Sedmn\u00e1ctim\u011bs\u00ed\u010dn\u00ed Viktorka z Chot\u011bbo\u0159e se narodila s posti\u017eenou p\u00e1te\u0159\u00ed a celou spodn\u00ed polovinou t\u011bla. Hol\u010di\u010dka m\u00e1 vz\u00e1cnou v\u00fdvojovou vadu \u2013 syndrom kaud\u00e1ln\u00ed regrese a nav\u00edc nem\u00e1 \u017e\u00e1dn\u00fd org\u00e1n krom\u011b plic na spr\u00e1vn\u00e9m m\u00edst\u011b. Pomoc Viktorce nab\u00eddli l\u00e9ka\u0159i z Rakouska, ale poji\u0161\u0165ovna drahou l\u00e9\u010dbu odm\u00edtla proplatit. Maminka, kter\u00e1 po\u010d\u00edt\u00e1 ka\u017edou korunu, proto pros\u00ed ve\u0159ejnost o pomoc prost\u0159ednictv\u00edm sb\u00edrky.<\/p>\n\n\n\n
Mal\u00e1 Viktorka p\u0159i\u0161la na sv\u011bt p\u0159ed\u010dasn\u011b c\u00edsa\u0159sk\u00fdm \u0159ezem v porodnici v Jihlav\u011b. Ihned po narozen\u00ed bylo jasn\u00e9, \u017ee nen\u00ed jako ostatn\u00ed miminka. Z porodnice ji proto hned p\u0159evezli na specializovan\u00e9 pracovi\u0161t\u011b do Brna, kde podstoupila r\u016fzn\u00e1 vy\u0161et\u0159en\u00ed. Tam l\u00e9ka\u0159i zjistili, \u017ee trp\u00ed kombinac\u00ed vz\u00e1cn\u00fdch v\u00fdvojov\u00fdch vad. Hol\u010di\u010dka m\u00e1 org\u00e1ny mimo jejich obvykl\u00e1 m\u00edsta, posti\u017een\u00ed p\u00e1te\u0159e a vz\u00e1cn\u00fd syndrom kaud\u00e1ln\u00ed regrese, kter\u00fd z\u00e1sadn\u011b ovliv\u0148uje jej\u00ed spodn\u00ed \u010d\u00e1st t\u011bla.<\/p>\n\n\n\n
Komplikovan\u00fd porod a okam\u017eit\u00fd p\u0159evoz do Brna<\/p>\n\n\n\n
A\u017e po probuzen\u00ed z nark\u00f3zy se maminka dozv\u011bd\u011bla, \u017ee dcerku hned po narozen\u00ed odvezli do brn\u011bnsk\u00e9 nemocnice. Po t\u011b\u017ek\u00e9 operaci v\u0161ak musela je\u0161t\u011b t\u0159i dny z\u016fstat le\u017eet v porodnici, dceru Viktorku po tu dobu v\u016fbec nespat\u0159ila.<\/p>\n\n\n\n
Do Brna se za n\u00ed po propu\u0161t\u011bn\u00ed z porodnice vydala sama vlakem.<\/p>\n\n\n\n
\u201eTen prvn\u00ed pohled nikdy nezapomenu. Byla stra\u0161n\u011b malinkat\u00e1, nem\u011bla se do\u017e\u00edt ve\u010dera,\u201c vzpom\u00edn\u00e1 maminka Marie M\u00fcllerov\u00e1 na okam\u017eik, kdy dceru poprv\u00e9 spat\u0159ila.<\/p>\n\n\n\n
Org\u00e1ny v b\u0159\u00ed\u0161ku a vz\u00e1cn\u00fd syndrom kaud\u00e1ln\u00ed regrese<\/p>\n\n\n\n
Viktorka trp\u00ed kombinac\u00ed vz\u00e1cn\u00fdch vad. Ta prvn\u00ed ovliv\u0148uje jej\u00ed org\u00e1ny. \u201eV\u0161echny org\u00e1ny co m\u00e1, m\u00e1 v b\u0159\u00ed\u0161ku. \u017daludek, srd\u00ed\u010dko\u2026 Jedin\u00e9, co m\u00e1 spr\u00e1vn\u011b, jsou pl\u00edce,\u201c vysv\u011btluje Viktor\u010diny pot\u00ed\u017ee M\u00fcllerov\u00e1.<\/p>\n\n\n\n
Dal\u0161\u00ed vadou je syndrom kaud\u00e1ln\u00ed regrese. Jedn\u00e1 se o rozs\u00e1hlou v\u00fdvojovou vadu, kter\u00e1 postihuje p\u00e1te\u0159 a celou spodn\u00ed \u010d\u00e1st t\u011bla. U Viktorky to znamen\u00e1, \u017ee m\u00edsto 33 obratl\u016f jich m\u00e1 jen dev\u011bt.<\/p>\n\n\n\n
M\u00edcha p\u0159itom dosahuje pouze k \u0161est\u00e9mu obratli. Kost\u011bn\u00fd v\u00fdb\u011b\u017eek uprost\u0159ed t\u011bl\u00ed\u010dka j\u00ed nav\u00edc zp\u016fsobuje dal\u0161\u00ed pot\u00ed\u017ee a bolesti. Pr\u00e1v\u011b kolem n\u011bj je omotan\u00e1 Viktor\u010dina ledvina.<\/p>\n\n\n\n
Hol\u010di\u010dku tak \u010dek\u00e1 stomie (um\u011bl\u00fd v\u00fdvod, kter\u00fd umo\u017e\u0148uje vypr\u00e1zdn\u011bn\u00ed, pozn. red.) st\u0159ev i ledviny. Vyprazd\u0148ovat se tak Viktorka bude pomoc\u00ed hadi\u010dek do s\u00e1\u010dk\u016f.<\/p>\n\n\n\n
