Rachitida, neboli \u0159\u00eddnut\u00ed a deformita kost\u00ed, siln\u00e9 bolesti, d\u011btsk\u00e1 mozkov\u00e1 obrna, epilepsie, ment\u00e1ln\u00ed retardace. Osud t\u0159\u00edlet\u00e9mu Honz\u00edkovi z Petrovic na \u00dastecku nerozdal zrovna dobr\u00e9 karty. Kv\u016fli sv\u00e9 zranitelnosti a bolestem nem\u016f\u017ee cestovat autobusem. Proto jeho rodi\u010de zalo\u017eili sb\u00edrku na Doniu a touto cestou se sna\u017e\u00ed z\u00edskat dostatek financ\u00ed, zhruba p\u016fl milionu korun, na automobil kter\u00fd uveze krom jeho a rodi\u010d\u016f i to, co pot\u0159ebuje m\u00edt sebou, v\u010detn\u011b kompenza\u010dn\u00edch pom\u016fcek a voz\u00ed\u010dku.<\/p>\n\n\n\n
Jeho maminka Jana Pivo\u0148kov\u00e1 vysv\u011btlovala, jak\u00e9 Honz\u00edk dost\u00e1v\u00e1 kv\u016fli bolestem z\u00e1chvaty vzteku. \u201eProto je nep\u0159edstaviteln\u00e9 jezdit z vesnice autobusem do m\u011bstsk\u00e9 nemocnice. Neustoj\u00ed, kdy\u017e s n\u00edm jede v\u011bt\u0161\u00ed skupina cestuj\u00edc\u00edch a v z\u00e1chvatu na n\u011b \u00fato\u010d\u00ed,\u201c smutn\u011b popisovala. \u201eNeust\u00e1le n\u00e1s kv\u016fli tomu z autobusu vyhazuj\u00ed. A\u0165 pr\u00fd si jezd\u00edme autem, jen\u017ee mi ho nem\u00e1me, proto\u017ee si ho kv\u016fli nedostatku pen\u011bz nem\u016f\u017eeme dovolit,\u201c pokra\u010dovala Honz\u00edkova maminka.<\/p>\n\n\n\n
Ka\u017edodenn\u00ed \u017eivot s Honz\u00edkem je velmi n\u00e1ro\u010dn\u00fd. Je zcela odk\u00e1z\u00e1n na pomoc rodi\u010d\u016f. Doma pot\u0159ebuje neust\u00e1lou asistenci a venku je p\u0159ev\u00e1\u017een v invalidn\u00edm voz\u00edku, proto\u017ee se rychle unav\u00ed a m\u00e1 bolesti. St\u00e1le na plenk\u00e1ch, krm\u00ed ho, obl\u00e9kaj\u00ed, koupou. Vy\u017eaduje neust\u00e1l\u00fd dohled vzhledem k mo\u017enosti epileptick\u00e9ho z\u00e1chvatu.<\/p>\n\n\n\n
Nav\u0161t\u011bvuje mnoho odborn\u00fdch l\u00e9ka\u0159\u016f, v\u010detn\u011b neurologie, ortopedie, endokrinologie (kv\u016fli poru\u0161e r\u016fstu), protetiky (m\u00e1 ort\u00e9zy na denn\u00ed no\u0161en\u00ed a polohovac\u00ed ort\u00e9zy na noc), psychologie, imunologie a genetiky. \u010cek\u00e1 ho vy\u0161et\u0159en\u00ed o\u010dn\u00ed, foniatrie, psychiatrie, ergoterapie a logopedie. P\u0159itom zpo\u010d\u00e1tku v\u0161echno vypadalo dob\u0159e, v\u010detn\u011b porodu. Zhruba do p\u016fl roku po narozen\u00ed bylo s Honz\u00edkem v\u0161e v po\u0159\u00e1dku. \u201eB\u011bhem t\u011bhotenstv\u00ed jsem m\u011bla jenom t\u011bhotenskou cukrovku, kterou jsme l\u00e9\u010dili inzulinem,\u201c \u0159ekla maminka Jana.<\/p>\n\n\n\n
Pak ale pediatr poslal Honz\u00edka na neurologick\u00e9 vy\u0161et\u0159en\u00ed kv\u016fli opo\u017ed\u011bn\u00e9mu v\u00fdvoji. Od t\u00e9 doby se jeho stav za\u010dal zhor\u0161ovat. Chodit za\u010dal opo\u017ed\u011bn\u011b a pouze po \u0161pi\u010dk\u00e1ch. Diagn\u00f3za? D\u011btsk\u00e1 mozkov\u00e1 obrna, potvrdilo ji i vy\u0161et\u0159en\u00ed magnetickou rezonanc\u00ed, kter\u00e1 odhalila v\u00fdrazn\u00e9 po\u0161kozen\u00ed mozku. Loni v \u00fanoru 2024 chlapec ne\u010dekan\u011b doma zkolaboval. Chv\u00edlemi ned\u00fdchal, nereagoval, modral, t\u0159\u00e1sl se a m\u011bl k\u0159e\u010de. P\u0159ijely dv\u011b sanitky, podaly mu diazepam, napojily ho na p\u0159\u00edstroje, nasadily kysl\u00edkovou masku a p\u0159evezly do nemocnice.<\/p>\n\n\n\n
