{"id":54872,"date":"2025-02-14T14:01:49","date_gmt":"2025-02-14T13:01:49","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=54872"},"modified":"2025-02-14T14:02:00","modified_gmt":"2025-02-14T13:02:00","slug":"z-invalidu-dela-zdrave-presto-lecbu-dostane-jen-polovina-nejsou-penize","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=54872","title":{"rendered":"Z\u00a0invalid\u016f d\u011bl\u00e1 zdrav\u00e9 \u2013 p\u0159esto l\u00e9\u010dbu dostane jen polovina. Nejsou pen\u00edze"},"content":{"rendered":"\n

\u201eM\u00ed\u010d\u201c je na stran\u011b ministerstva zdravotnictv\u00ed a poji\u0161\u0165oven<\/em><\/p>\n\n\n\n

Praha, 13. 2. 2025 \u2013 Z\u00a0invalid\u016f d\u011bl\u00e1 aktivn\u00ed jedince \u2013 p\u0159esto ji nedostane zdaleka ka\u017ed\u00fd, kdo by m\u011bl. \u0158e\u010d je o modern\u00ed c\u00edlen\u00e9 l\u00e9\u010db\u011b a pacientech s\u00a0chronick\u00fdmi z\u00e1n\u011bty st\u0159ev (IBD). L\u00e9ky, kter\u00e9 jsou v\u00a0\u010cesku k\u00a0dispozici, um\u00ed postavit nemocn\u00e9 doslova na nohy, a ti pak chod\u00ed do pr\u00e1ce, plat\u00ed dan\u011b a poji\u0161t\u011bn\u00ed. P\u0159esto l\u00e9\u010dbu dost\u00e1v\u00e1 jen asi polovina z t\u011bch, kte\u0159\u00ed by na ni m\u011bli n\u00e1rok. L\u00e9ka\u0159i ji mohou podat pouze ve specializovan\u00fdch centrech, kter\u00e1 jsou pln\u00e1, ale \u2013 maj\u00ed omezen\u00fd rozpo\u010det. <\/strong><\/p>\n\n\n\n

\u0158e\u0161en\u00edm je vznik dal\u0161\u00edch center a nav\u00fd\u0161en\u00ed rozpo\u010dtu na l\u00e9\u010dbu. Na situaci upozor\u0148uj\u00ed \u010de\u0161t\u00ed gastroenterologov\u00e9 a p\u0159ipom\u00ednaj\u00ed, \u017ee \u010cesk\u00e1 republika je v\u00a0posledn\u00edch dvou a\u017e t\u0159ech dek\u00e1d\u00e1ch sv\u011bdky epidemie IBD.<\/strong><\/p>\n\n\n\n

\u201eV \u010cesk\u00e9 republice je m\u00e1lo terapeutick\u00fdch oblast\u00ed, kter\u00e9 by byly za z\u00e1padn\u00ed Evropou tak pozadu jako pr\u00e1v\u011b c\u00edlen\u00e1 l\u00e9\u010dba st\u0159evn\u00edch z\u00e1n\u011bt\u016f. Oba \u2013 Crohnova nemoc \u010di ulcer\u00f3zn\u00ed kolitida \u2013 vznikaj\u00ed u\u00a0lid\u00ed v produktivn\u00edm v\u011bku, mezi 20. a\u017e 30. rokem. Nemoci maj\u00ed vysok\u00fd invalidizuj\u00edc\u00ed potenci\u00e1l. Kdy\u017e se zpo\u010d\u00e1tku zal\u00e9\u010d\u00ed spr\u00e1vn\u011b, m\u016f\u017ee pacient \u017e\u00edt a d\u011blat v\u0161e jako zcela zdrav\u00fd \u010dlov\u011bk<\/em>,<\/em>\u201c<\/em> \u0159\u00edk\u00e1 m\u00edstop\u0159edseda \u010cesk\u00e9 gastroenterologick\u00e9 spole\u010dnosti (\u010cGS) MUDr. Martin Bortl\u00edk.<\/p>\n\n\n\n

Ro\u010dn\u011b v \u010cesku p\u0159ibude asi 7 000 nov\u011b nemocn\u00fdch a podle gastroenterolog\u016f by se v roce 2030 mohl jejich celkov\u00fd po\u010det vy\u0161plhat a\u017e na 80 000. Modern\u00ed c\u00edlenou l\u00e9\u010dbu nyn\u00ed dost\u00e1v\u00e1 15 \u201317 % pacient\u016f, jejich pod\u00edl by p\u0159itom m\u011bl b\u00fdt dle expert\u016f 30\u201340 %. \u201eL\u00e9\u010dba sice n\u011bco stoj\u00ed, ale t\u00edm, \u017ee minimalizuje invaliditu, se na\u0161\u00ed ekonomice bohat\u011b vyplat\u00ed<\/em>. St\u00e1t u\u0161et\u0159\u00ed na soci\u00e1ln\u00edch d\u00e1vk\u00e1ch a nep\u0159\u00edm\u00fdch n\u00e1kladech. Stabilizovan\u00ed pacienti pracuj\u00ed, odv\u00e1d\u00ed dan\u011b, plat\u00ed zdravotn\u00ed poji\u0161t\u011bn\u00ed,\u201c<\/em> upozor\u0148uje doc. Bortl\u00edk.<\/p>\n\n\n\n

