Pros\u00edm, pomozte mi splnit si m\u016fj sen o samostatn\u00e9m pohybu. To si \u00fasty sv\u00e9 maminky Jany Salzmannov\u00e9 p\u0159eje \u010dty\u0159 a p\u016fl let\u00e1 Emi\u010dka. U\u017e p\u00e1r m\u011bs\u00edc\u016f po porodu pro\u017eila d\u00edvenka prvn\u00ed epileptick\u00fd z\u00e1chvat, kter\u00fdch m\u011bla pozd\u011bji i sto denn\u011b. Emi\u010dka trp\u00ed t\u011b\u017ekou ment\u00e1ln\u00ed retardac\u00ed, nechod\u00ed a j\u00edst m\u016f\u017ee pouze p\u0159es hadi\u010dku zavedenou do b\u0159icha. Jej\u00ed rodina sn\u00ed o tom, \u017ee jednou ud\u011bl\u00e1 samostatn\u00e9 kr\u016f\u010dky.<\/p>\n\n\n\n
Emi\u010dce Salzmannov\u00e9 bude letos v l\u00e9t\u011b p\u011bt let. Jin\u00e9 d\u011bti v tomto v\u011bku b\u011bhaj\u00ed na h\u0159i\u0161ti, jezd\u00ed na kole a mlsaj\u00ed kol\u00e1\u010de, kter\u00e9 jim pe\u010dou jejich maminky. Tyto radosti jsou v\u0161ak mal\u00e9 Emi\u010dce odep\u0159eny. Od narozen\u00ed se toti\u017e pot\u00fdk\u00e1 hned s n\u011bkolika zdravotn\u00edmi probl\u00e9my, kter\u00e9 komplikuj\u00ed \u017eivot nejen j\u00ed, ale i jej\u00ed rodin\u011b.<\/p>\n\n\n\n
T\u011b\u017ek\u00e1 ment\u00e1ln\u00ed retardace a autismus<\/p>\n\n\n\n
Prvn\u00edch p\u00e1r m\u011bs\u00edc\u016f po narozen\u00ed v\u0161e vypadalo tak, \u017ee Emi\u010dka je zdrav\u00e9 prosp\u00edvaj\u00edc\u00ed miminko. Velmi z\u00e1hy se v\u0161ak za\u010daly objevovat prvn\u00ed pot\u00ed\u017ee; mezi nimi i epileptick\u00e9 z\u00e1chvaty, kter\u00fdch pozd\u011bji m\u011bla i sto za den. L\u00e9ka\u0159i dlouho nev\u011bd\u011bli, co za d\u00edven\u010din\u00fdmi zdravotn\u00edmi probl\u00e9my stoj\u00ed, ani jak je l\u00e9\u010dit. A\u017e v roce a p\u016fl v\u011bku Emi\u010dce diagnostikovali t\u011b\u017ekou ment\u00e1ln\u00ed retardaci a autismus.<\/p>\n\n\n\n
Kdy\u017e se rodi\u010de Emi\u010dky dozv\u011bd\u011bli diagn\u00f3zu, rozhodli se, \u017ee se v \u017e\u00e1dn\u00e9m p\u0159\u00edpad\u011b nevzdaj\u00ed. S Emi\u010dkou podstupovali intenzivn\u00ed rehabilitace a pravideln\u00e9 pobyty v Jansk\u00fdch l\u00e1zn\u00edch.<\/p>\n\n\n\n
V\u0161e bylo na dobr\u00e9 cest\u011b. V roce 2024 v\u0161ak hol\u010di\u010dka prod\u011blala akutn\u00ed onemocn\u011bn\u00ed, kter\u00e9 se j\u00ed m\u00e1lem stalo osudn\u00fdm.<\/p>\n\n\n\n
Pokroky ukon\u010dil z\u00e1pal plic<\/p>\n\n\n\n
\u201eEmi\u010dka d\u011blala velk\u00e9 pokroky. Nau\u010dila se chodit s pomoc\u00ed i s chod\u00edtkem. Byla jsem st\u00e1le s n\u00ed. Pom\u00e1hala n\u00e1m, a st\u00e1le pom\u00e1h\u00e1, cel\u00e1 rodina. Emi\u010dky babi\u010dka dokonce pracuje ve speci\u00e1ln\u00ed \u0161kole s t\u011blesn\u011b a ment\u00e1ln\u011b posti\u017een\u00fdmi d\u011btmi,\u201c \u0159ekla Den\u00edku maminka Emi\u010dky Jana Salzmannov\u00e1.<\/p>\n\n\n\n
Pak se ale v\u0161e oto\u010dilo. Emi\u010dka dostala siln\u00fd epileptick\u00fd z\u00e1chvat a z\u00e1pal plic. Na dlouh\u00fdch 11 dn\u00ed skon\u010dila na jednotce intenzivn\u00ed p\u00e9\u010de v Hradci Kr\u00e1lov\u00e9.<\/p>\n\n\n\n
\u201eProgn\u00f3zy byly velmi \u0161patn\u00e9. Emi\u010dka byla napojena na um\u011bl\u00e9 d\u00fdch\u00e1n\u00ed. Jej\u00ed boj za\u010dal za podpory cel\u00e9 rodiny znovu. Dlouh\u00e1 byla i rekonvalescence a ze zdravotn\u00edch d\u016fvod\u016f j\u00ed byla zavedena hadi\u010dka PEG, kterou dost\u00e1v\u00e1 j\u00eddlo p\u0159\u00edmo do \u017ealudku,\u201c uv\u00e1d\u00ed ve sb\u00edrce na dobro\u010dinn\u00e9 platform\u011b Donio Jana Salzmannov\u00e1.<\/p>\n\n\n\n
Pomoci m\u016f\u017ee speci\u00e1ln\u00ed oblek<\/p>\n\n\n\n
