9\u010de, 2025, re\u017eie: L. Surovcov\u00e1
——————–
Vem si to do ru\u010dinky. Tak, v\u00fdborn\u011b.Byl to jako \u0161ok, proto\u017ee takov\u00e9to b\u011b\u017en\u00e9 pov\u011bdom\u00ed o paliativ\u011b znamen\u00e1 prost\u011b, \u017ee u\u017e je konec.No, hlavn\u011b jako v\u00e1m nalijou \u010dist\u00fdho v\u00edna, co\u017e bylo hrozn\u011b d\u016fle\u017eit\u00fd.

Lea Surovcov\u00e1, redaktorka \u010cT
——————–
Z\u00e1sadn\u00ed rozd\u00edl mezi dosp\u011blou a d\u011btskou paliativn\u00ed p\u00e9\u010d\u00ed je \u010das u d\u011bt\u00ed. M\u016f\u017ee j\u00edt o l\u00e9ta.

D\u011btsk\u00e1 paliativn\u00ed p\u00e9\u010de, 2025, re\u017eie: L. Surovcov\u00e1
——————–
Ve sv\u00e9 podstat\u011b jsme museli \u0159e\u0161it to, to nem\u016f\u017eu \u0159\u00edct.No, \u0159e\u0161ili jsme opravdu prost\u011b to, \u017ee pokud se probere a bude to jakoby n\u00e1\u0161 Olaf, tak\u017ee OK, je to v po\u0159\u00e1dku. Kdybych tam v t\u011bch o\u010d\u00edch vid\u011bla jako nic, tak bych opravdu jako u\u017e prost\u011b ho nechala odej\u00edt.

Lea Surovcov\u00e1, redaktorka \u010cT
——————–
Lenka Svobodov\u00e1 m\u00e1 dceru se vz\u00e1cn\u00fdm onemocn\u011bn\u00edm. Paliativn\u00ed pl\u00e1n j\u00ed pr\u00fd p\u0159inesl do \u017eivota klid.

Lenka svobodov\u00e1, matka d\u00edt\u011bte v paliativn\u00ed p\u00e9\u010di
——————–
Nen\u00ed jakoby v uvozovk\u00e1ch \u0159e\u0161en\u00ed. Tak chcete naj\u00edt cestu a zp\u016fsob, aby se to d\u00edt\u011b netr\u00e1pilo?

Lea Surovcov\u00e1, redaktorka \u010cT
——————–
Nejen o tom debatovala s odborn\u00edky na p\u0159edpremi\u00e9\u0159e nov\u00e9ho dokumentu \u010cT, ten mapuje syst\u00e9m p\u00e9\u010de o d\u011bti s nevyl\u00e9\u010diteln\u00fdm onemocn\u011bn\u00edm.

Mahulena Exnerov\u00e1, prim\u00e1\u0159ka d\u011btsk\u00e9ho odd\u011blen\u00ed,\u00a0Nemocnice<\/strong>\u00a0Ho\u0159ovice
——————–
V t\u00e9 praxi je spousta m\u00edst, kde to v\u00e1zne. Po\u0159\u00e1d ten za\u010d\u00e1tek mus\u00ed b\u00fdt v\u00a0nemocnici<\/strong>, kde d\u00edt\u011b le\u017e\u00ed, kde dostane diagn\u00f3zu, aby n\u011bkdo um\u011bl d\u00edt\u011b poznat, poznat ty pot\u0159eby.

Lea Surovcov\u00e1, redaktorka \u010cT
——————–
Nav\u00edc p\u00e9\u010de je na hranici soci\u00e1ln\u011b-zdravotn\u00ed, \u0161koln\u00ed, co\u017e mnohdy podle rodin i odborn\u00edk\u016f v\u00e1zne.

D\u011btsk\u00e1 paliativn\u00ed p\u00e9\u010de, 2025, re\u017eie: L. Surovcov\u00e1
——————–
Ty vym\u011bn\u00ed\u0161 nat\u00e1\u010den\u00ed za to, \u017ee nebude\u0161 m\u00edt dom\u00e1c\u00ed \u00fakol.M\u00e1m \/nesrozumiteln\u00e9\/ ve\u010der.

Lea Surovcov\u00e1, redaktorka \u010cT
——————–
Chyb\u00ed i odleh\u010dovac\u00ed slu\u017eby. U\u017e p\u016fl roku funguje v Brn\u011b prvn\u00ed d\u011btsk\u00fd hospic, D\u016fm pro Julii.

Radka Vernerov\u00e1, \u0159editelka, D\u016fm pro Julii
——————–
St\u0159\u00eddaj\u00ed se u n\u00e1s na t\u00fddenn\u00edch dvou nebo t\u0159\u00edt\u00fddenn\u00edch pobytech. A co m\u00e1me zp\u011btnou vazbu od rodin, tak jsou v\u0161ichni spokojen\u00ed.

D\u011btsk\u00e1 paliativn\u00ed p\u00e9\u010de, 2025, re\u017eie: L. Surovcov\u00e1
——————–
D\u011bkuju za d\u016fv\u011bru, \u017ee m\u016f\u017eeme, \u017ee se m\u016f\u017eeme starat.

Lea Surovcov\u00e1, redaktorka \u010cT
——————–
Podle odhad\u016f je v \u010cesku zhruba 14 000 d\u011bt\u00ed, pro kter\u00e9 by byla vhodn\u00e1 paliativn\u00ed p\u00e9\u010de, nov\u011b n\u011bkter\u00e9 rodiny prov\u00e1zej\u00ed t\u011b\u017ek\u00fdm obdob\u00edm koordin\u00e1to\u0159i. <\/p>\n\n\n\n


<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

\u010cT 1\u00a0– Ud\u00e1losti Nevyl\u00e9\u010diteln\u011b nemocn\u00fdm d\u011btem a jejich rodin\u00e1m se \u010dasto nedost\u00e1v\u00e1 pomoci. 10 let usiluj\u00ed specialist\u00e9 z d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de o propojen\u00ed slu\u017eeb a […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":2220,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-54856","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54856","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=54856"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54856\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/2220"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=54856"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=54856"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=54856"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}