V \u010cesku ka\u017edoro\u010dn\u011b p\u0159ibude p\u0159es 700 nov\u011b diagnostikovan\u00fdch pacient\u016f s mnoho\u010detn\u00fdm myelomem. Druh\u00e1 nej\u010dast\u011bj\u0161\u00ed rakovina krve postihuje zejm\u00e9na seniory ve v\u011bku od 65 do 74 let, stoup\u00e1 ale po\u010det mlad\u0161\u00edch lid\u00ed trp\u00edc\u00edch t\u00edmto onemocn\u011bn\u00edm. Nemoc je vyl\u00e9\u010diteln\u00e1, u \u010dtvrtiny pacient\u016f ji v\u0161ak l\u00e9ka\u0159i odhal\u00ed p\u0159\u00edli\u0161 pozd\u011b. Novin\u00e1\u0159\u016fm v Praze to u p\u0159\u00edle\u017eitosti N\u00e1rodn\u00edho dne myelomu, kter\u00fd p\u0159ipad\u00e1 na 30. b\u0159ezna, \u0159ekl p\u0159ednosta Kliniky hematoonkologie Fakultn\u00ed nemocnice Ostrava Roman H\u00e1jek.<\/p>\n\n\n\n
„Nemoc se neprojevuje nijak dramaticky, a pr\u00e1v\u011b proto b\u00fdv\u00e1 \u010dasto odhalena pozd\u011b. Pacienti tak p\u0159ich\u00e1zej\u00ed v pokro\u010dil\u00fdch stadi\u00edch, kdy u\u017e myelom v\u00e1\u017en\u011b po\u0161kodil jejich zdrav\u00ed,“ uvedl H\u00e1jek. Zhoubn\u00e9 onemocn\u011bn\u00ed plazmatick\u00fdch bun\u011bk v kostn\u00ed d\u0159eni se projevuje chronickou \u00fanavou, bolestmi kost\u00ed nebo \u010dast\u00fdmi infekcemi. Jsou to symptomy, kter\u00e9 si podle p\u0159ednosty lid\u00e9 \u010dasto spojuj\u00ed sp\u00ed\u0161e se st\u00e1rnut\u00edm ne\u017e s rakovinou.<\/p>\n\n\n\n
Diagnostika nen\u00ed podle l\u00e9ka\u0159e slo\u017eit\u00e1. Proto\u017ee ale myelom nen\u00ed p\u0159\u00edli\u0161 b\u011b\u017en\u00e9 onemocn\u011bn\u00ed, \u010dasto se nezjist\u00ed v\u010das. „C\u00edlem je, aby byli pacienti diagnostikov\u00e1ni do t\u0159\u00ed m\u011bs\u00edc\u016f. To se n\u00e1m zat\u00edm neda\u0159\u00ed,“ uvedl H\u00e1jek. Zlep\u0161uj\u00ed se podle n\u011bj ale metody l\u00e9\u010dby nemoci a v posledn\u00edch letech se zna\u010dn\u011b prodlu\u017euje doba p\u0159e\u017eit\u00ed. „D\u00edky metod\u00e1m, jako jsou imunoterapie a biologick\u00e1 l\u00e9\u010dby, se dnes p\u011btilet\u00e9 p\u0159e\u017eit\u00ed bl\u00ed\u017e\u00ed 50 procent\u016fm,“ dodal \u0159editel \u00dastavu zdravotnick\u00fdch informac\u00ed a statistiky Ladislav Du\u0161ek.<\/p>\n\n\n\n
Dostupnost l\u00e9ka\u0159sk\u00e9 p\u00e9\u010de se podle koordin\u00e1torky klubu pacient\u016f s mnoho\u010detn\u00fdm myelomem Alice Onderkov\u00e9 v jednotliv\u00fdch regionech li\u0161\u00ed. Nemocn\u00ed se mohou l\u00e9\u010dit v sedmi univerzitn\u00edch a deseti region\u00e1ln\u00edch centrech, p\u0159\u00edstup k p\u00e9\u010di ale z\u00e1vis\u00ed na m\u00edst\u011b bydli\u0161t\u011b. „V n\u011bkter\u00fdch oblastech doch\u00e1z\u00ed k diagnostick\u00fdm prodlev\u00e1m a pacienti nemaj\u00ed stejn\u00fd p\u0159\u00edstup k inovativn\u00ed l\u00e9\u010db\u011b. Pokud by se poda\u0159ilo tuto situaci zlep\u0161it, po\u010det \u00fasp\u011b\u0161n\u011b l\u00e9\u010den\u00fdch pacient\u016f by mohl b\u00fdt vy\u0161\u0161\u00ed,“ uvedla Onderkov\u00e1.<\/p>\n\n\n\n
Nemoc podle koordin\u00e1torky klubu pacient\u016f z\u00e1sadn\u011b ovliv\u0148uje \u017eivot nemocn\u00fdch. „Ka\u017edodenn\u00ed boj s bolest\u00ed, vy\u010derp\u00e1n\u00edm, opakovan\u00fdmi infekcemi a nejistotou ohledn\u011b budoucnosti je pro nemocn\u00e9 stejn\u011b n\u00e1ro\u010dn\u00fd jako samotn\u00e1 l\u00e9\u010dba,“ popsala Onderkov\u00e1. Pracovn\u00ed schopnost pacient\u016f s myelonem kles\u00e1, n\u011bkte\u0159\u00ed mus\u00ed pob\u00edrat invalidn\u00ed d\u016fchod. Nemoc m\u00e1 dopady na jejich finan\u010dn\u00ed situaci. N\u00e1rodn\u00ed den myelomu tak m\u00e1 podle l\u00e9ka\u0159\u016f a zdravotn\u00edk\u016f p\u0159ipomenout existenci nemoci a pouk\u00e1zat na pot\u0159ebu zlep\u0161it dostupnost l\u00e9\u010dby a p\u00e9\u010de.<\/p>\n\n\n\n
\u010cTK<\/p>\n\n\n\n
Radek Buben\u00ed\u010dek<\/p>\n\n\n\n
Brunt\u00e1lsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/bruntalsky.denik.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" V \u010cesku ka\u017edoro\u010dn\u011b p\u0159ibude p\u0159es 700 nov\u011b diagnostikovan\u00fdch pacient\u016f s mnoho\u010detn\u00fdm myelomem. Druh\u00e1 nej\u010dast\u011bj\u0161\u00ed rakovina krve postihuje zejm\u00e9na seniory ve v\u011bku od 65 do 74 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":19818,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-56000","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/56000","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=56000"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/56000\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/19818"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=56000"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=56000"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=56000"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}