D\u00edky intenzivn\u00ed p\u00e9\u010di cel\u00e9 rodiny se Emi\u010dka \u010dasem op\u011bt za\u010dala pohybovat, ale chodit se j\u00ed st\u00e1le neda\u0159\u00ed. Pot\u0159ebuje intenzivn\u011bj\u0161\u00ed rehabilitaci v Rehabilita\u010dn\u00edm centru H\u00e1jek, kter\u00e9 nab\u00edz\u00ed specializovanou pohybovou terapii TheraSuit (viz n\u00ed\u017ee). Cvi\u010den\u00ed se prov\u00e1d\u00ed v \u201ekleci\u201c, kde lze Emi\u010dku pomoc\u00ed pru\u017en\u00fdch tah\u016f nastavit do r\u016fzn\u00fdch poloh a c\u00edlen\u011b posilovat vybran\u00e9 svalov\u00e9 skupiny. Poji\u0161\u0165ovna v\u0161ak tyto rehabilitace nehrad\u00ed.<\/p>\n\n\n\n
\u201eTento program by mohl zlep\u0161it motorick\u00e9 dovednosti, ale je finan\u010dn\u011b n\u00e1ro\u010dn\u00fd. Jedn\u00e1 se o \u010dtrn\u00e1ctidenn\u00ed intenzivn\u00ed rehabilitaci, kterou by v\u0161ak m\u011bla Emi\u010dka pro lep\u0161\u00ed v\u00fdsledky absolvovat n\u011bkolikr\u00e1t do roka,\u201c pokra\u010duje Emi\u010d\u010dina maminka.<\/p>\n\n\n\n
Do sb\u00edrky na speci\u00e1ln\u00ed terapie pro Emi\u010dku lze p\u0159isp\u011bt ZDE: https:\/\/donio.cz\/ema-a-jeji-boj-pujdu-sama<\/a> Pokud se vybere m\u00e9n\u011b finan\u010dn\u00edch prost\u0159edk\u016f, pen\u00edze budou pou\u017eity na zaplacen\u00ed alespo\u0148 jednoho neurorehabilita\u010dn\u00edho programu. V p\u0159\u00edpad\u011b, \u017ee by se vybralo v\u00edce, mohli by rodi\u010de dop\u0159\u00e1t dce\u0159i terapi\u00ed v\u00edce.<\/p>\n\n\n\n \u201eOpakovan\u00e9 terapie a n\u00e1sledn\u00e9 udr\u017eovac\u00ed rehabilitace jsou z\u00e1sadn\u00ed pro zlep\u0161en\u00ed Emi\u010d\u010din\u00fdch motorick\u00fdch dovednost\u00ed,\u201c vysv\u011btluje v z\u00e1v\u011bru maminka Jana Salzmannov\u00e1.<\/p>\n\n\n\n Pohybov\u00e1 terapie TheraSuit<\/p>\n\n\n\n TheraSuit je pr\u016fkopn\u00edkem v intenzivn\u00ed terapii pro d\u011bti a dosp\u011bl\u00e9 s neuromotorick\u00fdmi poruchami. D\u00edky odleh\u010den\u00ed p\u0159i cvi\u010den\u00ed za pomoci pru\u017en\u00fdch lan m\u016f\u017ee i doposud nechod\u00edc\u00ed klient pro\u017e\u00edt nez\u00e1visl\u00fd pohyb a poprv\u00e9 se zkusmo postavit na vlastn\u00ed nohy.<\/p>\n\n\n\n \u201eSou\u010d\u00e1st\u00ed t\u00e9to metody je i speci\u00e1ln\u00ed oblek, kter\u00fd vytv\u00e1\u0159\u00ed vn\u011bj\u0161\u00ed oporu \u010dlov\u011bku, je\u017e m\u00e1 neurologick\u00e9 poruchy. Prost\u0159ednictv\u00edm cvi\u010den\u00ed se lze nau\u010dit spr\u00e1vn\u00e9 pohybov\u00e9 vzory. Jemn\u00e1 a hrub\u00e1 motorika se zlep\u0161uje u 94 % pacient\u016f. Hlavn\u011b ale doch\u00e1z\u00ed ke zlep\u0161en\u00ed rovnov\u00e1hy a vn\u00edm\u00e1n\u00ed t\u011bla v prostoru,\u201c \u0159\u00edk\u00e1 zakladatelka spole\u010dnosti Therasuit LLC Company Izabela Koscielny.<\/p>\n\n\n\n Terapii mohou absolvovat d\u011bti od 2,5 let a\u017e do dosp\u011blosti.<\/p>\n\n\n\n Kate\u0159ina N\u011bmcov\u00e1<\/p>\n\n\n\n Opavsk\u00fd den\u00edk<\/p>\n\n\n\n https:\/\/opavsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Pros\u00edm, pomozte mi splnit si m\u016fj sen o samostatn\u00e9m pohybu. To si \u00fasty sv\u00e9 maminky Jany Salzmannov\u00e9 p\u0159eje \u010dty\u0159 a p\u016fl let\u00e1 Emi\u010dka. U\u017e p\u00e1r […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":19889,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-54946","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54946","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=54946"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/54946\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/19889"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=54946"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=54946"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=54946"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}