Nad\u011bji na zlep\u0161en\u00ed nab\u00edz\u00ed l\u00e9ka\u0159i z Rakouska<\/p>\n\n\n\n
Po dvou m\u011bs\u00edc\u00edch str\u00e1ven\u00fdch v nemocnici si maminka mohla dceru kone\u010dn\u011b odv\u00e9zt dom\u016f. Chyb\u011bly j\u00ed ale odpov\u011bdi. L\u00e9ka\u0159i toti\u017e nemaj\u00ed s podobn\u00fdmi p\u0159\u00edpady p\u0159\u00edli\u0161 zku\u0161enost\u00ed. Marie M\u00fcllerov\u00e1 proto nem\u011bla pon\u011bt\u00ed, jak se bude Viktorka d\u00e1le vyv\u00edjet. I p\u0159es posti\u017een\u00ed doln\u00ed \u010d\u00e1sti t\u011bla se dnes hol\u010di\u010dka plaz\u00ed a i p\u0159es bolest se na sv\u011bt usm\u00edv\u00e1.<\/p>\n\n\n\n
Nad\u011bji pro zlep\u0161en\u00ed jej\u00edho stavu p\u0159in\u00e1\u0161ej\u00ed rakou\u0161t\u00ed l\u00e9ka\u0159i. Mamince Viktorky nab\u00eddli s\u00e9rii operac\u00ed, kter\u00e1 by m\u011bla pomoci s rehabilitac\u00ed nefunk\u010dn\u00edch nohou.<\/p>\n\n\n\n
\u201eM\u00e1me velkou nad\u011bji. Jsou schopni j\u00ed narovnat no\u017ei\u010dky a hlavn\u011b j\u00ed ud\u011blat kolena. T\u0159eba by se na no\u017eky jednou i postavila,\u201c v\u011b\u0159\u00ed Viktor\u010dina maminka.<\/p>\n\n\n\n
Na milionovou l\u00e9\u010dbu maminka sama nena\u0161et\u0159\u00ed<\/p>\n\n\n\n
Samotn\u00e9 operace v\u0161ak p\u0159ijdou na v\u00edce ne\u017e milion korun. Dal\u0161\u00ed statis\u00edce stoj\u00ed speci\u00e1ln\u00ed poopera\u010dn\u00ed ort\u00e9zy a jejich \u00fapravy, rehabilitace a dal\u0161\u00ed pom\u016fcky. Celkem by tak za l\u00e9\u010dbu musela Marie M\u00fcllerov\u00e1 zaplatit t\u00e9m\u011b\u0159 dva a p\u016fl milionu korun.<\/p>\n\n\n\n
Maminka, kter\u00e1 po\u010d\u00edt\u00e1 ka\u017edou korunu, v\u0161ak podobnou \u010d\u00e1stku nikdy nena\u0161et\u0159\u00ed. Pros\u00ed proto o pomoc ve\u0159ejnost.<\/p>\n\n\n\n
Ve\u0159ejn\u00e1 sb\u00edrka: jak m\u016f\u017eete Viktorce pomoci:<\/p>\n\n\n\n
Sb\u00edrku pro malou Viktorku po\u0159\u00e1d\u00e1 organizace \u017divot d\u011btem, kter\u00e1 stoj\u00ed tak\u00e9 za obl\u00edben\u00fdmi srd\u00ed\u010dkov\u00fdmi dny. Celkov\u00e1 \u010d\u00e1stka pot\u0159ebn\u00e1 k l\u00e9\u010db\u011b Viktorky \u010din\u00ed 2 370 000 K\u010d.<\/p>\n\n\n\n
Z \u010d\u00e1stky budou uhrazeny celkem \u010dty\u0159i operace doln\u00edch kon\u010detin, zdravotn\u00ed p\u00e9\u010de a pom\u016fcky. P\u0159isp\u011bt Viktorce m\u016f\u017eete jakoukoliv \u010d\u00e1stkou na sb\u00edrkov\u00fd \u00fa\u010det 1117771700\/5500 s variabiln\u00edm symbolem 1018.<\/p>\n\n\n\n
Barbora Havlov\u00e1<\/p>\n\n\n\n
Den\u00edk.cz<\/p>\n\n\n\n
https:\/\/www.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Sedmn\u00e1ctim\u011bs\u00ed\u010dn\u00ed Viktorka z Chot\u011bbo\u0159e se narodila s posti\u017eenou p\u00e1te\u0159\u00ed a celou spodn\u00ed polovinou t\u011bla. Hol\u010di\u010dka m\u00e1 vz\u00e1cnou v\u00fdvojovou vadu \u2013 syndrom kaud\u00e1ln\u00ed regrese a nav\u00edc […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14565,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-55855","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/55855","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=55855"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/55855\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14565"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=55855"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=55855"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=55855"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}