\u201eStr\u00e1vili jsme na d\u011btsk\u00e9 klinice dva t\u00fddny pln\u00e9 strachu a obav o jeho \u017eivot. Honz\u00edk podstoupil \u010detn\u00e1 vy\u0161et\u0159en\u00ed, odb\u011bry krve, RTG kost\u00ed, dostal kapa\u010dky a dal\u0161\u00ed. Bohu\u017eel mu k tomu, co ho potkalo, nav\u00edc diagnostikovali rachitidu \u010dili k\u0159ivici, kterou m\u00e1 u\u017e od narozen\u00ed, ale tahle z\u00e1ke\u0159n\u00e1 nemoc se projevila teprve a\u017e v akutn\u00edm stadiu s k\u0159e\u010demi. EEG pot\u00e9, jakoby toho nebylo m\u00e1lo, potvrdilo epilepsii. Honz\u00edk toti\u017e prod\u011blal epileptick\u00fd z\u00e1chvat, kter\u00fd trval zhruba patn\u00e1ct minut. To je velmi dlouh\u00fd, \u017eivot ohro\u017euj\u00edc\u00ed stav,\u201c vzpom\u00ednal na osudn\u00fd den tat\u00ednek Anton\u00edn.<\/p>\n\n\n\n
Po dvou t\u00fddnech l\u00e9ka\u0159i chlapce propustili z nemocnice dom\u016f. S doporu\u010den\u00edm, aby se \u0161et\u0159il, jeliko\u017e trp\u00ed kombinovan\u00fdm posti\u017een\u00edm, ment\u00e1ln\u00edm i pohybov\u00fdm. Loni v z\u00e1\u0159\u00ed se musel do nemocnice vr\u00e1tit. Kv\u016fli zkr\u00e1cen\u00fdm achilovk\u00e1m na nohou podstoupil operaci. U\u017e\u00edv\u00e1 v\u00e1pn\u00edk, vitam\u00edn D, antiepileptika, dopl\u0148ky stravy na podporu imunity, l\u00e9ky na bolest a diazepam na prvn\u00ed pomoc.<\/p>\n\n\n\n
Vzhledem ke slo\u017eit\u00e9 situaci bylo vyhl\u00e1\u0161en\u00ed ve\u0159ejn\u00e9 sb\u00edrky na Doniu jedinou mo\u017enost\u00ed, jak sehnat pen\u00edze na nov\u00fd, dostate\u010dn\u011b prostorn\u00fd, automobil. Jana a Anton\u00edn maj\u00ed toti\u017e je\u0161t\u011b dal\u0161\u00edho syna. I on je ment\u00e1ln\u011b posti\u017een\u00fd a trp\u00ed spastickou dipar\u00e9zou. \u201eNa\u0161t\u011bst\u00ed v lehk\u00e9m stupni. Pe\u010dujeme o oba s maxim\u00e1ln\u00edm nasazen\u00edm. Nen\u00ed to jednoduch\u00e9, m\u00e1me strach a obavy, aby se Honz\u00edk\u016fv stav nezhor\u0161il. Moment\u00e1ln\u011b je stabilizovan\u00fd, ale pravideln\u011b absolvujeme kontroly v nemocnici a dal\u0161\u00ed vy\u0161et\u0159en\u00ed, kter\u00e1 jsou pro n\u011bj nevyhnuteln\u00e1. Moc v\u00e1s pros\u00edme o pomoc,\u201c dodal tat\u00ednek Anton\u00edn.<\/p>\n\n\n\n
Janni Vorl\u00ed\u010dek<\/p>\n\n\n\n
\u00dasteck\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/ustecky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Rachitida, neboli \u0159\u00eddnut\u00ed a deformita kost\u00ed, siln\u00e9 bolesti, d\u011btsk\u00e1 mozkov\u00e1 obrna, epilepsie, ment\u00e1ln\u00ed retardace. Osud t\u0159\u00edlet\u00e9mu Honz\u00edkovi z Petrovic na \u00dastecku nerozdal zrovna dobr\u00e9 karty. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":21061,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-54940","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54940","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=54940"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54940\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/21061"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=54940"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=54940"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=54940"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}