Nyn\u00ed se IBD l\u00e9\u010d\u00ed nej\u010dast\u011bji tzv. konven\u010dn\u00ed terapi\u00ed \u2013 pomoc\u00ed kortikoid\u016f, imunosupresiv nebo aminosalicyl\u00e1t\u016f. Ty ale zab\u00edraj\u00ed jen n\u011bkter\u00fdm nemocn\u00fdm a mnohdy maj\u00ed \u0159adu vedlej\u0161\u00edch \u00fa\u010dink\u016f. \u201eNad\u011bji na plnohodnotn\u00fd \u017eivot p\u0159in\u00e1\u0161\u00ed modern\u00ed c\u00edlen\u00e1 terapie nasazen\u00e1 d\u0159\u00edve, ne\u017e dojde k nevratn\u00e9mu po\u0161kozen\u00ed st\u0159eva,\u201c<\/em> pokra\u010duje doc. Bortl\u00edk.<\/p>\n\n\n\n

Tvrzen\u00ed l\u00e9ka\u0159\u016f podporuje i pr\u016f\u0159ezov\u00e1 studie z roku 2023, kter\u00e1 zahrnula 161 \u010desk\u00fdch IBD pacient\u016f ze dvou specializovan\u00fdch center. Auto\u0159i vypozorovali dramatick\u00fd rozd\u00edl v absentismu, prezentismu, v celkov\u00e9m omezen\u00ed pr\u00e1ceschopnosti a denn\u00edch aktivit u pacient\u016f v aktivn\u00ed f\u00e1zi nemoci a t\u011bch v remisi. \u201eCelkovou ekonomickou ztr\u00e1tu v d\u016fsledku sn\u00ed\u017een\u00e9 pr\u00e1ceschopnosti auto\u0159i vy\u010d\u00edslili na v\u00edce ne\u017e 190 000 korun na jednoho pacienta za rok,\u201c<\/em> \u0159\u00edk\u00e1 doc. Bortl\u00edk, kter\u00fd je jedn\u00edm z autor\u016f studie.<\/p>\n\n\n\n

Dal\u0161\u00edm d\u016fkazem, \u017ee v\u010dasn\u00e9 nasazen\u00ed \u00fa\u010dinn\u00e9 l\u00e9\u010dby vede ke sn\u00ed\u017een\u00ed invalidity, jsou data \u010cesk\u00e9 spr\u00e1vy soci\u00e1ln\u00edho zabezpe\u010den\u00ed. \u201eZ \u00fadaj\u016f shrom\u00e1\u017ed\u011bn\u00fdch mezi lety 2015\u20132022 jasn\u011b vypl\u00fdv\u00e1, \u017ee do\u0161lo k v\u00fdznamn\u00e9mu poklesu \u017e\u00e1dost\u00ed, ale i p\u0159iznan\u00fdch invalidit u pacient\u016f s IBD. U obou diagn\u00f3z vid\u00edme p\u0159ibli\u017en\u011b t\u0159etinov\u00fd pokles \u017e\u00e1dost\u00ed a v\u00edce ne\u017e 40% sn\u00ed\u017een\u00ed po\u010dtu uznan\u00fdch invalidit. Jedin\u00fdm racion\u00e1ln\u00edm vysv\u011btlen\u00edm dramatick\u00e9ho poklesu invalidity pacient\u016f s IBD je efektivita c\u00edlen\u00e9 terapie,\u201c<\/em> uzav\u00edr\u00e1 doc. Bortl\u00edk.<\/p>\n\n\n\n

Podle gastroenterolog\u016f by situaci pomohlo rovnom\u011brn\u011bj\u0161\u00ed rozm\u00edst\u011bn\u00ed specializovan\u00fdch center, kde mohou pacienti s IBD l\u00e9\u010dbu dost\u00e1vat. V tuzemsku jich nyn\u00ed funguje 45 pro dosp\u011bl\u00e9 a 12 pro d\u011btsk\u00e9 pacienty.<\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

\u201eM\u00ed\u010d\u201c je na stran\u011b ministerstva zdravotnictv\u00ed a poji\u0161\u0165oven Praha, 13. 2. 2025 \u2013 Z\u00a0invalid\u016f d\u011bl\u00e1 aktivn\u00ed jedince \u2013 p\u0159esto ji nedostane zdaleka ka\u017ed\u00fd, kdo by […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":16059,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-54872","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54872","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=54872"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54872\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/16059"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=54872"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=54872"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=54872"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}